Added: 2 years ago
From: DysautonomiaMD
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  • @dr m & mike...i am on strict GF diet,, even all my meds.,I do not deviate at all. It help tp some extent. I can explain when I'm not so tired. I had DNA testing:heterozygous-one parent gave me celiac gene & other gluten intolerance gene. Gluten intolerance can be quite problematic even if your endoscopy is normal. I also have gastroparesis now! Anyway, I was dxd shortly after i was a year old. I went off diet for years. I can do s video on it to explain what caused the confusion in my dx. So y

  • @MargaretMD & Mikeer222-I've had celiac since abt age 1. Please check out the private Facebook group Gluten Dysautonomia! Thanks, Prof Suezqpots

  • @Suezqpots : Thank you so much. Your words have not fallen on deaf ears.

  • To the core! You were so beautiful inside and out with your loving words.

  • @Dr M-wow! Powerful video... It so got me y

  • @Suezqpots : just trying to help and bring forward this important information. Thank you.

  • wheat allergy caused my wifes pots!!  we fixed it by going gluten free!!

  • @mikeer222 : Wow...thanks for sharing. Makes me want to try gluten free diet! LoLv.

  • @mikeer222 : wow. I am hearing this more and more as time goes on. Thank you for sharing. I think I need to do a video on this, as it has come up more than once now. Thank you so much. Please feel free to check out the gluten-free diet and do a video reply, too! Thank you SOooooo much!! You ROCK!!

  • heres coming from an achoholic ive been to jail the phycward and to the depths of my inside hell trust when i say reconsider im not religious but i am a person you can talk or chat with you may not see hope or feel it but things come with time anyone small tall large the dying the failing health no matter how old hit me up for insight i care and others do 2 just like this woman

  • @diddykongfu : you are gracious and amazing to understand where we come from. I see that you have been there, too. I hope can help us out a little more in 2011....we're trying so hard to reach out and send information, when the informers should be coming to us! But alas, we keep up the good fight of faith. And thank you so much for relating to us and offering yourself to be there for us.

    What a genuine gift. Thank you so much, and God Bless You.

    Dr. Margaret

  • be strong my friend... i don't really know what is wrong with you but i can feel the pain u have inside u, and i wish i can just be of any help. maybe u can go visit my page and watch some of my videos i sing...

  • @edwin4759 : we need you to help us in our battle. We need prayers. We need people to believe in change.  The FDA reversed its decision & thank you to Lynn, Kylie, Shannon, and so many others...thank you.

  • Your pleading is heard by God. He will help you to cope, all of you.♥

  • thank you very much -

    you know - Jesus is with you

    you are really great and not alone !!

    be strong and keep the faith

    God Bless You

    bro Ernesto.....

  • @Gitarrencheck09 : And God has truly touched you with a wonderful gift. You are my Forever Friend! LoLv

  • This is beautiful and amazing. Keep being you. <3 <3 <3

  • @hopefulhillary : thanks. Without you, I would have no need to be here, right? :-).

    I love hearing from you; please keep in touch.

    Love hearing from any one in need....God is where we find our strength.

  • @DysautonomiaMD And the same for you, Doctor Margaret. :-) :-) You are doing amazing things -- God is moving soo mightly through you, it is so encouraging to see and watch. HALLELUJAH! What the devil meant for bad, GOD MEANT FOR GOOD! <3 <3 <3

  • @hopefulhillary : we should get some of your enthusiasm to rub off on stillpressinon.....can you help me spread the hope and the message we have in Christ? Thanks...perhaps this is part of your mission...to be 'first responders' to people asking for help. We also have Pastor Jeff jd450lh, who is in Master Command Post for Searching...please do contact him and use my name. Let's get this stillpressinon person to keep on keepin' on....in the love and glory of God.

  • @hopefulhillary : Miss you and love you :-). The Joy of the Lord is Our Strength. :-)

  • @hopefulhillary : I miss you & I love you. Praying for you.

  • @hopefulhillary : I miss you & I love you & I'm praying for everything. LoLv, my beloved Sister in Christ.

  • im struggling....a lot...

  • @stillpressinon : we can struggle together. We are all on a Team and we never let anyone down; we always come back to keep the Team together.

    You have found a place of unconditional love, and endless compassion for your plight. We know what to say, because we know how you feel.

    Tell me more. Highest Personal Regards, Dr. Margaret

  • Please keep Andrew in all your prayers.

  • Giving up on life means giving up on a chance to help save someone else's life by delivering hope. When ya feel like quitting, wait another minute, and keep doing that. It may make it easier.

    Here's hoping all turns out with Andrew alive and finding a way to smile....

  • We are all happy we have one another. We need one another, and our Team has power in its numbers. Tx for all your prayers!

  • I think its true.. I feel like we're right on the brink to getting pots and common illnesses out and known to the public. I've been where Andrew is, when I was going through severe depression.. and it's true. Even when you feel at your end and it isnt going to get better.. it actually does. And trust me its beautiful :) your in my prayers hun.

  • @ashpauls: thank you for your kind words. One never knows how a simple kindness can change a life forever. Tx!

  • @ashpauls :Just reading through these previous posts and I wanted to thank you for understanding about POTS and your compassion for another human.

  • I understand people who get to the point where they feel life isn't worth living. I felt it when I lost my son in 2008, that added to my illness was just overwhelming. But I agree with Margaret, suicide isn't the answer. There is always hope. I am praying for you Andrew that God would shine the light of His love into your heart, and fill you with hope. You are not alone Andrew . There are many of us who will stand with you. Paul

  • @kaazoom: You are right. There is always hope, as we all have one another. God's Blessings to you, my friend.

  • @kaazoom : We are a Team, and we are here to help any one who stumbles or needs a hand. POTS/dysautonomia/ME seems to bring us all together and it the hope that we have, the hope that we await, the hope that we bring in numbers.....

    ....we ARE one another's HOPE. :-). Please continue praying that God helps us keep the Team uplifted and not alone. None of us is alone. We all have one another. LoLv to the other side of the Pond!

  • Margaret, what is Andrew's channel. I don't know him but I am praying for him.

  • Hey, find the awesome Andy on MrFDNY73....thanks!

  • Have not heard from Andrew all day, since this am...310.995.7515. Perhaps he just needs a few Angels to whisper hope into his life.

    Someone, everyone, please help me try to contact him.

  • Andrew, prayers being sent out, please talk to someone anyone.

  • @roys5166: thank you for your support and encouragement. There is no substitute for talking to some one who knows exactly what to say at the right time. That is for sure. Tx!

  • Andrew, with all of this support, you have hope and with trust and faith in God, you have all the strength you will ever need to see you through this. Our prayers will be with you. Please listen to Margaret. Blessings and hugs..Jan and Susan ♥♥

  • @weeyin1155: you are so sweet. Thanks for all your support and kindness.

  • Andrew, there is help out there. And there are so many of us with this disease in the world. You are not alone. Try to hold on a little longer.

  • @carrigon: You are right. We are all on The Team. If one of us stumbles, we can be there...

    Like the song says, "Lean On Me..when you're not strong, and I'll give a hand. I'll help you carry on. For it won't be long when I'm going to need some body to lean on....you just call on me..." Thank you so much.

  • Andrew, if you're reading this, please hang in there and listen to this video a couple more times and know you're not alone. Don't do anything to yourself! Feel free to contact any of us here online, including myself!

  • @suzanne42: very sweet of you to comment; I hope that our children, our adolescents, and those with this new diagnosis come to really know that we are a 'Family', this Team of ours.

    Thank you so much.

  • A very heartfelt message Margaret...God Bless.

    Andrew is in my prayers.. Sherry

  • @sherrywine1941: sometimes I feel stupid,, but hey. We're only on this earth one time and with each minute, I like to think that when I meet my Maker again, He will say, "Well done, most good and faithful servant." This is why I live. LoLv.

  • Margaret,

    I have posted a video response to this video, but it hasn't shown up yet and I pray that it soon will. God Bless You my sister, we are all praying for Andrew!

    God bless

    Your Bro In Christ,

    Jeff

  • @jd450lh: thank you for always being there for us, Pastor.

  • @DysautonomiaMD ~ Wouldn't think of leaving and thanks.

    God Bless,

    Jeff

  • This is an encouraging video! Thank you!

  • @jtls8: It is wonderful to hear encouraging words while one is trying to be encouraging. Tx for your super nice comment!

  • sooo beautiful and encouraging to others sis.. Your an angel.

  • @Romanian97: and may we all continue to be Angels for one another...that is my prayer, too. LoLv.

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