Silent Suffering :: September is Sickle Cell Awareness Month

[CleverlyChanging]

Today, I listened to your story at the Fourth annual Roland B. Scott Memorial Symposium. Your story about living with sickle cell disease and your life experiences touched me. I am a parent of a child with SCD and I now realize how important it is for me to advocate for children with this disease. God has given you a wonderful talent. I am blessed by your artwork. Thank you!

[MzJoker29]

Sickle Cell is only common in blacks in the U.S. but it's actually a mediterranean disease. Get educated People

[lady80sbaby]

hey idiots....sickle cell isn't just a black disease. please educate yourselves before you post something! thanks!

[lady80sbaby]

and I'm not attacking the uploader I'm talking to the people making racist remarks! thanks for showing us just how ignorant you are!

[nazaire73]

@lady80sbaby for years I would just delete the racist post but now I just leave them as part of the awareness of what some of us with SCD face.

I just don't try to come here too often to read them

[kashimashima52]

STOP SHOWING ME THIS T_T

[truthwillbetoldjig]

Lo0l0ol0ol0ol0ol0ol0l0ol0o Nigger Cell Anemia. Fuck niggers.

[GNCJ4427]

Damn.. I feel his pain . i was born with the same thing .. (im not lying like some of you..)

And the doctors and nures dont make it any better, all they do is drug me up with morphine and other narcodics until im to sleepy and drowzy to think about how much pain im going through..they do that every 3 or 4 hours around the clock ... SOME PEOPLE DON'T UNDERSTAND HOW BAD THIS CRAP HURTS!!!!!!

[candisweetart]

my bf have the disease ,i almost lost him twice,

great job...keep the Awareness going...

☮♥ ♪ & ART!

CandiSweetART10

[TheHihihi488]

at-least i do not have sickle cell anemia...

i do not want to have pain :l

[konbitkreyol]

The Sound of Silence

[deveaux09]

Hi. My Name Is Doug And I Have Sickle Cell As Well. I Have Seen Your Art Work Many Times B4 And Was Wondering If It Would Be Possible For You To Design A Tattoo For Me Usin The Sickle Cell Theme

[HassanKobaissi]

wth ?? my friend is white he has the trait.

[nazaire73]

yes I have white friends who have the disease not just trait so its not impossible Sickle Cell is not a black only disease as people think... many people of all races suffer this pain

[haitij]

doing good

[openhaiti]

keep sharing this video

[nazaire73]

I have no choice but to keep doing it

[nazaire73]

1910 - 2010

100 Years of Sickle Cell Anemia

[HaitiFM]

From Wikipedia:

"This collection of clinical findings was unknown until the explanation of the sickle cells in 1904 by the Chicago cardiologist and professor of medicine James B. Herrick (1861-1954) whose intern Ernest Edward Irons (1877-1959) found "peculiar elongated and sickle shaped" cells in the blood of Walter Clement Noel"

[nazaire73]

I heard that too... but it seems 2010 is official for some reason I'll keep reading

[nazaire73]

Yahoo Answers says "In the western literature, the first description of sickle cell disease was by a Chicago physician, James B. Herrick, who noted in 1910 that a patient of his from the West Indies had an anemia characterized by unusual red cells that were "sickle shaped."

[HaitiFM]

Next year (2010) will be 100 years since sickle cell disease was discovered

[nazaire73]

Maybe we all can do something next year?

[HaitiFM]

Next year should be good. Who got the credit for discovering Sickle Cell in 1910?

[nazaire73]

I heard different stories about that but I can't remember anything official let me look it up

[gwozo]

Hey Naz, it's been so long. This is your friend in KC (Kansas City, MO). I just left a message for you in the sickle cell ass'n office in Bridgeport. Just wanta a hear from you. Hope you'd reply.

VF.

[Orch1dea]

Wow!! Its admirable how you can express your feelings in such a beautiful, artistically way. You are an example, that there is a God. He didn`t gave you complete Health but he bless you with this gift: your sense of art.

[pallenjones]

Living with sickle cell disease is hard, but live on anyway. See my blog at

sicklecell-ourvoice.blogspot

[kt268934]

sickle cell isnt fun too have i wish i never had it it ruins my life

[shamainecharelle]

come check me out i have sickle cell and i do blogs

[shamainecharelle]

come check me out.....i have sickle cell and i do blogs i just started so i dont have that maney vid but check me out subcribe if u like

[StushAce]

Well Done..

Dis is Beutiful..U Should B Very Proud (**,

[cielsky13]

awesomeeee it's very expressiveeee..hats of to your blessed natural talent

[dkosawa]

beautifully done

[auti34]

cool art

[1cejones]

Hey Nazaire, also a member on the forum. Love the art wrok. God has truly blessed you with a talent which you can spread awareness about our disease through. Thank you.

[openhaiti]

But my hand was made strong

By the and of the almighty.

We forward in this generation

Triumphantly.

[openhaiti]

respect!

[haitij]

thanks again nazaire

[gregjus]

woah

[nazaire73]

come again

[HaitiFM]

working long hours on this one... share it with more myspace friends we need this to reach one million people by September for National Sickle Cell Awareness Month.

[toussaintmovie]

keep it up - this is some fine work

[nazaire73]

still waiting for that movie

[currymel]

You are one talented Brother! May God continue to Bless you and your Family.

Much Love

[aboogger]

Naz,Once again you have impressed me with your creativity,using your art work in this way is one of the best ideas I've seen in a long time! I recognized many of your paintings about sickle cell as it tells the story suffering in silence!It's time for the silence to be broken,for those of you that live with this disease,use your voice to EDUCATE everyone a round you to help them understand! Thank you Naz for all that you do for the sickle cell community! Take care,Mamoo

[shontayla]

Awareness is so needed right now. This disease is devastating, but it's still viewed nonchalantly..and

there is alot of people that don't even know what it is.

[nazaire73]

I agree with you, there seems to be a spirit of indifference around Sickle Cell. Most people I've been asking for help about this project I'm working on seem so meh apathetic about everything concerning these issues - so discouraging

[openhaiti]

I sent this to all my friends on blackplanet

[EveryMomentHasMusic]

thats some really powerful art work!

[SickleCellAwareness]

Helping you share this video

[HaitiFM]

Adding this to Haiti FM

[Drf7at]

Its great you want raise awareness of some sort of disease, i think it would be better/interesting to say what it does, what it is etc. and put some music on

[nazaire73]

Yeah I feel you but I also feel we have enough fluff. Would people like me to Rap about it?

This is a very serious thing for me, this is a moment of SILENCE for the many friends I have lost to this disease.

[peteamann]

Pray for those who have to battle with sickle cell, Its nothing humorous about the problems it causes a persons body, The lost of a loved one, results with simular pains, love 4 the 1's I have lost, thanx

[janero2luv]

i just came across this vid. i had 3 friends that died of sickle cell in nigeria. i dont know if theres actually a cure. i miss them so much

[nazaire73]

Sorry about your lost.

To answer your question::

Bone Marrow Transplant is the only know cure, but its not a universal cure because you need a matching donor who is a close sibling. (family member brother or sister) It is very risky so it cannot benefit everyone who struggles with Sickle Cell Disease.

About 1% of people with sickle cell disease meet the criterias for bone marrow transplant. The Risks are too great for the rest of us

[nazaire73]

This Video is dedicated to my Friends in the Sickle Cell Community. Please do not post any spam comments. I'm getting tired of deleting them.