Added: 4 years ago
From: phoeves
Views: 664
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  • go mara kaya mo yan!!! kasama mo kami sa laban mo!....

  • lagi aq nan dun sa kanila,...

  • hi !

    im one of her friend.. the fight is not over... im neil.. i hope na sana makasayaw cya ulit at makita ntn ang mga ngiti nya...

  • I have this wonderful disease, also. Not much fun. I am sorry Mara or anyone has it. They say it is not heredity, but it seems there are several families that have it. I worry for my children. Best of luck in your fight.

  • Hello there,

    My mother has this disease as well. My two uncles have a form of it and so does my second cousin. I think this disease is hereditary and doctors who can't seem to grasp that are not looking at the whole picture. I am 29 if I get this the only thing I have going for me is the fact my mom has it and I know what to look for. Peace and take care--Jammie

  • Hi.

    Ihace this desese too, since i was 13 years old (now 19), if you want you can contac me

  • OMG this is wierd. I just thought to look for this condition on Youtube. My mother has it. My cousin has it and two of my uncles have this condition. It is rare and spontaneous. I am relatively poor but my thoughts and prayers go out to your Ballerina. It is a hard disease to figure out and I hope one day we can.

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