i've had it since i could remember. weekly visits to the doctor since i was 3. now i am almost 15, & i still have it. i miss so much school from it, causing me to fail. i get depressed because of it. i had to quit track, ice skating, gymnastics, and all the other sports i tried because of this painful disease. &the worst part is that nobody gets it. nobody. not even my parents, they think i'm using it as an excuse now. but your video made me cry, finally, someone else feels the same pain i feel.
my friend has JRA and two other auto immune disorders, and she is sick a lot and at the doctors a lot. but she never complains and if she didnt tell u, u would never know she was sick because she is always so positive, although she is always in pain not only from jra but her other illnesses
I'm with ya. I just got put on crutches, and i can barely walk cuz my knees. KEEP BELIEVING! I CANT DO THE THINGS I WANT TO TOO. I'M PRAYING FOR YOU! I have JRA, and almost a teen, it sucks, i know. I feel your pain, or worse.
Nice video. I have had a severe case of JRA most of my life, and this video is motivational for those who need to find some kind of strength. Hang in there.
hey great job! I was just diagnosed with JRA, and I didn't know anyone else who has it. I never really did many sports, so when I found marching band I was ecstatic. When I was diagnosed, I realized that I couldn't march anymore, and I cried everytime I went to practice. I'm just now struggling through not getting to march, but my friends just don't seem to understand. Don't get me wrong, my friends are amazing, but I just feel really alone sometimes.
Thanks for helping to support others with the disease. I, too have been on all of the medications you have listed and even had several joint replacements. I'm happy and upbeat by nature, and have done a lot with my life, and I know how hard it is, especially on the bad days. It's a battle, but in the end we can win. Feel free tot talk if you ever need anyone to listen :)
this is sooo sad :(... i understand the pain of it all, i was born with JRA and have pretty much grown up in the hospital... im almost 15 now and haven't grown outts it, i used to play basketball all my life but this year as a frshman i was forced to stop coz of it, i cried when i found out, but i kno i juss have to keep going, but im scared coz im so close to havin to stay in a wheelchair the reast of my life... but this was very inspiring THNK YOU SOO MUCH!!!!!
i have jra and i cant do ANY SPORT BUT I WONT GIVE UP im sad at times and i hate it but there are some good days and a lot of bad days but ill deal with it im going to have to so good look to all you other pople just like me DONT GIVE UP there will be away dont feel bad you find a way
I understood your video even though I don't have JRA. I was diagnosed with an invisible illness when I was 13, I'm now 19. I used to play sports and everything too and I am no longer able to. I'm not sad about it though, I get frustrated from time to time but I'm not sad. So, I just wanted to say thank you for posting your video because when I see these type of videos it reminds me that there are other people out there that go trough the same things.
Amazing video I was diagnosed with JRA shortly after my 16th birthday. I am taking a shot every week. Living with JRA is very hard emotionally as well,I always wanted a career in the law enforcement/military field, but now I have had to give that dream up. It hurts to know that there are things that I can't do. But I know that there is hope. I do have my bad and good days, but I just keep on moving foward I can't give up. I know that God and my mom who are up above are by myside all the way.
hey i know how it feels like to have everything taken away from you. I also have JRA and i had to give up soccer gymnastics and iceskating. Thankfully i found swimming which has helped me deal with so much. I love your video its so great and has an amazing message.
My son was recently diagnosed at almost 11 years. I am so proud of you for showing how strong you, and other children who struggle with JRA are. Thank you for sharing your powerful story. Keep strong.
I have this same disease. But Im telling you just keep having faith in god and nothing is impossible. I am now healed of this disease because of my faith. I have to stay on medicine for abot 6 more months and then im done.
Courtney- I love your videos! Thank you for sharing your story... at age 10, my daughter does not like to talk abouther arthritis... so you speak for so many who don't feel up to it. And what a lovely message of hope in your second video!!! Please send your videos to the AF channel web master so they can add it to their favorites... you tell the story so well and we know how important it is to get the word out!
i've had it since i could remember. weekly visits to the doctor since i was 3. now i am almost 15, & i still have it. i miss so much school from it, causing me to fail. i get depressed because of it. i had to quit track, ice skating, gymnastics, and all the other sports i tried because of this painful disease. &the worst part is that nobody gets it. nobody. not even my parents, they think i'm using it as an excuse now. but your video made me cry, finally, someone else feels the same pain i feel.
HALEYeJONES 1 year ago
my friend has JRA and two other auto immune disorders, and she is sick a lot and at the doctors a lot. but she never complains and if she didnt tell u, u would never know she was sick because she is always so positive, although she is always in pain not only from jra but her other illnesses
McDreamer24 2 years ago
I had this before.
videolver2 3 years ago
I'm with ya. I just got put on crutches, and i can barely walk cuz my knees. KEEP BELIEVING! I CANT DO THE THINGS I WANT TO TOO. I'M PRAYING FOR YOU! I have JRA, and almost a teen, it sucks, i know. I feel your pain, or worse.
jpimlott 3 years ago
this is a great video, stay strong, dont let it lead your life, let it be part of you =)
abwescott 3 years ago
Nice video. I have had a severe case of JRA most of my life, and this video is motivational for those who need to find some kind of strength. Hang in there.
Annamarie40985 3 years ago
Hi AnneMarie
My name is Collette, I am 16y/o with acute systemic JRA. I would like to keep in touch with you if thats OK!
Love, Collette
collettewylie 3 years ago
hey great job! I was just diagnosed with JRA, and I didn't know anyone else who has it. I never really did many sports, so when I found marching band I was ecstatic. When I was diagnosed, I realized that I couldn't march anymore, and I cried everytime I went to practice. I'm just now struggling through not getting to march, but my friends just don't seem to understand. Don't get me wrong, my friends are amazing, but I just feel really alone sometimes.
mathgeek49 3 years ago
i undetstand how you feel.
i have JAS (JRA in my spine and hips) and it also is in the rest of my body. being a teenager and getting diagnosed is hard.
twice weekly shots are hard. steriods are hard. methotrexate is hard. and i know it feels like no one understands the truth behind the smiles.
im here to talk to anyone who wants to
Stillonthejourney 3 years ago
Thanks for helping to support others with the disease. I, too have been on all of the medications you have listed and even had several joint replacements. I'm happy and upbeat by nature, and have done a lot with my life, and I know how hard it is, especially on the bad days. It's a battle, but in the end we can win. Feel free tot talk if you ever need anyone to listen :)
Annamarie40985 3 years ago
'twice weekly shots are hard. steriods are hard. methotrexate is hard. and i know it feels like no one understands the truth behind the smiles.'
Couldn't sum it up better,
thankyou x
Sonotidentical 2 years ago
this is sooo sad :(... i understand the pain of it all, i was born with JRA and have pretty much grown up in the hospital... im almost 15 now and haven't grown outts it, i used to play basketball all my life but this year as a frshman i was forced to stop coz of it, i cried when i found out, but i kno i juss have to keep going, but im scared coz im so close to havin to stay in a wheelchair the reast of my life... but this was very inspiring THNK YOU SOO MUCH!!!!!
callieandjohn 3 years ago
i have jra and i cant do ANY SPORT BUT I WONT GIVE UP im sad at times and i hate it but there are some good days and a lot of bad days but ill deal with it im going to have to so good look to all you other pople just like me DONT GIVE UP there will be away dont feel bad you find a way
tgrays109 3 years ago
I understood your video even though I don't have JRA. I was diagnosed with an invisible illness when I was 13, I'm now 19. I used to play sports and everything too and I am no longer able to. I'm not sad about it though, I get frustrated from time to time but I'm not sad. So, I just wanted to say thank you for posting your video because when I see these type of videos it reminds me that there are other people out there that go trough the same things.
Boobrry 3 years ago
Amazing video I was diagnosed with JRA shortly after my 16th birthday. I am taking a shot every week. Living with JRA is very hard emotionally as well,I always wanted a career in the law enforcement/military field, but now I have had to give that dream up. It hurts to know that there are things that I can't do. But I know that there is hope. I do have my bad and good days, but I just keep on moving foward I can't give up. I know that God and my mom who are up above are by myside all the way.
justanothertxgirl 3 years ago
hey i know how it feels like to have everything taken away from you. I also have JRA and i had to give up soccer gymnastics and iceskating. Thankfully i found swimming which has helped me deal with so much. I love your video its so great and has an amazing message.
ihearthsm247 3 years ago
Thanks so much for the comment!:)
Swimming is a great sport for us, I'm glad you found it, too! Thank you, I hope you're doing good! <3
livelaughlove223 3 years ago
You are so strong! Your story is helping thousands of kids with JRA to have faith and never give up. :]
iLOVEjonasx65 3 years ago
your amazing, keep it up!!!god is leading your life!!!!
angelbritney 3 years ago 2
I have this desise and they have put me on steroids which have made me all fat and given me a moonface:(
CreamyBabe07 3 years ago 2
My son was recently diagnosed at almost 11 years. I am so proud of you for showing how strong you, and other children who struggle with JRA are. Thank you for sharing your powerful story. Keep strong.
diverchic 3 years ago 2
Nice Video! Thanks for sharing it! My daughter is Bailey, the 3 yr old with JRA on here.
BaileysmamaJRA 3 years ago 2
I have this same disease. But Im telling you just keep having faith in god and nothing is impossible. I am now healed of this disease because of my faith. I have to stay on medicine for abot 6 more months and then im done.
dgk1312 3 years ago 2
im crying becuas i strugle with jra everday and my freinds rumtolges told him his arthritis is killing him but great video
puuuuurrrfectkitten 3 years ago 2
Courtney- I love your videos! Thank you for sharing your story... at age 10, my daughter does not like to talk abouther arthritis... so you speak for so many who don't feel up to it. And what a lovely message of hope in your second video!!! Please send your videos to the AF channel web master so they can add it to their favorites... you tell the story so well and we know how important it is to get the word out!
Best hopes to you - bookissmom, a JRA mom
bookissmom 3 years ago 2