A Botox (Botulinum Toxin) Injection for Dystonia

[nonsulen]

There is hope, I recovered, there is a way and you can do it. You can get better naturally. I was lucky I found out what to do before it got out of control. I am not sure if what I did will help you recover 100% but you should try. I recovered in under one year. My neck was out of control, my left foot was clubbing, I could not sit, lay or stand, I trembled, I lost my balance, I clinched my jaw till my teeth came loos. I researched I found, it worked. No more botox, no wires in my head

[TheRevwmp]

@nonsulen That's great to hear. I believe about 5% of dystonia sufferers go into permanent remission, so I hope and pray you will remain pain free.

[nonsulen]

@TheRevwmp It was sudden remission, it practically stopped within a few months. I don't believe it was remission, I believe it was what I did that reversed the condition. The brain can recover, it can rewire to find new paths to restore the motor skills. I also believe it is not all a brain issue, as I discovered during my recovery . Some people may not be able to recover 100% because of how far advanced the disorder is but they can make their life better without $botox$ or brain $implants$.

[nonsulen]

@TheRevwmp Thank you. It is not hard to put my method into practice only dedication. If you want to try it let me know.

[nonsulen]

@TheRevwmp there are a lot of factors that caused & is causing you dystonia. no I am not part of the 5% or if I am maybe they should look at the 5% again. I never stopped my remedies, I still take them everyday. I had a relapse I had given up but I looking healthier so I continued my remedies & 4-6mth later it was gone again. flush ur system out MilkOM & lot of water 3x week. eat a lot of good fats, pro & fresh veg. sugar dairy fast food= no CONCENTRATE. I will post a video soon

[NCN1970]

@nonsulen what did you do ?

[nonsulen]

@NCN1970 email me again in a few days. i will put together a list for you to follow. do you have any health problems?

[MUNYZAKRIA]

how/ who does your injections? I've been there several times & it never really helped! I am desperatekly in pain as my symptoms have flared up again? please can you advise? many thanks

[TheRevwmp]

@MUNYZAKRIA I go to see a Neurologist at the National Hospital for Neurologu and Neurosurgery, Queen's Square, London. I sometimes see the consultant, other times I see one of his assistant Doctors, or occasionally a Specialist Nurse who specialises in Botox injections for Dystonia.

Have you asked to see a neurologist to ask if there are any other options for you? Some people with very bad dystonia have an operation called Deep Brain Stimulation.

[nonsulen]

@MUNYZAKRIA What do you do for a living? I may be able to help.

[castingtherunes]

My girlfriend has torticollis and she is very apprehensive about the Botox injections. Side effects include difficulty swallowing and breathing. Aren't there better alternatives?

[TheRevwmp]

@castingtherunes Hi there, my swallowing difficulty is only very minor, and only temporary too. I struggle swallowing bread, strangely. Apart from that I'm fine! I've never had breathing difficulties after having Botox injections. Personally, this has been by fat the best treatment. It works for many people - although not everyone. I definitely think it is worth trying Botox, so long as a good Neurologist is recommending them of course.

Kind regards, Warner.

[yannickmessaoud]

Going for botox next, got some prolotherapy in the neck but now have to fix the forward head bending problem, my doctor tells me that with botox and proper training posture can be fixed real fast.

Thanks for posting this.

[TheRevwmp]

@yannickmessaoud Hey that's great news. I hope they work for you. Not everyone gets the same benefit that I have had, but I hope and pray you will be feeling and looking much better soon. Warner.

[TheRevwmp]

@yannickmessaoud How did the botox injections go? I hope you're feeling a bit better :-)

[muschimari]

I've had an injection with Botox two days ago and when I woke up this morning with a weird, burning sensation in my cervical spine. Did this hapen to you as well?

[TheRevwmp]

@muschimari Hi there! No, that's not been my experience but I think the injections affect people in different ways. However, I can usually feel very sore around the places I've been injected for about 5 days after the injections. Did the Doctors tell you what to expect with possible soreness, side effects etc?

I really do hope the injections help you. Do you have Dystonia? Kind regards, Warner.

[muschimari]

@muschimari Well, yes my doctor told me if the side effects last more than a week, I should call her. Yes I have dystonia(this was my first injection). They seem to work, my spasms aren't that strong now.

[muschimari]

@muschimari Hmm...I also want to know in how many days your neck got back to its normal position...

[Dystonia101]

When I have my injections they use an EMG machine to locate the active muscles (in my neck and shoulders). Have they ever used one on you? I'm glad that you have had such positive results. Thank you for sharing your story!

[TheRevwmp]

@Dystonia101 Thank you for the encouragement. I really do appreciate it. No, I've never had the EMG machine, but so far the doctors and the Specialist Nurse have done a good job. Please can I ask how well you are responding to Botox at the moment? Kind regards, Warner.

[MadMadamJess]

@Dystonia101 ahhhh, that's what they do to me...eesh! I hate that! lolol! but whatever works, aye?

All my love and good houdou to you, fellow Dystonia sufferer. :):)

xoxoxo

- jess