I just recently read about this disease and couldn't believe that something like this existed. My heart and prayers go out to this man. How strong he must be to go through it all. I mean this with all my heart, I will pray diligently for relief for him. I'm so sorry. It breaks my heart.
my goodness.. that seems more a seizure. Is it a type of seizure.?My myoclonus is not that extreme but bad enough. I hate living withonus of any form.. Are any medications helping?
@wildredone Hello, He is on over 20 meds and nothing is stopping it now. He just spent 3 weeks hospitalized and is home in the same condition. I try really hard to help him keep his spirits up each day and together, we do what he is able to do. No..no seizures...just spasms, myoclonus, rigidity, etc...thank you for thinking of him..Valerie
I just recently read about this disease and couldn't believe that something like this existed. My heart and prayers go out to this man. How strong he must be to go through it all. I mean this with all my heart, I will pray diligently for relief for him. I'm so sorry. It breaks my heart.
hopefulinhotsprings 5 months ago
@hopefulinhotsprings --Hi, I am Valerie, Michael's wife. I wanted to tell you thank you for your prayers.
WrightNightmare 1 week ago
my goodness.. that seems more a seizure. Is it a type of seizure.?My myoclonus is not that extreme but bad enough. I hate living withonus of any form.. Are any medications helping?
wildredone 10 months ago
@wildredone Hello, He is on over 20 meds and nothing is stopping it now. He just spent 3 weeks hospitalized and is home in the same condition. I try really hard to help him keep his spirits up each day and together, we do what he is able to do. No..no seizures...just spasms, myoclonus, rigidity, etc...thank you for thinking of him..Valerie
WrightNightmare 1 week ago