IH BRAIN PAIN TEAM AWARENESS VIDEO. wmv

[Renesmesh]

I have ih I've had surgery and I'm on the medication too and i need more surgery as nothing is working , i live in pain everyday 24/7 yet none knows because i look fine :-(

[IHateIH]

I like that this video shows just how "invisible" IH is and how most of us "don't look sick." Yet, we all have our bad days and go through SO MUCH!! The piles of prescriptions, the surgeries, the pain....but the IH community is one that I don't know what I would do without. The people I've met on my journey with this illness are strong, loving, non-judgmental friends that I consider closer than most family.

Everyone that has watched this to better understand what we go through...THANK YOU!!!

[vickiTauthor]

@IHateIH Thanks for your comments. You are welcome!

I am inspired on a daily basis as I see how brave the IH community are in battling this cruel condition.

On a personal note, my husband's courage in dealing with such chronic pain due to IH, never ceases to amaze and inspire me.

I will keep fighting to raise awareness of IH and supporting the IH Research foundation - who are our only hope of one day finding a cure!

Victoria Taylor. xxx

[vickiTauthor]

Thanks! x



[stolidnerd]

I'm just commenting to support : )

[Pinkspiderable]

I pray for all of you, My heart is filled with such pain. I wish each one of you a long wonderful life. Hugs and more hugs and thank you for the time you took to put this together,

[spanisheyesri]

Musketman, you are so right concerning some of the medical field not knowing what IH is. Years ago I got so tired of trying to explain it that I printed up the description of what it is off one of the IH sites and carried it with me. I would just hand it to any new Dr. or nurse just so I didn't have to try explain it to them.

What also gets tiresome is family, friends and co workers saying when your not feeling good, oh your ALWAYS sick. As if I want to have my head feel like it is going to ex

[AmandaFox506]

My friend from school has suffered with this for the past 20 years. She is in so much pain, but so brave. She somehow keeps on smiling....

[thefriendsbenefit]

My son has IH and it's a very painful disorder that changes lives. Thank you for this video and all the awareness it brings!

[nanaofabby]

I am 51 yrs old and have had IH since 2002. I have VP shunt. There is nothing more miserable than this rare disease. It is a suffering that only other IHer's can relate to. Imagine a migraine but only 10x worse. I am praying everyday for a cure and have even agreed to donate my brain to the foundation when I die so it will help in their research. In hope of a cure..................Debbie

[S0UTHERNPRiDE18]

I have IH since i was 15 i wasnt diagnosed untill i was 18 ! This is a great video ! Hoping for a cure !!

[Sher752]

My heart goes out to those who suffer from IH. Praying for a cure...Hang in there Annie 2:40 :)

[WillRogers1971]

That is such an inspirational video. It is so wonderfully put together. God bless you all.

[missjean2387]

great video victoria, lovely tribute to our Ih friends

[musketman1]

There are many in the medical profession that know next to nothing about this illness IH. Furthermore, IH is made even more difficult to deal with as many government employees in the social system know nothing about this illness. We need awareness for this horrible debilitating invisible illness. Thanks for putting the video up, from a IH'er.

[IHateIH]

Thank you for posting this!!

[cricketspups]

Great awareness video, Victoria! Some of our fellow IH sufferers have the most positive attitudes I have ever seen, and you reflected that in this video. Thank you. :)

[DBS699]

Wonderful tribute!

[DBS699]

I'm sitting here crying. For myself, and for my IH friends.

[Amberjd1]

Thanku for this video i have iih i had a vp shunt inserted in 2008 and this illness is invisible like many have said...... i hate this illness because like many hve said people look at you and think there is nothing wrong if only they knew and spent a day in our shoes

[vickiTauthor]

Thanks for all the comments.

@Amberhopefuls the singer is Bonnie Tyler, who kindly allowed us to use her voice for the video.

[amberhopefuls]

LOVE THIS! Acm SURVIVOR here! Not yet tested for IH but showing all the symtpoms. God Bless you for creating this vidoe! BTW who is this singing, it's a beautiful song!?

[kagedarling]

thank you thank you thank youuu for this video. i feel like people look at me crazy when i tell them what i have and it's extremely frustrating. nobody will ever know what we go through and i'm so thankful videos like this are out there to promote our disorder in hopes that one day we can be cured :)

[zenapal]

Awesome! Thank you for featuring me in your video, Victoria. That's me at :31, 4:15, 4:32 and 5:05. Those of us who suffer from IH are extremely grateful for all you do to promote awareness of this terrible disorder so that hopefully someday we can find a cure.

[zenapal]

Awesome! Thank you for featuring me in your video, Victoria. That's me at :31, 4:15, 4:32 and 5:05. Those of us who suffer from IH are extremely grateful for all you do to promote awareness of this terrible disorder so that hopefully someday we can find a cure.

[pwincesssid]

thankuuuu for this video................ i know how it feels... it was the most painfulll, the most traumatic stage of my life. u cant see peperly, everything appears in twos, the roads ahead look narrow when driving, u feel sick, u can hear roaring noises in ur ears, u stay up allll night and cant get to sleep at all. it feels as if uv got brain tumour..!!!!!!!!!!!!!!!!!!!!!!­!!!!!!!

the most saddest part of my life, i thought i was dying!!!!!

[carrielovesdonny]

my niece is in this she is at 0;18 seconds

[CanadiAnnie]

I'm @ 2:40 Thanks Victoria!! To all my fellow IH'ers...may we persevere together!! <3 you ALL!!!!

[mrswartz]

god bless them all.

[WillRogers1971]

Words can't describe the feelings

[xdevilxbabex2003]

Beautiful video! thats me at 0.28!!!! Thankyou victoria!

[joannacampos26]

thank you for making this wonderful video :)

[vickiTauthor]

Thank you so much for your comments! x

[IHResearchFoundation]

Great job on the video, VickiT! Thank you for showing the faces of IH... thank you to all who are in the video...You are my heros!

[capriceman23]

Thats my brother Chad Z.@ 2:31.....

[CanadiAnnie]

@capriceman23 Chad is such an awesome guy, and a great support and friend !!