Added: 4 years ago
From: coachrob12
Views: 7,978
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  • I´m from Iceland and I have dystonia. My doctor was telling me about this surgery ...can sombody tell me more about this?

  • @Harleystelpa ertu búin að fá þessa aðgerð

  • Rob, Congratulations on the outcome of you surgery. I've been trying to locate your e-mail, as after my computer crashed, i lost all my contacts. Please send your e-mail or mailing address. Need to get a hold of you.

    Pat.

  • i had DBS about a year and half ago i am off all meds and movement free best thing i ever did

  • I am wating to get the surgery, I do not know what to expect. I am scared and excited at the same time.

  • I don't have Dystonia, but I have essentiall tremor that really have stoped my life. Well, I don't think I have distonia at least, I know you get movement disorders from it but Distonia hurts doesnt it? Constantly..? However, I'd want to have this surgery, or I'll never have my life back again. Medicines doesn't work, well I'm feeling with you all out there!!

  • Absolutely amazing result. All the best in life Robert.

  • thanks for showing this--- this gives folks hope

  • You are amazing- I'm a medical student aspiring to be a surgeon one day and seeing a video like this is truly an inspiration. Best of luck to you my friend

  • I, too, am a physician. Medtronic makes this device, and it has allowed me to return to a fairly normal life. I hope you get what you want out of a career in medicine. Thanks for viewing my video.

  • Wish him luck. I was the sixth person in the US to have it for cervical dystonia. Let's hope he has as much success as I have been fortunate to realize.

    Rob

  • My brother has Myoclonic Dystonia and is undergoing DBS Surgery on Monday (16 March 09). He will be the first person to have DBS Surgery for this type of Dystonia.

  • @GillChalmers hi i also have amyoclonic dystonia and i'm 1 month away from the DBS surgery i'd like to ask how is your brother today ? :)

  • congratulations awesome!

  • Thanks for sharing your video, I too have Dystonia (spasmodic Torticollis). You must feel amazing?!

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