Hi Mariah :0). I have PKD as well, was diagnosed when I was 26, I am 39 now. My father has it as well(70 yrs old) and had a kidney transplant (my mother gave him a kidney lat year) . I am 39 and have been taking care of my condition through a very healthy diet, no salt added to food, no processed food EVER. Managed to lower my blood pressure without meds from 135/85 to 118/75 through diet and exercise. I am here to chat anytime, I can help you feel better healthwise, pls email me anytime okay?
Hi Mariah I understand and feel your pain sweetheart, I also have PKD I'm 43 and I was diagnosed at 42. I have 3 daugthers who show no signs of PKD yet my 21yr Marissa is a Sr. at USF she is gonna be tested soon. I have a 7yr old Tempreis so far she is very healthy and keeping me young on on my feet she is off the chain so much energy, Lord please help me! LOL! and I had to save the best for last I have a 15yr old named Mariah so you now you know you're my baby too and I will keep you in prayer
Hi Mariah I understand and feel your pain sweetheart, I also have PKD I'm 43 and I was diagnosed at 42. I have 3 daugthers who show no signs of PKD yet my 21yr Marissa is a Sr. at USF she is gonna be tested soon. I have a 7yr old Tempreis so far she is very healthy and keeping me young on on my feet she is off the chain so much energy, Lord please help me! LOL! and I had to save the best for last I have a 15yr old named Mariah so you now you know you're my baby too and I will keep you in prayer
Hi Mariah I understand and feel your pain sweetheart, I also have PKD I'm 43 and I was diagnosed at 42. I have 3 daugthers who show no signs of PKD yet my 21yr Marissa is a Sr. at USF she is gonna be tested soon. I have a 7yr old Tempreis so far she is very healthy and keeping me young on on my feet she is off the chain so much energy, Lord please help me! LOL! and I had to save the best for last I have a 15yr old named Mariah so you now you know you're my baby too and I will keep you in prayer
I am so moved by your story, I am going to get an ultrasound on Monday to see if I have the disease because my dad had it and passed away . I am 34 an live in New York.
I'm a 14 year old girl, they just diagnosed me with PCK, by finding it by accident. My whole family is currently getting tested now. I'll pray for you, I wish you the best!
P.S. You look beautiful! Nothing close to hideous.
I'm a 14 year old girl, they just diagnosed me with PCK, by finding it by accident. My whole family is currently getting tested now. I'll pray for you, I wish you the best!
P.S. You look beautiful! Nothing close to hideous.
just found out I have this. I'm planning to change my diet, and do just juicing for a while. Your not alone, and your beautiful! Thanks for sharing your story!
I just found out I have this. I'm planning to change my diet, and do just juicing for a while. Your not alone, and your beautiful! Thanks for sharing your story!
Your story touched my heart please up date ur story I would love to hear how u r doing,im 26 years old and have twins one has polycystic kidney disease they r 7 years old now so far everything is going good u r welcome 2 email me tiffanybutler04@gmail.com n tell me about this disease becouse I dont know anything about it just the basic
I am the Pittsburgh Chapter Coordinator. We have a walk in September in the Pittsburgh area. You can reach me at pittsburghchapter@pkdcure.org if you would like more information. Thank you for posting your message. It's so great to get the word out. I look forward to hearing from you.
You are still beautiful. I was diagnosis at 19 when I was 6 1/2 months pregnant. At 28 my Kidney fuction was below 40 I got my left kidney removed because of the size and pain. Now at 33 my kidney fuction is at 60. I still have pain in the right and the size as caused me hurt alot but I am getting through it. Also my children was screened two yrs ago and they havn't found anything. Have you been diagnosis with poylcystic liver? ecuz of the size and pain you may be able to ave one hidney removed.
hi i would just like to say thank you for making this video i can not find much about pkd other than facts it is nice to hear how you deal with it . I am 24 yrs old and have pkd i found out when i was 13 b/c of high blood pressure my dad also has it and he is on dialysis now and my grandmother had it. i have two children also and they have not been tested yet. so i just wanted to say thank you once again.
I feel you. My mom died 2006 because of PKD and my brother and I found out we had it when we were 19 and we have kids and 1 of my girls that is 11 has i and his girl 13 has it. We found out about the in enough time to change everything for them, but for us it is too late. I pray for you and your family.
You DO NOT look horrible Mariah. Your still as beautiful as ever. I can tell you've grown up a bit since I've last seen you. I'm praying for yu. That you will heal & get better.
@MSFproductionsMAIN Wow, I havnt talked to you in FOREVER! how you been!? hows your family doing? thanks for the compliment, yea, i guess i grown up a little since that last time we talked lol ill be 19 soon.... time flys!
Hi Mariah :0). I have PKD as well, was diagnosed when I was 26, I am 39 now. My father has it as well(70 yrs old) and had a kidney transplant (my mother gave him a kidney lat year) . I am 39 and have been taking care of my condition through a very healthy diet, no salt added to food, no processed food EVER. Managed to lower my blood pressure without meds from 135/85 to 118/75 through diet and exercise. I am here to chat anytime, I can help you feel better healthwise, pls email me anytime okay?
realestategirl100 2 weeks ago
i have pkd too. so if you ever need to just talk message me :) im 19 and just had a transplant 2011
Vconcreteangel823 1 month ago
Hi Mariah I understand and feel your pain sweetheart, I also have PKD I'm 43 and I was diagnosed at 42. I have 3 daugthers who show no signs of PKD yet my 21yr Marissa is a Sr. at USF she is gonna be tested soon. I have a 7yr old Tempreis so far she is very healthy and keeping me young on on my feet she is off the chain so much energy, Lord please help me! LOL! and I had to save the best for last I have a 15yr old named Mariah so you now you know you're my baby too and I will keep you in prayer
robbie42421 2 months ago
This has been flagged as spam show
Hi Mariah I understand and feel your pain sweetheart, I also have PKD I'm 43 and I was diagnosed at 42. I have 3 daugthers who show no signs of PKD yet my 21yr Marissa is a Sr. at USF she is gonna be tested soon. I have a 7yr old Tempreis so far she is very healthy and keeping me young on on my feet she is off the chain so much energy, Lord please help me! LOL! and I had to save the best for last I have a 15yr old named Mariah so you now you know you're my baby too and I will keep you in prayer
robbie42421 2 months ago
Hi Mariah I understand and feel your pain sweetheart, I also have PKD I'm 43 and I was diagnosed at 42. I have 3 daugthers who show no signs of PKD yet my 21yr Marissa is a Sr. at USF she is gonna be tested soon. I have a 7yr old Tempreis so far she is very healthy and keeping me young on on my feet she is off the chain so much energy, Lord please help me! LOL! and I had to save the best for last I have a 15yr old named Mariah so you now you know you're my baby too and I will keep you in prayer
robbie42421 2 months ago
I am so moved by your story, I am going to get an ultrasound on Monday to see if I have the disease because my dad had it and passed away . I am 34 an live in New York.
raulsanch30 4 months ago
Hey I have a new video post of me in the hospital dealing with this right now!!
protools3076 4 months ago
I'm a 14 year old girl, they just diagnosed me with PCK, by finding it by accident. My whole family is currently getting tested now. I'll pray for you, I wish you the best!
P.S. You look beautiful! Nothing close to hideous.
Imthegreatcornholio1 4 months ago
I'm a 14 year old girl, they just diagnosed me with PCK, by finding it by accident. My whole family is currently getting tested now. I'll pray for you, I wish you the best!
P.S. You look beautiful! Nothing close to hideous.
Imthegreatcornholio1 4 months ago
This has been flagged as spam show
just found out I have this. I'm planning to change my diet, and do just juicing for a while. Your not alone, and your beautiful! Thanks for sharing your story!
heavenwardbound 5 months ago
I just found out I have this. I'm planning to change my diet, and do just juicing for a while. Your not alone, and your beautiful! Thanks for sharing your story!
heavenwardbound 5 months ago
This has been flagged as spam show
Your story touched my heart please up date ur story I would love to hear how u r doing,im 26 years old and have twins one has polycystic kidney disease they r 7 years old now so far everything is going good u r welcome 2 email me tiffanybutler04@gmail.com n tell me about this disease becouse I dont know anything about it just the basic
Joshany06 10 months ago
I am the Pittsburgh Chapter Coordinator. We have a walk in September in the Pittsburgh area. You can reach me at pittsburghchapter@pkdcure.org if you would like more information. Thank you for posting your message. It's so great to get the word out. I look forward to hearing from you.
pkdpittsburghchapter 11 months ago
You are still beautiful. I was diagnosis at 19 when I was 6 1/2 months pregnant. At 28 my Kidney fuction was below 40 I got my left kidney removed because of the size and pain. Now at 33 my kidney fuction is at 60. I still have pain in the right and the size as caused me hurt alot but I am getting through it. Also my children was screened two yrs ago and they havn't found anything. Have you been diagnosis with poylcystic liver? ecuz of the size and pain you may be able to ave one hidney removed.
MrsKay33 11 months ago
hi i would just like to say thank you for making this video i can not find much about pkd other than facts it is nice to hear how you deal with it . I am 24 yrs old and have pkd i found out when i was 13 b/c of high blood pressure my dad also has it and he is on dialysis now and my grandmother had it. i have two children also and they have not been tested yet. so i just wanted to say thank you once again.
ta12486 11 months ago
I feel you. My mom died 2006 because of PKD and my brother and I found out we had it when we were 19 and we have kids and 1 of my girls that is 11 has i and his girl 13 has it. We found out about the in enough time to change everything for them, but for us it is too late. I pray for you and your family.
kbnrkteresa 11 months ago
@kbnrkteresa
Thank you very much for your regards. my thoughts are with you and your family as well.
greenwallsRcool 11 months ago
You DO NOT look horrible Mariah. Your still as beautiful as ever. I can tell you've grown up a bit since I've last seen you. I'm praying for yu. That you will heal & get better.
MSFproductionsMAIN 1 year ago
@MSFproductionsMAIN Wow, I havnt talked to you in FOREVER! how you been!? hows your family doing? thanks for the compliment, yea, i guess i grown up a little since that last time we talked lol ill be 19 soon.... time flys!
greenwallsRcool 1 year ago