Added: 3 years ago
From: DukeMedicine
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  • I was 35 when I first got sick and had not been feeling well for several months, but I just thought it was because I was out of shape and getting older? In September 2008 I had a bronchioscopy done after some very questionable x-rays and was diagnosed with a Non specific interstitial lung disease (NSILD) in March of 2009 I was sent in for an open lung biospy and was told I had IPF.... I live in N.C. and have been to Duke, I hope to get on the list after I lose more weight... you give me hope!

  • had PH... I am 21 and nearly died.. Got a double lungs and heart transplant a few months ago... i am grand now... don't give hope!

  • Who is the donor?

  • A lovely young lady.Who gave up her organs so that many could live.

  • Gordon,

    I too had IPF. Was diagnosed officially in 2007. Had a lung biopsy in January of '07 to confirm the diagnosis. It came out of nowhere. The part you mentioned in the video about it being a "sneaky little thing" is so true. It's amazing to me how unknown the disease is to the general public.

    The good news is I had a double-lung transplant at Vanderbilt on July 3, 2008 and I am doing well. God has blessed and we are very grateful for His provision.

    Thank you for your story!

    dsgmusic88

  • Gordon,

    I too had IPF. Was diagnosed officially in 2007. Had a lung biopsy in January of '07 to confirm the diagnosis. It came out of nowhere. The part you mentioned in the video about it being a "sneaky little thing" is so true. It's amazing to me how unknown the disease is to the general public.

    The good news is I had a double-lung transplant at Vanderbilt on July 3, 2008 and I am doing well. God has blessed and we are very grateful for His provision.

    Thank you for your story!

  • I have Alpha1 and I have been evaluated for a dbl Lung transplant, hoppefully soon I will be able to get everything in order to have the surgery. I am only 30 yrs of age as well.Alpha 1 is a rare genetic disorder.

  • Thank you for this video, i have severe copd, and was feeling very sad, this gives me hope. Pray for me.

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