Sorry to hear about your wife's MRI. But I have MS. Diagnosed in '99. Used what I thought were best MS drugs and it turned out to be bunk. Forget those drugs. They may or may npt work. But she has to try low dose naltrexone. More commonly referred to as LDN. I started on 4-20-10 and one year later I feel like a new man. I no longer have the fatigue, cognition probs, anxiety, depression, muscle cramps, spasticity, and other symptoms.
Hi sorry about your wife but im glad to hear you express how you feel i thought i was the only one feeling bitter by MS my husband suffers from it since 2007 and he doesn't qualify for any assistance and believe me when i say ANY we have even looked under the rocks literally. All this years he is been without any medication just vitamins and natural supplements and recently "Walkaid" that has help with the foot drop but not so much with the depresion, tireness, and especially the mood
If you're broke, the drug companies will give it to you for free. I see it has been a few years so you may have figured that out by now but look into it if not. Doctors did not tell me that for a long time. Had to figure that one out on my own. Good luck brother. Also, I do know, as hard as it seems on her, from her perspective, she is worrying about you. It is always harder to watch someone suffer. When it is happening to you, providing you have the right attitude, you just suck it up.
What you are saying about your wife and the way you seem to be there for her... That is doing a lot!! I was diagnosed with MS last year, only had one attack that paralyzed me from the waist down. I'm single so specific about a spouse I cannot advise you, but just like others have said.. Just be there for her without forgetting about yourself!
hey man im sorry to hear aout that i have a brain anureysm and i have it growing in the nerveus system i know what she going through i got surgery in like 3 weeks but the shit can ruptuer any time thats what im scared of i hope she gets better and god blees bro.
You are human - you are helping... God be with both of you. I have the DIAGNOSIS as well - it was 17 years ago. My suggestion - just BE THERE for her. You do not have to have answers - you do not have to FIX things - you cannot even fully understand how it IS when it is YOU. Peace and LOVE to both of you...
can you get medicaid she can get social security if she was diagnosed please look into that you shouldnt be paying out of pocket i wish the best for her and you it sucks i have a brain lesion might have more i need more testing working on gettn some insurance myself
I wish the very best for your wife. How is she doing now? I'll be 19 in a month and I was diagnosed last summer. I have several MS video blogs if you're interested in viewing.
Again, hope and prayer to your wife, wishing the best. Stay strong.
i know how you and your wife are feeling i was diagnosed with ms last july i was 28 it was a hard time i didnt know what to think but i thought to myself that there is no way to change it and i would have to find a way to live my life every day to the fullist i really havent found out every thing about it yet but im not letting it get the best of me i have alot to learn and if i find out anything new i will post it good luck with everything and hang in she needs you as much as before ms
Sorry to hear about your bad news. Please search "Lauren Parrott" on You Tube. She is a patient advocate for MS and especially Tysabri--a new drug that is having great success. She gave a speech last night and it was extremely well received. It's all about this new drug and having a positive attitude.
Lauren has been responses from MS patients all around the world that have been helped by her personal videos. If you write to her, she will write back.
Hello from someone who has had Multiple Sclerosis since February.2002. (sometimes still hard to believe it has been that long!) My true advise is to keep things as normal as posslble. I know things are changed "forever" but after all that is said and done you are both the same people. Need MS Info, e-mail me and if I can help let me know. .
Depending on which type of MS your wife has, please consider Tysabri. It is the most effective med by far. It got a bad name when three ppl died while on it, but they NEVER should have been on it in the first place because they were taking other immunosuppresants. Also, Elan has a compassionate use program, so maybe something financial could be worked out. PM me if you want more info.
I was DX with MS over 2 years ago. Since then, I have made MANY lifestyle changes that have helped me to heal. I think you and your wife/girlfriend should do some of your own research. There are answers out there and they gave me a lot of hope. Hope is the very best medicine!
Hi, I've had MS for seven years... Really I think what people with MS want from their loved ones is just for them to be there. Even when your crazy from steroids, in pain, bitter, angry and hard to be around. The hardest part is the constant changing, and not knowing how anything is going to be from one day to the next. For everybody involved.
You seem like a awesome guy, very real about what's going on. Not all sunshine and rainbows or its the end of the world like a lot of people are.
You're both dealing with a lot right now. I've dealt with this for 13 yrs. now, day by day is the best way to deal wit it. It's no picnic, I'm not going to give you a hallmark card of advice. Anger is natural, and you'll learn to deal with it in your own way. You are in my prayers.
I was diagnosed with MS yesterday. I am 17 years old.. but..I have hope...I think. I really don't know how to feel about it really.. I wish you all the best.
I know that there are so many things going thru your mind. Just don't stop trying, and if you can stand needles try Copaxone. It's one of the best in my opinion.
And if you CAN"T stand needles, you may want to consider Rebif. It's still an injection, but sub-cutaneous is more pleasant than intra-muscualar. I've been taking it since September and have found it very tolerable. It's the thinnest needle, so I guess it's the lesser of four evils, so to speak.
My daughter was just diagnosed with MS and she sent me to this site -- I just want you to know that I think you're a great guy and I don't think you were whining or even acting bitter; you're reaching out and that's a good thing. I hope the health care system is coming through for your wife and I know how awful insurance companies can be. Peace out.
I can't help with the spousal(moral) support since Im a single guy. I will say that you seem like a really great guy from your vid and I can only say what you probably already know... she appreciaes your love and support more than you know or can express with mere words. On the good days, look in her eyes and you will see it. Peace.
It seems as if you need people to talk to and your local MS Society is usually a god place to start. I'm not sure about sposal support but certainly there is vast support for patients and carers.
Keep your chin up as massive progression with drugs is very just around the corner.
I've had MS for 20 years and I've had a wonderful supportive husband for 19 of those years.
You have a great attitude and I know that it is tough on the spouse to deal with. You sound strong, but as person who got knocked by the result. You can rebound from the bad results. Stay with her and support her. Your strength will help bring out the beautiful person you married.
My own husband does not whine or complain. He doesn't baby me, but he is there when I need him.
Sorry to hear about your wife's MRI. But I have MS. Diagnosed in '99. Used what I thought were best MS drugs and it turned out to be bunk. Forget those drugs. They may or may npt work. But she has to try low dose naltrexone. More commonly referred to as LDN. I started on 4-20-10 and one year later I feel like a new man. I no longer have the fatigue, cognition probs, anxiety, depression, muscle cramps, spasticity, and other symptoms.
jets7021 9 months ago
hey!! im sorry to hear this about your wife!! just be there for your wife!!
i got ms!!
i got my family there for me!!
but my wife is not ! she had left a few years back!
i need her next to me but that aint going to happen
LuckJustBad 9 months ago
Hi sorry about your wife but im glad to hear you express how you feel i thought i was the only one feeling bitter by MS my husband suffers from it since 2007 and he doesn't qualify for any assistance and believe me when i say ANY we have even looked under the rocks literally. All this years he is been without any medication just vitamins and natural supplements and recently "Walkaid" that has help with the foot drop but not so much with the depresion, tireness, and especially the mood
mirnamad 10 months ago
If you're broke, the drug companies will give it to you for free. I see it has been a few years so you may have figured that out by now but look into it if not. Doctors did not tell me that for a long time. Had to figure that one out on my own. Good luck brother. Also, I do know, as hard as it seems on her, from her perspective, she is worrying about you. It is always harder to watch someone suffer. When it is happening to you, providing you have the right attitude, you just suck it up.
keemur1 1 year ago
What you are saying about your wife and the way you seem to be there for her... That is doing a lot!! I was diagnosed with MS last year, only had one attack that paralyzed me from the waist down. I'm single so specific about a spouse I cannot advise you, but just like others have said.. Just be there for her without forgetting about yourself!
Sending strength!!
ingeborgvanbruggen 1 year ago
hey man im sorry to hear aout that i have a brain anureysm and i have it growing in the nerveus system i know what she going through i got surgery in like 3 weeks but the shit can ruptuer any time thats what im scared of i hope she gets better and god blees bro.
stacks6969allday 1 year ago
man this is shit - really shit.
i feel for you bro.
*ms sufferer
Feverant 1 year ago
You are human - you are helping... God be with both of you. I have the DIAGNOSIS as well - it was 17 years ago. My suggestion - just BE THERE for her. You do not have to have answers - you do not have to FIX things - you cannot even fully understand how it IS when it is YOU. Peace and LOVE to both of you...
RogerWV 1 year ago
Hi, I'm in the UK my wife has had MS for 10 yrs, I know how you feel I'm screaming inside.
I support my wife, but no one asks me how I'm feeling or coping.
Hope your doing ok and found some support in your area.
liferocks0108 2 years ago
I know exactly what you are saying...and I know that is hard to find the right people to talk to.
I am here if you would like to chat and share what you are going through.
I wish you and your wife the very best and I look forward to meeting you.
Have a good day,
Angela
angelusa73 3 years ago
can you get medicaid she can get social security if she was diagnosed please look into that you shouldnt be paying out of pocket i wish the best for her and you it sucks i have a brain lesion might have more i need more testing working on gettn some insurance myself
nightgangl7 3 years ago
I wish the very best for your wife. How is she doing now? I'll be 19 in a month and I was diagnosed last summer. I have several MS video blogs if you're interested in viewing.
Again, hope and prayer to your wife, wishing the best. Stay strong.
lizzy890 3 years ago
i know how you and your wife are feeling i was diagnosed with ms last july i was 28 it was a hard time i didnt know what to think but i thought to myself that there is no way to change it and i would have to find a way to live my life every day to the fullist i really havent found out every thing about it yet but im not letting it get the best of me i have alot to learn and if i find out anything new i will post it good luck with everything and hang in she needs you as much as before ms
kel8806 3 years ago
Sorry to hear about your bad news. Please search "Lauren Parrott" on You Tube. She is a patient advocate for MS and especially Tysabri--a new drug that is having great success. She gave a speech last night and it was extremely well received. It's all about this new drug and having a positive attitude.
Lauren has been responses from MS patients all around the world that have been helped by her personal videos. If you write to her, she will write back.
Best of luck,
Michael
michaelparrottyoutub 4 years ago
Hello from someone who has had Multiple Sclerosis since February.2002. (sometimes still hard to believe it has been that long!) My true advise is to keep things as normal as posslble. I know things are changed "forever" but after all that is said and done you are both the same people. Need MS Info, e-mail me and if I can help let me know. .
grahamdoe 4 years ago
Depending on which type of MS your wife has, please consider Tysabri. It is the most effective med by far. It got a bad name when three ppl died while on it, but they NEVER should have been on it in the first place because they were taking other immunosuppresants. Also, Elan has a compassionate use program, so maybe something financial could be worked out. PM me if you want more info.
Blessings,
paul
paulo1149 4 years ago
I was DX with MS over 2 years ago. Since then, I have made MANY lifestyle changes that have helped me to heal. I think you and your wife/girlfriend should do some of your own research. There are answers out there and they gave me a lot of hope. Hope is the very best medicine!
Pinkzippo 4 years ago
Hi, I've had MS for seven years... Really I think what people with MS want from their loved ones is just for them to be there. Even when your crazy from steroids, in pain, bitter, angry and hard to be around. The hardest part is the constant changing, and not knowing how anything is going to be from one day to the next. For everybody involved.
You seem like a awesome guy, very real about what's going on. Not all sunshine and rainbows or its the end of the world like a lot of people are.
arp666 4 years ago
You're both dealing with a lot right now. I've dealt with this for 13 yrs. now, day by day is the best way to deal wit it. It's no picnic, I'm not going to give you a hallmark card of advice. Anger is natural, and you'll learn to deal with it in your own way. You are in my prayers.
ltwill2 4 years ago
I was diagnosed with MS yesterday. I am 17 years old.. but..I have hope...I think. I really don't know how to feel about it really.. I wish you all the best.
Sweet0blivion 4 years ago
I know that there are so many things going thru your mind. Just don't stop trying, and if you can stand needles try Copaxone. It's one of the best in my opinion.
ltwill2 4 years ago
And if you CAN"T stand needles, you may want to consider Rebif. It's still an injection, but sub-cutaneous is more pleasant than intra-muscualar. I've been taking it since September and have found it very tolerable. It's the thinnest needle, so I guess it's the lesser of four evils, so to speak.
mponisci 4 years ago
My daughter was just diagnosed with MS and she sent me to this site -- I just want you to know that I think you're a great guy and I don't think you were whining or even acting bitter; you're reaching out and that's a good thing. I hope the health care system is coming through for your wife and I know how awful insurance companies can be. Peace out.
djkraus 4 years ago
I can't help with the spousal(moral) support since Im a single guy. I will say that you seem like a really great guy from your vid and I can only say what you probably already know... she appreciaes your love and support more than you know or can express with mere words. On the good days, look in her eyes and you will see it. Peace.
worktosser 4 years ago
It seems as if you need people to talk to and your local MS Society is usually a god place to start. I'm not sure about sposal support but certainly there is vast support for patients and carers.
Keep your chin up as massive progression with drugs is very just around the corner.
Andy- UK.
drodga 4 years ago
My wife also has MS. Just hang in there.
usenetposts 4 years ago
I've had MS for 20 years and I've had a wonderful supportive husband for 19 of those years.
You have a great attitude and I know that it is tough on the spouse to deal with. You sound strong, but as person who got knocked by the result. You can rebound from the bad results. Stay with her and support her. Your strength will help bring out the beautiful person you married.
My own husband does not whine or complain. He doesn't baby me, but he is there when I need him.
marleyfu 5 years ago