Added: 4 years ago
From: WashingtonDeceit
Views: 4,988
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  • Excellent videos, I love the quality of the pics and the fact that your joke at the beginning was lacking a punchline made it hilarious hahaha TRABECLE or Trabecule hahaha

  • My daughter broke her femur last year and when she had the x-ray, her doctor discovered she had fibrous dysplasia.

  • I have FD and Neurofibromatosis, and Cherubism, the bones I have it in for sure are my left femur and tibia and right ankle along with classic cherubism and mild neurofibromatosis. Oddly enough new case studies indicate NF and FD may occur in the same patient.

    I know from past surgeries these suckers bleed like crazy and the bleeding even from a tiny procedure (in my case removing a cyst and scraping the bone clean) can last for days.

  • The doctors always explained it to me as a tumor ^_^

    I gess it is in a way but you'd more or less call it a bone disorder?

  • there are many disorders in the tumor/non-tumor category, one common way to prove something is a pure "tumor" is to do DNA tests of their "clonality"...wdc

  • I was told the same thing, I guess since it is technically an abnormal growth and tumor like cells are often found on biopsy, and it would be treated like a benign tumor, that in general terms it is easier to call it a tumor.

  • @BlueFirefly010 hello, i have fibrous dysplaysia and what it is is a bone disorder in the form of a tumor. A tumor is and abnormal growth of tissue by definition and thats exactly what this is.

  • I have Fibrous Dysplasia in my left cheekbone. I was diagnosed almost 10 years ago. I have undergone a total of 3 surgeries to correct it with a 4th in June 2007. Thank you for this video talking about the specifics.

  • @lestatsduchess hello i am 32 and was born with the disease. It spider-webbed out from the left side of my face up over my head. Oct. 31, st 1988 ( halloween ) i had a craniotomy. July 4th week 1996 i had minor facial reconstruction. It was very hard sometimes. I am different but in a good way. i have come to accept what i am. I am married to a beautiful women and have 2 beautiful kids, you must have confidence in your self and above all believe in yourself! I understand i understand

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