Added: 8 months ago
From: MariaMSmamma
Views: 6,382
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  • Great video Maria. Just shared it on my FB page. Dxd. RRMS in 2001 and fatigue is my worst MS symptom. As a matter of fact, I've been up for 3 hours, had breakfast and all my vitamin supplements and I believe it's about time for a nap. :)

  • Superb video, mine was like this but since August and the starting of Copaxone I only ever get a watered down version of this.

  • I've had some good results dealing with fatigue by changing my diet. May I ask what your normal eating habits are? (Consider it an unofficial, independent study on the effects of diet on MS).

  • This video really explains what I feel everyday and its usually within 3 hrs of being awake. But i posted to facebook so some ppl may understand me a little better. Thankyou for putting it in a way that actually made me smile (the yawning puppy etc)

  • Yep, that's me. I've been up 3 hours. i have walked the dog. But, that's it now. Soo tired. and I'm still carrying on have a tought day to get through.

  • I feel fatigued too all the time. Whats worse is that the part of my brain that controls sleep is damaged, so its next to impossible to sleep naturally, I have to have medically induced sleep to even sleep. People don't really understand...

  • What a great depiction of these symptoms. Thanks.

  • This videao coudn't describe me more as well! Put it up on facebook for my facebook firends to get a glimpse of my life.

  • @Zara2010100 So glad it's been helpful to you Zara :-)

  • @MariaMSmamma Thanks for your moral support and God Bless! Thumbs up for your courage.

  • @Zara2010100 Thanks again Zara, hope you are keeping well, keep strong and keep fighting :-)

  • Hi Maria, Thanks so much for the kind thoughts. Dr. visit today was good/not so good. No lesions were found. Yay. However, more testing is being ordered because it looks like I have some issues. Not sure where its all heading and I am confused/bewildered. It sounds like marfans syndrome is a possibility but they are looking into several possibilities I'm sure. Like m.s. no cure for that either.

    I will look forward to more videos on m.s. from you. Keep helping the m.s. community. Thx

  • @cliffpov1 Hi sweetie, thanks for letting me know. I'm so sorry your going through hell right now :-( There's nothing worse than not knowing and being kept waiting. If you remember all the possibilities of what you may have, do what I did. I looked them all up, being prepared is far better when it comes to getting your results. They thought I had devic's disease at one point but thankfully it wasn't and I was actually grateful it was MS in the end. I'm always here, big shoulders & heart xxx

  • You sure have a gift for making good video's about m.s.. I go to the Dr. tomorrow. Hopefully she will give me some news from the MRI I had about a week ago. I really would just like to hear any news so I can get on with my life. In that limbo period where I don't know anything concrete, just how crappy I feel.

    Anyway, thanks for another great video.

  • @cliffpov1

    I know exactly what you are going through believe me hun. I'm so glad that you understand my video's and can relate to them hopefully. Please keep in touch , I'd like to hear how you get on with your Doc today. Have you been referred to a Neurologist?

    Hope to hear from you soon,

    Maria xx

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