I Won't be Bothering My Doctor Again!

[TheLittleMuc]

You should get a different doctor. I can see from this vid that you have a serious condition, I have M.E. and had to endure crap from my own doctor for years, until I blacked out and crushed our architect's car because he drove through the car park where I was driving a 5 tonne dumper truck, I blacked out for 20 seconds, didn't see him park up and drove the fully laden truck over his car. Thank f**k he wasn't in it!

In the end I saw a different doctor who diagnosed me. Praise be!

[AdrienneLeeMarketing]

Dr. Zhang in NY.. he has an entire herbal protocol that works. You have the same symptoms I was having.. its like tourettes syndrome and the stuttering..

The herbs work.. read his book as well.. I had it everywhere and was paralyzed.

Please .. save yourself!!! Now I function and only have occasional moaning caused by sound or light.. 

[george05032010]

you have anxiety spectrum disorder mate, get on some treatment and get your life back

[ironbith]

FRUSTRATING! my dr is pretty much just a rx filler.....not much help.

[mecfs]

@justter

go to Ausburg in Germany and get well with antibiogic treatment for Lyme-borrelia-desease. Lots of people with the ME/cfs - diagnose gets well after hawing the symptomps (simular to Lyme de sesease)

[FallaciesDetective]

did you ever contact a neurologist who is specialized for muscle diseases?

would it be helpful to tell a new doctor nothing much about older diagnoses?

or maybe we should tell them that it is not a sure diagnosis and it needs differential diagnostics...

GOD bless!

He has risen!

[kansaslymefighters]

You have clinical symptoms written in the journal articles of neuroborreliosis. Most of us need IV treatment when this disease infects the brain.

[nicacuno]

Dear Paul,

don't give up! There are still lots of possibilities.

Did you try the Salt/Vitamin C Protocol already? It's so simple that I hardly couldn't believe that it works! But it did!!!

Did you try immune therapy?

Did you see a doctor specialized in infectious diseases?

Did you see the youtube films of Bryan Rosner?

May God bless you!

Heidi

[fogggygyrl]

Sometimes doctors and others bring me way down too. It's idiotic of them to suggest this is psychological. I think they know it's truly physical but they lie because they are in cahoots with the insurance companies and disability benefits programs.

There is enough evidence out there now to prove that ME is physical so these are the only explanations that make sense. Your doctor can be as nice as he wants about it, he's still acting like an ignoramus.

[luminescentfeeling]

Paul.

You need to make a complaint in writing to your MP & NHS trust + this video clip.

This is the only thing that worked for myself, when my Doctors and Hospital refused to listen in the NHS.

Once your condition is being debated in pen and ink (or type-writer), someone always comes to their senses.

Stay strong and remain focussed that your suffering is ignored and it's other people's civil duty to listen.

Civil codes of practice and ethics - demand you must be listened to.

[bluemaracuja]

Sorry to hear you are feeling bad and about your experiences. I have been diagnosed with 'CFS' and have had very similar experiences to yours with doctors. Just to let you know that there are some really good M.E. and Lyme groups on Facebook. I am not one for joining 'groups' in the real world but was very pleasantly surprised with the support I have gained from the M.E. groups, in my confusion. You can chat about anything - symptoms, problems, just to vent - whatever. Good luck.

[aerialgymnast10]

Hi, I hope you feel better soon. I want to tell you that I have felt comforted with your story. I too have some neurological type problems and all of my tests have come back normal. I have started seeing a psychiatrist and he has been very understanding and is treating me for the depression part of my symptoms. This is the fifth medication I've tried for depression and surprisingly this one seems to help. I wish you healing and daily improvements in all of your life.

[deadgirldreaming]

I'm so sorry you are having such a terrible time.

Grief is the most appalling experience.

As far as feeling suicidal goes have you asked for medication to help with that?

I spent a long time feeling like death was the only option. I have found the anti-depressants helpful with that - they haven't helped any of the ME symptoms but don't feel so emotionally bad.

Also - have you considered contacting Cruise or another berevement organisation.

Much love and good wishes to you,

Joss

xxx

[kaazoom]

Hi Joss. I'm not feeling quite so down now. The doctor's reaction to me was just one more thing to have to deal with at the time of making this video. I was never seriously suicidal, just totally fedup with fighting and having to deal with so many things. I am grateful that I have my family around me. I can understand why some people feel suicidal when they are going through a lot and the medical profession, treat them as if they are just wasting their time, particularly if the're on their own

[kaazoom]

I am not sure Cruise would help me much. We are still talking about David, but the memories of him still make our sense of loss even worse. We just have to work through the grieving process.

[cotmh]

God bless you, you are in my prayers. Lyme takes time, sometimes years to see real difference. Chronic Lyme Disease is a serious multi symptoms disease that is a marathon to treat not a race. Hang in there ...stay in treatment, you will get well. I totally understand how you want your life back, we all do, there are many thousands of us. I hope you have joined a lyme support group online as they can be very helpful. Christian lyme support group truthaboutlymedisease and tons of info.

[2hotinaz]

I can empathise with you so much. It's inhumane how we are treated at times...MOST times. I only hope that someday we can find some actual help. All of the losses we suffer don't seem to count for anything. It's been more than 35 years for me now, and there is so much I've lost and missed. I can't help but feel sorry for myself sometimes. It is hard. I too, often feel like just ending it all, but as you, my faith won't allow it, and I wouldn't do it to my child either.She doesn't need that.

[pamelamadindong]

Have you had an EEG? I have most of your main symptoms including the jerks which are myoclonic seizures it took 2 EEGs to recognize that. Myoclonic seizures are often from an indeterminate cause but just as often they are an autoimmune reaction. Mine are much under control now from changing my diet. Only 2 today, flared up a little now, but have gone a few months without them. Get tested for Celiac. I feel your pain & know how it is to be desperate enough to try anything, So try please!!!

[neelubird]

Yes, there was a case on the "mystery diagnosis" series of a child who had strange seizures as a result of Celiac disease. Amazing how much the food we eat can impact us so much.

[angelusa73]

Oh, dear Paul! I so wish we could all do something to help you!

You are going through so much! and you have been already through a lot. When will it stop? You deserve so much better. You deserve a break. The only thing I can do is to keep you in my prayers and ask God to take away some of your pain and to make you smile again...I will think of you.

Please, take good care.

Hugs,

Angela

[neelubird]

I think my faith has often been the only reason I'm still here- else I'd have left this mess of a world a very long time ago. In spite of the mess there are many special things that make life worth living and Drs are not one of them;) It's disheartening to be treated like a hypochondriac but at least it confirms to you once and for all that the NHS door is closed for you and you're better off pursuing other options. I REALLY hope the antibiotics work for you (and for me)!

[happydays4ME]

DON'T LET THE BASTARDS GRIND YOU DOWN keep the strength you can make it through i've felt just the way you say right now. i found great oomfort at pro health chat and msg board. you can chat to other sufferers live and this gives you comfort of support from fellow suffers and company to chat to live when you are ill and stuck in on your own. the msg board is full of advice from others of whats helped them and research etc. perhaps you could start your own support group put an advert in paper?

[greenpeel1969]

Hi, please don't be sorry for getting your thoughts and frustrations out in the open. You arent alone, you are dealing with so much at the moment and need to share it. I know what it is like to be alone for long periods and it is difficult. I hope you feel better soon, i know there is no easy answer, but keep fighting.

[spangelli]

I'm on 400mg Doxycycline plus 500mg Zithromax daily for Lyme. Lower doses don't work. I hope you get good help soon. I know how despondent one can feel. The losses are enormous.

[trishaspring50]

Keep the faith, there is nothing crazy about you. Believe me, I have seen Crazy, I will pray that you are guided to a caring professional that will give a damn.

God Bless You Friend

[ptharcourt]

You are not alone, you just make better videos than the rest of us!!!

Big technological hug!

[taniaaust1]

hang in there ((((hugs)))), yeah it's hard and most of us know just how much doctors some times drive us to despair. The thing is that doctors dont know what to do about us so it is usually useless going to one over the ME esp with the more unusual symptoms of it. I too wasnt going to the doctors for new symptoms. Fortunately now ive made good friends with a doctor and she's taken an interest now in ME.

[cleric1104]

My friend, I am so sorry for what you have been going through. This disease puts people in Hellish postitions. My wife has had to support the family for the past ten months and I feel horrible about it. I often miss her during the day as well. I am recovering now but I had thoughts about "how much I could take". I will pray for you and I just want you to know that you are a brave and worthy man, and you are not "moaning".You are in a constant trial and you understandably need to talk about that.