Ehlers-Danlos Syndrome and the National Foundation

[datzfast]

i remember the fist time i didn't feel pain

it was after a shot of morphine before knee

surgery. the surgeon didn't know what to think of the cartilage. he sent it to be tested for cancer. I'm 52 , crippled but i have hope. thanks you tube. everything fits

now. you see i didn't know what was wrong until i started researching.

[rogneid]

Hugs to you, YoMags! It's nice see this. Technology makes me feel not so alone anymore! I have EDS-hypermobility type, or as my PT calls it Gumby Syndrome. Getting the word out about the kooky and painful group of conditions is great!

[flipflopjulie]

Hi Mags!! It's Julie from the EDNF group. (Sama's partner). It's great to see you on Youtube, and see that you are advocating as well! You're great, and hope to see ya soon.

[Canichenoir]

I hear you. I have this and it totally turns your world upsidedown. It makes school difficult and it can be very painful. Thanks for support!