@luvlissy She is on that now. I believe we started that about a year after this video was made. Also we were able to stop Tobi because she is no longer growing out pseudomonis(sp?)
I have Cystic Fibrosis as well and I am 14 years old and i have not been in the Hospital for IV Fluids once in my life, and I am truly lucky to not have gone into the hospital! I homeschool too. I think all kids with CF should homeschool... cause they would have a better chance at not getting sick. : ) But of course i am going to go to College. yeah.. : )
@TheFlowerpower96 We have gone back and forth on homeschooling. I understand your point of view. For Tori it hasn't mattered if she was ion school or not when she has gotten sick. By the time she is in middle school we will probably start homeschooling her again.
your daughter is nothing but in my prayers. i am so sorry.. i'll also put her in the prayer book at church :) i hope all goes well with the future. god bless.
I just finished watching Tori and her treatment with you talking with her and of coaurse me crying. Collin is like that. He wont talk about CF. He loves school and everything about life. He is so happy and possitive. I see that is Tori also. I wonder if all CF kids is lik ours. Collin said Sat hewanted to be likeCassi and not have to take meds for food. She said collin God made you like that for a reason. :o)
What a brave girl you have. My mom uses the vest too and we always laugh when she talks with it on.
I really hope one day they can find awesome treatments or a cure for CF. I think a lot of people don't realize how it basically rules your life sometimes, like if you are sick and miss school or spending hours doing meds trying to breathing every day. This video is a great way of showing that. Thank you for posting her and sharing your beautiful little girl with us.
I can imagine singing would be fun to listen to. I am glad she has gotten used to it, my mother didn't care for hers much at first either. I can imagine it would be more of an adjustment for a child. Tori seems like an amazing little girl.
I am so sorry for your little girl. She seems very sweet and pleasant. She definitely doesn't deserve this crucial disease. I have been doing research on CF because someone I know has it and I am still praying for a cure. Your daughter is in my thoughts and prayers. Never give up! We can find a cure for CF and someday nobody will have to go through these treatments anymore. God bless you and your child for staying so strong. <3
My little one has asthma too ,its mild to moderate asthma.
I make him do regular yoga, Buteyko breathing techniques and have control over his intake of sugar. It helps him a lot. Please try some alternative natural treatments too.
She has a disease called Cystic Fibrosis. I suggest you look it up online. Then you'll understand why her mother doesn't exactly have options like "alternative natural treatments" to help improve her daughter's condition. Please look up the disease- you'll have a much better understanding if you do. Don't worry- it isn't just you that has no idea that diseases as terrible as CF exist... its fairly common for people not to know about this terrible disease.
Hi this is Tori's mom.... Krystal. I know alot of hospital doctors and rt and so on have told me different ways to do her breathing treatments. The advice we use is that of her primary pulm. doctor. Thank you for watching her video and telling us about the other ways to do breathing treatments
Try te hypersonic ask her drs abt it it makes my lungs alot more clearer
luvlissy 9 months ago
@luvlissy She is on that now. I believe we started that about a year after this video was made. Also we were able to stop Tobi because she is no longer growing out pseudomonis(sp?)
krystalmike1999 9 months ago
Very cute and admirable. I hope things are going well. Good luck and God bless!
Budmetro 10 months ago
I have Cystic Fibrosis as well and I am 14 years old and i have not been in the Hospital for IV Fluids once in my life, and I am truly lucky to not have gone into the hospital! I homeschool too. I think all kids with CF should homeschool... cause they would have a better chance at not getting sick. : ) But of course i am going to go to College. yeah.. : )
TheFlowerpower96 1 year ago
@TheFlowerpower96 We have gone back and forth on homeschooling. I understand your point of view. For Tori it hasn't mattered if she was ion school or not when she has gotten sick. By the time she is in middle school we will probably start homeschooling her again.
krystalmike1999 1 year ago
Oh, bless her lol what happens when she is sick and misses school? missed it..theres one at the hospital?
Chi2009Chi 2 years ago
may the Lord be with your family and daughter always, best wishes and good luck
QuickAtTheKeys 2 years ago
your daughter is nothing but in my prayers. i am so sorry.. i'll also put her in the prayer book at church :) i hope all goes well with the future. god bless.
mleex3syou 3 years ago
I just finished watching Tori and her treatment with you talking with her and of coaurse me crying. Collin is like that. He wont talk about CF. He loves school and everything about life. He is so happy and possitive. I see that is Tori also. I wonder if all CF kids is lik ours. Collin said Sat hewanted to be likeCassi and not have to take meds for food. She said collin God made you like that for a reason. :o)
Sandyrhh 3 years ago
Thank you Peter for putting her on your prayer list. That is much appreciated. I will tell her when she gets home from school.
krystalmike1999 3 years ago
Hello.
I just want to say, THAT YOUR DAUGHTER IS ON MY PARYER LIST.
I strongly put her on my prayer list, and there she is TO STAY.
GOD BLESS.
1992peter 3 years ago
What a brave girl you have. My mom uses the vest too and we always laugh when she talks with it on.
I really hope one day they can find awesome treatments or a cure for CF. I think a lot of people don't realize how it basically rules your life sometimes, like if you are sick and miss school or spending hours doing meds trying to breathing every day. This video is a great way of showing that. Thank you for posting her and sharing your beautiful little girl with us.
Momoftwinsplus1 3 years ago
It is truly funny when she tries to sing... Tori has come along way to actually enjoying her vest. She used to cry so hard when she took it.
krystalmike1999 3 years ago
I can imagine singing would be fun to listen to. I am glad she has gotten used to it, my mother didn't care for hers much at first either. I can imagine it would be more of an adjustment for a child. Tori seems like an amazing little girl.
Momoftwinsplus1 3 years ago
I am so sorry for your little girl. She seems very sweet and pleasant. She definitely doesn't deserve this crucial disease. I have been doing research on CF because someone I know has it and I am still praying for a cure. Your daughter is in my thoughts and prayers. Never give up! We can find a cure for CF and someday nobody will have to go through these treatments anymore. God bless you and your child for staying so strong. <3
littlemissdancerx333 3 years ago
I feel very sorry for your little one.
My little one has asthma too ,its mild to moderate asthma.
I make him do regular yoga, Buteyko breathing techniques and have control over his intake of sugar. It helps him a lot. Please try some alternative natural treatments too.
believerMOH 3 years ago
This girl doesn't have athsma.
She has a disease called Cystic Fibrosis. I suggest you look it up online. Then you'll understand why her mother doesn't exactly have options like "alternative natural treatments" to help improve her daughter's condition. Please look up the disease- you'll have a much better understanding if you do. Don't worry- it isn't just you that has no idea that diseases as terrible as CF exist... its fairly common for people not to know about this terrible disease.
KellyL2121 3 years ago
thankyou XX
passion2act 3 years ago
hiya, im sorry your little girl has to endure this :(
Please could you explain to me what the vest does, does it go inside her chest? of just vibrates??
passion2act 3 years ago
The vest, is just that a vest hooked up to hoses that uses air to do chest percussion therapy (cpt).
krystalmike1999 3 years ago
Hi this is Tori's mom.... Krystal. I know alot of hospital doctors and rt and so on have told me different ways to do her breathing treatments. The advice we use is that of her primary pulm. doctor. Thank you for watching her video and telling us about the other ways to do breathing treatments
krystalmike1999 3 years ago
i have CF too! from what ive been told the order of treatment should be albuterol saline with vest, tobi, then pulmozyme.
BassIsFun17 3 years ago