This is So Sad, my Heart and prayers Go out to the innocent babies and also the parents in all this. sad disease to the young boy he did a Great Job!!! too . pam.
Thank you for the great Message.And thanks to the young man. I have big respect for him. I find it well he tries to speak other courage to.God may give you to all The strength you need. God blesses to you children and your families.
thanks mommarox for spreading these news... when I hear about these dreadful diseases, I wish I'd had some "medical talent", I wish I could have had the aptitude for medical skills, and maybe I could have been an active researcher in the terrible world of genetic disorders...
my heart goes out to all the families that have to face and cope with such sufferings
Thank you Cathy, Peter is a fine young man and a great help in making people more aware of a disease most of us never heard of. I told him I would help him out
While I am indulging my ego as a 'so-called' entertainer, there are others who need to use this platform for far more important messages. Gods speed a cure for this cruel disease and Gods bless those who suffer.
Thankyou for yet again clearing the stage for something really important, Dianne.
Thanks for posting this video,Its very sad to view this video.I hope & pray, they will find a cure for this disease & others..God Bless..Marc Jones..U.S.A.
I was so upset when I heard of this disease from Peter. My gosh, our governments spend millions of dollars
on space and and other things but can't at least find a treatment after all this time. Peter is such a great young man who shows the true meaning of HELPING OTHERS
This is So Sad, my Heart and prayers Go out to the innocent babies and also the parents in all this. sad disease to the young boy he did a Great Job!!! too . pam.
aspire62 2 years ago
yes this is sad!
boogieman079 2 years ago
so sad and heart breaking ,
mommarox you are doing a great job bringing this to more people and making us aware
love is all
trevor sizzle
Sizzletube 2 years ago
Such a sad, tragic condition, heartbreaking.
baldyholly79 2 years ago
Great video Diane!! Really interesting!!!
classican 2 years ago
Thank you for the great Message.And thanks to the young man. I have big respect for him. I find it well he tries to speak other courage to.God may give you to all The strength you need. God blesses to you children and your families.
The Best Wishes for you from Germany♥
Doris
maeuschen64 2 years ago
:(
thanks mommarox for spreading these news... when I hear about these dreadful diseases, I wish I'd had some "medical talent", I wish I could have had the aptitude for medical skills, and maybe I could have been an active researcher in the terrible world of genetic disorders...
my heart goes out to all the families that have to face and cope with such sufferings
enricator 2 years ago
I know and feel so deeply about this since I heard about it. Even if they could find some type of treatment, it would help till they find a cure.
mommarox2 2 years ago
Thats a horrible disease to get, those poor babies!!
littlecherubs 2 years ago
I do understand what you mean and I agree, Dianne!!
aantonella68 2 years ago
thank you hun have a great week end
mommarox2 2 years ago
Very sad video, Dianne!! Let's hope we could find a therapy for these children!!
aantonella68 2 years ago
Exactly, after 120 yrs you would think , our
researchers would have found some
treatment to help out. But the government
spends money on space and other things instead of more for reseach.
mommarox2 2 years ago
Let's hope they find a cure for this. Nice job on the video.
townstra 2 years ago
thank you Tracy, just helping to inform people of this dreadful disease that they may not have heard about.
We need to find a cure
mommarox2 2 years ago
geoff1945 said it all , i would just add i cant understand the race for outer space and weapons, when this is happening , .
Mankind minus the kind i think , God bless from us hiya Peter , your a great young fella xxxxxxxxxxxxxxs Cathy
irishthankgod 2 years ago
Thank you Cathy, Peter is a fine young man and a great help in making people more aware of a disease most of us never heard of. I told him I would help him out
He is an awesome dude
mommarox2 2 years ago
While I am indulging my ego as a 'so-called' entertainer, there are others who need to use this platform for far more important messages. Gods speed a cure for this cruel disease and Gods bless those who suffer.
Thankyou for yet again clearing the stage for something really important, Dianne.
geoff1945 2 years ago
thank you Geoff, I will be doing more of these special project videos in the future.
To make more people aware that so much goes on that we know little or nothing about.
mommarox2 2 years ago
My Prayers are with these babies.
kennosen1 2 years ago
Mine too
mommarox2 2 years ago
Thanks for posting this video,Its very sad to view this video.I hope & pray, they will find a cure for this disease & others..God Bless..Marc Jones..U.S.A.
glennmach 2 years ago
thank you Marc, It is sad to know what these poor babies go through in their short life. I pray too that they find a cure
SOON
mommarox2 2 years ago
Momma this is so sad and i really feel bad for all these beautiful babies! I am so happy that you did this video and
sent this message out! I hope they find a cure for this!
God bless Peter!
Hollie
Hollistergirl0731 2 years ago
thank you Hollie, I pray they find at least some treatment soon if not a cure so these babies at least can get some comfort in their short life.
mommarox2 2 years ago
Momma that was so nice of you to do for Peter
BrightLySinging4GOD 2 years ago
I was so upset when I heard of this disease from Peter. My gosh, our governments spend millions of dollars
on space and and other things but can't at least find a treatment after all this time. Peter is such a great young man who shows the true meaning of HELPING OTHERS
mommarox2 2 years ago
yes for sure
BrightLySinging4GOD 2 years ago