Added: 2 years ago
From: katesRSD2000
Views: 19,093
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  • I have a friend who just got out of the hospital for that. I didn't know what it was until now

  • Nice to post a video, but please next time turn off the TV and have someone hold the camera still. Did the camera person twitch as well! Colour, what does model mean!

  • @malibuzzz she said mottled. it's a splotchy colouring of the skin, normally found in newborns.

  • I'm so sorry you are going through this. I have a similar syndrome and am researching and working on clinical trials for some answers (I am also a doctor). I may have some ideas for you. Feel free to contact me. I'm at Prettyill1 on YouTube. Thank you, and hang in, OK? :)

  • I had a cmc arthoplasty done on my rt hand 5 months ago and my drs think I have rsd but my surgeon thinks otherwise even though Im having the same problems as Kate I could really use some imput in what to do Ive also been diagnoised with rynauds

  • I had a cmc arthoplasty done on my rt hand 5 months ago and my drs think I have rsd but my surgeon thinks otherwise even though Im having the same problems as Kate I could really use some imput in what to do

  • I didn't realize that twitching is a part of this disease. I have a friend that I haven't seen for quite some time and she has RSDS. She isn't doing well.

  • my mother has RSD she is alway in alot of pain. she is takin Nerotin,Percocet and oxycotton. and it still doesnt help that much. this all started when she dropped a box on her head at work blowin out her vertibre in the neck. I feel so bad for her that she has to deal with this. I pray for u and everyone out there that has this condition

  • I.m not alone! Thank you from the bottom of my heart for sharing this!!

  • well anyone with this type of condition should seek professional help with a experienced pain specialist.

  • I think I inadvertently found a cure for RSDS. But, at worst, I think what I'm doing will eliminate pain for potentially everyone with RSDS...just maybe...and it's not expensive to try it. Do a google of my username and find my blog.

  • Hello. My name is Juan Luis and SDR but I have also left ankle for about two years.

    I have achieved that caused spasms in my foot disappeared with Gabanpentina treatment at doses of 600 mg a day, yes, treatment prescribed by the anesthetist who assisted me.

    First I tried the Lyrica 150, but in my case was not as effective.

    Much hope, and patience.

  • i feel for u so much i just kept calling out the name JESUS. i have been told i have crps/rsd, so my prayerr with us

  • Im really sorry for your suffering... but that is HARDLY RSD/CRPS. I can't even move my hand or arm for that matter, and it is swollen like no other and so red/blue/purple sometimes. You shoul drelaly be thankful that you can move.

    I wish you the absolute best.

  • I do feel for you. In one weird sense, be glad that you have a visual symptom. We with fibromyalgia/chronic myofascial pain have no visible symptoms so some don't even BELIEVE us. They think we are lazy, crazy, etc. May you have full healing someday. God Bless

  • I also have Rsd/CRPS this is in my right leg and goes in my back, and all the way up my right side. This diease is horrible and sometimes makes you feel like you have done something wrong, when you haven't. I wish you all the best.... If you need a friend here I am... Also if anyone is intrested... I have a rsd help site for people with or caring for someone with rsd in the uk.... Support for RSD sufferer's and families in the UK and surrounding area's.,

  • I rsd/crps in both legs from the hips down.

    I hope you both are doing well and that your pain is some what under control. I also had the blocks done.After the blocks stop working i had a spinal stimulator put in.If your drs bring this option to you please think long and hard about it. i wish now that i wouldnt have went ahead with it . The pain from where they cut into my lower back to put the wires in is almost as bad as the rsd pain in my legs. Good luck to you.

  • Thanks, good luck to you too x

  • I have the same thing going on in my right wrist I feel for you and wish you the best..I was diagnosed with CRPS 4 months ago and it only seems to be getting worse even with ganglion blocks about every 3 weeks good luck...

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