Added: 4 years ago
From: mattygee
Views: 13,130
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  • My cousin had CF but she died when she was 14..6 years ago

  • He is a good looking boy.I have four grand boys who have cf and my daughter is raiseing them by herself.Her husban was killed in a car wreck after the twins were born.

  • my mom has CF and so did my uncle he died they are amazing and i love them.

  • i am 21 years old with CF i had a double lung transplant when i was 18....i was not expected to be here at all. CF does suck but i also agree that i would not change having it for anything..it has made me who i am, i am now a youth worker and also work with teenagers who are chronically ill. I do public speaking for CF and for organ awareness....life is a gift and every expereience whether good or bad is a learning and growing experience

  • I am a mother of a son who died age 17 of CF in 2004. You are right - CF makes a person who they are and I hear of so many people with CF whose disease has given them great strength. Take Gregory Lemarchal for instance - the French singer who died last year age 23 (there are loads of vids on youtube). My son's favourite song was 'Nothing Else Matters' - For ever trust in who we are and nothing else matters (Metallica).

  • nothing else matters is my favourite song too...metallica are my fave band

  • You are the same age as my son would have been. Glad to see young people still like the ageing rockers! David's band played NEM at his funeral. (David was a drummer).

  • ur amazing

    i hv cf 2

  • Stay tough I know it is hard but I am 23 years old and I have CF. I have alot of friends who are even older and I see alot that has improved over the years. I wish you the best.

  • thank you for your story. I'm praying for all CF people around the world for a cure.

  • We loved the pictures..he's so adorable. Our 12 year old daughter has cf. we believe its all about the maintence..(thats what we call the treatment, meds) she has a 4600 calorie intake a day. that really helps. half comes from ensure plus drinks. keep up the fantastic work, mom and dad we know it can be hard at times, but we all know its worth it! enjoy him lots! messybubbles's family.

  • I am 12 and I have CF! IT SUX! I h8 the vest....

    although it makes me feel better.... :)

    BEST WISHES TO YR DAUHTER! PEACE

    luv

    GEMMA xoxo

  • it doesnt suck, it makes you who your are

  • do u have it, it does suck, mucus is blocking your lungs and you can barely breathe and ppl make fun of u cuz u couph up grose stuff... IT SUX

  • yes i do have it but if you have real friends that you can tell them about it, then they wouldnt do that

  • Yes, i do tell them about it, but its the "bullies" at my school who make fun of me about the mucus and being small and ppl say i am bulimic (I AM NOT) cuz I eat a lot of stuff, I am A PIG! lol and yet i am so skinny, ppl make fun of me. CF SUX!

  • okay, whatever i am never going to meet you never going to be in contact with you

    so i am not even going to argue

  • dnt take any notice of them

    they r jealous coz u can eat urself sick and not get fat... while they weigh a ton.

  • i have cf, i'm 15 years old. if you have real friends that care about you, all the other people don't matter. if they're going to make fun of you for a lung disease, i feel very sorry for them. they don't know what we go through every day, they don't know how much pressure is put on us day in and day out. just know, you're not a freak. just because we cough up more stuff than they do, it doesn't make us gross or weird. it makes us who we are, and we're something beautiful.

  • thank you! u ROCK MY SOX!

  • now, i have new firends and they are amazing people.... they dont make fun of me.... :) YAY!

  • i have cf!!

  • Hi jake im 32 and i also have cystic fibrosis with other major medical condions i really liked how you shared your photos with everyone that was very kind of you if you would like to email me you can at talk to you soon hope you are having a good summer

  • Hi everyone ..Im 29 Yrs old with CF and i can say that somtimes life is not easy,, But never give up hope and Faith, someday we will fine a cure for it ;)...have a great day ....

  • What do you mean its amazing!? I have cf and it sucks. I can hardly go to school anymore because they always send a wheelchair when i struggle for breath on the stairs!

  • CF is not considered a disease to one of the top doctors researching CF he considers it a condition

  • i have CF and its amazing.

  • not to be depressing or n e thing but there is no cure

  • You don't know that. If u were you i wouldn't say that

  • dude i have CF

  • I have cystic fibrosis too

  • And that's why we have to find a cure. We can't just give up.

  • we KNOW that and there will b its not like u hav it! I DO!

  • He is A CUTE boy, I wish hope and much fun!! You get through this! Silke

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