One more here to join unhappy society. Now a month in. Have them 25 years, 1-2 months each year or every second year. 1 attack per day, rarely day without or with 2 attacks. Regular use of nasal spray some years prevented many attacks. Not this year. What else to say? Support to all of you brothers and sisters in pain.
@halebyrd I take Psilocybin semilenciata (wild in Scotland) Either dried or fresh, I use 3 caps which equates to about 3mg of psilobin. There are absolutely NO psycotropic effects. IE, no trip.
These, along with LSD and morning glory seed all fall within the classification of triptins, just like sumatriptin. They are very effective but I do have concerns about their long term use. (will I have flashbacks suddenly?)
Professor David Nutt at the London, Prof of Neuropsychopharmacology at the Imperial College in London is looking to do a study on psilocybin as a treatment for depression and will extend this if he can get funding and support. I urge all sufferers to try make contact either directly or through your support groups. He is trying to get a petition of signitures by June 2012
I'm going through mine right now. Trying this Topiramate with little result. Still getting about one a day for the last month. I remembered this video and wanted to watch it again. Sometimes it's nice to no your not alone if nothing else.
Watching your video reminds me of myself in june last year. I was like this for 3 weeks, every freaking day. I even abused my triptan pills stash and left it depleted in 2 days with no success. I guess there are times when nothing can help us... I feel for you mate, try everything you can get your hands on. My CH period has just started a week ago, it's only been mild attacks so far, but I fear for the worst. I've been suffering from this for 6 years and my life has never been the same since.
THERE'S A CUREIt's like being smashed in the head with a baseball bat & left to die. Believe.Comfort arm soak in the tub, compressesCry it only makes it worse.Drink a lot of water,I would then start to feel better.Dr. Brian Cody at the Arizona Pain Center 602-265-8800 Diagnoses Occipital Nerve Damage. few minutes with twilight sleep, X ray between head and neck,inject a dye to pin point nerve, then burn it out.woke up, no with no pain just,bandaid.Jan
I dont ever think in my adult life have I ever cried instantly within seconds of watching something... But to relate, mirror and suffer exactly the way you did/do in this video is reassuring yet I feel so my sympathy for you. You are much braver than i due to I fear judgement. But its people like you that spread awareness. God Bless You
PLEAS LET OTHER PEOPLE IN PAIN KNOW THERE IS A NEW CURE IT HAS TO DO WITH C3 IN THE BACK OF YOUR NECK OCCIPITAL NERVE DAMAGE I have no more headaches 2012 there is a new cure Dr. Brian Cody, 602-265-8800 Arizona Pain Center, Phx AZ. Dr. Brian Cody, will tell you where to go for painless procedure. God Bless Jan 602-908-4125 painless procedure. God Bless Jan 602-908-4125
holy shit man was that upsetting.. I felt your pain, I cried my way thru that video and was praying for it to end for you soon..How long did that last? I looked like an ETERNITY..I kept waiting for you to show the signs of it subsiding but you just kept going.. mine last for up to 45 minutes.I know EXACTLY what you are going through man. I am in the middle of my cycle and that could have been me because thats almost exactly what I do,but I cry out alot more and had and shake my head.
How do cluster headaches feel when they start? I know they don't have much warning, but obviously the pain has to start. Does it start off as a sharp pain, or what? How does it start off, and how long does it take for the really bad pain to set in? And what is usually the initial reaction to a sudden occurring cluster headache?
@CasHillary Usually there is an "Aura" or as some call a"Shadow". that warns us one is coming. I myself get that aura at the top of my neck like someone is trying to pry it open, I begin to get flush yet Hot at the same time and sweat on my right side of my head... within moments, the pain goes from 1-50 on a 10 point scale.
I personally get my pain behind my eye, top of my head, temple, neck and even down throughout my shoulder. All of which occurs(for me) on my right side. I will literally shift,pace,sway,cry,whine,swear,beg,negotiate and at my worst times even try to earn the nickname these awful 'headaches" have gained(suicide headaches) The best part, is as fast as they come, is as fast as they go, but in their wake, Im left exausted and seek sleep/recovery.
@CasHillary Somebody from your family is coming back home and you recognise the sound of the car. You can hear it quiet at first and than louder approaching your home. Until your husband or whoever lock the door and come in, full pain is there. Relief is similar. Lets say 5 min. Initial reaction when you feel its coming, is to erase your brain of everything thats in, and prepare to survive electric chair.
In 75% of all patients oxygen suppletion (not pure inhalation), 8 liters per min, wil work and stop an attack in 15 mins. Furthermore viagra tends to lessen the amount and intensity of an attacks. For the other 25%, there is no cure.
@sugarmill9 thank you so much...yes, my friend...I have an awesome guardian angel and tremendous spirit guides!...They are the reasons I haven't committed suicide. That, and I don't think hell is a good fit for me..haha just kidding. We are all on earth to suffer pain and to love, as well as learn to forgive...so I am gonna get through "earth school" the best way I can, and if any of you who suffer these h/a's need me, just holla via inbox, and I WILL help you!!
Oh my gosh, I know the pain you're going through and I feel for you. I myself suffered with Cluster Headaches for 20 years, from 1984-2004 until I found my natural remedy. I have been Cluster free for 8 years now and I couldn't be happier! I would love to share with you what has helped me... it's not fair to have to go through life suffering the way you are. I'm not here to sell you anything, I just want to help. If you would just visit my channel, hopefully I can help you. Bless you, Andy
Attention people Psilocybin mushrooms will cure this!! I just watched National Geographic and a guy who has these headaches takes shrooms every 2 months and doesnt get the headaches anymore
My boyfriend gets these, it's absolutely horrific... I have the utmost sympathy for anyone with these, as I get regular severe migraines, but it's nothing in comparison to the pain people with cluster headaches suffer. I'm sorry to all who have it, the pain he gets is shocking. :( If only they could find a proper cure... <3 x
I suffer from cluster headaches...and I don't wish anything bad on anyone at all..But everyone out there needs this headache for 10 minutes...then maybe people who don't have them will understand.
I am 53 and have had clusters twice a year since 1989...
They will definetly take out of you what you have in you. And in the midst of vomiting you will pray to God to make it stop...Please God make it stop
I cried when I watched this. It is like watching myself literally. I am female sufferer.. CHILDREN get these....I know because mine started around age 4 (maybe sooner, relying off momma's memory). I've NEVER known life WITHOUT this thing. Mine have gone daily, but even when episodic, my attack lasted SEVEN days (2 days intense pain like in the video). Only thing that helps is pain meds (daily). and now prednisone. I dont care how bad predinsone is, it is helping me! Hope you get relief!!!
I started having these recently and this is exactly how I act when I have an attack. So far the only thing that works every time is to lie flat in a bathtub of very hot water so that the back of my head is immersed and the blood vessels unconstrict. It is by far the worst pain I have ever experienced.
@momtoyaz Actually Hot Bath should be avoided as it triggers the bout of cluster attacks,also alcohol,smoking,nitroglycerine(used for Heart disease"Angina Pectoris")&Foods high in nitrites like bacon and preserved meats..when starts,you need to breathe pure Oxygen through an oxygen mask because it markedly alleviate the attack,also using Sumatriptan,dihydroergotamine(DHE)"preferred not to be used with the triptans as it could be dangerous" also indomethacin.Peace,hope you get better.
Hey Artonio, I am a sufferer of these headaches also. I watched this video and I see myself almost exactly!!!! I have recently come across something that seems to help, actually more than help. I am still testing this, but i was getting 3 headaches per day atleast,...I have been trying a method for 2 day almost 3 and since doing so .....I AM GLAD TO SAY.....I HAVE NOT HAD ONE HEADACHE!!! I AM SO HAPPY I COULD DANCE! MAYBE THIS METHOD COULD WORK FOR YOU TO!!!
Im one of the few females with clusters. ONLY thing that has ever given even a small amount of relief is going to the ER and DEMANDING dilaudid ( LOTS of it) Zofran ( so you dont start puking from the Dilaudid) and pure oxygen.
Id considered drilling a hole in my head with a dremmel, pulling my eyes out, etc when younger. These are true demons of the headache world.
Ive had kidney stones and 3 kids natural birth... there is NO pain like a cluster.
@artonio7 I'm so sorry this happens to you artonio, you don't deserve it. I have a new Facebook friend who also suffers from these cluster headaches, I wanted to know more about them so I could understand what she goes through. I devoutly hope scientists find a cure for you and my friend Lucy right away. Like today. :'-(
I feel your pain. I've gotten a soul-splitting headache every night for the past two weeks. I went to the ER a few days ago and was diagnosed with cluster headaches by a neurologist.
It feels to me like a spinning blade behind my right eye - with a constant, piercing intensity unrivaled by any pain, joy, sadness, or passion I have ever felt. I'm left incapable of thinking or uttering anything coherent, and I'm left incapacitated for hours. It is unimaginable, really. Hang in there.
oh my god...I've had a headache for the past 12 hours...constant. It's driving me mad. But, watching this put things in perspective. I feel so awful for anyone who has to go through this. Proof positive there is no god who loves us.
@Paradox615 when I google "reddit cluster headaches" the top result is now this video... can you narrow it down for us? or maybe write a cryptic url using DOT and [w] type of thing? or maybe mail it to my inbox here? that would be MUCH appreciated...
I am a 28 year old female, I just now had an attack leave me. I have been suffering since I was 17 at age of 24 they began to get really bad. I am at a peek where I have up to four a night, waking me out of my sleep on the dot after two hours. I typically get one at 11 p.m. at 2 a.m. then 8 a.m. sometimes at 5 a.m. I am exhausted, this is so painful and I have had a baby, it IS WORSE!!!!!!!!!!!!! I have been looking every where for answers, non to be found as to why!!!!!
@83Elisha I read a forum on this disease recently. People talked about being cured from their headaches after a neck massage - apparently a common cause of these is the misalignment of a certain vertebrae.
Unfortunatly no - YouTube doesn't allow people to post links in comments. If you google search "reddit cluster headaches" it should be the first thing that pops up. reply if you need more help finding it =)
Hi I feel for you I now know what my family have seen from me.it is like hearing myself. I have suffered 14 years, the last 4 have been chronic. Isome have been every three hours , some lasting more than an hour. I wish tou peace x
I get the worst CH attacks ever. This man is not in enough pain; he can scream. When the pain is at its peak one cannot even scream or it worsens the pain BIG TIME! The big problem with my affliction is that I live in Egypt, and Egypt has stopped to import Imigran (Imitrex) injection, which is the magical abortive method for this 'demon'. Now I have three oxygen tanks beside my bed in a wardrobe, in order to inhale on the bout's onset. It helps, but nothing helps like the injection.
I dont' care what anybody says, medical science SHOULD NOT ALLOW THIS TO CONTINUE. We shoudl be fucking throwing money into research to find a cure for this. Can somebody explain why people who are suffering an attach can not just be knocked unconscious, i.e. given a general anaesthetic, until it passes. Would this work?
i know exactly how he feels..just gettin over a 3 week period of cluster headaches and i sounded and felt just like dude on video..taking a hot shower helps me along with 2 weeks of prednizone..last few days had me taking 2-7 showers every nihgt and i cried and called out to god to stop the pain.. very INTENSE
It's autumn, so every night at 8PM and every morning at 4AM, I can look forward to an angry demon pressing a branding iron, full force onto the back of my left eyeball for about 25 minutes. I'm in my 6th day now, and figure I have about 48 more attacks to look forward to. Even Chuck Norris would succumb to weeping and gnashing of teeth, if he ever got one of these.
@Dannzzee Your attempt to differentiate it as a "disease" or "something anyone can get" is quite perplexing. Anyone can get a disease. But no, you can't "catch" a headache from someone else. The only way that wouldn't be a really dumb question is if you've never had a headache, or you're five years old.
@searrss I don't mean like if i'm near someone who has got cluster headache that i'll catch it. But just a normal day can I get it just randomly and have it for the rest of my life?
@AnnoyingChildStudios FUCK YOU, YOU ARE A FUCKING PIECE OF SHIT! I almost would wish this experience upon you for 2 full minutes, as a cluster SUFFERER I fully comprehend what this guy is going through, you should count yourself lucky asshole. Typical keyboard coward, wonder if you'll have the same compassion when one of your loved ones falls ill?; let's just hope that they don't and are/will remain healthy, albeit not for your sake douche-bag.
@bizznasISgood Wow, look at you. Typing swears in capital letters on the comments section of a YouTube video. You must be real angry. Are you sure your pathetic online raging isn't causing your headaches?
"Cluster headache is probably the worst pain that humans experience. I know that’s quite a strong remark to make, but if you ask a cluster headache patient if they’ve had a worse experience, they’ll universally say they haven't. Women with cluster headache will tell you that an attack is worse than giving birth. So you can imagine that these people give birth without anesthetic once or twice a day, for six, eight, or ten weeks at a time, and then have a break. It's just awful." -Dr.Peter Goadsby
I suffer from this horrible condition. I lost my insurance and only have oxygen to deal with it. I just ran out today and I am getting "attack fear" as I call it. It makes me so sad to see this man suffer like this because I know what it is like. Mine feels like you are taking a pair of pliers and breaking my jaw out of my head. The damn Government will arrest me if I am caught with psilocin mushrooms. The lsd or mushrooms can get this under control, but the Govt. in their infinite wisdom, cont
cont-->> have decided that I don't deserve the relief because they think it will make me some kinda drug-addict.
This is not true. I do not wish this on anyone, but I wish these geniuses could experience just one minute of it. I'll bet that would change their mind(s) The mushrooms should be prescribed and would be MUCH LESS dangerous than even Vicodin.
oileerblueline, yes I do it was in 2001 I was outside gardening, it was a mild episode, I went undiagnosed for 6 yrs and I can't begin to tell you how many times I have hit KIPP 10 once almost to my own dimise
@JustoneSec370 My daughter got her first one at 9 yrs old! I got my first one at 17. We don't blame God for it, we thank God for helping us thru it! There are more forces at work here than God, remember there is good and evil forces in the universe. This pain is wicked evil...because of God, I'm still here...I almost blew my brains out on several occasions. I also used to blame God...I'm not foolish enough to do that any more! If I can help anyone here that suffers these as I do...inbox me.
I would give my life to be able to stop all cluster headaches in the world! God help all of you who suffer these! I have been super blessed to have the Doctor that I have! My heart goes out to all who suffer headaches of any kind!
I was told pure oxygen is a good relief to cluster headaches. I'm going to make the extreme suggestion of vacationing to a tropical rainforest where it is estimated 40% of the worlds oxygen is produced to relieve your pain.
I don't experience cluster headaches, migraines and barely a headache after heavy drinking. I've had little respect for people with migraines but this video opens my eyes to the wide range of pain one can experience.
If it were me, I would be going to the tropics.GL artonio
@WorldOfBloodcraft Imitrex helps me along with o2! I also get relief for the after-the-headache soreness from methadone in huge doses! I am 44 and have suffered clusters since I was 17. I now have a wonderful Doctor who keeps me more comfortable than any other Doctor I've ever had.
I've had headaches so bad where I've just been rocking back and forth, crying, groaning, and wishing that someone would just put me out of my misery. I know how these feel, and they're HORRIBLE! I wouldn't wish this kind of pain on anyone.
I've lived through that way too many times. After seeing this, I can appreciate how terrible it must be for my family to see me have them. I must say that since my doctor prescribed oxygen, that has helped immensely in shortening the length of the individual headaches. It doesn't break the cluster, but the headaches aren't as bad.
@oilerblueline Hi. I came across this not so long ago. I am writing a short novel and one of the minor characters has this illness so I am doing more research on it. Do you remember the very first time you experienced a cluster headache? Do you think you would be able to describe the experience? I would very much appreciate it and I greatly admire your endurance.
Ive jsut sat and watched this and sobbed - I have had cluster headaches but mainly suffer from hemepligic migraines. Ive never seen anyone else with the same condition. I obviously know what it feels like but not what it looks like. - I live alone with a young child and I feel dreadfully dreadfully sorry for her having to cope with this illness, even more now I know how scarey it looks. such a sad life :(
Crikes, I don't suffer at all from this, but after watching, it's enough to make a grown man cry (I know my eyes are welling up). Cluster headaches have just been featured on Slashdot's news, and apparently, they're saying LSD helps alleviate symptoms (with some being cured permanently after a while). Here's to a cure!
I acted like this Exactly when I had my cluster at the ER a few days ago. I said the same things and everything. I can't stand the pain anymore none of my meds work anymore. It helped to see this vid I can relate to it. I hope someone finds a cure for this soon.
Get the guy a sumatriptan jab!!!!! This brings back memories of 2am attacks. Evil. And these people taking it as a joke..... Let's hope u don't ever fall in love with a sufferer that ends up throwing themselves out of a window......
God bless this guy! I pray he finds some relief. I have had migraines that have debilitated me. I couldn't imagine going through the pain of a cluster headache.
I am a doctor who suffers from clusters! - Trust me the experience is hell (I suffer twice yearly for about 6 weeks at a time and at the peak I get 4-6 headaches a day (and they normally come on at night when I try to sleep (8pm-4am) - it took me nearly 10 years to find a medication that works! Sumitriptan s/c 6mg BD - ask your doctor for that - however, some drugs such as codeine actually make it worse.
Advice: avoid alcohol/ drugs & when you know that the cluster is aborting - enjoy it!
Cluster headaches are said to be worse than childbirth and amputation without sedation. I cannot imagine your pain...I hope you find relief from these headaches. I really do.
Man up? Have you done any research about cluster headaches? Have you considered that there might be a reason why they call them "suicide" headaches.
Scientific fact: analgisics such as aspirin are worthless in treating clusters. Same goes for acetaminophen, ibuprofen and all the other over-the-counter medications. That's why they sell it over the counter; it is only effective against minor aches and pains like your headaches.
The pain from cluster headaches is thought to be the most painful condition known in medical science. Can you imagine that? NOTHING is worse. Not a single thing you could possibly imagine. Setting your dick on fire while chopping your balls with acid-coated blades wouldn't be worse.
Mate, I feel your pain. Thanks so much for sharing that video. I've been a episodic cluster head for 26 years. Currently getting good results from verapamil and imigran nasal spray. Hope you find something that works and stay pain free
IMITREX!!!! Or at least Zomig! The only things that help. If you have not heard of it please ask your doctor. I have suffered for 6 years. If I can catch it when it starts ( with imitrex) I have a good chance of not a full-blown mind@#$%.
i just discovered i suffer from cluster headaches this morning,i always thought it was migraine because it only affected one side of my head(the right side).last time i had it was over 10 years ago.it just started again last week.i've been taking ibuprofen but it didnt help so i decided to see my GP today,after describing the symptoms(how my right eye hurts,blocked nose etc.)he told me it was cluster headache and has now referred me to a neurologist. all i can say is its the worst pain ever.
They suck.... I get cluster headaches about every 2 weeks. I am going through one right now. I used to attribute to heavy caffeine usage now I think it is because I smoke. I swear Asprin/Tylenol only feeds the beast and makes it worse. The best for me is to sit upright against a wall and press my head against it and wait it out. if I lay down it makes me throw up. The upper body has to be upright. Takes about 3-4 hours for me. if at work well SOL and stay away from me. THis blows
Mine have started again after 5 months of rest I have recently started to take asprin and for me it actually does help a little, I find it very differcult to keep my head upright because of the pressure to my head it makes my head drop : ( but one thing I do recommend you try is to go have a shower with the shower head pointing towards the affected area, It does help me a little because its like a distraction.
jesus christ man where is your oxygen!? I really hope you have a tank and you just braved it out for the sake of the video, I don't think I would have the will power to hold out on running for the O2 or sumatriptin. stay strong friend
I'm also thinking that is a muscle issue in the head, I started taking the muscle relaxer based on this idea, when you get the Horner syndrome the muscles are spazing out? However I'm confused by my body temp, I go from feeling Hot to cold on my entire body and then just my head being hot and my body cold and if cool air hit's my body it very uncomforable.
When I'm thinking Psychadelics,should I be thinking (LSD) ? Which I don't think is the answer. I suffer from Cluster Headaches for about 18yrs now and this is what works for me: Oxgen from tank and nasal decongestion it's about 50% effective... Muscle relaxers 100%,... at the same time I'm noticing that You have to change your diet periodicaly..and stay away from beer... and switch your hard liquor back and forth from your norm...and keep a clean house away form pet hair and smoke
This is extremely distressing... I don't have these but I'm absolutely terrified of getting them at some point in my life... I hope one day that a cure is found and sufferers never have to endure this again.
I think it's safe to say what works for 1 won't work for all! It's about what works for u. I would like to say THANK YOU to the guy in the CID I use this vid every time when tryin to explain or educate ppl on our condition, and every time I have to stop it as it brings me to tears
bro i know how you feel i get them like 2 or 3 times a week i take sumatriptan succinate tablets 100mg and or sometime both oxycodone 5-325 mg or maybe you have it already i get it just like that you wish that god would stop your heart so the pain would stop and its fuck up for me also because im a truck driver and i get them while im driving in midtown traffic and on the highway and for that guy say its good for him to have them your a real fucking ass hole and you might get them 1day i really
What do you do when your headaches are so bad, you want to smash your head off walls until your unconscious, and yet, hospital doctors believe the pain is "all in your head" and won't give anything except a couple of paracetamol? I already know why they also call them "suicide headaches", because I already feel suicidal...
Oxygen helps but not all the time. I found that washing my face during the headache with very warm water and and suddenly with icecold water gives some release...as well that there is an acupresuure point on the top of my head, where i can press and the pain stops... unfortunatelly only for few minutes... but it works again, and again...
I am suffering from this for the last 15years too.
Oxygen helps but not all the time. I found that washing my face during the headache with very war water and and suddenly with icecold water gives some release...as well that there is an acupresuure point on the top of my head, where i can press and the pain stops... unfortunatelly only for few minutes... but it works again, and again...
I am suffering from this for the last 15years too.
This is EXACTLY how I suffered for over 32 years. If not for my wife and children, I would have killed myself long ago. TG I found something that works
I suffer from cluster headaches and I tried everything and nothing worked. Until I tried hallucinogenic mushrooms. They are illegal but you can find them on the internet if you search for them. Legality is the least of your worries when you have headaches that are so painful you are contemplating suicide. Any one out there who has cluster headaches I suggest you try mushrooms. Not only do the abort a headache but if you take a small amount each day it will prevent them. Telleveryone about this
@daniacea Yeah, spread the knowledge...i been suffering almost 20 years, n some nights its takes all i can muster not to slit my wrists. But! Psychadelics work. (Im not watchin vid while typing, but know those groans oh too well myself - sympathies) I tried Haiwaiin Woodrose Seeds. There legal (for now) in UK....Tasted horrible, but, they broke the cycle (but didnt eliminate completely). The crux is, i used to enjoy trippin', but went off it years ago, but you dont need to consume that much. Try
@daniacea it, anyone who goes through this, knows your try anything. I paid to go private hospital out my own pocket about 12-15 years ago, almost begging for some sort of surgery....then found out about the alternative cure about a year ago. IT. REALLY. WORKS! (anyone telling you weed helps dont know what their talking about - i smoke all day everyday - in fact Clusters are about the only thing that WILL put me off smoking. Hannah4Darryl - yeah, it goes, but the depression lasts till nexttime.
Has anyone ever tried smoking weed while having a cluster headache? I'm being totally serious, Marijuana has proven to stop or lessen a lot of pains people have...
@LaidbackPlayboy well, I won't verbally attack you, I'll give you the benefit of the doubt that you are being serious, but realize that they do do tests to measure the pain of certain things, and on these pain scales, cluster headaches are generally at the top. They are chronic, there is no known cure (I believe), and they are considered possibly the greatest pain you can feel. people died from the pain
One more here to join unhappy society. Now a month in. Have them 25 years, 1-2 months each year or every second year. 1 attack per day, rarely day without or with 2 attacks. Regular use of nasal spray some years prevented many attacks. Not this year. What else to say? Support to all of you brothers and sisters in pain.
8moonquake8 1 day ago
Search for cluster headache on ebay
daniacea 3 days ago
after seeing this on Drugs Inc. i'm absolutely an advocate for the medical use of shrooms. No person should have to suffer this without treatment.
Muzzy12 4 days ago
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@halebyrd I take Psilocybin semilenciata (wild in Scotland) Either dried or fresh, I use 3 caps which equates to about 3mg of psilobin. There are absolutely NO psycotropic effects. IE, no trip.
These, along with LSD and morning glory seed all fall within the classification of triptins, just like sumatriptin. They are very effective but I do have concerns about their long term use. (will I have flashbacks suddenly?)
mojudaro 4 days ago
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Professor David Nutt at the London, Prof of Neuropsychopharmacology at the Imperial College in London is looking to do a study on psilocybin as a treatment for depression and will extend this if he can get funding and support. I urge all sufferers to try make contact either directly or through your support groups. He is trying to get a petition of signitures by June 2012
mojudaro 4 days ago
I'm going through mine right now. Trying this Topiramate with little result. Still getting about one a day for the last month. I remembered this video and wanted to watch it again. Sometimes it's nice to no your not alone if nothing else.
MrSoulfirecracker 5 days ago
Watching your video reminds me of myself in june last year. I was like this for 3 weeks, every freaking day. I even abused my triptan pills stash and left it depleted in 2 days with no success. I guess there are times when nothing can help us... I feel for you mate, try everything you can get your hands on. My CH period has just started a week ago, it's only been mild attacks so far, but I fear for the worst. I've been suffering from this for 6 years and my life has never been the same since.
MsLilu85 6 days ago
rrrrr fuck i just cried my fucking eyes out watching this!
BlitzkriegOwnage 6 days ago
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BlitzkriegOwnage 6 days ago
THERE'S A CUREIt's like being smashed in the head with a baseball bat & left to die. Believe.Comfort arm soak in the tub, compressesCry it only makes it worse.Drink a lot of water,I would then start to feel better.Dr. Brian Cody at the Arizona Pain Center 602-265-8800 Diagnoses Occipital Nerve Damage. few minutes with twilight sleep, X ray between head and neck,inject a dye to pin point nerve, then burn it out.woke up, no with no pain just,bandaid.Jan
k9zrkids2@aol.com
here2helpu2day 1 week ago
I dont ever think in my adult life have I ever cried instantly within seconds of watching something... But to relate, mirror and suffer exactly the way you did/do in this video is reassuring yet I feel so my sympathy for you. You are much braver than i due to I fear judgement. But its people like you that spread awareness. God Bless You
TheCesyr321 1 week ago
I just want to hold him...
sessy2010 1 week ago
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here2helpu2day 2 weeks ago
I had them around Christmas for a couple weeks my pain was mainly in the back of my head. They will humble ur view on pain
SnoopyPoopyDog101 2 weeks ago
Damn, I thought my Migraines were bad but after seeing these videos of Cluster Headaches, it makes my pain seem like a small scratch on the arm.
AssassinRecruit 2 weeks ago
I suffer from these as well. I respond to Sumatriptan Subcutaneously.
KornOnTheCobRawr 2 weeks ago
God bless you and hang in there brother, I am so sorry for you and all of us who have to go thru that. :-)
Richiebee69 2 weeks ago
holy shit man was that upsetting.. I felt your pain, I cried my way thru that video and was praying for it to end for you soon..How long did that last? I looked like an ETERNITY..I kept waiting for you to show the signs of it subsiding but you just kept going.. mine last for up to 45 minutes.I know EXACTLY what you are going through man. I am in the middle of my cycle and that could have been me because thats almost exactly what I do,but I cry out alot more and had and shake my head.
Richiebee69 2 weeks ago
How do cluster headaches feel when they start? I know they don't have much warning, but obviously the pain has to start. Does it start off as a sharp pain, or what? How does it start off, and how long does it take for the really bad pain to set in? And what is usually the initial reaction to a sudden occurring cluster headache?
CasHillary 3 weeks ago
@CasHillary Usually there is an "Aura" or as some call a"Shadow". that warns us one is coming. I myself get that aura at the top of my neck like someone is trying to pry it open, I begin to get flush yet Hot at the same time and sweat on my right side of my head... within moments, the pain goes from 1-50 on a 10 point scale.
TheCesyr321 1 week ago
I personally get my pain behind my eye, top of my head, temple, neck and even down throughout my shoulder. All of which occurs(for me) on my right side. I will literally shift,pace,sway,cry,whine,swear,beg,negotiate and at my worst times even try to earn the nickname these awful 'headaches" have gained(suicide headaches) The best part, is as fast as they come, is as fast as they go, but in their wake, Im left exausted and seek sleep/recovery.
TheCesyr321 1 week ago
@CasHillary Somebody from your family is coming back home and you recognise the sound of the car. You can hear it quiet at first and than louder approaching your home. Until your husband or whoever lock the door and come in, full pain is there. Relief is similar. Lets say 5 min. Initial reaction when you feel its coming, is to erase your brain of everything thats in, and prepare to survive electric chair.
8moonquake8 1 day ago
In 75% of all patients oxygen suppletion (not pure inhalation), 8 liters per min, wil work and stop an attack in 15 mins. Furthermore viagra tends to lessen the amount and intensity of an attacks. For the other 25%, there is no cure.
Flea0Frusciante 3 weeks ago
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Flea0Frusciante 3 weeks ago
@sugarmill9 thank you so much...yes, my friend...I have an awesome guardian angel and tremendous spirit guides!...They are the reasons I haven't committed suicide. That, and I don't think hell is a good fit for me..haha just kidding. We are all on earth to suffer pain and to love, as well as learn to forgive...so I am gonna get through "earth school" the best way I can, and if any of you who suffer these h/a's need me, just holla via inbox, and I WILL help you!!
jjn931 3 weeks ago
OMFG
alcoholicmr 4 weeks ago
Try magic mushrooms
OrginalKork 1 month ago 13
Oh my Jesus lord that must hurt like a MOTHERFUCKER.
scr34m1ng 1 month ago
Psilocybin will cure Cluster headaches
yxrcbszg 1 month ago
Oh my gosh, I know the pain you're going through and I feel for you. I myself suffered with Cluster Headaches for 20 years, from 1984-2004 until I found my natural remedy. I have been Cluster free for 8 years now and I couldn't be happier! I would love to share with you what has helped me... it's not fair to have to go through life suffering the way you are. I'm not here to sell you anything, I just want to help. If you would just visit my channel, hopefully I can help you. Bless you, Andy
AndyRCO 1 month ago
Attention people Psilocybin mushrooms will cure this!! I just watched National Geographic and a guy who has these headaches takes shrooms every 2 months and doesnt get the headaches anymore
ZipFlip817 1 month ago
OXYGEN!
Scarface6563 1 month ago
bit{DOT}ly/yWQBQ
PLEASE THUMBS UP SO HE CAN READ THE TREATMENT HERE!!
OsQadoomy 1 month ago
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OsQadoomy 1 month ago
im having one right now! ouch! :\ in others perspective i assume this pain would simply be described as unfuckingbearable
punkrocker33446 1 month ago
My boyfriend gets these, it's absolutely horrific... I have the utmost sympathy for anyone with these, as I get regular severe migraines, but it's nothing in comparison to the pain people with cluster headaches suffer. I'm sorry to all who have it, the pain he gets is shocking. :( If only they could find a proper cure... <3 x
ChattyHornPlayer 1 month ago
LSD drug for a "take your risk" to make the pain go, or oxygen tanks for a smaaaaaaaaaaaaaaaall feel better, are the only known ways.
PurpleMoonYef 2 months ago
this looks HORRIBLE! D':
rapeyadog 2 months ago
is there any way to cure the cluster?! I don`t want a have a cluster headache! It look painful
blood16ful 2 months ago
This has been flagged as spam show
I suffer from cluster headaches...and I don't wish anything bad on anyone at all..But everyone out there needs this headache for 10 minutes...then maybe people who don't have them will understand.
I am 53 and have had clusters twice a year since 1989...
They will definetly take out of you what you have in you. And in the midst of vomiting you will pray to God to make it stop...Please God make it stop
JPP2672 2 months ago
I cried when I watched this. It is like watching myself literally. I am female sufferer.. CHILDREN get these....I know because mine started around age 4 (maybe sooner, relying off momma's memory). I've NEVER known life WITHOUT this thing. Mine have gone daily, but even when episodic, my attack lasted SEVEN days (2 days intense pain like in the video). Only thing that helps is pain meds (daily). and now prednisone. I dont care how bad predinsone is, it is helping me! Hope you get relief!!!
candirenee74 2 months ago
I started having these recently and this is exactly how I act when I have an attack. So far the only thing that works every time is to lie flat in a bathtub of very hot water so that the back of my head is immersed and the blood vessels unconstrict. It is by far the worst pain I have ever experienced.
momtoyaz 2 months ago
@momtoyaz Actually Hot Bath should be avoided as it triggers the bout of cluster attacks,also alcohol,smoking,nitroglycerine(used for Heart disease"Angina Pectoris")&Foods high in nitrites like bacon and preserved meats..when starts,you need to breathe pure Oxygen through an oxygen mask because it markedly alleviate the attack,also using Sumatriptan,dihydroergotamine(DHE)"preferred not to be used with the triptans as it could be dangerous" also indomethacin.Peace,hope you get better.
Arabova159 2 months ago
I imagine this is how hell would feel like,for an eternity
jaws5263 2 months ago
Hey Artonio, I am a sufferer of these headaches also. I watched this video and I see myself almost exactly!!!! I have recently come across something that seems to help, actually more than help. I am still testing this, but i was getting 3 headaches per day atleast,...I have been trying a method for 2 day almost 3 and since doing so .....I AM GLAD TO SAY.....I HAVE NOT HAD ONE HEADACHE!!! I AM SO HAPPY I COULD DANCE! MAYBE THIS METHOD COULD WORK FOR YOU TO!!!
dermus1972 2 months ago
dmn fck poor guy =(
dharmdevil 2 months ago
Question for the females: a few of you have mentioned that your ch suffers and have had children. My question is how do you cope? Can you medicate?
lalotato 2 months ago
Im one of the few females with clusters. ONLY thing that has ever given even a small amount of relief is going to the ER and DEMANDING dilaudid ( LOTS of it) Zofran ( so you dont start puking from the Dilaudid) and pure oxygen.
Id considered drilling a hole in my head with a dremmel, pulling my eyes out, etc when younger. These are true demons of the headache world.
Ive had kidney stones and 3 kids natural birth... there is NO pain like a cluster.
suggy1970 2 months ago
Must be like hell on earth. I will never complain about my hangover again.
MrRazorblade999 2 months ago 2
@artonio7 I'm so sorry this happens to you artonio, you don't deserve it. I have a new Facebook friend who also suffers from these cluster headaches, I wanted to know more about them so I could understand what she goes through. I devoutly hope scientists find a cure for you and my friend Lucy right away. Like today. :'-(
chrstnlmllr51 3 months ago
I feel your pain. I've gotten a soul-splitting headache every night for the past two weeks. I went to the ER a few days ago and was diagnosed with cluster headaches by a neurologist.
It feels to me like a spinning blade behind my right eye - with a constant, piercing intensity unrivaled by any pain, joy, sadness, or passion I have ever felt. I'm left incapable of thinking or uttering anything coherent, and I'm left incapacitated for hours. It is unimaginable, really. Hang in there.
ttaacciittuurrnn 3 months ago
oh my god...I've had a headache for the past 12 hours...constant. It's driving me mad. But, watching this put things in perspective. I feel so awful for anyone who has to go through this. Proof positive there is no god who loves us.
avedic 3 months ago
@Paradox615 when I google "reddit cluster headaches" the top result is now this video... can you narrow it down for us? or maybe write a cryptic url using DOT and [w] type of thing? or maybe mail it to my inbox here? that would be MUCH appreciated...
BlackArtsLibrary 3 months ago
I got these, it's had me drop to the ground in pain right where I was standing.
No pain compares.
AchiroRothlkin 3 months ago
This has been flagged as spam show
HAHAHA.LOL
ManlytearsUK 3 months ago
fuck that shit! hang in there man! you will eventually find a way to be better
raynhornzxz 3 months ago
"There is no force on earth more powerful than the will to live."
AgnoYouth 4 months ago
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austerjx 4 months ago
LSD CAN CURE CLUSTER HEADACHES! AS WELL AS MENTAL DISORDERS
redbloof 4 months ago 9
@redbloof mushroom completely prevent them
JackBlackNinja 3 weeks ago
I am a 28 year old female, I just now had an attack leave me. I have been suffering since I was 17 at age of 24 they began to get really bad. I am at a peek where I have up to four a night, waking me out of my sleep on the dot after two hours. I typically get one at 11 p.m. at 2 a.m. then 8 a.m. sometimes at 5 a.m. I am exhausted, this is so painful and I have had a baby, it IS WORSE!!!!!!!!!!!!! I have been looking every where for answers, non to be found as to why!!!!!
83Elisha 4 months ago
@83Elisha I read a forum on this disease recently. People talked about being cured from their headaches after a neck massage - apparently a common cause of these is the misalignment of a certain vertebrae.
Paradox615 3 months ago
@Paradox615 Can you give me a link to that topic? I really would like to know more.
TrentJason 3 months ago
Unfortunatly no - YouTube doesn't allow people to post links in comments. If you google search "reddit cluster headaches" it should be the first thing that pops up. reply if you need more help finding it =)
Paradox615 3 months ago
Hi I feel for you I now know what my family have seen from me.it is like hearing myself. I have suffered 14 years, the last 4 have been chronic. Isome have been every three hours , some lasting more than an hour. I wish tou peace x
zainilaini 4 months ago
I get the worst CH attacks ever. This man is not in enough pain; he can scream. When the pain is at its peak one cannot even scream or it worsens the pain BIG TIME! The big problem with my affliction is that I live in Egypt, and Egypt has stopped to import Imigran (Imitrex) injection, which is the magical abortive method for this 'demon'. Now I have three oxygen tanks beside my bed in a wardrobe, in order to inhale on the bout's onset. It helps, but nothing helps like the injection.
OneTruePharaoh 4 months ago
I dont' care what anybody says, medical science SHOULD NOT ALLOW THIS TO CONTINUE. We shoudl be fucking throwing money into research to find a cure for this. Can somebody explain why people who are suffering an attach can not just be knocked unconscious, i.e. given a general anaesthetic, until it passes. Would this work?
LadyCypher54 4 months ago
i know exactly how he feels..just gettin over a 3 week period of cluster headaches and i sounded and felt just like dude on video..taking a hot shower helps me along with 2 weeks of prednizone..last few days had me taking 2-7 showers every nihgt and i cried and called out to god to stop the pain.. very INTENSE
sacapunta2 4 months ago
It's autumn, so every night at 8PM and every morning at 4AM, I can look forward to an angry demon pressing a branding iron, full force onto the back of my left eyeball for about 25 minutes. I'm in my 6th day now, and figure I have about 48 more attacks to look forward to. Even Chuck Norris would succumb to weeping and gnashing of teeth, if he ever got one of these.
stigsworth 4 months ago
@stigsworth Reading about and watching this just made me cry. My heart goes out to you, man. Jesus fucking christ, what an affliction.... :(
Snagabott 4 months ago
Is it a disease or is it something anyone can get?
Dannzzee 4 months ago
@Dannzzee Your attempt to differentiate it as a "disease" or "something anyone can get" is quite perplexing. Anyone can get a disease. But no, you can't "catch" a headache from someone else. The only way that wouldn't be a really dumb question is if you've never had a headache, or you're five years old.
searrss 4 months ago
@searrss I don't mean like if i'm near someone who has got cluster headache that i'll catch it. But just a normal day can I get it just randomly and have it for the rest of my life?
Dannzzee 4 months ago
Women who suffer say it's worse than giving birth.
carruthersj 5 months ago
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mcnultyfrank 5 months ago
This comment has received too many negative votes show
what a baby
AnnoyingChildStudios 5 months ago
@AnnoyingChildStudios fuck off
mcnultyfrank 5 months ago
@AnnoyingChildStudios FUCK YOU, YOU ARE A FUCKING PIECE OF SHIT! I almost would wish this experience upon you for 2 full minutes, as a cluster SUFFERER I fully comprehend what this guy is going through, you should count yourself lucky asshole. Typical keyboard coward, wonder if you'll have the same compassion when one of your loved ones falls ill?; let's just hope that they don't and are/will remain healthy, albeit not for your sake douche-bag.
bizznasISgood 4 months ago
@bizznasISgood Wow, look at you. Typing swears in capital letters on the comments section of a YouTube video. You must be real angry. Are you sure your pathetic online raging isn't causing your headaches?
searrss 4 months ago
damn.
tro0llgores 5 months ago
"Cluster headache is probably the worst pain that humans experience. I know that’s quite a strong remark to make, but if you ask a cluster headache patient if they’ve had a worse experience, they’ll universally say they haven't. Women with cluster headache will tell you that an attack is worse than giving birth. So you can imagine that these people give birth without anesthetic once or twice a day, for six, eight, or ten weeks at a time, and then have a break. It's just awful." -Dr.Peter Goadsby
tktkana 5 months ago
I suffer from this horrible condition. I lost my insurance and only have oxygen to deal with it. I just ran out today and I am getting "attack fear" as I call it. It makes me so sad to see this man suffer like this because I know what it is like. Mine feels like you are taking a pair of pliers and breaking my jaw out of my head. The damn Government will arrest me if I am caught with psilocin mushrooms. The lsd or mushrooms can get this under control, but the Govt. in their infinite wisdom, cont
orangemod 6 months ago
cont-->> have decided that I don't deserve the relief because they think it will make me some kinda drug-addict.
This is not true. I do not wish this on anyone, but I wish these geniuses could experience just one minute of it. I'll bet that would change their mind(s) The mushrooms should be prescribed and would be MUCH LESS dangerous than even Vicodin.
orangemod 6 months ago
oileerblueline, yes I do it was in 2001 I was outside gardening, it was a mild episode, I went undiagnosed for 6 yrs and I can't begin to tell you how many times I have hit KIPP 10 once almost to my own dimise
smj62 6 months ago
@JustoneSec370 My daughter got her first one at 9 yrs old! I got my first one at 17. We don't blame God for it, we thank God for helping us thru it! There are more forces at work here than God, remember there is good and evil forces in the universe. This pain is wicked evil...because of God, I'm still here...I almost blew my brains out on several occasions. I also used to blame God...I'm not foolish enough to do that any more! If I can help anyone here that suffers these as I do...inbox me.
jjn931 6 months ago
I would give my life to be able to stop all cluster headaches in the world! God help all of you who suffer these! I have been super blessed to have the Doctor that I have! My heart goes out to all who suffer headaches of any kind!
jjn931 6 months ago 10
This has been flagged as spam show
@jjn931 Medicins don't, work
Been there never want to go back after years of suffering for years and no help.
Mine where so bad I would vomit for days. No way to live. Here is your help
Dr. Brian Cody , Arizona Pain Center, Phx AZ. 100% will fix this problem
602-265-8800 They will tell you what to do. GOOD LUCK
I'm 100% pain free.
Tonya
here2helpu2day 3 weeks ago
I was told pure oxygen is a good relief to cluster headaches. I'm going to make the extreme suggestion of vacationing to a tropical rainforest where it is estimated 40% of the worlds oxygen is produced to relieve your pain.
I don't experience cluster headaches, migraines and barely a headache after heavy drinking. I've had little respect for people with migraines but this video opens my eyes to the wide range of pain one can experience.
If it were me, I would be going to the tropics.GL artonio
olliestottle 6 months ago
@olliestottle tropics wont change shit man the only effective relief is 100% pure oxygen sent straight to the bloodstream during the cluster headache
WorldOfBloodcraft 6 months ago
@WorldOfBloodcraft Imitrex helps me along with o2! I also get relief for the after-the-headache soreness from methadone in huge doses! I am 44 and have suffered clusters since I was 17. I now have a wonderful Doctor who keeps me more comfortable than any other Doctor I've ever had.
jjn931 6 months ago
@jjn931 damn nice man im happy for you, also i heard there are some experimental treatments with non-psychedelic LSD if you wanna explore that
/watch?v=IJrRBWbtJZ0
they talk about it in that documentary.
keep your head up man
WorldOfBloodcraft 6 months ago
@WorldOfBloodcraft LSD (acid) and "majic" mushrooms helps greatly!
jjn931 3 weeks ago
This has been flagged as spam show
@jjn931 tropics wont change shit man the only effective relief is 100% pure oxygen sent straight to the bloodstream during the cluster headache
WorldOfBloodcraft 6 months ago
@WorldOfBloodcraft Which tropics did you go to? Which weed do you smoke?
olliestottle 6 months ago
@olliestottle didnt go to any tropics and i dont even have cluster headaches, im just saying that going to tropics wont change shit
WorldOfBloodcraft 6 months ago
@WorldOfBloodcraft I do not advocate the change of fecal matter.
olliestottle 6 months ago
@olliestottle god you are witty...
WorldOfBloodcraft 6 months ago
@olliestottle 02 does help...but you need the meds too. If you don't have the meds, the h/a's will return immediately after removing the 02...fyi
jjn931 3 weeks ago
I've had headaches so bad where I've just been rocking back and forth, crying, groaning, and wishing that someone would just put me out of my misery. I know how these feel, and they're HORRIBLE! I wouldn't wish this kind of pain on anyone.
LonerGalore 7 months ago
@LonerGalore me too...sry you are having to deal with it
jjn931 3 weeks ago
I've lived through that way too many times. After seeing this, I can appreciate how terrible it must be for my family to see me have them. I must say that since my doctor prescribed oxygen, that has helped immensely in shortening the length of the individual headaches. It doesn't break the cluster, but the headaches aren't as bad.
oilerblueline 7 months ago
@oilerblueline Hi. I came across this not so long ago. I am writing a short novel and one of the minor characters has this illness so I am doing more research on it. Do you remember the very first time you experienced a cluster headache? Do you think you would be able to describe the experience? I would very much appreciate it and I greatly admire your endurance.
PhilosoFighter2012 6 months ago
An orgasm of pain is what it resembles to an observer.
osheaad 7 months ago
Ive jsut sat and watched this and sobbed - I have had cluster headaches but mainly suffer from hemepligic migraines. Ive never seen anyone else with the same condition. I obviously know what it feels like but not what it looks like. - I live alone with a young child and I feel dreadfully dreadfully sorry for her having to cope with this illness, even more now I know how scarey it looks. such a sad life :(
EZZY1968 7 months ago
orgasmic...
TechSmack 8 months ago
@TechSmack Fuck you you little prick.
JohnKapsis1985 7 months ago
@JohnKapsis1985 come at me bro
TechSmack 7 months ago
@TechSmack Give me your address little brat and i'll be there.
JohnKapsis1985 7 months ago 2
Crikes, I don't suffer at all from this, but after watching, it's enough to make a grown man cry (I know my eyes are welling up). Cluster headaches have just been featured on Slashdot's news, and apparently, they're saying LSD helps alleviate symptoms (with some being cured permanently after a while). Here's to a cure!
TwinbeeUK 8 months ago
I acted like this Exactly when I had my cluster at the ER a few days ago. I said the same things and everything. I can't stand the pain anymore none of my meds work anymore. It helped to see this vid I can relate to it. I hope someone finds a cure for this soon.
crushboneviixeq2 8 months ago
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djwAAAKK 8 months ago
I can relate... Was in remission for 3 years....but they're back...
Typically will get one or two a day....that last for 1-2 hours...
I have yet to find medication that helps much....
Seems like Maltax if taken early enough in the headache, sometimes tones down the severity of it....
djwAAAKK 8 months ago
Get the guy a sumatriptan jab!!!!! This brings back memories of 2am attacks. Evil. And these people taking it as a joke..... Let's hope u don't ever fall in love with a sufferer that ends up throwing themselves out of a window......
tomlovelock 8 months ago
What the hell?
V
V
V
8CaptainHowdy 8 months ago
lmao!
Candaymama 8 months ago
God bless this guy! I pray he finds some relief. I have had migraines that have debilitated me. I couldn't imagine going through the pain of a cluster headache.
StonewallJackson26 8 months ago
Fuck, this must be like the worst thing to have, is there no medication or pain reliefers you can use?
langhalsen 8 months ago
I am a doctor who suffers from clusters! - Trust me the experience is hell (I suffer twice yearly for about 6 weeks at a time and at the peak I get 4-6 headaches a day (and they normally come on at night when I try to sleep (8pm-4am) - it took me nearly 10 years to find a medication that works! Sumitriptan s/c 6mg BD - ask your doctor for that - however, some drugs such as codeine actually make it worse.
Advice: avoid alcohol/ drugs & when you know that the cluster is aborting - enjoy it!
jasonmjennings 8 months ago
omg!
2064tyrant 8 months ago
早期に治療法が確立されることを祈ります。
yunker555 8 months ago
Cluster headaches are said to be worse than childbirth and amputation without sedation. I cannot imagine your pain...I hope you find relief from these headaches. I really do.
fifiandgigi 8 months ago
I get headaches a lot but I man up and go about my business, aspirin helps.
Bananayoghurt1000 8 months ago
@Bananayoghurt1000
Never had a cluster, have you?
Man up? Have you done any research about cluster headaches? Have you considered that there might be a reason why they call them "suicide" headaches.
Scientific fact: analgisics such as aspirin are worthless in treating clusters. Same goes for acetaminophen, ibuprofen and all the other over-the-counter medications. That's why they sell it over the counter; it is only effective against minor aches and pains like your headaches.
marvswett 8 months ago
lol trolled hard
Bananayoghurt1000 8 months ago
@Bananayoghurt1000
Oh, so they let 5-year-olds post on this website, eh?
marvswett 8 months ago
@marvswett Ah don't be like that, I put out a line and you bit, it was funny.
Bananayoghurt1000 8 months ago
@Bananayoghurt1000
The pain from cluster headaches is thought to be the most painful condition known in medical science. Can you imagine that? NOTHING is worse. Not a single thing you could possibly imagine. Setting your dick on fire while chopping your balls with acid-coated blades wouldn't be worse.
NapsterMDS 8 months ago
@NapsterMDS what if you got a cluster headache as you were setting your dick on fire while chopping your balls with acid-coated blades
Bananayoghurt1000 8 months ago
@Bananayoghurt1000
What kind of sick twisted mind would come up with something like that? Shame on you!
No but seriously.... damn.
NapsterMDS 8 months ago
@Bananayoghurt1000 Are you fucking retarded?
ampdgmr 8 months ago
Mate, I feel your pain. Thanks so much for sharing that video. I've been a episodic cluster head for 26 years. Currently getting good results from verapamil and imigran nasal spray. Hope you find something that works and stay pain free
ilightenall 8 months ago
IMITREX!!!! Or at least Zomig! The only things that help. If you have not heard of it please ask your doctor. I have suffered for 6 years. If I can catch it when it starts ( with imitrex) I have a good chance of not a full-blown mind@#$%.
kellucky55 8 months ago
i just discovered i suffer from cluster headaches this morning,i always thought it was migraine because it only affected one side of my head(the right side).last time i had it was over 10 years ago.it just started again last week.i've been taking ibuprofen but it didnt help so i decided to see my GP today,after describing the symptoms(how my right eye hurts,blocked nose etc.)he told me it was cluster headache and has now referred me to a neurologist. all i can say is its the worst pain ever.
dreddlux 9 months ago
They suck.... I get cluster headaches about every 2 weeks. I am going through one right now. I used to attribute to heavy caffeine usage now I think it is because I smoke. I swear Asprin/Tylenol only feeds the beast and makes it worse. The best for me is to sit upright against a wall and press my head against it and wait it out. if I lay down it makes me throw up. The upper body has to be upright. Takes about 3-4 hours for me. if at work well SOL and stay away from me. THis blows
tmdffn 9 months ago
@tmdffn Hey!
Mine have started again after 5 months of rest I have recently started to take asprin and for me it actually does help a little, I find it very differcult to keep my head upright because of the pressure to my head it makes my head drop : ( but one thing I do recommend you try is to go have a shower with the shower head pointing towards the affected area, It does help me a little because its like a distraction.
didz12345 9 months ago
jesus christ man where is your oxygen!? I really hope you have a tank and you just braved it out for the sake of the video, I don't think I would have the will power to hold out on running for the O2 or sumatriptin. stay strong friend
Marshallftw 9 months ago 2
I'm also thinking that is a muscle issue in the head, I started taking the muscle relaxer based on this idea, when you get the Horner syndrome the muscles are spazing out? However I'm confused by my body temp, I go from feeling Hot to cold on my entire body and then just my head being hot and my body cold and if cool air hit's my body it very uncomforable.
13Cuzzi 9 months ago
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13Cuzzi 9 months ago
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13Cuzzi 9 months ago
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13Cuzzi 9 months ago
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13Cuzzi 9 months ago
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13Cuzzi 9 months ago
When I'm thinking Psychadelics,should I be thinking (LSD) ? Which I don't think is the answer. I suffer from Cluster Headaches for about 18yrs now and this is what works for me: Oxgen from tank and nasal decongestion it's about 50% effective... Muscle relaxers 100%,... at the same time I'm noticing that You have to change your diet periodicaly..and stay away from beer... and switch your hard liquor back and forth from your norm...and keep a clean house away form pet hair and smoke
13Cuzzi 9 months ago
Please help us the people who really do have cluster headaches
HiDefStarsDotCom 9 months ago
I get em too somebody please find I cure
HiDefStarsDotCom 9 months ago
This has been flagged as spam show
This is extremely distressing... I don't have these but I'm absolutely terrified of getting them at some point in my life... I hope one day that a cure is found and sufferers never have to endure this again.
The1985Channel 10 months ago
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The1985Channel 10 months ago
I think it's safe to say what works for 1 won't work for all! It's about what works for u. I would like to say THANK YOU to the guy in the CID I use this vid every time when tryin to explain or educate ppl on our condition, and every time I have to stop it as it brings me to tears
Taken31300 10 months ago
bro i know how you feel i get them like 2 or 3 times a week i take sumatriptan succinate tablets 100mg and or sometime both oxycodone 5-325 mg or maybe you have it already i get it just like that you wish that god would stop your heart so the pain would stop and its fuck up for me also because im a truck driver and i get them while im driving in midtown traffic and on the highway and for that guy say its good for him to have them your a real fucking ass hole and you might get them 1day i really
lolamcute 10 months ago
@Gladyourehurting u woudln't say this if u have even simple headache
awofsaa 10 months ago
What do you do when your headaches are so bad, you want to smash your head off walls until your unconscious, and yet, hospital doctors believe the pain is "all in your head" and won't give anything except a couple of paracetamol? I already know why they also call them "suicide headaches", because I already feel suicidal...
rachelchunter 10 months ago
Take verapimil every day!!! Worked for me.
WUTANG7649 10 months ago
@ palmisano, CH free 6mths now, I'm so glad that they are over! Thankx
morenogotti 10 months ago
Oxygen helps but not all the time. I found that washing my face during the headache with very warm water and and suddenly with icecold water gives some release...as well that there is an acupresuure point on the top of my head, where i can press and the pain stops... unfortunatelly only for few minutes... but it works again, and again...
I am suffering from this for the last 15years too.
ponlur 10 months ago
Oxygen helps but not all the time. I found that washing my face during the headache with very war water and and suddenly with icecold water gives some release...as well that there is an acupresuure point on the top of my head, where i can press and the pain stops... unfortunatelly only for few minutes... but it works again, and again...
I am suffering from this for the last 15years too.
ponlur 10 months ago
This is EXACTLY how I suffered for over 32 years. If not for my wife and children, I would have killed myself long ago. TG I found something that works
itsallamindgame 10 months ago
hi, is it true you forget the pain afterwards of a cluster headache attack? plis reply
Hannah4Darryl 10 months ago
I suffer from cluster headaches and I tried everything and nothing worked. Until I tried hallucinogenic mushrooms. They are illegal but you can find them on the internet if you search for them. Legality is the least of your worries when you have headaches that are so painful you are contemplating suicide. Any one out there who has cluster headaches I suggest you try mushrooms. Not only do the abort a headache but if you take a small amount each day it will prevent them. Telleveryone about this
daniacea 10 months ago
@daniacea Yeah, spread the knowledge...i been suffering almost 20 years, n some nights its takes all i can muster not to slit my wrists. But! Psychadelics work. (Im not watchin vid while typing, but know those groans oh too well myself - sympathies) I tried Haiwaiin Woodrose Seeds. There legal (for now) in UK....Tasted horrible, but, they broke the cycle (but didnt eliminate completely). The crux is, i used to enjoy trippin', but went off it years ago, but you dont need to consume that much. Try
MrPoisonhands 10 months ago
@daniacea it, anyone who goes through this, knows your try anything. I paid to go private hospital out my own pocket about 12-15 years ago, almost begging for some sort of surgery....then found out about the alternative cure about a year ago. IT. REALLY. WORKS! (anyone telling you weed helps dont know what their talking about - i smoke all day everyday - in fact Clusters are about the only thing that WILL put me off smoking. Hannah4Darryl - yeah, it goes, but the depression lasts till nexttime.
MrPoisonhands 10 months ago
poor guy :o(
dronespace 11 months ago
I just learned that psilocybin is an effctive treatment.
cortesguitar 11 months ago
I feel so sorry for this man and anyone suffering from this :(
Louis1820 11 months ago
Has anyone ever tried smoking weed while having a cluster headache? I'm being totally serious, Marijuana has proven to stop or lessen a lot of pains people have...
LaidbackPlayboy 11 months ago
@LaidbackPlayboy
cluster headache is definitely not one of them. i've tried it many times, it always started a headache for me. don't do it!
jurpre 11 months ago
@LaidbackPlayboy well, I won't verbally attack you, I'll give you the benefit of the doubt that you are being serious, but realize that they do do tests to measure the pain of certain things, and on these pain scales, cluster headaches are generally at the top. They are chronic, there is no known cure (I believe), and they are considered possibly the greatest pain you can feel. people died from the pain
firebirdthecody 11 months ago
Truly horrible! I feel for you man
pstchaseki 11 months ago
BTW, that dentist, what happened to him after?
Helllocutiepie 11 months ago