PATRICIA USES MYSPACE TO RAISE AWARENESS FOR RARE DISEASE

[RareDiseaseContest]

thanks for the video. We too are trying to aid researchers in their discovery of cures for these children, and we are doing this by supplying them with the research software they need. Together with the CRDN we are giving away a rare disease research system worth $50,000 to the winner of a video submission contest and the rare disease organization of their choice. To learn more about this contest visit Remedymd.com/RareDiseaseContes­t. Good luck

[RareDiseaseContest]

Thanks for the video. We too are trying to aid researchers in their discovery of cures for these children, and we are doing this by supplying them with the research software they need. Together with the CRDN we are giving away a rare disease research system worth $50,000 to the winner of a video submission contest and the rare disease organization of their choice. To learn more about this contest visit Remedymd.com/RareDiseaseContes­t. Good luck!

[SuperJosie1975]

Hi , i hope you are ok . I understand as I ahve a mast cell activation syndrome . I don't know which doctors you are seeing but there are some amazing masto docs in the US . I know of others with ethlers danlos so they may have advice for you too . Please email me if you wish to be in more contact xxxxxx

[cuckooclockman]

Good on you Patricia! I have Indolent Systemic Mastocytosis and very much admire you. All the best from Down Under!

[Poetessa2]

I am so proud of you!!! I have Systemic Mastocytosis and know how horrible it can be!! I too use the internet to get awareness out there and use my art as a filmmaker, spoken word performer and actress to get the word out there as well!! I'll be launching my CD's too!

My prayers are with you my friend, there are so few of us out there who truly understand what it's like to live with a rare illness with no cure. Just know that I am here and I understand! Bless you for all you do!! Healing Hugs!!!

[marthamoreno6628]

You are a very brave woman my 4yr old has EDS i wish i had friends that can talk and comfort me

[verticalsmurf]

Contact her! Find support groups on-line! You and your 4yo deserve all the support you can find.

[lindaatje2000]

Deep respect for this powerful woman

[Riverbear1]

Hi Patricia, great to SEE you at last, you are a brave, strong and talented lady. We wish you all the very best for your awarness campain.

JoX

[stuartgriffin]

It is impressive what Patricia is doing despite her ill health. Thanks to Divagab for continuing to bring Patrica and her efforts to people's attention.

[kraizeeangel]

I have EDS. Thank you, Patricia, for raising awareness about this terrible disorder.

[romylis]

Our prayers are with you , you are very brave and smart for spreading the word. God bless.

[bigblonde26]

Thank you for raising awarness, Gab. I had never heard of Ehlers Danlos syndrome until Patricia. God bless you all<333

[AmazingScooterini]

hi, hang in there.

God bless you

[Lovingurlz69]

Thanks For Sharing.

You're Kind-Hearted.

[PunkieBoo5]

I think that you are a very "STRONG WOMAN"! GOD BLESS YOU!

[BryckStack]

Divagab,

You are so sweet and kind hearted, -sending this out to help people become aware of this. The world would be a better place if we had more people like you...I haven't heard from you in awhile though, -please keep in touch! God Bless You!!!

[redsnake59]

hope she gets help...

[villy8778]

That shit is heavy Gab.

Got my support

[hairwizard5]

I totally agree Gab ....God Bless You! I'm right behind you on this one....

[yourepissinmeoff]

Nicely done Gab!! Thank you for posting this video, it brings Patricia more into focus as the courageous wonderful person she is. And you are wonderful for helping her!