ME/CFS/XMRV Demo: One woman protest in Wash DC Aug 13-14 2010

[MyInvisibleIllness]

Awesome!

[baronvonaqua]

I am considering getting a class action against The Australian Medical Association under the law of torts- duty of care- medical negligence.

Serious financial PAIN is a very good teacher, It makes dodgy people 1/2 decent and decent people careful decent people. This is the same principle used to prevent people bouncing checks (bank fees and fine) or to stop people speeding traffic fines).

Until some politicians child suffers from ME/CFS there may be no change at a political level. 

[EutuveX]

GREAT INITIATIVE !

as for me...I have been wrong since 1984 ... it was all in my head !

Nowadays," tired" and ready to go, I wish I could leave to my so called doctors, my wore out hat ( the one that IS still on my head ) .. so that they can wear it and finally " feel " and know HOW WE SUFFER !

[go2mikerenzi]

I have a boil on my butt, when are they going to butt boil research?

[RyuBlade1980]

I am in awe of your effort! Really am! I wish you the best of...well of everything!

[8006121]

One more message, I just wish I could go for a decent walk in the forest next to where I live just 10 minutes is too much for me, I feel like I am going to miss out on nature.

[8006121]

If I was a billionaire I would donate all of it to the right scientists, who can hopefully give me and other CFS sufferers a cure.

[8006121]

I have had M.E/CFS for 1 year and 1 month now. I used to exercise for many hours most days during the week, now I can't even go for a 15 minute walk without having for spend 4-5 days in bed recovering. I hope I am not going to have to deal with this for the rest of my life because I want to travel I want to do so many things.

[justinreilly1]

You Rock!!! I know how hard it is to do something active like protesting; so thank you!

[2010tanguera]

From Argentina: I am with you! I´ve got CFS and FM! sufferiing since more than 12 years! I have to work! I need the money, I need tokeep my medical coverage if I do not work I cannot keep my medical coverage. iNo recognition of sikness, no certification to get ""Disability Certificate"", etc. etc. etc.

[CFSDemo]

@2010tanguera

i'm so sorry about how hard it all is! a terrible situation. the most we are public and showing the world our situation, the more awareness we will raise about our illness and disability. be bold!

[CFSDemo]

@2010tanguera

i'm so sorry about how hard it all is! a terrible situation. the more we are public and showing the world our situation, the more awareness we will raise about our illness and disability. be bold!

[CpnLadybug]

Patients have been patient for far too long. "Life, liberty, and the pursuit of happiness" is a well-known phrase and refers to unalienable rights. Yet what of the right to live a life free from pain, cognitive dysfunction and other symptoms of many chronic, treatable - but underresearched - illnesses? When bugs such as Chlamydophila pneumoniae have been implicated in so many illnesses, why are so many of us living the lives of the half-dead? This woman deserves a medal. Good on her!

[Katnet1]

I think what you are doing is great. Posted video on Facebook hoping to get some people together in CA. :)

[CFSDemo]

@Katnet1

GREAT! it would be wonderful if we can hold these mini-demonstrations all over the country and around the globe. you only need 1 person!

[candycar58]

Your courageous, novel approach to protesting hopefully will open the eyes of Govt. to address the desperate need to increase awareness and funding for ME/CFS as soon as they realize it is now in the blood supply, not to mention each person affected. A BIG thank you from your fellow sufferers! I want my old life back and imagine most others feel the same!

[phaedra528]

Good for her!

[fibrocfsfighter]

Thank you!!!!!!!!!!!! xoxoxox

[CFSDemo]

If we can have 100s of these mini-protests around the country/globe, we may get some press attention and get some clinical trials and funding for ME/CFS/XMRV research. Protests and demonstrations -- holding up a sign in a public place stating your views -- are part of the democratic process. Let your voice be heard!

[canttakesky]

Thank you.

[janeann00]

What a brave woman. If we all weren't so sick, we could raise our voices,but it's hard to do when your to sick to leave your home. I guess that is what they are counting on. Bravo to you!!! Excellent message. Let's hope it opened a few eyes!

[DrFrankyDolan]

Bravo! ... BRAVOOOOOOOO!!!!!!!

I am with you my friend. I too work very hard to HELP our community. Thank you, my beautiful friend.

Great, great work! ...Sending Love...

[WildaisyFL]

Great idea! I hope everyone sees this.

[edittubev]

Excellent video.

We can change things!