Multiple Sclerosis: Kerri on recovering from an MS attack

[RaeleneMcDual]

Thank you for sharing.

[Reese2336]

My family accused me of faking MS to get attention. I hate them.

[kezzcass]

Hi Reese, that is hard. MS is a difficult thing to explain sometimes, especially when one moment you can feel very well and then the next barely be able to lift your limbs. I can understand you feeling angry. I hope that they are able to one day appreciate what you are going through and that you get the support you need (if not from them, from other supportive people). Hate can eat away at you - I hope you can work through that for your own sake. Thinking of you :) Kerri

[cujojila01]

thank you for being my friend it means so much to me. i will wright you a letter. did i tell you about the attack i am having now my thoracic area is numb right now and over the weekend it accended up my neck this particular doctor does not believe in giving steroids for every attack i dont know how i feel about that. i will be wrighting you soon much love michelle

[cujojila01]

you are so lucky my family abadoned me when they found out i had ms, only my mom and my sister who was in another state talked to me there after otherwise i was alone with my 2 children i raised. i hear people talk about how important it is to have friends and family when diagnoised but, i was a registered nurse 2 decades before i was a ms patient and please let me say you can make it without the support even though its hard. god bless all of you i mean it michelle

[kezzcass]

I am so sorry you had this experience and lack of support. I cannot imagine raising my own 2 children without help - and I do understand that if I had to it on my own I would do it for my kids - just like you do. And I hope I could do it for myself too. Stay strong Michelle. Also, I have sent you a friend request.

[eyesofpassion]

Kerri,

Thanks for sharing! We are all connected and fighting together!

[kezzcass]

We can't control what happens but we can control the fight, right? I loved your video - thanks for your encouragement! Standing alongside you in the fight! Kerri

[angelusa73]

Dear Kerri,

I exercise every day and I feel that moving helps me go through my day feeling better and stronger. There are so many benefits in exercise and I believe that staying active help us in so many ways!

Thanks for sharing!

[kezzcass]

Yes - I agree. Do you take time off from excercise when you are going through a relapse?

[angelusa73]

Dear Kerri,

my first relapses were pretty serious and they took my mobility away so, in those cases, I wasn't moving much and I really wasn't exercising. During the last two relapses, which were a lot less serious, I was able to continue to move and to exercise. It was a lot better!

I did have to stop for five days while I had the IV in the arm but, except for that, I was able to continue doing many things.

I love to exercise and I wish I would never have to stop doing it!

Take care!

[Crystalenjoyingwater]

Hi Kerry, i've been watching your video's with interest as i'm a physio student trying to understand a bit more of about MS and its really interesting to hear your views and experiences. I was wondering what the simple exercises were that the physio's gave you to do at home?

[kezzcass]

Thanks for watching. Specifically excercises to try to encourage my feet to activate, eg, balancing on one foot while throwing a ball. General strength, squats, lunges, calf raises. Step downs have been important as my inner quads had been affected a couple of years prior so my knee caps have slipped (forget what that is called). So I have often had my knees strapped. Have also done a lot of PC muscle work to help with balance and core strength. Hope that answers your question :-)

[Crystalenjoyingwater]

That's great thank you. Crystal

[dmplaura]

Your recovery from relapse (time wise) sounds like my experience. I did 6 days of IV steroids by infusion, and then a month oral course. It wasn't until after the oral course that I actually woke up feeling excellent.

Keep stress out of your life. I had a very stressful event 2 months after getting better (selling my house) and I relapsed almost immediately again. I've been relapse free since, thankfully.. but it's touch and go day to day (I'm also RRMS).

[kezzcass]

Keeping stress out is hard - although I find this diagnosis helped re-evaluate what tasks I take on and what is most important. I try and save my energy for things involving my kids/husband, do a few hours work a week and then everyone else is just going to have to forgive me if I don't meet their expectations! How do you go with fatigue? Do you work? I am pleased to hear you have been relapse free lately.

[dmplaura]

Definitely, the diagnosis changes your life completely. At least it changed mine. I went from being a bit 'chubby' out of shape and eating horribly, smoking cigarettes... to losing a lot of weight eating a low fat diet for MS, quitting smoking, exercising etc.

I do work, but I don't have the children aspect to contend with. That's another full time job in itself!

Thank you, I hope you continue to be relapse free as well!