Chronic fatigue syndrome - Unpublished 24.03.2011

[hollieabnormalxD]

I'm 15 and I got diagnosed about a year ago and before I went to my GP I just thought I was lazy and I missed a lot of school and started to fail classes. It's really annoying because my friends don't realise what it feels like to have it, they think that I just use it to miss school and be lazy but most of the time I'm so tired that I can't even move. I'm starting to worry that I wont be able to work or go to collage when I leave school because iv missed to much school.

[ShadowsOfSora]

@hollieabnormalxD I'm in exactly the same position as you. I'm 15 too, and ME has pretty much ruined my education. All the best for your recovery! I really do sympathise with you. You just have to keep thinking positively. :)

[beazly85]

how do u get diagnosed?? im almost positive i suffer from this

[SainterX]

@beazly85 U go to ur GP and u show them all of ur symptoms and they check u for EVERYTHING ! Takes a minimum of about 3 months to get diagnosed,, up to several years...

[Metsada007]

@beazly85

same here, do you also feel like a vegetable on certain days which may last for hours? it's terrible.

[Metsada007]

I'm not officially diagnosed but I have 'post exercise malaise'. I can feel horrible a day after moderate exercise - usually running on the treadmill. What kind of light exercises should I do, only yoga?

[whitbyjet65]

I had chronic fatigue for about 15 years and bowel disease for 10. I'm now on a raw food diet and I can feel my body healing & repairing. Gentle yoga almost makes a huge difference for me but it's mainly diet.

[nese67]

low dose naltrexone

[kenjohnxiv]

If you did the Raw Diet and are free of it , you did not have CFS in the first place.

[MerinaWish]

When i got CFS I got some extra allergies, i treated those.

At the moment I'm on extra vitamine b12 and folic acid and that helps a lot as well.

Cognitive behavioral therapy can help to accept the problems and go on with life, and to train how much you can do things. I highly recommend it.

[Strength888]

Look for food intolerances.

Check out hypothyroidism as well.

[kaazoom]

The big problem is most doctors do not treat the symptoms of ME. You are left to fend for yourself. The NICE guidelines haven't helped with their heavily biased psychiatric model of ME and their failure to draw on the 2,000+ papers that show real physiological changes in people with ME. The Canadian ME/CFS guidelines are far superior to the NICE guidelines and yet they are still not adopted here in the UK. Patients with ME are abandoned by the NHS.

[zefrongurl4567]

whoa 25 years....

i have had it 4 4 years that i find that wayy 2 long.

look after your self.

love a fellow suffer

xox

[keithbkr]

Hang in there. I hope a treatment will come for us soon. I've had CFS for 20 years. I feel your pain. Good video.

[XxSavotagexX]

I know how you feel,I have been diagnosed with CFS too. And I have had it for about 7 months. I'm only 14 years old... And about everything is so hard for me... I miss out on so many day's of school. Hanging with friend's and doing the usual activities. It does affect your life severely. Alot of people have said to me that I am just a lazy pussy. Although the pain I am I do not care what they think.

I hope the best for you Anette.

[777hippie]

I feel for you. I too have cfs and fibromyalgia. The Cfs is worse and it is real. Don't listen to any of those kids this is real and you should get sympathy just as anyone with cancer would. Good 4 u for speaking out. God bless you!!

[LightTruthLove]

Get off the pharmaceuticals and go raw vegan for a while!

Take a break to somewhere hot to get enough sunshine and go raw vegan.

Drugs just mask the symptoms.

[NAPALMJUNKY]

I agree, i believe its a food allergy problem. eg wheat allergies destroy the bodies abilty to absorb vitamins and minerals leaving you incredibly FATIGUED. Because its acting like a poison to the person they get all of the other typical CF symptoms such as a very bad stomach, total lack of energy, memory problems etc etc, your body just isnt getting the minerals required to operate correctly so it breaks down in strange ways. Good luck all I THINK ITS LONG TERM POISONING.

[zefrongurl4567]

belive me its NOT!!

i have had it for 4 years like i said and i have NO food allergeys!

i wass wayy healthy til iy came and destroyed my life....

people dont understand UNLESS they have had it.

[moonwitch1981]

I did the raw diet and free from diet for over two months with my doctors advice sadly it did nothing for me.(which i was really hoping it would be the magic pill sort of thing), Every time a new treatment or diet is recommended i'm first in line, but nothing up to now, but i'll keep trying, anything ,anyone recommends.

[NocturnalBeeper]

You have a really good attitude & I know that helps a lot. I myself have Fibromyalgia, and I know that I have CFIDS/CFS/ME but I've never had a Dr. that believes in it. They say I have "chronic fatigue" but not "Chronic Fatigue Syndrome". I live in the USA and although there are some doctors here that believe in the illness, the UK doctors seem to be more readily accepting of the CFS/ME diagnosis and more on the ball with treatments for it.

Take care and thanks for sharing your story!