Garrett: The Boy Beneath The Bandages. WINNER of the Rare Disease Day 2010 Video Contest.

[617kittenchicha]

what an amazing lil guy and his whole family as well being so supportive and so close it's so sweet and he still puts a smile on even through this awful thing, my heart goes out to u and anyone else who is suffering with anything

[56785439]

he is amazing im a affected my a rare genetic disorder called prader-willi syndrome it affects 1 in 15,000 live births each year

[SuperMissblueeyes]

What an amazing family you are. Garrett seems such a lovely boy & is obviously very strong & patient. And you are such a wonderful mother to him. It must be so hard for you all, but you're amazing. I wish you the best in life & I hope scientists find a cure for this soon so Garrett & others with such awful, painful skin disorders can be free of this pain & have a pain-free life. My best wishes to you all.

[themainman2008]

How does it pass one child and hit the next.

[pimpjuice61452]

I have this diaseees ... but I dont have it very bad but in the summer I start to get blisters and im bandaged head to toe

[glitterlover429]

my teachers daughter has this and he tells the class about it all the time.. im pretty sure though i am the only one who looked it up.. and this is sad...

[RareDiseaseContest]

Thanks for the video. We too are trying to aid researchers in their discovery of cures for these children, and we are doing this by supplying them with the research software they need. Together with the CRDN we are giving away a rare disease research system worth $50,000 to the winner of a video submission contest and the rare disease organization of their choice. To learn more about this contest visit Remedymd.com/RareDiseaseContes­t. Good luck!

[greenvwgirl70]

Hi Lorraine, My name is Celena. I spoke with you over the phone and met you at the Eb clinic in Dec. 2008. I believe you guys were being filmed during that visit. My daughter Emberly passed in Feb 2009. She had JEB-Herlitz. I just want to say that you and Garrett are amazing people. I wish more people could really understand what you guys go through. Keep your strength up. I have lots of love for you both.

[tituswithlove]

there is really a cure, i watched this eb dsea in Discovery channel, a kind of bone marrow transfer from someone that is compatible to him...this is truly a heart quenching video...

[Solofox]

Garrett, God bless you and your mother...

[TheMacball8]

please pray for that poor little boy i msy npt know you garrett but i already love you it must be so painful and u are the toughest kid ever i have no reason to complain cpared to you i hope there is a cure you will be ok god is with you

[robpleticha]

New Online Community in 5 languages for people living with EB. Developed by EURORDIS, NORD, and International EB patient organizations.

Check it by Googling Rare Disease Communities

[sergios22bh]

tenho uma filha com eb , entrar no yutube digitar (rayssamg) yutube , thanks !!!!

[Andreart35]

What an amazing, strong mother you are! I can't even imagine how difficult this is for both of you. I have a rare skin disease also (Necrobiosis Lipoidica Diabeticorum) but after watching this I have no right to complain! I will keep Garrett and everyone with this awful disease in my prayers. Are there any fundraisers or such for research on this particular disease? If so I would like to help.

[angeliithalorelove]

hola amigo hermoso como estas espero puedas leer este msj y respondermelo soy colombiana y ps conosi tu enfermedad atravez de un caso k hay aqui en colombia sabes tambien te vi por la tele jjejejej eres admirable me interesaria mucho si me regalas tu correo para contarctarnos es k a raiz de esto quise hacer una tesis para dar a conocer sus necesidades sus sueños su fortaleza dios te bendiga espero me respondas

[TheCluele55]

Your son is so lovely...hopefully there's a cure out there. God bless u both...

[lopezluch0]

that boy deserves all our respect.

[yeh6432]

要努力,不只是希望孩子痊癒.

[MakeupCrazyArtist]

i hate EB! im sick of it!, why oh why do innocent children have to go thro this! i would take on everyones pain (i have eb) in order to get rid of EB!

[Imnotdumbimjustcrazy]

People with EB Normally cover themselves with Aquaphor before bandaging. I think aloe would make the bandages stick.

[scarlettwindx]

god bless you both!! i don't know if this would do anything in his condition but you should try aloe to sooth the wounds, fight infection and sooth itch.

[MakeupCrazyArtist]

@scarlettwindx i see how that could work but i find on most of my sores it burns to bad, so i tend to lean twords "medi honey" (medical grade honey) it really works for me and my twin

[DMBkeepsmesane]

I saw a documentary on Garrett on tv the other night and it just made me so sad. Watching this makes me thankful for everything I have and makes me wish there was something significant that I could do to help him and his family. Hopefully there will be a cure someday. Garrett & his family are in my thoughts.

[luigitricia]

Wow, a real insight into love and struggle. Those of us with healthy kids rarely let ourselves imagine the "what ifs" of our children with a terrible disease. God bless you and your mom Garrett.

[jschenck11]

Thank you for shedding light on EB. This is a great video, orchestrated in love. I wish there was something we could do for little Garrett.

[tania1fs]

we admire your love, your strength, your insistence

all of my warmest thoughts to all of you and especially Garrett

a huge hug from Greece

[watchensee]

Poor little boy! {:(

[pandabarrie]

touching documentary. I hope one day I can be half as dedicated as she is