I have ms too,and horrible fatigue!! I have tried provigil but inc wont cover it! Im on Amantadine now,but it is not working good at all!! You look great!! Just had to add that in!
@alyms79 - Thank you! Provigil seems to work really well for me. Amantadine did not work for me, caused me to get depressed :( I've been on Provigil and a cocktail since 2002 and it has helped me. Haven't progressed much since this video (thank God). I know my fatigue pretty well and thank God am able to control my activity because of disability. I wouldn't be able to work a 9-5 like I used to. That has been my salvation. Best wishes to you and hope you find what works!
Thank you, dear one. Just a footnote. Whatever you feel is best. It's an anticonvulsant, muscle relaxant, etc. (eventually addictive and can increase appetites at night). Indeed, it tends to prolong sleep. Though we need these "vacations" we sadly have to work on long term alternatives as they weaken and can cause us harm internally. The BIG one is LDN, a near cure for the incurable. No toxic or side effects of any note, at about a dollar a day. Haven't had an MS attack in 5 years.
Hey, thanks for the info about provigil. As part of my attention deficit, I seem to get super tired all the time - been like that for my whole life. I'm really interested in hopefully starting this medication, as I'm tired of being fatigued all the time. Here's hoping it works for me as well as it does for you!
No, not really -- it isn't an amphetamine or anything like that. It does help with staying awake which could give you energy to exercise and perhaps lose weight that way -- on it's own. I don't think so.
I started lexapro 5 days ago. It's a strange thing but I think it's really starting to work. Although, the side effects are sometimes unnerving. Not as sexual, drowsiness...guess nothing's perfect.
I am going on modafinil (provigil) soon :) can't wait! Lexapro really did nothing for me, heard good things about modafinil though. I have major fatigue issues and for two years was taking duramine (appetite suppressant) which is really not good for you. I have alpha-wave sleep disorder too, sux big time.
Love your videos! I commented on your post surgery video about my thyroid cancer/surgery/radiation fun.
Weight gain is to be expected when your thyroid is removed, radiated, or just not functioning properly. It affects your metabolism in a negative way, along with your hormones. Stress and anxiety come with the mood swings, and we know that stress can also cause weight gain via cortisol.
I lost weight by combining cardio/weights along with trying to eat smaller portions of healthier foods
Still, my weight fluctuates. I lost 50 lbs, gained back 20 lbs. I really try to relieve my stress and anxiety, but it's tough. I take care of my mother who is a paraplygic due to a car accident the same year I was diagnosed with cancer. She has many health problems not related to this, but eventually the stress creeps up on you.
Do your research, talk to your doctors, get an Endocrinologist, and learn to use humor as your personal medicine. Best of luck my fellow thyroid friends :)
I am on 150 synthroid now because my TSH is still at 10 (I thought it was better than that). Little by little.
Thanks for the helpful comments -- very much appreciated! I know it takes time to get back on track with the thyroid--but I will take the journey and try to be patient.
I have a great endo doc who is a real gem and on the cutting edge of research. I really value him.
Hi I had a thyroidectomy 2 years ago. I have been researching weight gain after the surgery. I am finding that people who have had this procedure done are finding it difficult to lose weight even with exercise. I am trying to lose weight as well. I can't find one person that lost weight after the procedure. My question is are you finding it difficult to lose weight since your thyroid surgery?
Hi Nfide: Yes, losing weight has been difficult but I have not quite gotten my TSH to the normal range yet (but I think it is getting there). I know I have other medications in my pill box that can cause weight gain (Lupron, Norenthindrone/Progestin, Lyrica). This makes the picture a little more difficult to assess.
I am beginning to feel better and less puffy -- for me that counts for something. Don't give up.
I have ms too,and horrible fatigue!! I have tried provigil but inc wont cover it! Im on Amantadine now,but it is not working good at all!! You look great!! Just had to add that in!
alyms79 3 months ago
@alyms79 - Thank you! Provigil seems to work really well for me. Amantadine did not work for me, caused me to get depressed :( I've been on Provigil and a cocktail since 2002 and it has helped me. Haven't progressed much since this video (thank God). I know my fatigue pretty well and thank God am able to control my activity because of disability. I wouldn't be able to work a 9-5 like I used to. That has been my salvation. Best wishes to you and hope you find what works!
gkygrl 3 months ago
@rigelagain -- thanks ... no joke. 45 now and I will keep on going!
gkygrl 1 year ago
check out the daylight diet. Great for getting a good sleep
BentBuddha 1 year ago
I cant beleive how good you look for 43.You must have looked insane 20 years ago.
milo555a 1 year ago
@milo555a -- that comment just made my day! Thank you. Getting ready to hit 45 in September and I can't believe how fast time flies. Take care! Diana
gkygrl 1 year ago
Hi, I have MS too... with sleep problems. Thank you for the info.
Blessings
ramblnrose 1 year ago
Thank you, dear one. Just a footnote. Whatever you feel is best. It's an anticonvulsant, muscle relaxant, etc. (eventually addictive and can increase appetites at night). Indeed, it tends to prolong sleep. Though we need these "vacations" we sadly have to work on long term alternatives as they weaken and can cause us harm internally. The BIG one is LDN, a near cure for the incurable. No toxic or side effects of any note, at about a dollar a day. Haven't had an MS attack in 5 years.
savingbeauty 2 years ago
God bless you for sharing. Also, God bless the Red Sox!
peace.
chessdude67 2 years ago
sounds like u need a good pipe cleaning.
islamrapesthemind 2 years ago
Hey, thanks for the info about provigil. As part of my attention deficit, I seem to get super tired all the time - been like that for my whole life. I'm really interested in hopefully starting this medication, as I'm tired of being fatigued all the time. Here's hoping it works for me as well as it does for you!
addstudent 2 years ago
has the provigil help you lose weight?
WildCherry7777 3 years ago
No, not really -- it isn't an amphetamine or anything like that. It does help with staying awake which could give you energy to exercise and perhaps lose weight that way -- on it's own. I don't think so.
gkygrl 3 years ago
provigil won't help in weight lose
cwj06001 2 years ago
I know thats why I take adderall now
WildCherry7777 2 years ago
at 43, you are so beautiful.
zivaray 3 years ago
That is such a kind comment, thank you very much zivaray.
gkygrl 3 years ago
I started lexapro 5 days ago. It's a strange thing but I think it's really starting to work. Although, the side effects are sometimes unnerving. Not as sexual, drowsiness...guess nothing's perfect.
zivaray 3 years ago
That drowsiness should subside a bit. The sexual side-effects .... yup, pretty common.
gkygrl 3 years ago
I am going on modafinil (provigil) soon :) can't wait! Lexapro really did nothing for me, heard good things about modafinil though. I have major fatigue issues and for two years was taking duramine (appetite suppressant) which is really not good for you. I have alpha-wave sleep disorder too, sux big time.
BretagneShrew 3 years ago
get off that crap and take gamma aminobutyric acid (GABA)
islamrapesthemind 2 years ago
@islamrapesthemind no
enzyme20056 1 month ago
Love your videos! I commented on your post surgery video about my thyroid cancer/surgery/radiation fun.
Weight gain is to be expected when your thyroid is removed, radiated, or just not functioning properly. It affects your metabolism in a negative way, along with your hormones. Stress and anxiety come with the mood swings, and we know that stress can also cause weight gain via cortisol.
I lost weight by combining cardio/weights along with trying to eat smaller portions of healthier foods
Cacamamy18 3 years ago
Still, my weight fluctuates. I lost 50 lbs, gained back 20 lbs. I really try to relieve my stress and anxiety, but it's tough. I take care of my mother who is a paraplygic due to a car accident the same year I was diagnosed with cancer. She has many health problems not related to this, but eventually the stress creeps up on you.
Do your research, talk to your doctors, get an Endocrinologist, and learn to use humor as your personal medicine. Best of luck my fellow thyroid friends :)
Cacamamy18 3 years ago
I am on 150 synthroid now because my TSH is still at 10 (I thought it was better than that). Little by little.
Thanks for the helpful comments -- very much appreciated! I know it takes time to get back on track with the thyroid--but I will take the journey and try to be patient.
I have a great endo doc who is a real gem and on the cutting edge of research. I really value him.
Diana
gkygrl 3 years ago
I'm also on 100mg Provigil for my MS. I completely agree it has restored my ability to get going.
jesterspace 3 years ago
Hi I had a thyroidectomy 2 years ago. I have been researching weight gain after the surgery. I am finding that people who have had this procedure done are finding it difficult to lose weight even with exercise. I am trying to lose weight as well. I can't find one person that lost weight after the procedure. My question is are you finding it difficult to lose weight since your thyroid surgery?
nfide 3 years ago
Hi Nfide: Yes, losing weight has been difficult but I have not quite gotten my TSH to the normal range yet (but I think it is getting there). I know I have other medications in my pill box that can cause weight gain (Lupron, Norenthindrone/Progestin, Lyrica). This makes the picture a little more difficult to assess.
I am beginning to feel better and less puffy -- for me that counts for something. Don't give up.
gkygrl 3 years ago
Yes, on everything you said.
Jolie
OSA503 3 years ago