Cerebral Palsy Awareness Day

[BRITTANY16LADYPIRATE]

my 17 yr old brother has it. and he is such a blessing to have around. i thank god every day that i have my brother. they really teach you to be happy your alive and dont take everything forgranted because you may not always be able to do wa=hat you want. if i didnt have him around idk what i would do. all i know is i am definantly adopting a kid with a ceribal polsy disability when im older. thank you so much for posting this. i cryed thru out it all.

[turner5149]

oh .sorry...........just click on mine and ....hold on to your beanie!

[turner5149]

...It's sad that children with CP are treated like animals...you should see with your own eyes what we did about it........lol lots of Love

[cm4rowley]

Beautiful! My son is now 15 with CP. Thank you for posting something so others can understand.

[kviox]

Thank you for viewing! Pass it on! Thanks for watching the video!

[jenni19801]

my daughter has diplegic cp and is 9 i found out wen she was 2 and a half she walked inwards with her knee,s rubbing together she had a operation last year to rotate her hips outwards and she is doing fantastic it not even been a year since the operation and she has come on in leaps and bounds x

[kittygirl51521]

@jenni19801 I had the same surgery when I was seven. It changed my life, and I'm so greatful to my Drs for doing it.

[jenni19801]

@kittygirl51521 , she has to wear splints on her legs and doesnt like it she complains alot that she different but i try to tell her that by wearing them now she wont have to wear them wen she is older , i tell her she is not different she is special , she has to go for gaite anaylse soon but im positive that the docs are going to be pleased with her xx

[kittygirl51521]

@jenni19801 Yeah, I had to wear Braces up to my knees, and I complained, so my mom didn't force me to wear them, and I had to have another surgery just last March. Because I was walking on my toes and heel, not the middle of my foot. It could have been prevented if I had just listened to my mom and wore my braces.

It took me a long time to see I was special and not a freak, but I think it would have taken longer if it wasn't for my family telling me everytime i came home from school crying-tbc

[jenni19801]

@kittygirl51521 aww thats really nice to here hun , i feel bad sometimes for her cos she wants to wear the girly girly shoes that her friends wear but i tell her that the more she wears her splints now the more chance she got ov not having to wear them in the future , she is in mainstream school and they are a good schol wen it comes to her needs they have to be or to be or i go in and complain lol she has her metals plates taking out soon but she,ll be only in for the day , xx

[kittygirl51521]

@jenni19801 Well, what my parents, and older sisters did was get me cool converse or vans, but they just got a few sizes bigger, so they went over my braces. I dont know if that could be an option for her. If its not, find just plain solid colored shoes she can wear, and buy things for her to decorate the shoes with. Thats great, that they support her. My mom just got tired of going into the school a few times a week because of some teacher. I remember that surgery, its not as bad as the others.

[kittygirl51521]

@jenni19801 from school because of the bullies. I had to end up transferring mid-year to a cyber school, where I met great people who didnt care how or if I walked. Just make sure she has good people around her, and I bet she'll become a strong young woman.

[FatimaLaPantera]

Love this video thanks for making it now other people can understand how hard it is for a family that has a child with special needs. As for me i have a 3year old daughter with Cerebral Palsy its hard but its rewarding to have her in our lifes day and night. God bless you all

[kviox]

@FatimaLaPantera It is challenging! You will find as your 3 year old gets older it becomes easier! When Cam was 3 he wore out my husband and I daily! What type of CP does your daughter have? 

[ymischele]

Thank you for this site. My daughter had to present a powerpoint CP. I wanted so much for her to be able to share this site with her classmates. God loves you and so do I. Never give up!

[kviox]

@ymischele I hope she was able to share the video! I'm glad you enjoyed watching! Spread it around and raise awareness! God Bless you and your family!

[TheSmithyk]

i relate to this vidoe so much as i have cp

[kviox]

@TheSmithyk How are you doing? Our next video should be what it's like to live with CP! Are you interested?

[42Belanger]

I have hemiplegic Cerebral Palsy and I'm 42 and I can safely say this video was excellent for sure, it'll be in my favorites

[kviox]

@42Belanger Hello - sorry I didn't respond. I went back to work and got behind! How are you doing? I just mentioned to an earlier post that we should do a video on what it's like to live with CP. Are you interested?

[kviox]

@42Belanger Are you interested in making a video for You Tube related to what it's like living with CP? I think this would be an excellent video and will help raise awareness even more!

[ghall25]

I love the boy at begining wearing no 18 jersey. cerebral palsy is not stoping him he will go all the way to the finish line.

[300horselover]

Hey I have hemiglegia Cerebral Palsyand Epilepsy thanks for this amazing video. It makes me cry.

[kviox]

Glad you liked it! Hope you are doing well!

Karen

[300horselover]

Thank you and yes I'm doing okay

Chontelle

[kviox]

@300horselover Hello horselover! I was thinking we should all pull together and make a new video. I would like to make a video of what it's like to live with CP. Interested? I've contacted others that have watched my video. It would help raise MORE awareness which is so very needed!

[boonzreiner]

This video always makes me cry.

[birds16ful]

My friends in High School & Madonna U of Madonna School Serving Special Needs Students & my friends who are younger in my ballet class at Omaha JCC on Ballet 5/6 on Mondays & Thursdays are my best friends because they do not tease about me about my height or my hemiglegia cerebral palsy & I am 16 years old.

Michaela

[kviox]

Michaela - I have not visited my site in a few months. Just had a chance to read your note. I'm glad you have friends who care about you and accept who you are. My son, has great friends too and I'm very thankful for them. I feel badly for those who don't have good friends. I hope that together we can create awareness, change and acceptance. Keep up the dancing work. Do you know Dr. Janice Brunstrom from St. Louis Children's Hospital? She too is dancing!

[kviox]

@kviox Hi Michaela - I would like to do another video. My angle on this one is Living with CP. Would you like to help? I was thinking we could all join together and share our thoughts via e-mail and I could produce the video. All my CP friends would help with this. I want to create more awareness! We have a long way to go! Let me know if you are interested.

[LuigiGirl22]

I can totally relate to that; friends who are backstabbers, people who don't even know you and make fun of things that you can't even help.

*Shakes head* If only those people could understand what we go through... I find that it's sad, because people mock at you and don't even know the harsh beginning of your story.

[kviox]

I agree 100%! It's VERY SAD and MADDENING!!! We have to understand it's ignorance on their part and some day they will understand because someone will touch them somehow....someway. Try to ignore them and just realize they are ignorant to our situation!

[LuigiGirl22]

I know they can be - thank you for replying! =) And of course; that's what everyone should do. I hope the parents are okay; even though I haven't been put through that sort of thing, I know it must be pretty hard. God bless your son, and he'll make a great adult one day. I can already tell you seem like a great mom. :)

[LuigiGirl22]

- Claiming I only walked in circles. But I just brushed it off; the fact that matters is that I`m healthy, living, and here instead of in Heaven. I was only 1 lb 12 and a half oz. I write fiction as well; and I`m thinking about doing a birth story. During my long stay in the hospital; three babies died instead of me. Now all I can think about is how fortunate I am that it wasn;t me; and that my parents aren`t living with grief.

[kviox]

That's horrible what your friend did...people can be cruel. No worries though...what's most important is you believe in yourself and most of all love yourself! I saw a baby in the NICU who weighed 1.5 lbs. The baby looked like a barbie doll. Several times Drs. rushed in doing emergency surgery. The baby was living when we left and I often think about her and her parents. It was very concerning. I felt horrible for the baby and parents. You are a miracle!

[lourdesgirl101]

I know exactly what you mean. I have a problem with people understanding me due to my speech. Maybe that's why my safe haven is writing. I cannot be mistaken for something that's in black & white. Trust me; there has been stuff people thought I said that I didn't - stuff that I would not say.

[LuigiGirl22]

My story is similar to lourdesgirl101 - my scheduled birthdate was May 20th; instead, I was born on February 25th. The doctors said I didn`t have a good chance of living; and if they said I would, tI would be blind; deaf; couldn`t speak; walk; and have great difficult time with everything. I`m 15 now; I`m visually impaired, and I have a crooked left foot as a result. One of my best friend`s (whom I thought I could trust) mocked me about it to her friend; claiming I only walked in circles.Continu

[kviox]

Have you talked w/ Lordesgirl101? She is very nice. She likes to write too. You should contact her! Maybe you guys could write a story together!!

[LuigiGirl22]

I actually haven't had any contact with her; I'll send her a message now - maybe we could be friends or something. Thank you SO much for making this interesting video, by the way - most of those facts are shocking! I find the world truly doesn't understand those who are 'disabled'; and sometimes, I find that some cruel people just tend to think that we're people too. It breaks my heart. Again, thank you for taking the time and dedication into researching CP - all the best for you and your family

[lourdesgirl101]

I was born three months too early, I spent 148 days in the NICU at York Hospital, PA. I was born 1 lb 1 oz and was 11 inches. Cabbage Patch clothing didn't fit me. I too have CP. On December 19, 1991, so began my story. I stay story because I'm a writer (but not published yet, someday, hopefully). I have mild cerebral palsy but have speech, sight, spasticity, and so on. The doctors didn't think I'd live. But I'm 16.

[kviox]

You are a miracle!!! I would love to read your story! My son Cam is the little boy walking w/ a Kaye Walker in the video. Cam has sight issues too, but nobody can quite explain it to me....I've been to several places for evaluations, but nothing has really helped. He has 20/40 vision....I believe it's a visual processing issue. We are headed to St. Louis Childrens Hospital for more evals. How is your sight overall?

[FlatleysBetch92]

I have mild cp- left hemi i'm now 20 and I was never told that "75% of individuals with CP stop walking by age 25 due to fatigue".

[kviox]

Hello-Thank you for watching the video. I was very surprised by the research as well, not to mention highly upset! My son, Cam is 8. He has mild to moderate CP....I swear sometimes I just don't know....good days and bad! Anyway he is a spastic quad and is highly functional for his diagnosis. I found the research on the UCP website. It's located under research facts. I hope you will join us in our fight to raise awareness and funding for CP! Let me know. Sincerely, Karen

[lourdesgirl101]

Now I know why my parents are always on my case about needing stretch. My motto: don't tell a 5-yr-old if she stretches, it won't hurt. I'm 16 now and don't stretch... except when my nephew's sitting in between my legs. He makes me stretch. They always say I might end up in a wheelchair if I don't. You know teenagers...

I need to post another comment to tell you my story.

[kviox]

Good advice! My motto....just keep moving and don't stop!

[kviox]

@lourdesgirl101 Hi! I would like to create a new video re: what it's like to live with CP. Would you like to help me? Of course we would do this via internet. You need to ask your parents if it's okay. To keep things safe maybe I could create a blog for all of us to share experiences. Let me know when you get a chance. Thanks! Karen

Karen

[lourdesgirl101]

Neither did I, and I did research on this year in science class because there may or may not be a genetic link in it (although CP does run it families. They won't figure it out for a long time).

[ladyjosielot]

Nice video, but why the heck did two people mark flatleys comment as spam????

[kviox]

I don't know? I didn't realize it was marked as spam....it was a legitimate question so I'm not sure?

[kviox]

@FlatleysBetch92 Hi - I would like to create another video re: What it's like to live with CP. Would you like to help?

Karen

[crunchy1984]

Just beautiful

[memodubai]

thanks its very nice video and i hope thw world will look closer to CP babys

[kviox]

Me Too! Thanks for watching!

[debimom123]

Wow! This video is very informative. Thank you for sharing it. I believe more funding should be allocated for this important research. God bless your family & every one affected by CP!

[kviox]

Thank you for watching the video!