Neurofibromatosis and Reggie Bibbs

[tabbath27]

I enjoyed the video. It is great that you are opening up to others. Your lack of fear is an encouragement in so many ways Brother. Again Great video. Christ said know no man by the flesh but by the spirit.

[phantasmphan]

great video Reggie! Its your friend Scott Chester from facebook!

[TheNfDiaries]

i to have nf, i just created this page for everyone to send in thier videos and share their nf stories

[calvaryquartet]

Thanks for your work in educating us about NF. Nice post.

[ouzhoulong]

Very good video! Very interesting and inspiring!

[reggiebibbs]

Thank you for watching.

[CookieMonster9898]

Hi Mr.Bibbs my name is Kristin and i also have NF,I was diagnosed when I was 3. I still dont understand much about it. I just know it causes tumors and can effect your motor skills. But today im 18 and graduating from high school and I just wanted to thank you for making NF know in the public. You are truely one of my heros.

[adgiant]

Hello Kristin,

Congratulation on graduating. That is terrific! I was 8 months old when my mom found out about NF.Over 40 years ago. I'm so happy to see that so many caring people would take time to say thank you to me. I am thankful that I have been in contact with others that have NF. It really have been a blessing to me. I can not say how happy I feel. The heroes are all of you that write me. I thank you.

Reggie Bibbs

[Iraniks]

I'm a Bs in biology and hopefuly I ganna get my MS in genetic, one of important aims is to find a cure for diseases like Progeria, and neurofibromatosis. I think genetic researchers must spend time on these issues rather than colonism and other nasty works.

[Iraniks]

love and peace , you are a brave person, and frankly I can't see any difference between you and a normal person.

[reggiebibbs]

Thank you. I'm happy to see your comment.

[reggiebibbs]

You know I'm happy for all the kind comments. That is really nice. The other comments can be

deleted, but I won't I want others to see who takes the time to make unkind remarks. They don't hurt me. I will not let it get me down. My replies are here so that all will know, I see every comment. The great thing is that the day will come that they will see they where wrong. This is not only about me me, but all of those who suffer with NF.

[mamasuzie]

I really wish that ads like this could make it on the national tv viewing. thank you for making this video. I think every med school student should be required to watch it.

[vilainpetitcrapaud]

Congratulation for your video.You are very courageous to do it. Now il feel like to do a clip with my NF poem The Naughty Little Toad and publish it in youtube. You can read it in internet. I hope you will enjoy it Kind regards Francis The Naughty Little Toad

[karaokeoriginal1s]

Ofcourse you are the same on the inside! We all are!!! I subbed and *****star'd ya too!

PEACE,LIGHT,LOVE..

Cindy

[reggiebibbs]

Thank you. Peace to you for your kindness.

[inkbox55]

Bless you for your light is shining strong your a gift and a blessing to us all.. regard's ..H

[Art737]

Reggie Bibbs is a true hero.

He is an inspiration to all.

[reggiebibbs]

Thank you Art737. It takes people like you to encourage people like me.

Reggie Bibbs

[mmmlauraa]

After seeing this video I decided I will do my big pathophysiology presentation on neurofibromatosis! Am I still able to get your video? I know this is about a year old..

[reggiebibbs]

Hello mmmlauraa, give me a few days and I will see if I can help you with that. Thank you for your comment.

[jonnathan002]

very good, u are a good person and... good luck with ur life. the guys that dont accept u can go to hell, they are superficial idiots,

by the way... im mexican lol so if u write spanish maybe we can talk more, well again good luck with ur life :D

[adgiant]

You are cool. I will have to find a way to translate our messages. Thank you so very much.

[MarkTurtle]

You're good people.

[reggiebibbs]

Thank you for watching. :) I enjoyed the video BIG WHEEL

[Subhazard]

You have amazing strength and resolve, Reggie. A true man of spirit. I can't imagine how tough it must be living with that disorder. It is good that you have embraced it, and taught others about it and spread understanding, rather than shutting yourself in and letting it take control of you. I hope that you find happiness in every turn in your life.

[adgiant]

Yes I have. My God has given me all that I need to indoor. I thank God for my many blessings. I have true joy. Some people will accept you and some won't. It's just the way it is. Thank you for your comment.

Reggie

[05woodc]

Hi Reggie, i found your website and video and i think you are a true insparation to others. I had never heard of NF before your website and its good to hear all the good response from your videos. I think you should write a book, that would be inspiring!

"have a tremendous day"

[sdi1979]

that help me undderstand how sevaire nf can be i have been diagnosed with it since I was 9 I am know 28! The only thing that is iffrent isthat my arm look diffrent and cant fit in many arm sleeves :)...

[Se9iroth]

You have opened my eyes and i think i should say that fron now on " Just Ask! " and i really like how u discribe your self you are different on the putside but not on the inside...§ ◘: Æ :)

[Se9iroth]

I have onpened my i eyes and see what you mean now i think i shouald say that " Just Ask! " and you are a cool guy i look at u the way u say you are yoyu look differnt on the outside but on the inside you are differnt...§:)

[Schehrazade]

Hi Reggie! I have Nf type 1 and it's sometimes very difficult for me to accept myself. Thanks for the video...

[nothingtofear83]

hey reggie =)

you ARE special ..you look so warm and kind man..thanks for educating the "outside world" about NF..i'm diagnosed with NF1 too, and sometimes the pyschological burdens are harder then the physical pain..i get down sometimes..but seeing brave, intellgent and beautiful people like you, inspires me to go on.

[reggiebibbs]

Thank you. Your words mean so much. You too are special. What a terrific name to go by. nothingto fear83. That was the year I finish high school.

[wigglywhiteworm]

You're awesome Reggie. Thank you for being you.

[arthurmeyerson]

Reggie, you are an inspiration to everyone. Thank you for helping all of us understand more about NF. I am so proud to call you my friend!

[reggiebibbs]

I' am so thankful to all those who call me a friend. It is because of that. I feel strong enough to Smile. Thank you for careing.

[METALGOD3667]

Hi Reggie. I have type2 neurofibromatosis. I am the first in my family to have this disease. Spontaneous mutation they call it. I have bilateral accoustic neuromas on my hearing nerves and many in my spineal cord. So far I have only needed one surgery and I have been very lucky.

Just wanted to say your video is an inspiration. This disease really gets me down sometimes.

[DebUSA]

P.S.

I added this clip to my Favorite "Medical" Playlist.

[DebUSA]

FEB.17 '07

Reggie... Just by watching this short video, I get a very good sense of your warmth, sense of humor, and intelligence =)

I left a longer comment on your YouTube profile page.

[reggiebibbs]

Thank your for your kind words. Lot of surprises to come on my web site. Visit ofter.

[EdenSoy]

Thank you so much Reggie. You are an inspiration to me. More people need to know about NF. I don't understand how its so common yet so little people know about it.

[squigglepiggles]

Its a brill Vid Reggie, more people need educating about NF!!! 

The slogan for my website is

Neurofibromatosis

Hard to spell. How do you think I feel.

[EdenSoy]

I love it.

[reggiebibbs]

Thank you.

[reggiebibbs]

Thank you for the kind words. Lots of surprises on my site soon. visit often

[adgiant]

Congratulations, Reggie! Love your site, photos, videos and t-shirts!

[reggiebibbs]

Thank you for the kind words. Please stop by my site as often at you can. I will have postings on my blog. Everyday.