Multiple Sclerosis: Limbs Going Numb While Sleeping? (Year 1, Episode 2 - jrmcg1)

[gettalong123]

ive had this for a year

[sleekcartim]

do you still have this? My hands / forearms did same thing for long time. just as i would fall asleep i would feel them going numb, i wonder why it happens then more?

[jrmcg1]

@sleekcartim Havent had this in a long time, actually. But I switched from taking Rebif to taking Tysabri over a year ago and haven't had any relapses since. Maybe this was part of a relapse while I was still on rebif--i dont know.

[sleekcartim]

@jrmcg1 wow great! thx for responding.

[abbydixxy72]

On the MS Society of Canada Webpage, they do have numbness & tingling as a symptom, and also useless hand syndrome as another symptom

[abbydixxy72]

I have read about this, I have experienced this too for the last month, however, I had an MRI and my doc says NO to MS, but I am not understanding why certain days I can't function :(

[jrmcg1]

@abbydixxy72 no coffee? :)

[roarbox]

thank you for the great videos! are you still having this problem? has the aspirin trick worked?

[jrmcg1]

@roarbox not still having the problem, fortunately.....i wonder if this was just me going crazy, or if it was a symptom. Annoying thing about MS is that we just NEVER KNOW! WWwwwwwweeeeeeee!!!

[jrmcg1]

@roarbox Haven't had this issue is a LONNNGGG Time now. I'm starting to think that I was just sleeping on my limbs a lot for some reason.

[TheCanadiangirl95]

My moms left side of her body goes completely numb sometimes

[jrmcg1]

@TheCanadiangirl95 ugh! so annoying. does she walk in circles like I do (or rather, I just kind of talk in circles)

[TheCanadiangirl95]

@jrmcg1 no she lays down for a while, but I hope you are adapting well the having MS, I help out with a lot of stuff for the ms society and since my mum has it i know how hard it is. Best wishes bud :)

[missjenny011]

it's amazing that so many of us have the same symptoms. I have the numbness at night too and I have to wake up to get my circulation going however, when I sleep with my head elevated it seems to make the condition worse. It seems to improve when both my head and feet are elevated though. ty for posting this video.

[punxrock1490]

My first attack ever both arms and legs went completely numb for 2 weeks. I was falling down and dropping things. But it is a common thing with this disease. I havent had it happen since October but I have a back spasm almost every day.

[missalgernon]

Yep - happens to me all the time. Arms more than legs. It happened for years before I was diagnosed with MS. A neurologist who did nerve conduction tests at the time said it must be "occasionally pinched ulnar nerves" By coincidence I had an ultrasound last week that confirmed that wasn't the case. Just discovered you exist, gonna watch some more of your videos now :-)

[sleekcartim]

@missalgernon similiar here, my hands & left foot, left side of head are usually numbish & tingly when i wake up. I also have same probs when i drive, or work w/ my hands. One of My neuro sez the same thing about pinched nerves. I know it's BS, but have to play along, just to be sure. docs have to MAKE SURE you have MS, they will put you through every test (no matter how much pain & aggrivation it causes) cuz the MS drugs they would have to put you on are very toxic / side affects....

[sleekcartim]

@missalgernon Imagine the frustration of coincidently having a compressed nerve (for 20 years) & neuro thinks thats causing a laundry list of (MS) symptoms. doesnt take einstein to see i have MS, when you take the time to see the whole picture. docs dont want to go there. been thru testing hell, 1st round tests are negative(ish) for MS, but as we (except for docs) know MS loves to do its evil in the dark.

[sct3306]

I was diagnosed with MS 4 months ago and I have also experienced the numbness at night that would wake me up. For me it was my arms, and it's really scary waking up to that.  I would just try to start my circulation going and then go back to sleep. I asked my doctor and he said its the way I'm sleeping. After a few times it seemed to go away on its own. Hope you are having better luck! Thanks :)

[jrmcg1]

@sparky413 I'm not sure I understand what happened when you woke up screaming. Can you explain a bit more?

[whyworryabout2moro]

I have that too. Try taking aspirin before bed and incline your bed. (so you are sleeping on a slope). I also take LDN. I think its a blood flow issue

[jrmcg1]

@whyworryabout2moro good tip, i'll give it a try and see if it stops the problem. thanks. How's it going for you?

[whyworryabout2moro]

@jrmcg1 Not too bad thanks:) I no longer have the numb thing happening at night and at the moment I am feeling really well. I had 2 years of what seemed to be constant relapses that really took their toll but thankfully that seems to have stopped. I have what they decievingly call "mild MS" (no obvious disabilities after 14 years) but the invisible symptoms can be just as rubbish:( Would be nice to feel 100% well most of the time!

[jgycay]

My one side is numb like that. I can still move it but it feels asleep and you can't wake it up. Are you able to move?

[jrmcg1]

@jgycay well, I wake up and I can't move my leg. But after about a minute of trying to move it, it slowly comes back to functioning. Much like i had slept on it, you know? I also have the one side numb problem (see my year 1, episode 1 post i talk about it) but i can still walk and everything... my side and stomach just feel ... different

[jgycay]

@jrmcg1 I have had the same problem for about 3 months. It is only on my right side from my breast to my toes. Yes it does feel different. I know there are not too many words to discribe it. Some days it is worse than others. I kind of got used to it. Sucks for sure. As of today (almost 4 months since my initial diagnosis) My feet have trouble functioning like that. I can still walk but it feels as though I slept on them wrong and need to shake them to get the feeling back.

[jrmcg1]

@jgycay Yes it seems we share this one. I call it a "reduced sensation" on my left side. And the feet thing is most prominent in the morning (or when i put my head down I can feel it more) my doctor tells me this is because the leisons become more exposed and it causes the increased sensation.

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