Thank you for sharing your story I am also affected with NF and it can be hard at times,may the grace of God be with you and your family ....... she is beautiful,Great vid
I have nf and a 3yr ago I started having pain . It was 24/7 and so bad I wanted to die . God healed me and I have been pain free for 3 yrs . I can't stop praiseing HIM > I pray for others for their healing . May each of you be touched by HIS mercy, blessings and healing power.
What an inspiration.....thankyou so much for sharing your beautiful little girl with us. I also have nf2 and am recovering from surgery at the moment. Wow just to see those smiles.... just an amazing little one.
thank you for sharing this video. I lost my brother to nf and cancer. I myself have nf 1 and several tumors around my spine ane a couple in the brain. I have also passed this to my daughter she has these cafe au lait spot. I hope that they can find something that can treat this disorder, but knowing what ever happens it is the will of God no matter what happens. I just want to say keep praying an ask God to give the doctors some wisdom on all matters no matter what...
i was born with NF1 also-snif-snif that was just awsome-snif-snif i was dianosed at six years old-snif-snif why does god take one and not the other well things are not as they appier to be god took home an angel that day.snif-snif.
my family also has NF1,We just lost my Mom to NF related cancer.Its eatting my spine.Right now I am very angry at NF.Thanks for you story and your poem at the end really made me think.Thankyou for that.
What a sad story with a blessed ending. I know that this sweet child is in heaven now with a new body that works just perfect,.God Bless you guys for what you been through, which no parent should go through. God Bless You and I know you'll see her again one day.. smile
im really sorry to hear about this sad story no 7 year old should have to go thorough that pain of a tumour or cancer its good to hear tho that she still kept smiling
i too have NF
im just wondering what type do you, your daughter and your family of NF have
Thank you for this video. It brings light to the condition,which I too have. It is so sad and by reading the description she seems to have been a strong little girl.
Such a beautiful angel. she appears to have been so strong too despite what she was going through.
I also have NF as does my husband,
I have endured over 30 surgeries from major to minor and have daily chronic pain from the tumors. I know how hard it can be to smile when the pain is so bad, your little one had the most beautiful smile. Thanks for sharing her smile with us
I don't have NF, but...wow umm, bless you and ur family.
goldboyjr 1 month ago
im 20 and have 3 neurofibrmas on my spine and it is true nfhurts like hell. I have type 1.
dipinprint 3 months ago
God Bless Her.
I'm 14, and I have A HUGE Nerofribroma on my leg.
I have type 1, And I Agree. living with NF, is horrble.
musicbudss 6 months ago
so sweet, Memories last FOREVER! GOD BLESS. :-D
LadyShyye 7 months ago
Your saviour was truly giving- in giving your daughter this terrible disease!
What a very very nice thing for him to do!!!
melissaconnie 10 months ago
i have nf......thanks for your story
SlumberCloud 1 year ago
Thank you for sharing your story I am also affected with NF and it can be hard at times,may the grace of God be with you and your family ....... she is beautiful,Great vid
Misskb1 1 year ago
I have nf and a 3yr ago I started having pain . It was 24/7 and so bad I wanted to die . God healed me and I have been pain free for 3 yrs . I can't stop praiseing HIM > I pray for others for their healing . May each of you be touched by HIS mercy, blessings and healing power.
icarrymycross 1 year ago
What an inspiration.....thankyou so much for sharing your beautiful little girl with us. I also have nf2 and am recovering from surgery at the moment. Wow just to see those smiles.... just an amazing little one.
michellejesberg 1 year ago
thank you for sharing this video. I lost my brother to nf and cancer. I myself have nf 1 and several tumors around my spine ane a couple in the brain. I have also passed this to my daughter she has these cafe au lait spot. I hope that they can find something that can treat this disorder, but knowing what ever happens it is the will of God no matter what happens. I just want to say keep praying an ask God to give the doctors some wisdom on all matters no matter what...
mdkblr123 1 year ago
we lost my Mom due to nf and cancer.I wish they can hurry and find why some tumors cause cancer and the conection to nf.I have spinal tumors too.
spyrogirlkim 1 year ago
my son who is 6 has also cafe au lait spots on his body
gutam76 1 year ago
my son who is 6 yrs old also has cafe au lait spots
gutam76 1 year ago
i was born with NF1 also-snif-snif that was just awsome-snif-snif i was dianosed at six years old-snif-snif why does god take one and not the other well things are not as they appier to be god took home an angel that day.snif-snif.
xifxyouxseexkayx 1 year ago
my family also has NF1,We just lost my Mom to NF related cancer.Its eatting my spine.Right now I am very angry at NF.Thanks for you story and your poem at the end really made me think.Thankyou for that.
spyrogirlkim 2 years ago
I have NF1 thanks for sharing this video
1cecb 2 years ago
What a sad story with a blessed ending. I know that this sweet child is in heaven now with a new body that works just perfect,.God Bless you guys for what you been through, which no parent should go through. God Bless You and I know you'll see her again one day.. smile
wordofadvice1 2 years ago
im really sorry to hear about this sad story no 7 year old should have to go thorough that pain of a tumour or cancer its good to hear tho that she still kept smiling
i too have NF
im just wondering what type do you, your daughter and your family of NF have
i have NF1
tomahawk5000 2 years ago
i have Neurofibromatosis as well but i know this will sound silly but i get stick from school and college just because i have it
tottenhamhtospurs199 2 years ago
@tottenhamhtospurs199 just ignore them, keep a chin up and be proud of who u are, i have nf1 and i will never let anyone walk all over me.
Hazekinse88 1 year ago
@Hazekinse88 i have NF1 as well but so does all my family
tottenhamhtospurs199 11 months ago
Thank you for this video. It brings light to the condition,which I too have. It is so sad and by reading the description she seems to have been a strong little girl.
FrazzleYeah 2 years ago
sweet, sweet, girl........
cobber61 2 years ago
she is such a beautiful little girl, i know shes up there waiting for the rest of her family to live for eternity.
19moonie62 2 years ago
Such a beautiful angel. she appears to have been so strong too despite what she was going through.
I also have NF as does my husband,
I have endured over 30 surgeries from major to minor and have daily chronic pain from the tumors. I know how hard it can be to smile when the pain is so bad, your little one had the most beautiful smile. Thanks for sharing her smile with us
LauSm73 2 years ago
bless her, she was so sweet, shes with the angels now. i too have nf and my daughter has it. i know how painful it can be.. your in my prayers xx
emmancharl 2 years ago
This video has touched my heart she was an awesome little girl . We all love her
braydenjones2 2 years ago