Interstitial Cystitis Cystoscopy interstitialcystitis.org.uk

[palomovuela]

I am 22 and I have it too. I have just been diagnosed with it last week. Although it is very painful and my life changed a lot in the last two years, I am finally happy to know what was causing so much pain and I am looking forward to find a cure. I am also looking for people with IC to share experiences about this disease because it helps me to learn more about this. I live in Peru and people have not even heard about this, so I am looking for people with this around the internet.

[SUNMAYDEN518]

a horrendous disease, it ruined my life

[kidofponymaker]

I was diagnosed with IC in 1992..and yes.. I am the "catheter" lady... This disease is horrible and it affects so much more than just your bladder! So many people don't know what it is like to live with this! I have had about 9 of these cysto's. I have to use Catheters when the bladder won't work..and I self cath to get the meds in...to help with the bledding like this shows about 2;17

[artj22850]

Thank you for posting this. I have IC also and this is the only way in which I will get a cystoscopy only under anethsia. Peronally I think the only way it should be done is by hypertestion and under anethsia as this appears to have been done.

[vepr1986]

I have a weak bladder which runs in my family (women only). I am suffering from cystitis and consulted doctors and urologists trying everything possible.

What helped me the most, and I hope it'll help others, are the following things: #1 is cranberry (frozen/ juice/ capsules), ALOE VERA GEL (Forever Living) gave amazing results!!, lots of fluids, absolutely NO spicy/ salty/ sweet foods and NO coffee. Maintain healthy diet, high hygiene and excercise.

Hope it helps and be healthy!

[MsKA007]

I suffered from IC for more than three years. Two of those years it was with intense pain and many symptoms, including kidney pain.

Eventually I cured my IC after taking on a diet with NO alcohol, caffeine or any acidic fruits, as well as cutting out all wheat and dairy. But what helped me most was acupuncture. When all the specialists failed to help me I went to an acupuncturist/herbalist and within 6 months of weekly treatments I was 90% cured. With so few options why not try alternative med?

[lisabug77]

I have Interstitial Cystitis and I didn't have ANY anesthesia for my Cystoscopy. It hurt, but it wasn't unbearable. I have a high pain tolerance, though, and a really good specialist.

I've been suffering for years and now I know what I have. It's not fun. I promise.

[SingingAngel0521]

I finally just got diagnosed with IC and I've been suffering for the last 15yrs.. they tried Elmiron but I have a horrible reaction to it.. the best thing the OB told me was to find a urogynocologist bc a urologist isnt very much help on this matter.. my insurance doesnt cover that specialist so she has to try and do heprin installments..but i think she may try me on Elavil as long as it doesnt react to my other meds.. this is horrible I also have PCOS n gastroparesis.. all very painful.. grr.

[mrsmader]

I have had 4 cystoscopes and the first I was NOT under anastisia, and it was SO bad, I screamed and cried, and now I am having my 5th tomorrow, and I am so scared. I have interstitial cysyitis and I am already very sore and have blood in my urine, so please wish me luck and pray.

[pickles1314]

Why do you need to have more than one? That's horrible, I couldn't walk for two days after mine, it irritated my bladder so much. I'm a little late, by about 5 months, but good luck should you need a 6th.

[StarEleGance04]

Ive had bladder problems since I was 4 and wasnt diagnosed until I was 16. Im now 22 things are better now that Ive had treatments

[die4meandonlyme]

I'm 26 and have dealt with IC since Dec 25 2005. I didn't get diagnosed until Nov 06. I hope to bring awareness of this horrible disease to the many people that have not heard of it, and hope to find a cure! <3

[Morhitasgus]

There's a lot you can do without meds or relying on a doctor. I just recently diagnosed myself with IC & urologist was unhelpful. The following books describe natural treatments which for many are better than meds:

Along the Healing Path

&

Solving the Interstitial Cystitis Puzzle

I also recommend doing a search for "interstitial cystitis supplements" in google.

For some people, the supplement quercetin or marshmallow root alone have done wonders.

Best wishes, everyone. IC is very tough.

[EvilFiyero]

the doctors are including considering this as an diagnosis.... i have been friggin sufferin from bladdr pain near to three years now.... and im a guy, its just so surprising to them

[sevi555]

Most GP's don't realize that 10% of IC patients are male. They miss the diagnosis in man most of the time.

[Melissa230984]

I'M A LADY AND i'VE HAD BLADDERS PAINS FOR 4 YEARS :(

[sonick808]

IC sucks so bad. I'm surprised how much more petechiae I had vs. this video though. I would expect a few here and there from a forced bladder instillation but my cysto/hydro showed tens of thousands; probably 50 per centimeter! Yeah, IC really sucks.

[gomezc7936]

Im 20 years old and i was recently diagnosed with ic...ive done some research on it but not exactly sure what it does or what it is...is it the lining of the bladder thats gone? does it ever go away?

[Melissa230984]

No it doesnt...I'm 24 and Ive had it for 4 years and counting. Ive been through immense suffering and pain. You could try elavil this will ease the pain.

[hypermellow84]

i have a severe case of IC i know this is what my bladder looks like inside if not worst...im thankful someone has finally posted some info on this disorder....

[jaimievaldivia]

I think I havae the worst. My bladder stopped working due to IC and my doctors dont know why if any of you had same thing please let me know treatment

[sunlover518]

hell on earth

[MyGr8DaneGuinness]

I had IC for about 10 years; had several cystoscopies done under GA to stretch my bladder; then I was taken off of my birth control pills 3 years ago due to a pulmonary embolism that nearly killed me and guess what: my IC went away! My father in law (who's a doctor) gave my a book on IC and there was a chapter on how birth control pills can actually *cause* IC (and certainly make it worse) due to the exongenous estrogens. Call it coincidence...I think not!

[scubaduba10]

That is really fascinating- I just switched to a different birth control and am now having IC symptoms.

Can you tell me anymore about your IC?

[kellitheawesome]

man i have this and they tryed to do that and they had to stop because i was bleeding so bad! :[

they sad i have one of the worst cases they have seen :[

[zahut]

I have interstitial cystitis with hunners ulcers. I saw pics of my bladder from my cystoscopy, it looks 10 times worse than this video, "sucks" is an understatement! Its totally ruining my life!

[XoKellyBellyXo]

i have interstital cystitis

it suclks alot

[pezmack]

interesting...pretty bad, but not as bad as my wife's case of ic :(.

[pezmack]

wow...pretty nasty stuff, though not anywhere as bad as my wife's case of interstitial cystitis!!