Added: 7 months ago
From: heythereitsmindy
Views: 549
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  • PS I have dysautonomia/severe dysmotility from suspected mitochondrial disease 

  • my friend used to get tysabri for crohns, and way more infusions than you're supposed too. I am glad they help you, I see this is about 6 months old hope if you are no longer getting them you found another treatment I know for crohns its the last one out there. hugs you are such a joy!

  • MINDY!!! :-D you cheer me up so much!! I swear I am going to log into Skype every single day till I see you. Or i am gonna send you my phone number and you can just call me up then we can get on Skype!! :) I absolutely adore you and your channel. Hope you will bring us to your block party!!! Please take us there! Huggles!! (and hugs to dear Andrea too)

  • Hi Mindy, I am glad to hear that you are doing so well. You are a busy woman and I am exhausted just hearing all the things you are doing :-D It is fantastic! I was lucky myself that a Nurse Practioner caught on that she thought I had MS and sent me to the Neuro the very next day. So I was diagnosed very fast as well.

    Judy is the BOMB! We skype all the time and yes she is very well informed! I hope your block party is a sucess!

    Andrea

  • I am glad Tysabri seems to be working for you Mindy. I, too, can tell when I am due for an infusion (I call it my 'slump week')

  • You look great Mindy. So pleased its working for you:)

  • Happy your doing well, may I ask,  after 24 infusions, or if you test positive for PML what would do? And Judy is a special person to me too... And her dad and I have a long distance relationship LOL stay well. susan

  • So happy that you seem to be doing so well.. love you kiddo! xo!

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