Endometriosis after Hysterectomy

[EndometriosisChick]

Call 304-388-1515 speak with dr. Gantt

[gkygrl]

@EndometriosisChick - oh, I am all set now. Thank you. Post-surgical, no hormones and feeling great! Thanks!

[LucineWoman]

Thank you for sharing your story! I e-mailed you back :) Thanks again, Stacey @ Lucine 

[oiyabastard]

NEVER LET EM TAKE BOTH OVARIES SURGICAL MENOPAUSE MADE MY GF INSANE  AND RUINED HER LIFE PLUS SHE STILL HAS THE PAIN , I HATE SURGEONS

[gkygrl]

@oiyabastard I have to disagree. I went back and had my second ovary taken out. Granted, when I started Estradiol, it brought back all of the little microscopic endo implants. I have been off of hormones for about a year and no longer have the abdominal pain. A low dose SSRI will help your GF's moods & hot flashes, menopausal symptoms. I lived 5 years with my one ovary and it was bad for me - so much pain (Lupron helped). No ovary, no hormones & a little SSRI are the combo that works for me.

[lalaloppy]

(con't) So many doctors seem to be stuck in the past with their idea that if you remove the uterus/overies you will be cured. You won't. I had one surgery and I had no idea--I just trusted him but never again. Three months later I was back worse than I was. I researched the disease and actually interviewed several docs. Any who suggested hysterectomy to a 27 year old was quickly crossed off my list. Any woman with this condition please research and ask your gyno questions!!!

[lalaloppy]

I don't know if you found anyone or not but hysterectomies DO NOT cure endometriosis. I have it all over--my pelvic floor and walls, my bladder ad my bowels. I was on lupron for 6 months and my period never even stopped. I had surgery and then went on Depo plus am on pain management. There is a doctor in Bend Oregon doing great things and if i need surgery in the future i will go to him.

[guidosbabe]

I'm 40yrs old and I've had endo for at least 7-10yrs had a partial hysterectomy, they left my ovaries, I'm on pain management and have been for yrs....it's a neverending battle! I'll never be out of pain.....I've learned though everytime they open you up it spreads, so my advice to anyone that has endo, DO NOT HAVE SURGERY UNLESS IT'S YOUR LAST RESORT! :)

[gkygrl]

@guidosbabe - I actually had my final ovary taken out and no longer take hormones (which fed the endo implants I had). I am totally out of pelvic pain now (and I deal with the hot flashes with an SSRI). I've had a good experience with my last surgery. My ovary never should have been left in ... bad choice. I deal with other pain related to MS, but it's no longer that pelvic pain. Couldn't be more satisfied with the course of my treatments.

[pornoslut]

oh I feel your pain . I have had 16 surgeries and finally a hysterectomy and I still have endo . and I had a complete hysterectomy . I still have it all my bladder and colon . I was on lupron and it still grew on the lupron . I feel your pain . it gets really depressing . I had a wonderful dr but he left after 10 yrs =( . I cant find another dr like him at all . warning the depo is not good but I guess its different for everyone . I got ill on the depo .

[gkygrl]

@pornoslut - I had my final ovary taken out and am no longer on Hormones. All pelvic pain and endometrial implants are gone. The key was stopping the hormones after the final ovary was removed. I can deal with hot flashes, night sweats on occasion (although an SSRI helps this), but I couldn't deal with the pelvic pain. I can honestly say I am no pain free. I hope you can get this taken care of.

[toddlerlou]

did u find a good dr.? has your pain gone away? did u also have a problem w your bladder?

[gkygrl]

@toddlerlou - I have MS so my bladder was neurogenic to begin with. Yes, the full hysterectomy with no hormone replacement has totally alleviated my endometrial pain. I did 6 mos of a Vivelle Dot at .50 and noticed some right pelvic pain. Once I stopped the Estradiol, the pain was gone within about 6 months and has not (will not) come back. Endometrial implants were removed along with my last ovary. Yes, I did have a specialist in the Albany, NY area.

[mallori735]

800 mg of ibuprofen every 4 hours does NOTHING for me. I've been to two doctors and tried Yaz, Cataflam, and Ponstel for the pain. None of it has worked at all! Last month I was on Ponstel and still in tears. (and I don't cry easily) My doctor has never even mentioned endometriosis but I have almost every symptom! (horrible bowell symptoms!) What do i do? The pain gets worse every month!

[gkygrl]

@mallori735 I am so sorry that you are dealing with this :( I understand. What you should really do is look for an endometriosis specialist. You are young and now is the time to catch it. They diagnose it through a laporoscopy and at that time they can remove implants and evaluate it. I ignored my pain and suffering for 24 years and ended up with a frozen pelvis and a tough hysterectomy. Find a doctor who knows the disease. Sending prayers.

[beccababy73]

Oh my god! I am going thru what you went thru. Just the beginning though. Ihave 1 ovary left, and something is very wrong with it. Doc's are taking there sweet time. There was severe endo with my hysterectomy. It took them 8 hours to do the surgery. Thank you for sharing, It is good to know I am not alone in this

[gkygrl]

@beccababy73 I am almost a year post-op after getting my final ovary out and it has been a Godsend. After 6 months or so on HRT (Vivelle Dot), I started getting some pelvic pain. We stopped the HRT and I have been 4 months or so without it and doing better although I still have some minor pain. NOTHING compared to what I had. I had my ovary and appendix removed. It was the best option for me. I hope you get your solution. Find an endometriosis specialist like I did and do what you have to

[Luvmypets123]

I have grade 4 too. The hysterctomy was a waste of time. I am now in agony again and being hospitalized all the time.

[gkygrl]

@Luvmypets123 - I am uploading a new video on my status.  I had my final ovary and my appendix (and some endo implants) removed in 10/2009 and went on an Estradiol patch (.05) for about 6 months until pelvic pain returned. I am off the patch now to revisit it in December and get a Dexa scan to look at bones (after a year of Lupron). Besides the hot flashes which are minimal in effect but frequent (about 30-40 a day), I have no more pelvic pain. The idea is to let the implants die off (prt 1)

[gkygrl]

@Luvmypets123 and revisit in December.  So far, so good. If you do not have a specialist, (I am sure you do) try to find one. Sending prayers.

[Luvmypets123]

@gkygrl

Thank You for your reply. The doctor kept me off hormones for about 6 months and then tried me on hormones because I was suffering badly with the surgical menopause and it was affecting my bones. I have been off and on hormones for the past 5 years, but the consultant said there is not much he can do about it being on my bowel. I have been in hospital twice this month. I hope the pain stays away for you.I had gott rid of 70% of the pain, but it came back. My prayers are with youx

[pornoslut]

@Luvmypets123 omg finally someone who I can relate too !!! I had a compete hysocectomy . I was on lupron ( what a waste of time 4 rounds ) . I still have endo allll over my bladder and colin and the drs are like friggen idiots where im from . I had one amazing dr but he left after ten yrs .

[Luvmypets123]

I had severe endometriois and 4 years ago I had a full hysterectomy; ovaries, cervix, womb. The pain was stil there but not severe because it was still in my bowels and bladder but I had to suffer with the problems of a surgical menopuase at 38 years old. The problems were, bone and joinTHen after 6 months I was put on hormone replacement and within a few months the pain was coming back and I was again getting naval bleeding, causing infections.

t pain, hot flushes, memory loss; part 1

[jagismyname]

Honey, I have endometriosis too, and I am still having problems. I had a complete hysdorectomy at age 20 and I am still having bleeding problems, mainly bleeding from endometriosis on the bowls. I wish you luck feel free to email me or chat.

[vixerdancin]

Sounds like you have been through alot with your health. I hope this surgery will help resolve your pain. I too, am having problems but am still trying to figure it all out. Keep your chin up and keep a positive attitude. God Bless.

[gkygrl]

I will be going for surgery for this ovary and will have it removed completely. It's really the best option at this point as I have exhausted my options: Lupron and Depo Provera. I am at peace with my decision for surgery. I am having it done by a specialist with 25 years experience and know it will be difficult. But I can get through it and then work on getting my life back in gear. I feel good about it.

[gkygrl]

Going to see a "Dr. Angell": tomorrow. I thought the name was appropriate. :)

[ThePennygirl]

Best to you hope you find the help! hang in there!

[gkygrl]

Thank you Jolie ... just doing a ton of research and wondering if surgical intervention of Lupron is the best deal. Really painful stuff!

[OSA503]

Can't give any advice but good luck.

Jolie