GOD bless you and your angel. My daughter stopped breathing when she was 3 weeks old ended in the NICU with diagnosed of reflux.. She developed oover the next few ears slowly and she was diagnosed with Chiari in 2002, she had decompression surgery then 3 yrs later she had Fundoplication for the Relux and she was improving & in May 2010 her headache worsen, several hospitals stays and MRI was repeated and on 12/15/2010 she had her 2nd decompression & seh have lost her left eye...GOD Bless u guys
This is so touching! I'm glad that she was diagnosed at a young age so she didn't grow up with it like I did. I had symptoms but was not diagnosed till I was almost 18 years old. no longer able to pay for surgery :( but as long as I know there is a little girl and a family like yours no longer suffering that makes me happy!
Thank you for sharing!! My 2 y/o son was recently FINALLY diagnosed and decompressed. Praise GOD for the "gut feeling" He gave us to press on and fight for our children. God Bless your family.
How touching! Shes a doll baby. I too have the chiari and have had the decompression surgery on the 6th of this month. I cant imagine if it were one of my children goign though it. What strong parents you must me. God bless your family
GOD bless you and your angel. My daughter stopped breathing when she was 3 weeks old ended in the NICU with diagnosed of reflux.. She developed oover the next few ears slowly and she was diagnosed with Chiari in 2002, she had decompression surgery then 3 yrs later she had Fundoplication for the Relux and she was improving & in May 2010 her headache worsen, several hospitals stays and MRI was repeated and on 12/15/2010 she had her 2nd decompression & seh have lost her left eye...GOD Bless u guys
mfreeny222 1 year ago
This is so touching! I'm glad that she was diagnosed at a young age so she didn't grow up with it like I did. I had symptoms but was not diagnosed till I was almost 18 years old. no longer able to pay for surgery :( but as long as I know there is a little girl and a family like yours no longer suffering that makes me happy!
EmtN2011 1 year ago
Thank you for sharing!! My 2 y/o son was recently FINALLY diagnosed and decompressed. Praise GOD for the "gut feeling" He gave us to press on and fight for our children. God Bless your family.
srichardson22 1 year ago
How touching! Shes a doll baby. I too have the chiari and have had the decompression surgery on the 6th of this month. I cant imagine if it were one of my children goign though it. What strong parents you must me. God bless your family
URCNFUN 1 year ago
Thanks for sharing Mylee's story, she's an inspiration! She will be in our prayers!
4mypreciousgirls 1 year ago