If I Had - Retinitis Pigmentosa - Dr. Gerry Chader, MD, Ph.D, USC Medical School

[wallybox]

I was diagnosed with RP at age 17, could see faces up until age 34, and now I have only light perception at age 36. I'm in the throes of adjusting to the loss and I pray to God and science I'll be able to deal with this for now and maybe see again. So hard on the psyche as this has given me PTSD and exacerbated my depression and anxiety. There are only two choices: to fall apart or keep it together. I hope I can do the latter as the loss of vision is testing my sanity and resilience each day.

[cleon1369]

my boyfriend has this & well..it hurts a lot..he doesnt like to talk about his feelings but sometimes i catch him crying & he says he doesnt understand why it had to happen to him..i tell him not to lose faith..he wa diagnosed a few months ago & it kills me because i want him to see our kids grow up when i have them..i pray to God everyday that there will be a cure for him..he's too young, hes only 17..its breaks my heart ='[

[LowVisionBureau]

Raising awareness about RP AKA RETINITIS PIGMENTOSA is very important so society understands our needs and our challenges so we can work together in society to find ways to coping with it and someday cure it!

[Munchyy92]

I'm doing a presentation on this, this video was so helpful thankyou!

[boycey247]

i have rp but i dont get tunnel vision and i'm colourblind... i don't even know why i'm colourblind and i'm a girl so that's unusual. i used to have wandering eye when i was little too but i had treatment for that :)

[wreyoG]

doctors should do more reaserch in finding cures for eye diseases like RP and Uveitis...i mean son of a bitch! why do people have to live with such diseases all their lives..the money governments spend on weapons and armed forces they could spend on research...but i guess doctors dont care about such things..no ..doctors are pharmaceutical companies' little bitches.

[av8rdav]

My brother has RP. Diagnosed at age 27. Will be 40 this year and fortunately has retained some vision. Breaks my heart.

[AHMET35AHMET]

Sir Thanks for the information provided. Retinitis pigmentosa have genetic as my spouse, my wife's age of 42, this disease can be treated with akapuntur? Vitamin A or Vitamin E Treatment is there that you're referring. stop progress with vitamins or any medicine? thanks... A.ALTUNDAĞ

[LowVisionBureau]

I hope Low vision Bureau will help educate sighted people about RP and other eyes diseases in a way they will join us in the fight agains them.

[Nazlim84]

thank you!

[MsDementedArts]

for a really long time my doctor thought I had a lazy eye and wanted me to wear an eye patch, then they thought I had Macular Degeneration, -_-; im not old.