This was very helpful for me!! Thanks for sharing!! My son just had the fuendoplication and the mic-key button. I have really enjoyed watching you handle yours!! Looks like it will be a piece of cake to handle!!! ;)
@cmcdpd1 Feel free to use the video. But I must say, had I known how popular this video would become I would have been better prepared and at least gotten out of my P.J.s! My son decided to do a "documentary" when he saw I was changing Anthony's button....
I would have primed that line (filled the line with food) before starting the feeding to prevent the patient from having air the stomach which is gas.
What is wrong with having a peg? nothing. Like most things, we weigh the pros and cons. We find that by educating people there is more understanding and empathy toward people with disabilities.
Probably does have an odor, although it's not bad enough for me to notice when I've changed Anthony's button. I haven't actually taken a big sniff;-) Some people do have them their whole life, but it depends on the reason for the tube. Anthony has severe CP and can not swallow, so he will always need it. But many kids eventually get weaned off the tube. Especially preemies who just need help eating early on.
Funny that my son decided to make a "documentary" out of this routine tube change. I never realized it would be so helpful (and I also would have changed my clothes, LOL).
Excellent video. I'm a paeditrician, and I found this very informative. Having watched this video, I've learnt how to change a Mic Key button. I'll now have the confidence to change one when patients attend after theirs has fallen out! Thanks!
Thanks! Glad you found the video helpful. The only problem you might run into in that case is if the tube has been out for a while, you might have trouble getting a new one in. Having a smaller size tube handy might help.
Our little girl (2 years old tomorrow) will be having a feeding tube fitted next month. (With a view to moving on to a mic-key button afterwards).Your film has been very reassuring to me, thank you!
You are inspirational, you are a wonderful woman and God bless you and keep you well.
THIS IS VERY EDUCATIONAL VIDEO, WHAT DO U DO IF YOU CANNOT ASPIRATE CONTENTS FROM THE STOMACH? Does it mean its not patent? How do you resolve it? thank you
That does happen sometimes, if his stomach is empty. You can also push (flush the tube) with a bit of water using a syringe. You can also check placement this way with a stethoscope. With Mickie buttons, there is little chance the tube is not in the stomach. Especially kids who have had the tube for a long time.
Omgosh i see that kit and that button and it brings back so many memorys from my childhood, 11 years of that and it wasnt fun. Im glad they have videos like this to help new patients and parents who use these. Mine was for CF. we didnt have these videos when i had mine. On behave of everyone with a MIC-KEY G TUBE thank you so much.
This is a very informative video. Can I just ask though, you only had 3ccs left in the button when you changed it. Do you not change the water weekly to ensure this doesn't happen? We have to, but I guess the guidelines are different everywhere.
Also in answer to a previous comment we put back any aspirate from the stomach as it contains vital stomach acids and probably meds in our case, not so much due to the calorific value of it. Thanks for posting this...
It is true that you'll find different guidelines, especially in home care. the purpose of the balloon is to hold the mickey button in place. Since Anthony's button has never come out accidentally, I don't bother checking the balloon. But it certainly doesn't hurt do check it. I just replace the whole thing every couple of months or so for cleanliness and that works fine for him.
i had a MIC-KEY BUTTON AND I JUST GOT MINE OUT A MONTH BEFORE MY 19TH BIRTHDAY ! ! ! ! I COULD NOT STAND IT WHEN WE HAD TO CHANGE IT . . . . . . . . IT FILLS DIFFERENT NOT HAVING IT IN ANY MORE
you are really funny and good at what you do! thank you for taking the time! I like the commentary! Even though as nurses we're like "Duh, they cant taste it!" we prolly need to remember that fam of patients might not know! How speedy we can be! As you just proved, we are teachers as well! = ) ill be watching more for sure!
I was on tube feeding for a while also. My experions though was sometimes I could taste the ensure. Why is this? PS I have sense then had the tube removed but just cerouse as to why sometimes I would taste it?
I think that's more typical. I'm a nurse and I don't know of too many people who can tolerate the large feedings that Anthony can take. But even so, I do try to spread them out over as much time as I can. Eating slowly is a good idea for everyone.
no... im talking about normal babies and children under 3 years of age... older kids can take up to 500ccs in an hour...
it freaks me out how much these babies can handle and yet i cant handle more than 75 CCs per hour and even then i sometimes over fill and seep out from the g-tube site. my doctor said this is fine and she did it on purpose to prevent the tube from rupturing due to over filling of the stomach.
Nice vid. Very thorough. Just out of curiosity, has Anthony always depended on a G-tube all his life? Don't mean to be nosy? Cute fellow though. Hugs to him.
i have a progressive disease of cerebral and spinal cord... i can no longer swallow anything but liquid and i can only drink little bits because of how small i am
Nice job! both filming and procedure, makes it a little less scary for the new guys watching for the first time. only thing I would add is perhaps gloves, if it was not a family member. all in all nice work>
Thanks Phitzgood. Some people are more comfortable with gloves. This was in unplanned, unrehearsed little tutorial. My son Aaron is constantly filming and when he filmed this routine mickie button change, I thought it might be helpful for some people out there. But aside from wearing gloves, I should have changed out of my sweat pants and grumpy shirt. With my luck, this video will get thousands of hits, LOL!
Thanks for this video, GREAT training tool!!!
lilshortiedex 1 day ago
@lilshortiedex Thanks:-)
bissells 1 day ago
Comment removed
Jorge329 2 months ago
This was very helpful for me!! Thanks for sharing!! My son just had the fuendoplication and the mic-key button. I have really enjoyed watching you handle yours!! Looks like it will be a piece of cake to handle!!! ;)
lintrell99 2 months ago
At what age did you filmed this?
alfkad 3 months ago
... Ive had this since i was aged 7 (now 21) i was the first in Britian to have a pacific size in an ace procedure.
I didnt realise there were videos on YOUTUBE. Its reasuring to know other people go through what i do :)
the only thing is mostly all the doctors and nurses i talk to, dont have a clue what it is or change it really badly! But you did a good job :)
MultiDaleSmith 5 months ago
It may not seem like it but it actually does hurt to pull it out...
marioahdz93 6 months ago
Does Anthony have a bruise around his button?
Hadra568 1 year ago
@Hadra568 No, it's some old scaring from a rash he had a while back. Just looks like a bruise on his dark skin.
bissells 1 year ago
@wheelslarbac Thanks. It is mutually beneficial. Anthony is a great kid!:-)
bissells 1 year ago
Do I need your permission to use this video as a training tool? thanks, J. Raskin, RN
cmcdpd1 1 year ago
@cmcdpd1
Yes you can use this video for educational purposes. Thanks for asking.
bissells 1 year ago
@cmcdpd1 Feel free to use the video. But I must say, had I known how popular this video would become I would have been better prepared and at least gotten out of my P.J.s! My son decided to do a "documentary" when he saw I was changing Anthony's button....
bissells 1 year ago
I Hope He Gets Better :D
MichaelJacksonGurl11 1 year ago
this was very usefull! thanks for putting it up!!
Prinsessenboontje 1 year ago
@Prinsessenboontje Glad you found it helpful.:-)
LightsCameraAaron 1 year ago
hats off to both of you for your strength and his happiness :D
sume555 1 year ago
@sume555 Thanks:-)
bissells 1 year ago
I would have primed that line (filled the line with food) before starting the feeding to prevent the patient from having air the stomach which is gas.
pasliso 1 year ago
@pasliso Yes, the line was primed. No need to prime the button, it's only 1.7cm long.
bissells 1 year ago
very useful video.
I love you strong little happy kid!
tingnicoletingting 2 years ago
Comment removed
arnrijk 2 years ago
What is wrong with having a peg? nothing. Like most things, we weigh the pros and cons. We find that by educating people there is more understanding and empathy toward people with disabilities.
bissells 2 years ago
Comment removed
arnrijk 2 years ago
Anthony is my son.
bissells 2 years ago
he keeps making chewbacca sounds ! Very cool vid
cottrellness 2 years ago
When you pull the button out, after about a month or two does it have a smell to it? And do most people with it have to have it there whole life?
SeaCoastGirl1987 2 years ago
Probably does have an odor, although it's not bad enough for me to notice when I've changed Anthony's button. I haven't actually taken a big sniff;-) Some people do have them their whole life, but it depends on the reason for the tube. Anthony has severe CP and can not swallow, so he will always need it. But many kids eventually get weaned off the tube. Especially preemies who just need help eating early on.
bissells 2 years ago
@SeaCoastGirl1987
usually it dosent have a smell to it, although in some cases it does, you just need to wash it, and most people do get it removed
marioahdz93 6 months ago
why does he have such a large scar from a previous feeding tube?
barbdowning 2 years ago
I don't know Barb, he came to us with that scar, but I always assumed it's from his nissen fundoplication.
bissells 2 years ago
anthony is such a happy guy
barbdowning 2 years ago
you work with quadropoleezics? das cool. i know i didnt spell that right. just sound it out. it takes pure heart to work with them
MrPwnBlog 2 years ago
This is a great video.
I have a Bard Button J Tube, and must be put under to change it. I wish it could be this easy to change. I've had it replaced once, so far.
The Kangaroo Joey Pump is pretty easy to run.
TheBlackberrybeat13 2 years ago
Thank you! Just what I needed
mancharose 2 years ago
Glad you found this video helpful:-)
LightsCameraAaron 2 years ago
Funny that my son decided to make a "documentary" out of this routine tube change. I never realized it would be so helpful (and I also would have changed my clothes, LOL).
bissells 3 years ago
Excellent video. I'm a paeditrician, and I found this very informative. Having watched this video, I've learnt how to change a Mic Key button. I'll now have the confidence to change one when patients attend after theirs has fallen out! Thanks!
knifedge 3 years ago
Thanks! Glad you found the video helpful. The only problem you might run into in that case is if the tube has been out for a while, you might have trouble getting a new one in. Having a smaller size tube handy might help.
bissells 3 years ago
Great informative video! I absolutely love the mic key button.
Very easy to put in ,and take out. It seems Anthony didn't have a problem with the change at all!
GregsAdvocate 3 years ago
Thanks Greg, glad you liked the video! Anthony's g-tube works great, no problems at all.
bissells 3 years ago
Hello!
Our little girl (2 years old tomorrow) will be having a feeding tube fitted next month. (With a view to moving on to a mic-key button afterwards).Your film has been very reassuring to me, thank you!
You are inspirational, you are a wonderful woman and God bless you and keep you well.
Kindest regards, Marina
marinamumof4 3 years ago
Thanks Marina, Glad you found the video helpful. I hope all goes smoothly for your daughter. Happy Holidays!
LightsCameraAaron 3 years ago
so thats what it does. interesting, thanks.
raulitech 3 years ago
You are welcome. Glad you found the video interesting.
LightsCameraAaron 3 years ago
THIS IS VERY EDUCATIONAL VIDEO, WHAT DO U DO IF YOU CANNOT ASPIRATE CONTENTS FROM THE STOMACH? Does it mean its not patent? How do you resolve it? thank you
wenapao 3 years ago
That does happen sometimes, if his stomach is empty. You can also push (flush the tube) with a bit of water using a syringe. You can also check placement this way with a stethoscope. With Mickie buttons, there is little chance the tube is not in the stomach. Especially kids who have had the tube for a long time.
bissells 3 years ago
Omgosh i see that kit and that button and it brings back so many memorys from my childhood, 11 years of that and it wasnt fun. Im glad they have videos like this to help new patients and parents who use these. Mine was for CF. we didnt have these videos when i had mine. On behave of everyone with a MIC-KEY G TUBE thank you so much.
CFGirl85 3 years ago
@CFGirl85 Amen!
marioahdz93 6 months ago
This video addressed all the questions and concerns I had about changing the Mic-key button. Thank you so much for posting it!
sadieeliz 3 years ago
Glad you found it helpful:-)
bissells 3 years ago
This is a very informative video. Can I just ask though, you only had 3ccs left in the button when you changed it. Do you not change the water weekly to ensure this doesn't happen? We have to, but I guess the guidelines are different everywhere.
Also in answer to a previous comment we put back any aspirate from the stomach as it contains vital stomach acids and probably meds in our case, not so much due to the calorific value of it. Thanks for posting this...
princessnormz 3 years ago
It is true that you'll find different guidelines, especially in home care. the purpose of the balloon is to hold the mickey button in place. Since Anthony's button has never come out accidentally, I don't bother checking the balloon. But it certainly doesn't hurt do check it. I just replace the whole thing every couple of months or so for cleanliness and that works fine for him.
bissells 3 years ago
i change my own i am 13 is that ok????
i have ibd cancer scoliousis ashtma im deaf so is it ok 2 change my own?
cassiecancer501 3 years ago
Sure it's OK. Good for you:-)
bissells 3 years ago
i had a MIC-KEY BUTTON AND I JUST GOT MINE OUT A MONTH BEFORE MY 19TH BIRTHDAY ! ! ! ! I COULD NOT STAND IT WHEN WE HAD TO CHANGE IT . . . . . . . . IT FILLS DIFFERENT NOT HAVING IT IN ANY MORE
piratesrocko7 3 years ago
@piratesrocko7 i fell the same way!
marioahdz93 6 months ago
thanks,well one question when aspirating the stomach content do i have to put back?and why?thanks
mcbong10 3 years ago
Yes, you typically do put it back, because it's calories.
bissells 3 years ago
ok,thanks a lot.
mcbong10 3 years ago
you are really funny and good at what you do! thank you for taking the time! I like the commentary! Even though as nurses we're like "Duh, they cant taste it!" we prolly need to remember that fam of patients might not know! How speedy we can be! As you just proved, we are teachers as well! = ) ill be watching more for sure!
linettecreeve 3 years ago
great demonstration!!! you are excellent at this
dollxbabyx87 3 years ago
Great job!!
SeaverBFriend 3 years ago
Nice job!
thepowerofsheep 3 years ago
Thanks:-)
bissells 3 years ago
I was on tube feeding for a while also. My experions though was sometimes I could taste the ensure. Why is this? PS I have sense then had the tube removed but just cerouse as to why sometimes I would taste it?
IluvAandN 3 years ago
You probably have a bit of reflux.
bissells 3 years ago
Oh I did not think of that because I do I have acid reflux. But am on Nexeum think god that is a mirecal drug.
IluvAandN 3 years ago
nice vids bissels,well what the best position when feeding on peg by bolus and time and amount?thanks
mcbong10 3 years ago
DANG!!! 300 CCs per hour!!! i only get 75 CCS... i only weigh 98 pounds and i have tiny stomach and esophagus and things..
alin0steglinski0 3 years ago
Yes, he's a big strappin' boy! He can tolerate 300cc bolus, but I figure over an hours is better for him, at least when he is home.
bissells 3 years ago
i am so tiny lol...i have a harness on my powerchair so i am strappin too hahaha, but i take 75 CCs for 1000 CCs over 12 hours hen i am ssleeping
alin0steglinski0 3 years ago
I think that's more typical. I'm a nurse and I don't know of too many people who can tolerate the large feedings that Anthony can take. But even so, I do try to spread them out over as much time as I can. Eating slowly is a good idea for everyone.
bissells 3 years ago
i know its more typical for someone to tolerate 90-100 CCs i know BABIES that can do 300 ccs in one hour!
alin0steglinski0 3 years ago
Big FAT babies? LOL;-)
bissells 3 years ago
no... im talking about normal babies and children under 3 years of age... older kids can take up to 500ccs in an hour...
it freaks me out how much these babies can handle and yet i cant handle more than 75 CCs per hour and even then i sometimes over fill and seep out from the g-tube site. my doctor said this is fine and she did it on purpose to prevent the tube from rupturing due to over filling of the stomach.
alin0steglinski0 3 years ago
lol
drummergirll 3 years ago
omg Alin u NEVER miss an opportunity to mention those straps do you??? !!! LOL
drummergirll 3 years ago
well they ARE important....
alin0steglinski0 3 years ago
Anthony got featured in my feature legth film called "Blood Party" (A scary movie!)
LightsCameraAaron 3 years ago
Yes, everyone should check that out at LightsCameraAaron!
bissells 3 years ago
That was cool! Thanks for sharing!
ahaili 3 years ago
Very nice and interesting video..I'am a nurse student and my last diploma work is about gastrostomy..Thank you bissells..
apolele 3 years ago
Ono.
I'm sorry to hear that.
He is in my prayer list.
GOD BLESS!
1992peter 3 years ago
Nice vid. Very thorough. Just out of curiosity, has Anthony always depended on a G-tube all his life? Don't mean to be nosy? Cute fellow though. Hugs to him.
dogdoo4brains 4 years ago
Thanks! Yes, he is fed through the g-tube. He can't swallow very well because he has cerebral palsy.
bissells 4 years ago
i have a progressive disease of cerebral and spinal cord... i can no longer swallow anything but liquid and i can only drink little bits because of how small i am
alin0steglinski0 3 years ago
Nice job! both filming and procedure, makes it a little less scary for the new guys watching for the first time. only thing I would add is perhaps gloves, if it was not a family member. all in all nice work>
Phitzgood 4 years ago
Thanks Phitzgood. Some people are more comfortable with gloves. This was in unplanned, unrehearsed little tutorial. My son Aaron is constantly filming and when he filmed this routine mickie button change, I thought it might be helpful for some people out there. But aside from wearing gloves, I should have changed out of my sweat pants and grumpy shirt. With my luck, this video will get thousands of hits, LOL!
bissells 4 years ago
Anthony is soooo cute!
LightsCameraAaron 4 years ago
Yes he is:-)
bissells 4 years ago