He is a good looking boy.I have four grand boys who have cf and my daughter is raiseing them by herself.Her husban was killed in a car wreck after the twins were born.
There is a great project to increase DONOR AWARENESS that ends Septemebr 1, 2008. American Express (credit card company) will fund the project with the most votes and I would LOVE for it to be the DONOR AWARENESS project.
It was written by an 18 yr old girl that received a transplant and is living with CF cystic fibrosis.
GOOGLE IT. It is called Member Project "Second Chances" Mobile Organ Donation Awareness.
Please VOTE FOR IT, pass the word to everyone and increase DONOR AWARENESS!
i am 21 years old with CF i had a double lung transplant when i was 18....i was not expected to be here at all. CF does suck but i also agree that i would not change having it for anything..it has made me who i am, i am now a youth worker and also work with teenagers who are chronically ill. I do public speaking for CF and for organ awareness....life is a gift and every expereience whether good or bad is a learning and growing experience
I am a mother of a son who died age 17 of CF in 2004. You are right - CF makes a person who they are and I hear of so many people with CF whose disease has given them great strength. Take Gregory Lemarchal for instance - the French singer who died last year age 23 (there are loads of vids on youtube). My son's favourite song was 'Nothing Else Matters' - For ever trust in who we are and nothing else matters (Metallica).
You are the same age as my son would have been. Glad to see young people still like the ageing rockers! David's band played NEM at his funeral. (David was a drummer).
Stay tough I know it is hard but I am 23 years old and I have CF. I have alot of friends who are even older and I see alot that has improved over the years. I wish you the best.
We loved the pictures..he's so adorable. Our 12 year old daughter has cf. we believe its all about the maintence..(thats what we call the treatment, meds) she has a 4600 calorie intake a day. that really helps. half comes from ensure plus drinks. keep up the fantastic work, mom and dad we know it can be hard at times, but we all know its worth it! enjoy him lots! messybubbles's family.
Yes, i do tell them about it, but its the "bullies" at my school who make fun of me about the mucus and being small and ppl say i am bulimic (I AM NOT) cuz I eat a lot of stuff, I am A PIG! lol and yet i am so skinny, ppl make fun of me. CF SUX!
i have cf, i'm 15 years old. if you have real friends that care about you, all the other people don't matter. if they're going to make fun of you for a lung disease, i feel very sorry for them. they don't know what we go through every day, they don't know how much pressure is put on us day in and day out. just know, you're not a freak. just because we cough up more stuff than they do, it doesn't make us gross or weird. it makes us who we are, and we're something beautiful.
Hi jake im 32 and i also have cystic fibrosis with other major medical condions i really liked how you shared your photos with everyone that was very kind of you if you would like to email me you can at talk to you soon hope you are having a good summer
Hi everyone ..Im 29 Yrs old with CF and i can say that somtimes life is not easy,, But never give up hope and Faith, someday we will fine a cure for it ;)...have a great day ....
What do you mean its amazing!? I have cf and it sucks. I can hardly go to school anymore because they always send a wheelchair when i struggle for breath on the stairs!
My cousin had CF but she died when she was 14..6 years ago
Brittanyydramaqueen 11 months ago
He is a good looking boy.I have four grand boys who have cf and my daughter is raiseing them by herself.Her husban was killed in a car wreck after the twins were born.
GoodOBoy757 3 years ago
This has been flagged as spam show
For more information on cystic fibrosis, simply type in Gibson Vance promoting Cystic Fibrosis in your youtube search engine
beasleyallen 3 years ago
This has been flagged as spam show
When you get to the American Express Member Project home page type UZHKO0 into the search box...it will take you right to it.
Come on people, $1.5 million could be AWARDED for ORGAN DONOR AWARENESS if we can win the VOTE!
PLEASE TAKE THE TIME AND PASS THE WORD
organdonor5 3 years ago
This has been flagged as spam show
There is a great project to increase DONOR AWARENESS that ends Septemebr 1, 2008. American Express (credit card company) will fund the project with the most votes and I would LOVE for it to be the DONOR AWARENESS project.
It was written by an 18 yr old girl that received a transplant and is living with CF cystic fibrosis.
GOOGLE IT. It is called Member Project "Second Chances" Mobile Organ Donation Awareness.
Please VOTE FOR IT, pass the word to everyone and increase DONOR AWARENESS!
organdonor5 3 years ago
my mom has CF and so did my uncle he died they are amazing and i love them.
Tory584 3 years ago 2
i am 21 years old with CF i had a double lung transplant when i was 18....i was not expected to be here at all. CF does suck but i also agree that i would not change having it for anything..it has made me who i am, i am now a youth worker and also work with teenagers who are chronically ill. I do public speaking for CF and for organ awareness....life is a gift and every expereience whether good or bad is a learning and growing experience
silvadodge86 3 years ago
I am a mother of a son who died age 17 of CF in 2004. You are right - CF makes a person who they are and I hear of so many people with CF whose disease has given them great strength. Take Gregory Lemarchal for instance - the French singer who died last year age 23 (there are loads of vids on youtube). My son's favourite song was 'Nothing Else Matters' - For ever trust in who we are and nothing else matters (Metallica).
soopersue 3 years ago
nothing else matters is my favourite song too...metallica are my fave band
silvadodge86 3 years ago
You are the same age as my son would have been. Glad to see young people still like the ageing rockers! David's band played NEM at his funeral. (David was a drummer).
soopersue 3 years ago
ur amazing
i hv cf 2
lifelovepeaceGP 3 years ago
Stay tough I know it is hard but I am 23 years old and I have CF. I have alot of friends who are even older and I see alot that has improved over the years. I wish you the best.
ehsnrgs927 3 years ago
thank you for your story. I'm praying for all CF people around the world for a cure.
chieftalentofficer 3 years ago
We loved the pictures..he's so adorable. Our 12 year old daughter has cf. we believe its all about the maintence..(thats what we call the treatment, meds) she has a 4600 calorie intake a day. that really helps. half comes from ensure plus drinks. keep up the fantastic work, mom and dad we know it can be hard at times, but we all know its worth it! enjoy him lots! messybubbles's family.
messybubbles 4 years ago
I am 12 and I have CF! IT SUX! I h8 the vest....
although it makes me feel better.... :)
BEST WISHES TO YR DAUHTER! PEACE
luv
GEMMA xoxo
gemmasinger 4 years ago
it doesnt suck, it makes you who your are
surfnguitar74 4 years ago
do u have it, it does suck, mucus is blocking your lungs and you can barely breathe and ppl make fun of u cuz u couph up grose stuff... IT SUX
gemmasinger 4 years ago
yes i do have it but if you have real friends that you can tell them about it, then they wouldnt do that
surfnguitar74 4 years ago
Yes, i do tell them about it, but its the "bullies" at my school who make fun of me about the mucus and being small and ppl say i am bulimic (I AM NOT) cuz I eat a lot of stuff, I am A PIG! lol and yet i am so skinny, ppl make fun of me. CF SUX!
gemmasinger 4 years ago
okay, whatever i am never going to meet you never going to be in contact with you
so i am not even going to argue
surfnguitar74 4 years ago
dnt take any notice of them
they r jealous coz u can eat urself sick and not get fat... while they weigh a ton.
lifelovepeaceGP 3 years ago
i have cf, i'm 15 years old. if you have real friends that care about you, all the other people don't matter. if they're going to make fun of you for a lung disease, i feel very sorry for them. they don't know what we go through every day, they don't know how much pressure is put on us day in and day out. just know, you're not a freak. just because we cough up more stuff than they do, it doesn't make us gross or weird. it makes us who we are, and we're something beautiful.
believeex3 4 years ago
thank you! u ROCK MY SOX!
gemmasinger 4 years ago
now, i have new firends and they are amazing people.... they dont make fun of me.... :) YAY!
gemmasinger 3 years ago
i have cf!!
jadehorgan 4 years ago
Hi jake im 32 and i also have cystic fibrosis with other major medical condions i really liked how you shared your photos with everyone that was very kind of you if you would like to email me you can at talk to you soon hope you are having a good summer
CFDLW 4 years ago
Hi everyone ..Im 29 Yrs old with CF and i can say that somtimes life is not easy,, But never give up hope and Faith, someday we will fine a cure for it ;)...have a great day ....
rejmel 4 years ago 2
What do you mean its amazing!? I have cf and it sucks. I can hardly go to school anymore because they always send a wheelchair when i struggle for breath on the stairs!
lauren100289 4 years ago
CF is not considered a disease to one of the top doctors researching CF he considers it a condition
doorbell789 4 years ago
i have CF and its amazing.
lts1018 4 years ago
not to be depressing or n e thing but there is no cure
MitchChiasson 4 years ago
You don't know that. If u were you i wouldn't say that
icheer4waves 4 years ago
dude i have CF
MitchChiasson 4 years ago
I have cystic fibrosis too
wrock88 4 years ago
And that's why we have to find a cure. We can't just give up.
poeticallytaken 4 years ago
we KNOW that and there will b its not like u hav it! I DO!
gemmasinger 4 years ago
He is A CUTE boy, I wish hope and much fun!! You get through this! Silke
springmausi 4 years ago