I am called cripple.....its been so long now I even respond to it sucks. Have you looked into the pprc? Theres alot of progams you can go to for weeks now with pt ot and physc stuff daily im rsd thanks to the pprc
I know how you feel i am also a teenager suffering through rsd/crps this is not easy...your video described pretty much what i go through with my arm i just wish more people were aware of this terrible thing
i know how it feels.. i have it i take meds, it does nothing i never sleep no one ever gets it, my pain is off the scales and charts.. you name it... rsd it sucks and i don't think it'll ever get better i've had surgeries those never worked... they never will i'm stuck with is i'm trapped and i'll never get out
I have It aswell ^_^ I like seeing that there IS other people with CRPS In this world. @BertlovesEarniex3 Your right the only true way you can understand one another Is through pain and I, Charles Harner understand her pain. It's not a fun thing to live with but we have to. Have you guys heard of Ketamine Coma Infusions? That's the new thing for CRPS. I'm willing to try It. If you are still having sleep problems try elevil. It helps a little.
i have it too. and it really sucks. i hate going to school because the kids and teachers dont understand. I have one teacher who is really supportive but i feel bad going to her everytime i am crying in pain because i dont want to put my stresses on her. this disease makes me feel VERY alone.
You are such a brave girl....your video had me in tears....I'm an adult in my 30's with RSD in my left side. I know the pain....keep the hope Kayleigh!
Heyyy kayleigh, my friends mum sent me the link to this because she thought this was an amazing video and i was like 'omg its kayleigh!' hahaa this video is incredible, you have done so well at describing this horrible condition! ive always struggled with describing our condition to other people but now i can just show them this video...thank you :) btw we should meet up sometime asain, havent seen you for ages :) xxx
Thanks so much for this. My son lived exactly what you describe before his death 5 yrs ago. He died, at 18, in a car wreck unrelated to his RSD. I posted this on my FB page in his memory. I have RSD, also, but it is so much harder for teens. Please don't give up hope. My daughter had it, also, and hasn't had symptoms for 20 years. Unusual, I know, but true. I know you will help so many with this video.
Hi Kayleigh! You truly are a beautiful inspiration! I am here if you ever want a friend to talk to or support. I run a support group for over 600 people who have RSD/CRPS on facebook. Its called "Invisible Diseases especially Chronic Pain and RSD/CRPS". I have a couple of videos on my channel too about RSD/CRPS, if you would like to?I just want you to know you are not alone and I care so much! I got in a MVA in 2002 and then had 5 surgeries and my last one in 07, I got full body RSD/CRPS now
Thank you for making this video. It's a great way to teach others about your rsd/crps. I've had it for 5 years now. I am 45 and not a young one like you. You are brave to open up like this and give a voice to your teen rsd/crps peers. Keep speaking up!
This made me cry... i also have RSD/CRPS & im the same age as you, i understand so much how you are feeling. This video inspired me to completely my own! Thank you for inspiring me!
kayleigh.. i go to your scholl and i see you mostly everyday. your really beautiful. i cried at this. i wish i could have it for you so you wouldnt go through the pain.
Stay strong and stay brave! I cant believe people would say those horrible things to you, after everything your going through! I cried when i saw this, your amazing. Honestly in everyway amazing :)
i cried :( you are inspirational, i never knew this is what you went through, and people that call you names! its horrible! your strong, and you should know this will change a lot of people!
What a beautiful video. So honest and heartbreaking. My 10 year old nephew has CRPS and his mum shared this video with all her friends on facebook. I hope more people took the time to view it. It's debilitating. Is one of the hardest things to watch someone go through and not be able to do anything for them. Stay strong. You have a future. Just remember to keep taking one day at a time, the bad with the good. What an inspiration you and others with CRPS are.
Great job on the video Kayleigh!!!! I also have RSD, and I have said, at least I got it after I got to live my life some. I would of had a tougher time if it developed as a child. Please stay strong, there is hope, I am in remission! I can tell you are brave and strong, I wish you much peace, blessings and best wishes! Barby Ingle
Im probably not as far along in this diease as you are.... But I know your pain... and I try to act as "normal" as I can. I guess Im doing a good job because people say that I am lying and making it all up. Thank you for this video it is good and it explains alot to people that dont know.
Kayleigh, your video brought tears to my eyes. Thank you for sharing your CRPS/RSD story. My daughter suffers with CRPS/RSD too. Awareness is such an important part of your CRPS/RSD journey. Your video describes life with CRPS/RSD so clearly, we need to keep fighting this horrible diagnosis and teaching the world about it. You are an inspiration to everyone who suffers with CRPS/RSD. Don't ever give up hope. We are raising money every day to help researchers find a treatment, even better a CURE!
Kayleigh you are an amazing person, don't ever let anyone tell you otherwise. Most adults would not be able to go through what you are going through. And the kids that mock you are clueless, don't let them get you down. It took a lot of courage to make this video, to put yourself out there, but you did it. I think you rock & you are an inspiration.
What a beautiful video. You're so brave! PLEASE don't let other people get you down. The people that call you a freak/cripple are scum, you are a much better person than they'll ever be. You should never feel like you're letting people down. Stay strong hun.
Well done. I hope you find something that will give you greater relief. I never knew how much excrusiating pain I could handle. Now I do! Hang in there. Bad times will pass. Research, Research, Research. You have to be your own health advocate.
Thank you for sharing this video. It made me cry. I was diagnosed with RSD/CRPS 2 years ago. My right arm is affected. My whole life turned upside down I had to give up my job which I really like. In my former live I was a pediatric nurse.... I hope that we all find cure someday (hopefully soon!). You're such a strong girl! Sending you a gentle hug!!! Tine (from Germany)
Thank you Kayleigh, you are an inspiration. I've had venipuncture RSD/CPRS for three years. I was so moved by your video, I too was crying. I agree with Starshyyne, I am sending you much love, healing light and energy. I know of a 14 y-o who had full body CPRS. He went to Dr. Rhodes in Corpus Christi. I've been in touch with his family. He is now progressing and able to walk again, and a woman who wrote a book, No, Its Not in My Head!, also went there. Sending many wishes for healing...
I would just like to tell you that I love you. I've never met you. But I also have CRPS. I got it when I was 21. I'm 26 now. You made me cry with this video. But I am so glad that you made it, and I hope that you find something that works for you soon.
Ive heard from a friend that weed helps RSP/CRPS people feel warmth instead of pain sometimes slightly - worth a shot not to be in pain i guess.
ABon1212 1 day ago
I am called cripple.....its been so long now I even respond to it sucks. Have you looked into the pprc? Theres alot of progams you can go to for weeks now with pt ot and physc stuff daily im rsd thanks to the pprc
Lesrd9 3 days ago
I know how you feel i am also a teenager suffering through rsd/crps this is not easy...your video described pretty much what i go through with my arm i just wish more people were aware of this terrible thing
hiphopdabcer3313 4 days ago
i am also 11.. they said it was weird and very rare that i had is at this age
lionkinglover86 3 weeks ago
i know how it feels.. i have it i take meds, it does nothing i never sleep no one ever gets it, my pain is off the scales and charts.. you name it... rsd it sucks and i don't think it'll ever get better i've had surgeries those never worked... they never will i'm stuck with is i'm trapped and i'll never get out
lionkinglover86 3 weeks ago
I have It aswell ^_^ I like seeing that there IS other people with CRPS In this world. @BertlovesEarniex3 Your right the only true way you can understand one another Is through pain and I, Charles Harner understand her pain. It's not a fun thing to live with but we have to. Have you guys heard of Ketamine Coma Infusions? That's the new thing for CRPS. I'm willing to try It. If you are still having sleep problems try elevil. It helps a little.
MugenXNinja 3 weeks ago
i have it too. and it really sucks. i hate going to school because the kids and teachers dont understand. I have one teacher who is really supportive but i feel bad going to her everytime i am crying in pain because i dont want to put my stresses on her. this disease makes me feel VERY alone.
BertlovesEarniex3 1 month ago
You are such a brave girl....your video had me in tears....I'm an adult in my 30's with RSD in my left side. I know the pain....keep the hope Kayleigh!
QKR
qkcutie 1 month ago
Heyyy kayleigh, my friends mum sent me the link to this because she thought this was an amazing video and i was like 'omg its kayleigh!' hahaa this video is incredible, you have done so well at describing this horrible condition! ive always struggled with describing our condition to other people but now i can just show them this video...thank you :) btw we should meet up sometime asain, havent seen you for ages :) xxx
LolliepoppxoxO 1 month ago
Thanks so much for this. My son lived exactly what you describe before his death 5 yrs ago. He died, at 18, in a car wreck unrelated to his RSD. I posted this on my FB page in his memory. I have RSD, also, but it is so much harder for teens. Please don't give up hope. My daughter had it, also, and hasn't had symptoms for 20 years. Unusual, I know, but true. I know you will help so many with this video.
NitaGay1 1 month ago
Hi Kayleigh! You truly are a beautiful inspiration! I am here if you ever want a friend to talk to or support. I run a support group for over 600 people who have RSD/CRPS on facebook. Its called "Invisible Diseases especially Chronic Pain and RSD/CRPS". I have a couple of videos on my channel too about RSD/CRPS, if you would like to?I just want you to know you are not alone and I care so much! I got in a MVA in 2002 and then had 5 surgeries and my last one in 07, I got full body RSD/CRPS now
Suzydukettes 1 month ago
Thank you for making this video. It's a great way to teach others about your rsd/crps. I've had it for 5 years now. I am 45 and not a young one like you. You are brave to open up like this and give a voice to your teen rsd/crps peers. Keep speaking up!
LucasFarraway 1 month ago
Kayleigh~ You are truly an inspiration! I've had RSD/CRPS for 4 yrs now. Thank you for making this video and good luck on your journey. Stay strong
amymichelle71 1 month ago
Amazing video, so frank and honest which is so hard to be when suffering with this condition. Keep holding on. x
megangompels 1 month ago
I think I speak for everyone who has commented and would like to say who ever has picked on u in your life then they are pathetic
viralzues 1 month ago
This made me cry... i also have RSD/CRPS & im the same age as you, i understand so much how you are feeling. This video inspired me to completely my own! Thank you for inspiring me!
maddymoore24 1 month ago
kayleigh.. i go to your scholl and i see you mostly everyday. your really beautiful. i cried at this. i wish i could have it for you so you wouldnt go through the pain.
shazaalolo 1 month ago
You're beautiful.
You're inspirational.
I'm so sorry for what you have to go through. It's heartbreaking to know someone is in that much pain and that we can#t do anything about it.
Thank you for sharing this. It made me realise how good my life is.
Stay strong, gorgeous girly <3
3mzay 1 month ago
Stay strong and stay brave! I cant believe people would say those horrible things to you, after everything your going through! I cried when i saw this, your amazing. Honestly in everyway amazing :)
RydenBeliever 1 month ago
i cried :( you are inspirational, i never knew this is what you went through, and people that call you names! its horrible! your strong, and you should know this will change a lot of people!
georgiawalker28 1 month ago
What a beautiful video. So honest and heartbreaking. My 10 year old nephew has CRPS and his mum shared this video with all her friends on facebook. I hope more people took the time to view it. It's debilitating. Is one of the hardest things to watch someone go through and not be able to do anything for them. Stay strong. You have a future. Just remember to keep taking one day at a time, the bad with the good. What an inspiration you and others with CRPS are.
happyred21 1 month ago
Great job on the video Kayleigh!!!! I also have RSD, and I have said, at least I got it after I got to live my life some. I would of had a tougher time if it developed as a child. Please stay strong, there is hope, I am in remission! I can tell you are brave and strong, I wish you much peace, blessings and best wishes! Barby Ingle
barbyallyn 1 month ago
Im probably not as far along in this diease as you are.... But I know your pain... and I try to act as "normal" as I can. I guess Im doing a good job because people say that I am lying and making it all up. Thank you for this video it is good and it explains alot to people that dont know.
ashleywrote 1 month ago
Kayleigh, your video brought tears to my eyes. Thank you for sharing your CRPS/RSD story. My daughter suffers with CRPS/RSD too. Awareness is such an important part of your CRPS/RSD journey. Your video describes life with CRPS/RSD so clearly, we need to keep fighting this horrible diagnosis and teaching the world about it. You are an inspiration to everyone who suffers with CRPS/RSD. Don't ever give up hope. We are raising money every day to help researchers find a treatment, even better a CURE!
Motherduck1957 1 month ago
your soo brave an inspiring video I'm 17 and I've also got CRPS and know how hard it can get stay strong xx
Hannahmiley161 1 month ago
Kayleigh you are an amazing person, don't ever let anyone tell you otherwise. Most adults would not be able to go through what you are going through. And the kids that mock you are clueless, don't let them get you down. It took a lot of courage to make this video, to put yourself out there, but you did it. I think you rock & you are an inspiration.
Olykins 1 month ago
What a beautiful video. You're so brave! PLEASE don't let other people get you down. The people that call you a freak/cripple are scum, you are a much better person than they'll ever be. You should never feel like you're letting people down. Stay strong hun.
xamieliax 1 month ago
Well done. I hope you find something that will give you greater relief. I never knew how much excrusiating pain I could handle. Now I do! Hang in there. Bad times will pass. Research, Research, Research. You have to be your own health advocate.
Lancifer111 1 month ago
Thank you for sharing this video. It made me cry. I was diagnosed with RSD/CRPS 2 years ago. My right arm is affected. My whole life turned upside down I had to give up my job which I really like. In my former live I was a pediatric nurse.... I hope that we all find cure someday (hopefully soon!). You're such a strong girl! Sending you a gentle hug!!! Tine (from Germany)
Zivilein 1 month ago
Thank you Kayleigh, you are an inspiration. I've had venipuncture RSD/CPRS for three years. I was so moved by your video, I too was crying. I agree with Starshyyne, I am sending you much love, healing light and energy. I know of a 14 y-o who had full body CPRS. He went to Dr. Rhodes in Corpus Christi. I've been in touch with his family. He is now progressing and able to walk again, and a woman who wrote a book, No, Its Not in My Head!, also went there. Sending many wishes for healing...
flordemielmedia 1 month ago
I would just like to tell you that I love you. I've never met you. But I also have CRPS. I got it when I was 21. I'm 26 now. You made me cry with this video. But I am so glad that you made it, and I hope that you find something that works for you soon.
starshyyne 1 month ago
You're so brave Kayleigh!
StaceeyMichaela23xx 1 month ago