I have crohn's disease and the symptoms were horrible. I was diagnosed a year ago, lost shit loads of weight and looked like a skeleton. Fortunately through medication, exercise and proper diet I feel much better, and there has been a reduction in the inflammation.
I have moderate to severe Crohn's disease. No medication other than Prednisone seems to work. I have tried Humira, Remicade and a myriad of other drugs. I am looking into specific diets for Crohns. What foods should I base my diet off of? I know that everyone is different, but some things work for the majority. What about Cats Claw and other herbs? Which herbs do I need to take, how much do I take and in what form? Help.
i think this is the most stupidest video i have ever seen in my life its totally takin the p*ss out of people who are suffering with crohns wth the whole toilet /roll thing ive had crohns for 10 years and two bowel ops none of the meds work on me i basically have to get on with it and this is the sort of things that make me fuming when i see people putting this stuff on. everytime you ask someone hey you know what crohns is?? they reply oh yerrr its where you s**t yourself all time. thanks alot!
All disease and disorder have cures, but your doctor in American may not be able to share it with you. The AMA and FDA are primarily funded by big business. Americans spend $300 Billion on Pharmaceutical "solutions" that is very much like pulling the Fuse to shut down your "Check Engine" light instead of checking and fixing what is under the hood. Email me (xowiiventura@gmail.com) to learn more about how I CAN absolutely help you with Crohn's. I am very straightforward about this!
I was diagnosed at 13 as having crohn's. Been off medication through strict control of my diet- simple foods, no rubbish junk foods. You just need willpower. I was on a liquid diet for 2 years to get myself better. Doctors have no idea what's going on, but that's not a reason to turn to stupid pseudoscience remedies. Just take what's been proven and based on science.
i read this and i am among the 2 to 28% of the population who suffer from constipation...i have been really lucky though i have had Crohn's Disease for 9 years i got diagnosed with it when i was 14 and i have only had 1 flare up since then and that was 4.5 years ago....i am not taking any medication for it although they prescribed pentasa and entocort for it but i have managed just fine without it!
ive had cd for 5 yrs now .. had a bowel resection 2 yrs ago . and lost 30 cm of small bowel , part of my colon and my appendix ... i now have a huge scar where my great abs used to be .. i hope it is my last surgery but recently developed another fistula caused by the crohn's .. theyve given me more meds to take but so far getting better .. but at least im alive .. i hope everyone with crohns learns to live a normal life despite being cursed with this disease ..
@4chango i tried changing my diet , and also tried different herbs and stuff that were supp to help stop flare ups . but so far nothing worked .. they currently have me on remicade infusions
@TrailBlazersInc Did you try Cat's Claw? It's the most amazing herb ever for Crohn's. It has worked without fail for me; suppressing the most painful intense flares in minutes. This one time I couldn't even walk I was in so much pain, took a dose of 4500mg of Cat's Claw, and then in 10 minutes I was back to normal. IMPORTANT NOTE: when I started Cat's Claw, I only started receiving the beneficial effects at 4000mg. Anything less did practically nothing. And the recommended dose was 1500-500mg.
@socceric17 Uncaria tomentosa actually strengthens the immune system, which is not of any help to people with active disease. The benefits you feel are likely due to the sedative effect caused by high doses. All in all, I find it entirely believable that you'll FEEL better at the time, however, I'd still recommend conventional (ie proven to work) medication alongside it. (To be fair, you didn't state if you'd used Uncaria tomentosa in lieu of other treatment or with it.)
@pamew Actually new studies are finding that Crohn's Disease is caused by a WEAK immune system, not an overactive immune system. And if that's true, it would also explain why some people can suppress their crohn's with high levels of vitamin D and others can suppress their crohn's with fish oil when neither of those have any sedative effects. And nope, I'm not taking any medication besides Uncaria tomentosa and I only take it as needed now as my symptoms have become less severe ^_^
If Crohn's was caused by a weak, under-active immune system, then immune-suppressants would make it worse, not better. Everything you just said is contrary to around 30 years of successful treatment in Crohn's patients. Don't blame anyone but yourself when you end up with a strictured bowel and have to have a bunch of your guts ripped out.
@pamew 30 years of successful treatment? lol that's funny because I can't go a day without hearing a new story about someone's liver getting shot from from their meds, or someone gettting a serious infection like gangrene because their immune system was suppressed, or someone having their entire large intestine removed because their meds weren't working. I didn't switch to alternative medicine for no reason. I switched because modern medicine wasn't working for me.
@socceric17 You know what "alternative medicine" is? It's Medicine that doesn't have enough proof to actually scientifically prove that it works. You don't trust medicine, so you use unproven medicine instead? makes perfect sense...
Secondly, the things you list like liver damage are called "side effects". Like it or not, despite their drawbacks, cortical steroids have by FAR the greatest success rate of any medication.
@pamew No actually alternative medicine is medicine that can't be patented like herbs because they grow in nature. And since you can't patent them, you can't make a huge profit because other people are allowed to sell them too. And since there is no profit behind alternative medicine, pharmaceutical companies don't fund any studies in that area. Additionally, herbs have been used as medicine for thousands of years so to say that alternative medicine is unproven medicine is incredibly ignorant.
2) Naturopathy is rejected close to universally by medical professionals.
Odd that you'd mention greedy corporations making profits. You any idea how much "holistic medicine" makes in profit in the US? Not that "they make profits so it's a conspiracy" is a valid argument to being with.
I guess I can understand your desperation for a sense of salvation, personally I prefer to just go with the most realistic and evidence supported treatment. Your choice.
@pamew U sound like a prednisone dependent. I'd prefer herbs or non-allopathic medicine over conventional medicine such as prednisone any day. Just don't blame the world when you die so young with complications due to overusing conventional meds.
There are arising number of docs who support that Mycobacterium Avium Paratuberculosis as the culprit among CDers. Why do you think Dr. Borody is becoming more recognized? Because his treatment works better than giving corticosteroids all day...
Since being diagnosed at age 13 to now, at age 21, I've only actually had 3 rounds of steroids. So no, not at all. Also I mentioned nothing about what particular treatment I'm on up until this point, making your accusation somewhat blind.
MAP has been found in slightly elevated frequency in people with crohn's. There's no actual evidence of MAP being the root cause however, and the absence of it in many with crohn's disease rules it out completely as a lone cause. This is contrary to your claim of:
"Mycobacterium Avium Paratuberculosis as the culprit among CDers"
"Why do you think Dr. Borody is becoming more recognized?"
argumentum ad populum fallacy, and a poor one at that, as it's still a minority opinion.
@pamew U sure are making me imply that you prefer to live a drug intervening life with complications with what you've said. Don't give me the autoimmune bs b/c there are plenty of people who are gone into stable remission with Dr. Borody's treatment for MAP, alternative treatments, dietary changes, etc.
@Almondx3 "Don't give me the autoimmune bs b/c there are plenty of people who are gone into stable remission with Dr. Borody's treatment "
"plenty of people"? nice qualification there. Also, AGAIN, if Crohn's being at least partially autoimmune is "bs", why are immuno suppressants the most effective treatment? Doctor borody's course is hardly groundbreaking, antibiotics have been used to treat crohn's induced infection for years.
@Almondx3 "U sure are making me imply that you prefer to live a drug intervening life with complications with what you've said."
I can't MAKE you imply anything. You simply stated that I "sounded like a prednisone dependant" and when challenged, failed to provide any good reason why you had come to this conclusion. I also haven't suffered any complications as of yet, so wrong yet again.
@pamew And just because the doctors think that its cause is idiopathic doesn't make it true. You can't take a biopsy of every single cell that's inflamed in the digestive tract and confirm whether it has been infected with CMV or MAP.
Not saying that THIS is the primary cause/trigger of the disease because every individual with this disease manifests with different color.
There's a limit to how much much our medical system can offer for this disease. It's not like a broken arm.
@pamew And really? You must be taking the logic course, which I took two years ago, in college. You seem to stray away from the point instead you attack the flaws of the structure of an argument. You can practice plenty of this if you are preparing for the LSAT.
Let me know if you are taking the MCAT, I can help you with that.
@pamew Aspirin is not an herb. Herbs contain a variety of chemicals that all work together to help the body. This is why herbs are better. Aspirin is just one of those chemicals in the herb. Would you call a Vitamin C supplement a fruit because there's a large abundance of it in fruits? No you wouldn't. Would you say a Vitamin C supplement is just as healthy as eating an orange? No you wouldn't. Why? Because oranges contain a lot of different chemicals that helps your body in many ways.
2) Yes, you also get healthy nutrition from eating an orange, but you get less vitamin C per dose. Which makes it less efficient for treating a vitamin C deficiency.
Much in the same way that you can use willow bark to treat headaches, but commercial aspirin is more efficient. If you're treating a specific condition, the best medication is one which specifically targets said condition at the highest level of efficiency. And we have a word for that. It's called "medicine."
3) quite a few patented medications have their roots in those *natural* compounds you keep harping on about. Clever men in labcoats realised that if you isolate the relevant compound, you can get a much more effective per weight product than you would by simply ingesting the entire source.
I notice you appear to have abandoned your argument from antiquity at this stage, at least you seem to have (somewhat tacitly) acknowledged your mistake with that one.
I would recommend using Cat's Claw. It's a herb that reduces inflammation, relaxes muscles, improves immune system, fights free radicals, and lowers blood pressure. I got off all my medication for Crohn's by just taking this one simple herb at 4000mg/day. If you are unhappy with Crohn's please please please research this miracle herb. It has completely changed my life. You can probably find it at a local health store but if not, you can find it online at numerous sites.
im realy tiered of crohn's dissease , alot of pain alot of tablets alot of times going to the doctor but what can i do i just hope that they find a cure for this beucase trust me people that say crohn's dissease is nothing just try it and then talk beucase im one of the people that get alot of pains in my stomach and alot of blood from u now where ive been in 2 surgery but im thank full that im still alive i just hope they find a cure for it and save everyone with crohn's dissease:S
Hang in there everybody ,I've had it for 30 years now,4 major surgeries,Life was hell being sick, 1995 ilostomy surgery was last resort, life is ok again.Hope one day they find a cure.
CD + MC since I am 18 ........ileostoma when i was 30 ..........now I am 47 and I love every minute of my life ........ hugh's and kisses from Bluesky
my doctors think i have it. there not 100% sure but they think it is. my only symptom was blood. im 14 and don't know too much about it. the only procedure ive had was a colonoscopy for it.... not fun lol
I like the pictures of the toilets. LOL So true. Thats one of the reasons we got a camper so there was always a toilet nearby on are camping trips. Even with a toilet nearby u just never no when your chrohns will give u a embarrising moment.
@leann824 Lol its soo embarrising Ur soo right!! and i think ill never gona get married in life tho ...anyway the person who has Crohn is livin life like a tree
This comment has received too many negative votesshow
Man quit all your whining!!! Ive had crohns for 4 years, Im a highschool varsity wrestler and we are the STATE CHAMPS, so what your stomach hurts? too badd!! try dealing with it while not eating, running in a sauna suit cutting weight... not fun but whose complaining? GET on Remicade and GET on with your life
I think you're being a bit unreasonable. Not all cases of crohn's disease are the same, so it's unfair to be so judgemental. It actually causes a great deal of stress for a lot of people so I'm happy that you are managing your case with such success but this it's not that easy with other patients. I would avoid making such claims. Just my opinion though.
i was diaognised with Crohns Disease last April,2008. For few months i was on pentesa but i found that it did not help me. I ordered a Yoga DVD of Baba Ramdev for stomach ailments and tried yogasan and prayanam everyday. i am feeling better. I also read so many books on Natural Hygeine and one of them is Self Healing by David Klein. Please read this book. I am performing well without any medication. Just trust on God & God may bless you all. if you need to contact me please contact me.
@imx4uxxx I'm 13 & have Crohn's disease I take pentasa also... it's helped for a while but I am still always sick and constantly losing weight and getting sick any suggestions?
@SaphireInk If you can afford it try Lialda. There's a ton of different medications out there and it's sort of a hit or miss with most of them. The IV treatment remicade might also be an option. Most importantly is your diet though. Get a high quality juicer and start juicing a bunch of vegetables and also start making Brasco Broth (google it). That stuff will do wonders! Good luck!
oh and I was diagnosed when I was 10 and am now 20
research (maladie inflamatoire)kimberly..I got colitis + intestins,stomacs problems...since 2007 I'm in hospital most last two years...this week I battle for my life for the 6 times...don't know if i will lose the batlle or not?? that sickness is to strong to fight. i'm 16 years old miss two years of school, i had 14 opérations and will have the 15 opérations on monday. right now i'm the only case of my sickness in Canada! so hopefully will stay alive and live a life one of these days..
good vid i'v had crohnsfor like 9 yrs now.been in hosp dozens of times its a epic jurney lol i got refered to the university of thexas southwest medical center back in may they got some awsome things there..like 4d ct scan no more scope for me ha ha ah ppl think that i am fine till i drop 160lbs in like 4 months.....a pic or vid is worth 10000000000000000 words.....
i was Diagnosed with CD when i was 16, im now 21 luckily i have been VERY fortunate and have flare ups maybe one every 6 months but i just pop afew prednislone and its all good again, other than that im on mecaptapurine and mesalazine each day. My worst flare up 3 years ago i went into hosptial at 56kg's and came out weighing 33kg, i have since returned to my original 56 ... although it took ALONG time, aiming for 65 now :) ... get better my comrad in arms !
I got an abscess on my ass the size of a tennis ball. I needed surgery After the surgeon cut me open she stuffed my wound with gauze. every day for a month after a nurse had to come to my house n pulled the gauze out and put clean gauze in. very PAINFUL.
wow and i thought my crohns was bad. all i have had is a foot of small intestines removed and they even took my apendix the robbing bastards. At the worst parts of my crohns history i was on 2 macaptapurine tablets, 8 pentasa some steroids and iron tablets. That was 2 years ago no, im not too bad now i have the occasional flare ups but they only last about 24hours at a time. But i would rather have tablets then surgery again. To all my Crohnies out there keep your chin up!!!!!!!!!!!!!!!!!!!!!!!!
i had crohn' s for 19 yrs im 31 now. i had 2 surgery s losing 3 ft of my intestnes. Im addicted to oxycontin i take two 80mg tablets a day for the pain. Its an everyday battle and hopefully they ll cure this one day. Stay strong!
Hey peeps! Have anyone had drug induced Lupus from having infliximab infusions? I was told it's kinda rare, it happened to me which is a nigtmare as it worked wonders for my crohns but caused so much other unwanted probs lol....typical!
what kills me the most is the mass number of ignorant people. I mean, it's only your body and your health, no big deal! (catch the sarcasm) but the thing is, people like to use the excuse "well, the doctor never told me." if you're an adult, you need to know that maybe you aren't asking the right questions. If you ask, they will tell you! My fiances cousins g/f, has lupus, and has had it for years, and the entire time, she thought there was only one type of lupus....ignorance is bliss.
As Crohn's can be very painful...I am fully addicted to vicodin. It's fucking horrable! I don't know which is worse, the pain the withdraws or dealing with life struggling between the two. I had a bowel resetion and a colostomy bag for a year or so...since reversed.
I can't spell by the way so if you are going to rip on me for it...fuck off. Anyway I'm drunk as shit to escape the pain right now. Thanks for the video~!
Aww bless you. I know exactly what you mean, with all of it. I also had withdrawals when i came off alot of stuff including MST tablets but now im on Oramorph. Anyhow all the best :o}
I have crohns disease and it is not fun at all. Find the right GI Doctor and the right surgeon and take meds as necessary. Keep up on the latest news. Be aware and be careful and know all you can to stay well.
Hey, I suffer with Crohns, I have been on various medications and trials, so far I have not had surgery apart from removal of my appendix as it was affecting my intestines.....I hate this condition...It depresses me so much!
This is a great video. I have had Crohn's for about 5 months and i hate it! i would die for some BBQ ribs. lol. But thank goodness for Imuran, entecort, and my millions of vitamins. :)
i poop funny do to chrons, i now have explosive diareha, i have done 3 house clearings and broke 1 toilet in my time with chrons, i dry heave almost everytime i shit because the putrid smell is so bad, i now have to take this pill tht i stick up my anal cavity every night for the next 21 nights, it will be hell and i dont know if i could make it
i've had crohn's for 3 years now, and it's horrible. it's severe physical and mental pain. and i felt all alone with my hideous scars, and tons of medications.
thanks for making the video!
if anyone wants to talk about crohn's send me a youtube message ;)
this is the absolute best thing i've seen since my ostomy was done in 01....i've hidden my belly for so long b/c of the same railroad tracks i've seen here....i'm so glad i'm not alone....i can't thank you enough
i have had surgery and a very intense case... i ve had numerous "camera" tests.... im in great shape now and healthy still have my ups and down but overall healthy!,.. u ever have anything to say or any question please feel free to ask
A good place to get help with Crohn's disease is crohnssociety (dot) com. Its a community site established to help people diagnosed with Crohn's disease.
same here bro but i had to take 9 pillz 3 b4 school 3 when i got home a 3 when i go 2 bed, when i say it hurts my parents let me stay home from school but they'll never understand when it feels like.
@Avenuezy i have had crohns for almost a decade now and i have been through it all. at the end of the day when you're feeling good (like i am now) the only thing is to be grateful. Positive thinking can go along way my friend
my latest blood test results were not good. i was being hysterical, i acted like it was the end of the world. i am NOT down to be poked twice a week. who DOES want to be poked? i decided to try a natural path because i know there are other answers out there besides committing suicide. though it doesn't make a difference since i have been living in hell my whole life..
just been diagnosed with chrones disease. there hitting it with everything theyve got though. on steroids, immunosuppressants and on elemental 028 until christmas then its the lofflux diet for me! this disease is awful, i was luck though, only took two months for it to be found out! in that time i lost a stone and am now 5,9 but weigh only 6,10 stone if it carries on im going to be hospitalised over christmas. and im only 15!!
I am having a colonoscopy today to take a third look at my inflamed ileum. This disease takes a lot out of a person. It is particularly painful when it invades the roof of one's mouth. Ouchie.
I was diagnosed 7 years ago at age 16 - 3 operations later and still not settled. Don't know anyone else with it. My friends are sympathetic but they will never truly understand how debilitating this is
i was diagnosed with crohns on thursday 1 december and i haft to drink nothing but basically milkshake ,no food for 8 weeks including christmas and i am only 13
i was diagnosed with crohns 3 weeks ago finally after months of diareha and weight loss, it sucks and i hate it, my father aunt and uncle all have it and didn't didn't get it till their late 20's i'm onlyt 21 and have two litte girls to look after A CURE MUST BE FOUND!!!!
Talk to your Dr and get medical marijuana it has helped me and nothing else would. I have yet to go under the knife.I only wish I had talked to my Dr. about it sooner.
i was diagnosed with crohns when i was 12 since then i've been emitted to the hospital 3 times and i've also undergone laproscopic (spelling) surgery, since surgery, knock on wood, i've felt virtually cured
hope eveyrone with this disease can feel as well as i've been doing
i was just diagnosed with chrons on thursday. sucks im only 17. i had to get a CAT scan because i have been having lots of pain on the right side of my belly for about 3 months which was thought to be from ovarian cysts, anyways they thought i had apendicitis but when i was in the hospital they said it was chrons. i dont need surgery thank god, i hope the meds help quick because i cant stand being in this pain.
thanks loved that one i to have it been 11 years now and have 3 kids so you too can have a almost normal life keep up the fight al of you from kissabell in australia
I have had crohns for 7 years. I was diagnosed in 2001 when i was 12. The first couple of years were tough. I lost alot of weight and had to be fed by a tube. I was told in 2005 that I needed surgery. This was the best decision of my life. I had it on a Wednesday and was out six days later. That was three years ago and I have not had any problems since. Anyone who wants advice can just ask on my profile!!
I have had crohns for 7 years. I was diagnosed in 2001 when i was 12. The first couple of years were tough. I lost alot of weight and had to be fed by a tube. I was told in 2005 that I needed surgery. This was the best decision of my life. I had it on a Wednesday and was out six days later. That was three years ago and I have not had any problems since. Anyone who wants advice can just ask.
linds92 i was 13 when i was diagnosed and my xmas was worse den ur prolly i got all this new snowboard stuff that i couldnt use was enimic cuz i was bleeding and now i cant do any of the sports i used to do so yeah it hasnt been a year yet even and i was on prednisone or w/e and now i have knee pain i cant wait till i go into remission it will be so much fun !!!!!!!
I got crohns and its pretty bad ive only had it for 3 years and i got really depressed and did stuff that i regret but then a girl just recently came into my life and she doesnt care about my illness she cares about me and i promised that i wont go anywhere. Someday there will be a cure!!!
Got crohns myself, diagnosed Nov 2007....very thought provoking this video. Agree with comments re prednisone, plays havoc with you does'nt it. My crohns starting to settle into remission again with Aziothripine. 5 flare-ups since xmas eve (that was some xmas day!!). Theres a study into the causes of Crohns starting now by University King's College London, watch out for the results of it in the next few years.
lol i have quite the pharmacy going on my kitchen counter too... The steroids suck, gives me horrible chest and neck acne and make me want to keep moving all the time and like wiggle my fingers and tap my feet like a crazy person lol. And as much as I dont want to eat they give me a huge freakin appetite lol
not that many people know about CD which kinda stinks because you can't really talk about it that much with understanding people, like i don't know anyone my age with crohn's in my town..
i got crohns disease on october 2007 i was 13 now im 14 but this hurts like hell im right now stuck in the hospital for pains i drink 21 pills a day for this crappy disease i get locked up in the hospital 2 times every month for a week i hate this shit but owell this is in gods hands now he does what hes does for a reson well bu bye yall
Hello, I was diagnosed with CD before my 14th birthday, now a while later I have been getting small itchy bumps on my behind and neck near the chest, My friends and i went throuh a manhole sewer tunnel and I was wondering if its from CD or from crohns, someone please answer me. TY
i dont know what going into a sewer has to do with anything but the steroids can give you those "little bumps" if you are on them... Just acne but it can be irritating and look like a rash
Great video, i was diagnosed with this afawl disease 8 years ago. i no what you are going through. Good luck with everyone who is going through this disease.
Its said no one knows what causes crohns but I "KNOW" one cause!!! Huffing! I huffed/inhaild blast off aka that caned air to get high. It gave me crohns when I was 15 first affecting my throat and then making it to my intestanse 6 months lator.
my symptoms started the first time i got drunk when i was 13, does that have anything to do with it do you think? considering its supposed to start when your immune system over-reacts to certain substances...
I have had Crohns for almost 9 years, but am in some kind of lucky renmission the last few months, but I wonder what's next. Hopefully surgeries will become less needed, because there were 2 new disease-modyfing (not steroids) drugs for Crohns made available in the last few months, one is Cimzia a TNF-drug, and the other is Tysabri, which has a new approach. Surgery is the last thing we want.
I know what its like i was diagnosed when i was 9 years old and im 15 now. I know what every ones going through and how though it is, i myself have had 3 surgeries and have taken many very expensive medications ..
For all you out there the PROBIOTIC im on now is called florastore its great no presription need and not very expensive its changed my life maybe it will change yours?
yeah i've been messing with it for about a year now and its still severe, if i'm not better by 10 weeks they're pushing for surgery. scars the shit out of me (no pun intended) i'm only 16
I don't have crohn's nor do i know anyone with it but it looks very painful and the video was very touching i'm sorry to those who have it and have two word's of encouragement keep fighting!
Thank you for the video, even though I dont like country music I found the toilet pics funny, I have been fighting severe CD for over a year and am only know finally entering remission, its been hell and painfull
I have crohn's disease and the symptoms were horrible. I was diagnosed a year ago, lost shit loads of weight and looked like a skeleton. Fortunately through medication, exercise and proper diet I feel much better, and there has been a reduction in the inflammation.
ochasca 1 week ago
you guys are all drifting away from what it's all about....stop all this "one upmanship" and get back to Crohn's
mickeytuf 1 month ago
This has been flagged as spam show
I have moderate to severe Crohn's disease. No medication other than Prednisone seems to work. I have tried Humira, Remicade and a myriad of other drugs. I am looking into specific diets for Crohns. What foods should I base my diet off of? I know that everyone is different, but some things work for the majority. What about Cats Claw and other herbs? Which herbs do I need to take, how much do I take and in what form? Help.
mguruj 5 months ago
Imagine not having access to medical coverage. Some people think not all kids deserve access to treatment.
zigzigerblat 1 year ago
I have crohns to I am only nine and I got it when I was 6 and I had surjery when I was 8 It is so painful and my dad has it.
reptilesrock23 1 year ago
and you should research your illness cos you clearly know jack s**t about it
supercinderella25 1 year ago
i think this is the most stupidest video i have ever seen in my life its totally takin the p*ss out of people who are suffering with crohns wth the whole toilet /roll thing ive had crohns for 10 years and two bowel ops none of the meds work on me i basically have to get on with it and this is the sort of things that make me fuming when i see people putting this stuff on. everytime you ask someone hey you know what crohns is?? they reply oh yerrr its where you s**t yourself all time. thanks alot!
supercinderella25 1 year ago
This has been flagged as spam show
All disease and disorder have cures, but your doctor in American may not be able to share it with you. The AMA and FDA are primarily funded by big business. Americans spend $300 Billion on Pharmaceutical "solutions" that is very much like pulling the Fuse to shut down your "Check Engine" light instead of checking and fixing what is under the hood. Email me (xowiiventura@gmail.com) to learn more about how I CAN absolutely help you with Crohn's. I am very straightforward about this!
MrSuperfood1 1 year ago
I was diagnosed at 13 as having crohn's. Been off medication through strict control of my diet- simple foods, no rubbish junk foods. You just need willpower. I was on a liquid diet for 2 years to get myself better. Doctors have no idea what's going on, but that's not a reason to turn to stupid pseudoscience remedies. Just take what's been proven and based on science.
lumaix 1 year ago
@lumaix
2 years on a liquid diet!!?!?!?!?!?!? mine only lasted 1 and half months
Goalie1995 1 year ago
@Goalie1995 Well that's why I don't get stomach aches ever. I'm pretty much healthy.
lumaix 1 year ago
@Goalie1995 oh yeah and I've never taken meds
lumaix 1 year ago
@lumaix so you're only allowed to eat jello and popscicles for food and u drink juice and pop and clear broth and all that stuff?
xbearcanrockx 8 months ago
i read this and i am among the 2 to 28% of the population who suffer from constipation...i have been really lucky though i have had Crohn's Disease for 9 years i got diagnosed with it when i was 14 and i have only had 1 flare up since then and that was 4.5 years ago....i am not taking any medication for it although they prescribed pentasa and entocort for it but i have managed just fine without it!
jodindjazi07 1 year ago
15,000 + views has certinly raised awareness .
raw veggie juicing has helped me so much, cabbage too, cutting milk/dairy .....
helped me , mebbe it'll help someone else too, just wanted to say.
luck.
VonLeachim 1 year ago
ive had cd for 5 yrs now .. had a bowel resection 2 yrs ago . and lost 30 cm of small bowel , part of my colon and my appendix ... i now have a huge scar where my great abs used to be .. i hope it is my last surgery but recently developed another fistula caused by the crohn's .. theyve given me more meds to take but so far getting better .. but at least im alive .. i hope everyone with crohns learns to live a normal life despite being cursed with this disease ..
TrailBlazersInc 1 year ago
@TrailBlazersInc: Have you tried a naturopathic approach?
4chango 11 months ago
@4chango i tried changing my diet , and also tried different herbs and stuff that were supp to help stop flare ups . but so far nothing worked .. they currently have me on remicade infusions
TrailBlazersInc 11 months ago
@TrailBlazersInc: There currently a complete regimen onmy channel in the comment section, that will help.
4chango 11 months ago
@TrailBlazersInc Did you try Cat's Claw? It's the most amazing herb ever for Crohn's. It has worked without fail for me; suppressing the most painful intense flares in minutes. This one time I couldn't even walk I was in so much pain, took a dose of 4500mg of Cat's Claw, and then in 10 minutes I was back to normal. IMPORTANT NOTE: when I started Cat's Claw, I only started receiving the beneficial effects at 4000mg. Anything less did practically nothing. And the recommended dose was 1500-500mg.
socceric17 11 months ago
@socceric17 Uncaria tomentosa actually strengthens the immune system, which is not of any help to people with active disease. The benefits you feel are likely due to the sedative effect caused by high doses. All in all, I find it entirely believable that you'll FEEL better at the time, however, I'd still recommend conventional (ie proven to work) medication alongside it. (To be fair, you didn't state if you'd used Uncaria tomentosa in lieu of other treatment or with it.)
pamew 4 months ago
@pamew Actually new studies are finding that Crohn's Disease is caused by a WEAK immune system, not an overactive immune system. And if that's true, it would also explain why some people can suppress their crohn's with high levels of vitamin D and others can suppress their crohn's with fish oil when neither of those have any sedative effects. And nope, I'm not taking any medication besides Uncaria tomentosa and I only take it as needed now as my symptoms have become less severe ^_^
socceric17 4 months ago
@socceric17 Please talk more crap.
No, seriously, go on.
If Crohn's was caused by a weak, under-active immune system, then immune-suppressants would make it worse, not better. Everything you just said is contrary to around 30 years of successful treatment in Crohn's patients. Don't blame anyone but yourself when you end up with a strictured bowel and have to have a bunch of your guts ripped out.
pamew 4 months ago
@pamew 30 years of successful treatment? lol that's funny because I can't go a day without hearing a new story about someone's liver getting shot from from their meds, or someone gettting a serious infection like gangrene because their immune system was suppressed, or someone having their entire large intestine removed because their meds weren't working. I didn't switch to alternative medicine for no reason. I switched because modern medicine wasn't working for me.
socceric17 4 months ago
@socceric17 You know what "alternative medicine" is? It's Medicine that doesn't have enough proof to actually scientifically prove that it works. You don't trust medicine, so you use unproven medicine instead? makes perfect sense...
Secondly, the things you list like liver damage are called "side effects". Like it or not, despite their drawbacks, cortical steroids have by FAR the greatest success rate of any medication.
pamew 4 months ago
@pamew No actually alternative medicine is medicine that can't be patented like herbs because they grow in nature. And since you can't patent them, you can't make a huge profit because other people are allowed to sell them too. And since there is no profit behind alternative medicine, pharmaceutical companies don't fund any studies in that area. Additionally, herbs have been used as medicine for thousands of years so to say that alternative medicine is unproven medicine is incredibly ignorant.
socceric17 4 months ago
@socceric17 "No actually alternative medicine is medicine that can't be patented like herbs because they grow in nature."
Aspirin.
Penicillin
Both derived from natural sources. Both NOT "alternative" medicine.
"Additionally, herbs have been used as medicine for thousands of years"
1. Argument from antiquity fallacy.
2. People thought the earth was the centre of the universe for years too.
How do you think that ingesting a weaker, more dilute form of the same thing is better?
pamew 4 months ago
2) Naturopathy is rejected close to universally by medical professionals.
Odd that you'd mention greedy corporations making profits. You any idea how much "holistic medicine" makes in profit in the US? Not that "they make profits so it's a conspiracy" is a valid argument to being with.
I guess I can understand your desperation for a sense of salvation, personally I prefer to just go with the most realistic and evidence supported treatment. Your choice.
pamew 4 months ago
@pamew U sound like a prednisone dependent. I'd prefer herbs or non-allopathic medicine over conventional medicine such as prednisone any day. Just don't blame the world when you die so young with complications due to overusing conventional meds.
There are arising number of docs who support that Mycobacterium Avium Paratuberculosis as the culprit among CDers. Why do you think Dr. Borody is becoming more recognized? Because his treatment works better than giving corticosteroids all day...
Almondx3 4 months ago
@Almondx3 "U sound like a prednisone dependent"
Since being diagnosed at age 13 to now, at age 21, I've only actually had 3 rounds of steroids. So no, not at all. Also I mentioned nothing about what particular treatment I'm on up until this point, making your accusation somewhat blind.
As to your claims regarding myco... (continued)
pamew 4 months ago
2)
MAP has been found in slightly elevated frequency in people with crohn's. There's no actual evidence of MAP being the root cause however, and the absence of it in many with crohn's disease rules it out completely as a lone cause. This is contrary to your claim of:
"Mycobacterium Avium Paratuberculosis as the culprit among CDers"
"Why do you think Dr. Borody is becoming more recognized?"
argumentum ad populum fallacy, and a poor one at that, as it's still a minority opinion.
pamew 4 months ago
@pamew U sure are making me imply that you prefer to live a drug intervening life with complications with what you've said. Don't give me the autoimmune bs b/c there are plenty of people who are gone into stable remission with Dr. Borody's treatment for MAP, alternative treatments, dietary changes, etc.
Almondx3 4 months ago
This has been flagged as spam show
@Almondx3 "Don't give me the autoimmune bs b/c there are plenty of people who are gone into stable remission with Dr. Borody's treatment "
"plenty of people"? nice qualification there. Also, AGAIN, if Crohn's being at least partially autoimmune is "bs", why are immuno suppressants the most effective treatment? Doctor borody's course is hardly groundbreaking, antibiotics have been used to treat crohn's induced infection for years.
pamew 4 months ago
@Almondx3 "U sure are making me imply that you prefer to live a drug intervening life with complications with what you've said."
I can't MAKE you imply anything. You simply stated that I "sounded like a prednisone dependant" and when challenged, failed to provide any good reason why you had come to this conclusion. I also haven't suffered any complications as of yet, so wrong yet again.
pamew 4 months ago
@pamew And just because the doctors think that its cause is idiopathic doesn't make it true. You can't take a biopsy of every single cell that's inflamed in the digestive tract and confirm whether it has been infected with CMV or MAP.
Not saying that THIS is the primary cause/trigger of the disease because every individual with this disease manifests with different color.
There's a limit to how much much our medical system can offer for this disease. It's not like a broken arm.
Almondx3 4 months ago
@Almondx3 "And just because the doctors think that its cause is idiopathic doesn't make it true."
"idiopathic" simply means "arising from an unknown cause".
The exact mechanism(s) that causes Crohn's have not been isolated. This means it is idiopathic. This is not a matter of debate.
pamew 4 months ago
@pamew And really? You must be taking the logic course, which I took two years ago, in college. You seem to stray away from the point instead you attack the flaws of the structure of an argument. You can practice plenty of this if you are preparing for the LSAT.
Let me know if you are taking the MCAT, I can help you with that.
Almondx3 4 months ago
@Almondx3 "You seem to stray away from the point instead you attack the flaws of the structure of an argument."
Haha, oh wow...
"you attack the flaws of the structure of an argument."
Yes, because if an argument is built on logical fallacies, it is not a valid argument. The clue is in "fallacies."
"You must be taking the logic course, which I took two years ago, in college"
Nice attempt at another ad hominem, implying that I'm behind you in terms of education.
pamew 4 months ago
@pamew Aspirin is not an herb. Herbs contain a variety of chemicals that all work together to help the body. This is why herbs are better. Aspirin is just one of those chemicals in the herb. Would you call a Vitamin C supplement a fruit because there's a large abundance of it in fruits? No you wouldn't. Would you say a Vitamin C supplement is just as healthy as eating an orange? No you wouldn't. Why? Because oranges contain a lot of different chemicals that helps your body in many ways.
socceric17 4 months ago
@socceric17
"Aspirin is not an herb"
Strawman. Didn't say it was. You however, said this:
"that can't be patented like herbs because they *grow in nature*."
I think you'll find that the bark of the willow tree is in fact natural. "like herbs" doesn't mean "exclusively herbs". Get your wording right.
"Would you say a Vitamin C supplement is just as healthy as eating an orange?"
If I was treating a vitamin C deficiency, pure vitamin C would be the better option. (continued)
pamew 4 months ago
2) Yes, you also get healthy nutrition from eating an orange, but you get less vitamin C per dose. Which makes it less efficient for treating a vitamin C deficiency.
Much in the same way that you can use willow bark to treat headaches, but commercial aspirin is more efficient. If you're treating a specific condition, the best medication is one which specifically targets said condition at the highest level of efficiency. And we have a word for that. It's called "medicine."
pamew 4 months ago
3) quite a few patented medications have their roots in those *natural* compounds you keep harping on about. Clever men in labcoats realised that if you isolate the relevant compound, you can get a much more effective per weight product than you would by simply ingesting the entire source.
I notice you appear to have abandoned your argument from antiquity at this stage, at least you seem to have (somewhat tacitly) acknowledged your mistake with that one.
pamew 4 months ago
I would recommend using Cat's Claw. It's a herb that reduces inflammation, relaxes muscles, improves immune system, fights free radicals, and lowers blood pressure. I got off all my medication for Crohn's by just taking this one simple herb at 4000mg/day. If you are unhappy with Crohn's please please please research this miracle herb. It has completely changed my life. You can probably find it at a local health store but if not, you can find it online at numerous sites.
socceric17 1 year ago
Check out "The Community Crohn's Foundation" fan page on Facebook and become a fan!! Thanks and best of luck with everyone battling this disease!!
rmeyer10 1 year ago
im realy tiered of crohn's dissease , alot of pain alot of tablets alot of times going to the doctor but what can i do i just hope that they find a cure for this beucase trust me people that say crohn's dissease is nothing just try it and then talk beucase im one of the people that get alot of pains in my stomach and alot of blood from u now where ive been in 2 surgery but im thank full that im still alive i just hope they find a cure for it and save everyone with crohn's dissease:S
lolchicken123 1 year ago
excellent
vinbah 1 year ago
@dabu The song is by Classic Case-song is-Intoa Nightmare
Jesse6566 1 year ago
Sadly my brother is only 12 and he got CD when he was 8 years old.
P.S Diarrhea is not a form on CD, CD only has one form, CD. It can Range from mild to severe. My brother has severe.
Jesse6566 1 year ago
im 19 and i have been having pains for years and now they tel me its CD and i dont know what im goin to do.
paullydogg 1 year ago
Hang in there everybody ,I've had it for 30 years now,4 major surgeries,Life was hell being sick, 1995 ilostomy surgery was last resort, life is ok again.Hope one day they find a cure.
62river 1 year ago
Fucking hope they find a curee i hate seeing people like this ! x
tiaacourtneebabiiee 1 year ago
This has been flagged as spam show
a journey through seven shades of brown
howtobeatcrohns(.)blogspot(.)com
blackmarbel 1 year ago
CD + MC since I am 18 ........ileostoma when i was 30 ..........now I am 47 and I love every minute of my life ........ hugh's and kisses from Bluesky
Bluesky476232 1 year ago
my doctors think i have it. there not 100% sure but they think it is. my only symptom was blood. im 14 and don't know too much about it. the only procedure ive had was a colonoscopy for it.... not fun lol
marcussucram36 2 years ago
I also suffer from CD, Here is a great place for people to learn about it and network with other people that have it. Daily Strength . Org
Good Luck Everyone! I know your pain!
~DJ~
djtripp22 2 years ago
Heres a bit more information on Crohns Disease that I found.
theoriesforcrohndisease(.)blogspot(.)com
Hope it helps.
Theprettygentleman 2 years ago
I like the pictures of the toilets. LOL So true. Thats one of the reasons we got a camper so there was always a toilet nearby on are camping trips. Even with a toilet nearby u just never no when your chrohns will give u a embarrising moment.
leann824 2 years ago
@leann824 Lol its soo embarrising Ur soo right!! and i think ill never gona get married in life tho ...anyway the person who has Crohn is livin life like a tree
muthfuckers 2 years ago
i have crohns i am only 11 i have to have my blood taken every 2 weeks and im doing the drugs 5 pills at night and morning
xxsvannah91xx 2 years ago
im not sure if have ibs but iv been bleeding kinda alot thou last 5 mothns ahhh its nastys
tescoskick 2 years ago
i jhave crohns disease i found out last year i had it i was 10 now im, 11
ilovemybabies1000 2 years ago
im not sure what song ... its one of you tubes audio swap ,
skullmaster430 2 years ago
whats the song? great video i commented a while ago when i first got chrons :)
Celeus007 2 years ago
andrew still luv u bra
monsterpartydude 2 years ago 3
Haha thanks bro
Celeus007 2 years ago
This comment has received too many negative votes show
Man quit all your whining!!! Ive had crohns for 4 years, Im a highschool varsity wrestler and we are the STATE CHAMPS, so what your stomach hurts? too badd!! try dealing with it while not eating, running in a sauna suit cutting weight... not fun but whose complaining? GET on Remicade and GET on with your life
EHSJake 2 years ago
I think you're being a bit unreasonable. Not all cases of crohn's disease are the same, so it's unfair to be so judgemental. It actually causes a great deal of stress for a lot of people so I'm happy that you are managing your case with such success but this it's not that easy with other patients. I would avoid making such claims. Just my opinion though.
Furrstone 2 years ago
yea youre a real piece of shit!!! you're lucky to be able to that stuff but your still a fucking asshole
funkkysegaboy 2 years ago
i was diaognised with Crohns Disease last April,2008. For few months i was on pentesa but i found that it did not help me. I ordered a Yoga DVD of Baba Ramdev for stomach ailments and tried yogasan and prayanam everyday. i am feeling better. I also read so many books on Natural Hygeine and one of them is Self Healing by David Klein. Please read this book. I am performing well without any medication. Just trust on God & God may bless you all. if you need to contact me please contact me.
imx4uxxx 2 years ago 3
@imx4uxxx
I'm so glad I got Crohn's disease cause it proves to me even more evolution is true and I'm on the negative side of things and there is no God.
zalanicht 1 year ago
@imx4uxxx I'm 13 & have Crohn's disease I take pentasa also... it's helped for a while but I am still always sick and constantly losing weight and getting sick any suggestions?
SaphireInk 1 year ago
@SaphireInk If you can afford it try Lialda. There's a ton of different medications out there and it's sort of a hit or miss with most of them. The IV treatment remicade might also be an option. Most importantly is your diet though. Get a high quality juicer and start juicing a bunch of vegetables and also start making Brasco Broth (google it). That stuff will do wonders! Good luck!
oh and I was diagnosed when I was 10 and am now 20
lnr08f 11 months ago
research (maladie inflamatoire) 3 videos of my little girl 16 years old who is battling this week for a life for the 6 times..
this time she's so low i don't know if she will win this batlle!?!
16 opération in two years, she got so much cut and also a stomie on stomack so finish bikinis! good dy and luck for ya stay strong!
frankcydelire1 2 years ago
research (maladie inflamatoire)kimberly..I got colitis + intestins,stomacs problems...since 2007 I'm in hospital most last two years...this week I battle for my life for the 6 times...don't know if i will lose the batlle or not?? that sickness is to strong to fight. i'm 16 years old miss two years of school, i had 14 opérations and will have the 15 opérations on monday. right now i'm the only case of my sickness in Canada! so hopefully will stay alive and live a life one of these days..
frankcydelire1 2 years ago
I have uc, I could'nt go to school for weeks on end becuase of the dreadfully painfull cramps.
h8oj 2 years ago
Everyone see that 2:24
mezooo2020 2 years ago
Comment removed
mezooo2020 2 years ago
Ha Ha !!
you are Fucked Now !!
mezooo2020 2 years ago
you are not alone!!
thanks for posting this video... spread the word and check out the music video ft mike mccready from pearl jam on my page
you are not alone
laurenzoebruno 2 years ago
MOS DEF NOT ALONE!
MMAFAN128 2 years ago
good vid i'v had crohnsfor like 9 yrs now.been in hosp dozens of times its a epic jurney lol i got refered to the university of thexas southwest medical center back in may they got some awsome things there..like 4d ct scan no more scope for me ha ha ah ppl think that i am fine till i drop 160lbs in like 4 months.....a pic or vid is worth 10000000000000000 words.....
jacknifedbl 2 years ago
1 word of advice scd diet.....god bless all of yall
babiboi75 2 years ago
i got crohns now and im 11 life aint great it smipy sucks going 2 the loo 24/7 Life Sucks!
ezzodman 2 years ago
ate i know how u feel i dound out i had crohns when i was 9 or 10 im 16 now so ive had it a long time
so i know wot ur going thru
rudeboy41493 2 years ago
its so different to each and everyone of us.geez!!will there ever find a miracle cure?I am so depresed that i'll live a life like this...
bi8koto 2 years ago
i was Diagnosed with CD when i was 16, im now 21 luckily i have been VERY fortunate and have flare ups maybe one every 6 months but i just pop afew prednislone and its all good again, other than that im on mecaptapurine and mesalazine each day. My worst flare up 3 years ago i went into hosptial at 56kg's and came out weighing 33kg, i have since returned to my original 56 ... although it took ALONG time, aiming for 65 now :) ... get better my comrad in arms !
Pnutnutty 2 years ago
i thought my crohns was bad
i was diagnosed in october 2008 (im 12)
i just wish my classmates could understand the illness but not one of them has the brain capacity to do so
and i would like some GOOD medicine
the docs have given me a load of shit like prednisolone pentasa asacol
all of which didn't work out
im on antiobiotics now but they're doing nowt
zambrano97 2 years ago
hay im on pentasa now lol
im on 2 diff types of medicon a day
it suck taking it al the time and if i miss it im always ill
rudeboy41493 2 years ago
same same
HEYTUBEMAN101 2 years ago
I HATE THE PENTASA LOL SO MANY
MMAFAN128 2 years ago
I was just diagnosed on 1/12/2009 (I'm 15)
I got an abscess on my ass the size of a tennis ball. I needed surgery After the surgeon cut me open she stuffed my wound with gauze. every day for a month after a nurse had to come to my house n pulled the gauze out and put clean gauze in. very PAINFUL.
taymx41 2 years ago
Hey guys i know how you all feel i was diagnosed with crohns colitis when i was
15 im now 23 ive tried just about every medication. Ive had 2 lots of surgery, Im now on Humira which unfortunately isnt helping much either.
shadsfan85 2 years ago
o and by the way i was diagnosed at 16 surgery around 17th Bday and now 20! Family Guy helps!
uloveit666 2 years ago
wow and i thought my crohns was bad. all i have had is a foot of small intestines removed and they even took my apendix the robbing bastards. At the worst parts of my crohns history i was on 2 macaptapurine tablets, 8 pentasa some steroids and iron tablets. That was 2 years ago no, im not too bad now i have the occasional flare ups but they only last about 24hours at a time. But i would rather have tablets then surgery again. To all my Crohnies out there keep your chin up!!!!!!!!!!!!!!!!!!!!!!!!
uloveit666 2 years ago
i had crohn' s for 19 yrs im 31 now. i had 2 surgery s losing 3 ft of my intestnes. Im addicted to oxycontin i take two 80mg tablets a day for the pain. Its an everyday battle and hopefully they ll cure this one day. Stay strong!
bdouble1005 2 years ago
Hey peeps! Have anyone had drug induced Lupus from having infliximab infusions? I was told it's kinda rare, it happened to me which is a nigtmare as it worked wonders for my crohns but caused so much other unwanted probs lol....typical!
amy19850 2 years ago
unfortunately...drug induced lupus is actually more common than people know. very sad ;-(
katiekins77 2 years ago
thats right you dont get lupus you causes it and dairy is another big cause animal base diets kill or disease people
spottyman 1 year ago
what kills me the most is the mass number of ignorant people. I mean, it's only your body and your health, no big deal! (catch the sarcasm) but the thing is, people like to use the excuse "well, the doctor never told me." if you're an adult, you need to know that maybe you aren't asking the right questions. If you ask, they will tell you! My fiances cousins g/f, has lupus, and has had it for years, and the entire time, she thought there was only one type of lupus....ignorance is bliss.
katiekins77 1 year ago
perfect fucking song by the way....
bigpooper28 2 years ago
As Crohn's can be very painful...I am fully addicted to vicodin. It's fucking horrable! I don't know which is worse, the pain the withdraws or dealing with life struggling between the two. I had a bowel resetion and a colostomy bag for a year or so...since reversed.
I can't spell by the way so if you are going to rip on me for it...fuck off. Anyway I'm drunk as shit to escape the pain right now. Thanks for the video~!
bigpooper28 2 years ago
Aww bless you. I know exactly what you mean, with all of it. I also had withdrawals when i came off alot of stuff including MST tablets but now im on Oramorph. Anyhow all the best :o}
amy19850 2 years ago
Comment removed
camaroconasaur 2 years ago
I have crohns disease and it is not fun at all. Find the right GI Doctor and the right surgeon and take meds as necessary. Keep up on the latest news. Be aware and be careful and know all you can to stay well.
PENWESTERN 2 years ago
Hey, I suffer with Crohns, I have been on various medications and trials, so far I have not had surgery apart from removal of my appendix as it was affecting my intestines.....I hate this condition...It depresses me so much!
VampireVolkova 2 years ago
This is a great video. I have had Crohn's for about 5 months and i hate it! i would die for some BBQ ribs. lol. But thank goodness for Imuran, entecort, and my millions of vitamins. :)
KendallGrace1023 2 years ago 2
have you guys tried remicade yet? it really worked well for me. i hope the best for you all.
bostonceltz 2 years ago
im done.FTW an all the shit in it
weaverfever55 3 years ago
im on prednisone and my face is all puffy and people make fun of me cause its puffy and i hate it
Celeus007 3 years ago 2
i poop funny do to chrons, i now have explosive diareha, i have done 3 house clearings and broke 1 toilet in my time with chrons, i dry heave almost everytime i shit because the putrid smell is so bad, i now have to take this pill tht i stick up my anal cavity every night for the next 21 nights, it will be hell and i dont know if i could make it
twinjydog 3 years ago
r u takin the piss !!
rudeboy41493 2 years ago
I have had Crons for like 9 yrs. Thank you for making the video. It's funny. It's nice to see others with bellys like mine.
Sadeqswife 3 years ago
My heart goes out to u guys. I just lost a chilhood friend to the disease. God bless.
Nay1920 3 years ago
i've had crohn's for 3 years now, and it's horrible. it's severe physical and mental pain. and i felt all alone with my hideous scars, and tons of medications.
thanks for making the video!
if anyone wants to talk about crohn's send me a youtube message ;)
JenniferHipHop 3 years ago
this is the absolute best thing i've seen since my ostomy was done in 01....i've hidden my belly for so long b/c of the same railroad tracks i've seen here....i'm so glad i'm not alone....i can't thank you enough
JoanB70 3 years ago
god i have this as well it scares the hell out of me sometimes and yea makes me really depressed i would do anything to be better for 24 hrs :(
donna2cool 3 years ago
i have crohns disease, not this bad thoughh i havent got surgery.. yet.
mogeyyypoke 3 years ago 2
i hav it as well i aint had any serious surgery yet but i hav had 4camara tests
rudeboy41493 2 years ago
i have had surgery and a very intense case... i ve had numerous "camera" tests.... im in great shape now and healthy still have my ups and down but overall healthy!,.. u ever have anything to say or any question please feel free to ask
MMAFAN128 2 years ago
i had it but how maney surgeries did you have ???
is it better
i have it too
tecana88 1 year ago
A good place to get help with Crohn's disease is crohnssociety (dot) com. Its a community site established to help people diagnosed with Crohn's disease.
WebResearcher 3 years ago
i hope other people don't get this shit, my pills i take might cause fucking cancer
ItachizStory 3 years ago
i just got chohns and found it out yesterday i have to take 6 pills a day it sucks soo bad
Celeus007 3 years ago
same here bro but i had to take 9 pillz 3 b4 school 3 when i got home a 3 when i go 2 bed, when i say it hurts my parents let me stay home from school but they'll never understand when it feels like.
ItachizStory 3 years ago
dont worry man the medication they have now is great. do what your doctor says and eat right, everything will be ok
phillyctheman 3 years ago
@phillyctheman LOL, if that was true, i and a lot of people would feel soooo much better.
Avenuezy 9 months ago
@Avenuezy i have had crohns for almost a decade now and i have been through it all. at the end of the day when you're feeling good (like i am now) the only thing is to be grateful. Positive thinking can go along way my friend
phillyctheman 9 months ago
@phillyctheman how do you manage?
my latest blood test results were not good. i was being hysterical, i acted like it was the end of the world. i am NOT down to be poked twice a week. who DOES want to be poked? i decided to try a natural path because i know there are other answers out there besides committing suicide. though it doesn't make a difference since i have been living in hell my whole life..
xbearcanrockx 8 months ago
just been diagnosed with chrones disease. there hitting it with everything theyve got though. on steroids, immunosuppressants and on elemental 028 until christmas then its the lofflux diet for me! this disease is awful, i was luck though, only took two months for it to be found out! in that time i lost a stone and am now 5,9 but weigh only 6,10 stone if it carries on im going to be hospitalised over christmas. and im only 15!!
mikill27 3 years ago
Professor Borody interview. Must watch.
IBDvideos' channel playlist
IBDvideos 3 years ago
I am having a colonoscopy today to take a third look at my inflamed ileum. This disease takes a lot out of a person. It is particularly painful when it invades the roof of one's mouth. Ouchie.
PENWESTERN 3 years ago
I was diagnosed 7 years ago at age 16 - 3 operations later and still not settled. Don't know anyone else with it. My friends are sympathetic but they will never truly understand how debilitating this is
clarabellenz 3 years ago
i was diagnosed with crohns on thursday 1 december and i haft to drink nothing but basically milkshake ,no food for 8 weeks including christmas and i am only 13
rockprophet123 3 years ago
Check out IBDvideos' channel for more information on Crohn's
IBDvideos 3 years ago
i was diagnosed with crohns 3 weeks ago finally after months of diareha and weight loss, it sucks and i hate it, my father aunt and uncle all have it and didn't didn't get it till their late 20's i'm onlyt 21 and have two litte girls to look after A CURE MUST BE FOUND!!!!
boopboopddedoop 3 years ago
Talk to your Dr and get medical marijuana it has helped me and nothing else would. I have yet to go under the knife.I only wish I had talked to my Dr. about it sooner.
atpuck 3 years ago
i was diagnosed with crohns when i was 12 since then i've been emitted to the hospital 3 times and i've also undergone laproscopic (spelling) surgery, since surgery, knock on wood, i've felt virtually cured
hope eveyrone with this disease can feel as well as i've been doing
kelslikestosmile 3 years ago
i was just diagnosed with chrons on thursday. sucks im only 17. i had to get a CAT scan because i have been having lots of pain on the right side of my belly for about 3 months which was thought to be from ovarian cysts, anyways they thought i had apendicitis but when i was in the hospital they said it was chrons. i dont need surgery thank god, i hope the meds help quick because i cant stand being in this pain.
KirstenBo 3 years ago
Yeah i was diagnosed at the age of 11, drasticly changed my teanage years!!!
been on tablets everyday for 5 years now in and out of hospital about twice every year.
very painful on the right hand side of my stomach aswell! and im only 16 now =[
gonna have it for the rest of my life
GEDovMPK 3 years ago
@KirstenBo: I place a naturopathic approach for chrohn on my channel in the comment section. it will only be posted for a few more days.
4chango 11 months ago
I have had crohns 20 years with more then a dozens surgeries. I must say that vid sums it up beautifully.
draco031978 3 years ago
Love the new song, thanks babe:)
saraisstrange 3 years ago
none of the pills work for me:(
taffy992 3 years ago
Me either. I just started Humira at the end of July, and it's not really working, either.
partyweetow 3 years ago
I've lived with Crohn's disease for 20 years. Never had to have surgery, been in remission level control for about 10 years now.
argent00 3 years ago
realy
what kind of crohns do you have ???
what do you take ???
tecana88 1 year ago
i was diagnosed with this dreadful disease in 2002-2 ops later and lots of appointments,tests,pills etc i have been clear since then thank goodness.
sharonblondie39 3 years ago
that video made me sad... :) thank you for posting this!
ILikeOWLS 3 years ago
I loved the tribute..very nice.. i have CD for 9 years and 1 surgery 8 years ago and thanx for clip
jack773 3 years ago
thanks loved that one i to have it been 11 years now and have 3 kids so you too can have a almost normal life keep up the fight al of you from kissabell in australia
kissabell6669 3 years ago
i love how u made it a little funny =D made me laugh. thanks
tomelliott9 3 years ago
I have had crohns for 7 years. I was diagnosed in 2001 when i was 12. The first couple of years were tough. I lost alot of weight and had to be fed by a tube. I was told in 2005 that I needed surgery. This was the best decision of my life. I had it on a Wednesday and was out six days later. That was three years ago and I have not had any problems since. Anyone who wants advice can just ask on my profile!!
dompac18 3 years ago
I have had crohns for 7 years. I was diagnosed in 2001 when i was 12. The first couple of years were tough. I lost alot of weight and had to be fed by a tube. I was told in 2005 that I needed surgery. This was the best decision of my life. I had it on a Wednesday and was out six days later. That was three years ago and I have not had any problems since. Anyone who wants advice can just ask.
dompac18 3 years ago
linds92 i was 13 when i was diagnosed and my xmas was worse den ur prolly i got all this new snowboard stuff that i couldnt use was enimic cuz i was bleeding and now i cant do any of the sports i used to do so yeah it hasnt been a year yet even and i was on prednisone or w/e and now i have knee pain i cant wait till i go into remission it will be so much fun !!!!!!!
helobro1 3 years ago
17 years of severe CD... and still kicking. If you haven't yet find yourself a local CCFA support group. If your town doesn't have one, start one!
billndollarbaby 3 years ago
I got crohns and its pretty bad ive only had it for 3 years and i got really depressed and did stuff that i regret but then a girl just recently came into my life and she doesnt care about my illness she cares about me and i promised that i wont go anywhere. Someday there will be a cure!!!
nathp123 3 years ago
Got crohns myself, diagnosed Nov 2007....very thought provoking this video. Agree with comments re prednisone, plays havoc with you does'nt it. My crohns starting to settle into remission again with Aziothripine. 5 flare-ups since xmas eve (that was some xmas day!!). Theres a study into the causes of Crohns starting now by University King's College London, watch out for the results of it in the next few years.
H8rby 3 years ago
so im not the only one who has a pharmacy of pills at home. LOL. I hate steroids!
jlawless731841 3 years ago
lol i have quite the pharmacy going on my kitchen counter too... The steroids suck, gives me horrible chest and neck acne and make me want to keep moving all the time and like wiggle my fingers and tap my feet like a crazy person lol. And as much as I dont want to eat they give me a huge freakin appetite lol
1benA2 3 years ago
me too! people at school make fun of my face-fat =( i have lots of spots too
tomelliott9 3 years ago
great vid. ugh prednisone... lol
not that many people know about CD which kinda stinks because you can't really talk about it that much with understanding people, like i don't know anyone my age with crohn's in my town..
linds92 3 years ago
i got crohns disease on october 2007 i was 13 now im 14 but this hurts like hell im right now stuck in the hospital for pains i drink 21 pills a day for this crappy disease i get locked up in the hospital 2 times every month for a week i hate this shit but owell this is in gods hands now he does what hes does for a reson well bu bye yall
DarkFatDragon13 3 years ago
Hello, I was diagnosed with CD before my 14th birthday, now a while later I have been getting small itchy bumps on my behind and neck near the chest, My friends and i went throuh a manhole sewer tunnel and I was wondering if its from CD or from crohns, someone please answer me. TY
SM8101 3 years ago
i dont know what going into a sewer has to do with anything but the steroids can give you those "little bumps" if you are on them... Just acne but it can be irritating and look like a rash
1benA2 3 years ago
Great video, i was diagnosed with this afawl disease 8 years ago. i no what you are going through. Good luck with everyone who is going through this disease.
Lejla1028 3 years ago
This vid scared me way more than making me fel good.
getdrunk1990 3 years ago
Its said no one knows what causes crohns but I "KNOW" one cause!!! Huffing! I huffed/inhaild blast off aka that caned air to get high. It gave me crohns when I was 15 first affecting my throat and then making it to my intestanse 6 months lator.
getdrunk1990 3 years ago
Huffing does not cause CD. Do your research. Many of us who have CD have never huffed.
billndollarbaby 3 years ago
my symptoms started the first time i got drunk when i was 13, does that have anything to do with it do you think? considering its supposed to start when your immune system over-reacts to certain substances...
tomelliott9 3 years ago
I have had Crohns for almost 9 years, but am in some kind of lucky renmission the last few months, but I wonder what's next. Hopefully surgeries will become less needed, because there were 2 new disease-modyfing (not steroids) drugs for Crohns made available in the last few months, one is Cimzia a TNF-drug, and the other is Tysabri, which has a new approach. Surgery is the last thing we want.
7mumfred7 3 years ago
Hello fellow suffers and supporters
I know what its like i was diagnosed when i was 9 years old and im 15 now. I know what every ones going through and how though it is, i myself have had 3 surgeries and have taken many very expensive medications ..
For all you out there the PROBIOTIC im on now is called florastore its great no presription need and not very expensive its changed my life maybe it will change yours?
MovieRater9 3 years ago
yeah i've been messing with it for about a year now and its still severe, if i'm not better by 10 weeks they're pushing for surgery. scars the shit out of me (no pun intended) i'm only 16
Foleo3425 3 years ago
I don't have crohn's nor do i know anyone with it but it looks very painful and the video was very touching i'm sorry to those who have it and have two word's of encouragement keep fighting!
Betterballs 3 years ago
Thank you for the video, even though I dont like country music I found the toilet pics funny, I have been fighting severe CD for over a year and am only know finally entering remission, its been hell and painfull
shadess7 3 years ago