Added: 2 years ago
From: sueburke77777
Views: 6,192
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  • I don't have NF, but...wow umm, bless you and ur family.

  • im 20 and have 3 neurofibrmas on my spine and it is true nfhurts like hell. I have type 1.

  • God Bless Her.

    I'm 14, and I have A HUGE Nerofribroma on my leg.

    I have type 1, And I Agree. living with NF, is horrble.

  • so sweet, Memories last FOREVER! GOD BLESS. :-D

  • Your saviour was truly giving- in giving your daughter this terrible disease!

    What a very very nice thing for him to do!!!

  • i have nf......thanks for your story

  • Thank you for sharing your story I am also affected with NF and it can be hard at times,may the grace of God be with you and your family ....... she is beautiful,Great vid

  • I have nf and a 3yr ago I started having pain . It was 24/7 and so bad I wanted to die . God healed me and I have been pain free for 3 yrs . I can't stop praiseing HIM > I pray for others for their healing . May each of you be touched by HIS mercy, blessings and healing power.

  • What an inspiration.....thankyou so much for sharing your beautiful little girl with us. I also have nf2 and am recovering from surgery at the moment. Wow just to see those smiles.... just an amazing little one.

  • thank you for sharing this video. I lost my brother to nf and cancer. I myself have nf 1 and several tumors around my spine ane a couple in the brain. I have also passed this to my daughter she has these cafe au lait spot. I hope that they can find something that can treat this disorder, but knowing what ever happens it is the will of God no matter what happens. I just want to say keep praying an ask God to give the doctors some wisdom on all matters no matter what...

  • we lost my Mom due to nf and cancer.I wish they can hurry and find why some tumors cause cancer and the conection to nf.I have spinal tumors too.

  • my son who is 6 has also cafe au lait spots on his body

  • my son who is 6 yrs old also has cafe au lait spots

  • i was born with NF1 also-snif-snif that was just awsome-snif-snif i was dianosed at six years old-snif-snif why does god take one and not the other well things are not as they appier to be god took home an angel that day.snif-snif.

  • my family also has NF1,We just lost my Mom to NF related cancer.Its eatting my spine.Right now I am very angry at NF.Thanks for you story and your poem at the end really made me think.Thankyou for that.

  • I have NF1 thanks for sharing this video

  • What a sad story with a blessed ending. I know that this sweet child is in heaven now with a new body that works just perfect,.God Bless you guys for what you been through, which no parent should go through. God Bless You and I know you'll see her again one day.. smile

  • im really sorry to hear about this sad story no 7 year old should have to go thorough that pain of a tumour or cancer its good to hear tho that she still kept smiling

    i too have NF

    im just wondering what type do you, your daughter and your family of NF have

    i have NF1

  • i have Neurofibromatosis as well but i know this will sound silly but i get stick from school and college just because i have it

  • @tottenhamhtospurs199 just ignore them, keep a chin up and be proud of who u are, i have nf1 and i will never let anyone walk all over me.

  • @Hazekinse88 i have NF1 as well but so does all my family

  • Thank you for this video. It brings light to the condition,which I too have. It is so sad and by reading the description she seems to have been a strong little girl.

  • sweet, sweet, girl........

  • she is such a beautiful little girl, i know shes up there waiting for the rest of her family to live for eternity.

  • Such a beautiful angel. she appears to have been so strong too despite what she was going through.

    I also have NF as does my husband,

    I have endured over 30 surgeries from major to minor and have daily chronic pain from the tumors. I know how hard it can be to smile when the pain is so bad, your little one had the most beautiful smile. Thanks for sharing her smile with us

  • bless her, she was so sweet, shes with the angels now. i too have nf and my daughter has it. i know how painful it can be.. your in my prayers xx

  • This video has touched my heart she was an awesome little girl . We all love her

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