Added: 3 years ago
From: hayleyukcov
Views: 47,729
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  • I TOO have a similar story. started in Oct of 2011 and Dec DX. Started Rebif instantly....still in my first severe exacerbation onset : ( Thanks for this xoxo

  • This is the first YouTube song related to MS that I REALLY enjoyed the sub titles - also loved the tattoos - do you by chance know who the tattoo artist is? totally enjoyed it!! thanks to the poster and the songster rewriter!

  • my mum has ms :( she cant walk any more

  • GET A MERCURY TEST NOW!~ STOP SPENDING ALL OTHER MONEY AND JUST GO AND DO IT! NOW NOW NOW!

  • I just found it and well i was having a bad day with my ms and well it song made me feel alot better.

  • Just like a tattoo

    I'll always have you...

    Great :(((

  • @Brukica100 oh nononononooooo... this song doesn't mean to focus on that part - it's meant to show the positive thoughts we should have and share, despite being told there's no cure (no 'official' one anyway, YET) hope you didn't feel too bad thinking of it like that :( I actually felt sad when I listnened to this song before I made the vid, but I listened to it again and again and again (and AGAIN), and decided to make this video to show you can turn it into a positive xx

  • what is MS like for you. my neuro said that it shows i probably have MS and waiting for lumbar results. a while ago i had symptoms of i didnt have balance and trouble walking, that lasted for 3 months and my finger twitched. not my hands go numb easily my finger twitches and my right eye wont move all the way left giving me double vision. MRI showed brain leisions. i been doing research and i dont know whats going on. i can walk fine now but stress makes my finger twich alot more. please help

  • @tboy221 did you get any results yet?

  • @nebel25 i have MS

  • @tboy221 i'm sorry...i hope you will learn to live with it and keep on doing what you're doing as long as possible. i've started Tysabri 2 years ago and it works really well for me. if you want to talk you can msg me of course ;)

  • thanks a lot for this video, it's brings tears to my eyes. we should be strong! wish you all the best! good idea about tattoo, I'll think, I'll do it :)... already with MS 8years

  • wow that gave me goose bumps, beautifully thought about and you hit it on the nail, thankyou for sharing, saw your mum in hospital and she told me about you as i anve Ms too, live every moment and smile..

  • its an amazing song to go with all ur added words cos yeah it really is like a tattoo thank you soo much for doing it hun xxx

  • I was trying to think of ideas for MS tattoos and this vid popped up and I'm grateful! Anyone let me know if you have any tattoo ideas! I want words!

  • love everythung about it ( still watch it )

  • This really inspired me for my tatt i got yest so thankyoou :)

    i was diagnosed when i was 15 bit of a pain in thee arse but ahh well thats just MS for yaa

    xo

  • Got the diagnos 2004, this video is warm.. i wish i could smile as before again, nowadays im doing it in my mind.

  • thank you so much for what you do here!!

  • my mom has MS and she was chosen for this program and she didnt have the symptoms and she still got it. SH\he is on a gluten free diet, excirsises, and has her vitaems. She is in better condision now.

  • Looks like 2 people haven't a clue....to know what it is like living with M.S.-I feel both happy and sad for them.

  • My son has MS, I advised him to forego the constant MRI's which put heavy metals into your body. Be careful about heavy metals, he also has stenosed jugular veins which makes it hard for the heavy metals to be flushed out of the brain.

  • You did a good job on the video :)

    I was diagnosed last year

  • Girl, good for you!! Thank you for this video.

    My mum died 30/12/10 aged just 51. She suffered for oh so very long!! sHE IS AT REST NOW, FINALLY! Im doing a 10kmsuperhero run in may in her memory raising money for the ms trust. Would you consider sponsoring me?

    Here is the link should you feel you could consider it, Or anyone else

    Please anyone, Help me to help people suffering and Affected By Ms. I run in memory of my mum but i run for you Hayley and everyone else suffering! <3

  • lovely video :) my aunty had MS, she sadly went to heaven in 2008, god bless to everyone with MS, there is hope! don't miss the multiple sclerosis week at the end of May, 'kiss goodbye to MS' I hope you'll all be wearing your red lipstick :) xxxxx

  • great song i wouldnt be able to keep on with out it!!!

  • great song i wouldnt be able to keep on wit out it!!!

  • I have had the diagnosis for 3 years now and this video have followed me for almost all 3 years, it is SO right and true.

    The further i come in realizing my new situation, the further i get in understanding the underlying message you put in the video.

    Thank you SO much !

    xxxxxxxxxxx Lars

  • osceno

  • Beautiful and I wanna go get a MS tat now... MS SUCKS but we can get thru and it could always be worse. Keep your head high and your lips smilin : )

  • Thank you for this video. It made me cry...but 'happy' tears because this is the first representation I've seen of the way I deal with MS. I was diagnosed 7 years ago, and while it gets me down at times (of course!) I've found the only way to keep going is to stay positive and...just keep on going.

  • @LindsayFMyers hi my nane is ivan and i have been diagnosed with ms also 2 years ago and its been hard but im not giving up im trying to be positive this video really made me feel alive and good you gotta keep the faith .................god bless you and take care

  • Thank you for posting this...Im newly diagnosed and this is so how I feel and I couldnt explain myself but this does!!!

    Again thank you 

  • Great video, thanks for sharing.

    The irony is that all my family members have tattoos and are always trying to convince me to make one, but I'm not really a fan of tattoos...

    Okay that was totally random but that's fine! ;)

  • Thank you for sharing this with us! I enjoyed watching it. I had never heard this song and the words do relate to MS. We have to stay strong! Attitude is more than half of the battle. Hugs, Laurie

  • brilliant xxxxxxxx

  • Amazingly inspirational!!!!! thank you for this post ... Our stuggle ends when we let it beat us... my love to you!!!!

  • Utterly amazing!!! Thank you so very much xo

  • hey wow great song . the song i love it fits people who have ms you know people like us i have ms too the song is dear agony by breaking benjamin . god bless to all my ms bro's , my ms chiks

  • that you for sharing...i cant stop watching this...its what i needed

  • this was an awsome thing to do. I thank you for sharing that you are in the video as well. I never read into this song until today. It will give me hope and a change of heart and mood as well now. :)

  • :-)

  • bonjour, je n'ai pas un assez bon anglais pour faire un commentaire digne, mais j'aime beaucoup ce morceau et je voulais le dire

    Stephan, MS since 3 years

    Metz, france

  • wow that was a beautiful video and song thank you for sharing it with us. <3 it ministered to me and I don't even have MS.

  • thx for sharing......im 15 and got diagnose a month ago

  • my mom has MS and my aunt has something else thats branched off MS , makes me wonder everyday if i have it , because i have back pain as well . my doctor won't look into it more and i need to find a way to figure it out , but latley iv been looking into MS more & im doing a walk for MS on april 18th for my mom and everyone else who is suffering from MS. im currently fundraising money aswell .

    God Bless You all .

    xoxo

  • This is so beautiful, i shared with everyone on my facebook and everyone that i have an email address for. This is just awesome and describes so much about those of us living with MS. People do not understand us, and maybe this will help. Thank you for sharing!

  • WOW.....I was diagnosed in August of 2005. I knew that I liked this song but could never really understand why. You have made me understand! Incredible! People like you make me feel not so alone. Thank you!

  • This video was so beautiful and amazing it moved me to tears. I have MS so I can really relate to this. It is really true too, MS is just like a tattoo, it never goes away. Thanks Jordin for doing this video,

  • Jordan sang the song - Hayley spent the time and created the video! I agree, it is beautiful and amazing. It always makes me cry, but I always love it! Thank you Hayley! Rachel xxx

  • Jordan Sparks sang the song but Hayley Palmer created the video to go with it. I agree, it is an amazing and beautiful video.

    Thank you Hayley.

    Rachel x

  • I got diagnosed with MS on December 08' and this video is great. You did a great job =) Made me realize the I have MS. MS doest have ME.

  • Diagnosed in 2003........ six months after giving birth to our beautiful daughter.... MS sucks! Love from The Netherlands

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  • Great video, thank you so much for doind this!!!

  • An incredible job - you're so talented!

    I've had MS about 22 years now, not much to sing about most of the time ....

    (By coincidence I have a niece, Hayley, who also lives in Coventry.)

  • Thank you for this video.

    i have ms

  • Thank you for this video.

    i have ms

  • canadian77

    Great video! The words fit the story that we all may feeling.

  • This is absolutely fabulous! Your right how amazing that the words to this song just fit! Well done !!

  • Great video gives all us MS'ers some inspiration. We are all in this together.

  • Very cool video.....I've had M.S six yrs

  • awsome video very touching.. i have had MS for a year now.

  • Wow!!! Tears streaming... really hit my heart...20 years with MS. Thank you for this video..very nicely done!

  • Thanks lol Now im always gonna relate that song to my m.s. :) Thanks for making this sometimes its nice to know your not alone.

  • I am so impressed! Words, music, pictures, my tears of confidence! Thank you!

  • Comment removed

  • Great video, I have MS for 4 years. I hate tattoos and I believe that I dont go to have MS forever.

    I also believe and wish to all of us the dr.Zamboni is right.

  • How wonderful - I have MS and it is such an apt song. Well Done for a brilliant video.

  • like eryone that suffers from multiple sclerosis,my heart goes out to all that are battling this hideous disease.i was diagnosed in 2006 with progressive ms,and i'm currently battling cancer......keep posting and i'll keep watching...thank you

  • I will never look at this song the same way again. Every time I hear this song, it reminds me of MS

  • yes, that's right... it says everything

  • That pretty much says it all.

  • You know...this is such an amazing song! Thank you for posting it!

  • Amazing. Never thought of it like that. I was just diagnosed 2 months ago and this video really hit home and like others made me cry. Thanks for sharing it. :)

  • Like others I had tears in my eyes happy tears I have had MS for 10 years definitely have had my ups and downs with it but I don't give into it . THANKS so much for sharing this video.

  • I was bawling my face off when I was watching this. You are so brave! <3

  • this song really clicks

  • oh wow! over 7,000 views now :) i'm so glad i decided to share this with you, i really didnt think so many would get to view it?

    at the moment ms is like a tattoo as there's no cure but am REALLY hopeful for the future.

    The main thing is to not waste time and give it a moment - realise that nothing's broken, don't worry about everything you've done in the past, live every second now like it was your last one - appreciate life :) be strong and leave MS behind

    x x x

  • oh wow this is the most amazing video I have seen and so perfect for us with MS.. Thank you so much for sharing this.. it means a lot to know we share the same feelings..

  • W O N D E R F U L !!!! I was diagnosed while we were waiting the coming of the new millenium , on December of 2000. What a great way to change centuries! Thank you for making a video of... my story ! (and many others , I'm sure). I didn't know the song but I 'm sure it will be part of my good morning playlist from know on. Greetings from Greece! W O N D E R F U L ! ! !

  • I was recently diagnosed and i this video honestly just brightened my day and my entire view of having and dealing with M.S, Thank you so much for this! This video will definately be shared!

  • This brought tears to my eyes, and as they fell I knew they were happy tears because someone made such a perfect awareness piece. Thank you for making this and sharing it with us. It is so perfect! I have had MS for 6 years and everything in this video fits.

    I shared the video on FB hoping others will watch it and understand how MS affects us.

    Thank you so much!! <3 Erin

  • This literally made me cry. So perfect! As someone with MS, I can totally relate to it. You did an amazing job of describing the feelings of those of us with MS.

    I shared it on Facebook hoping more people will finally understand what MS is and how it affects us.

    Thank you for making and sharing this!!!! <3 Erin

  • helloooo, don't think anyone really cares but just thought i'd share that at 2:43 and 3:19 - they're pictures of meeeeee! haha! i did my skydive in 2005, i got diagnosed 6 months after - d'oh! the other photo is of me in amsterdam airport posing with a heart shaped crisp (potato chip) LOL x

  • Great vid..nicely made ^^

  • thanks for all the positive comments everybody :) i love this song so much, i have it on a cd and now and again i'll play it loud in my car and sing along. it's so powerful in changing my mood :) it's got to be done! x

  • great video...first i was diagnosed with ADEM in july 08 and in dec 08 is when i got another MRI done and got dianosed with MS...i think imma share this video when i go to my next MS support groups

  • Absolute genius. Thank you

  • thats genius. well done. could really relate to it. very well put together. 5star rating from me.

  • This video was great that U put together. I have a MS page on Myspace and posted this on there.

    Thanks

  • You did an amazing job on this video. It really explains what most people are going throu with MS.

  • great job !!!

    thnx

  • great video.... I wished friends of people with MS would watch it to understand their friends a bit more....

  • Awesome job with this Video!

  • [= Great video!

  • I love this video my mom has ms its sad hopefully she'll be cured... shes getting a tattoo

  • I never really cared for this song too much before now. I think you did a great job with this video! For some reason I did cry my eyes out watching it. It's been a little over a year since I was diagnosed, and I still have trouble with the "acceptance" part of this disease.  Thanks for sharing!

  • I think it was GREAT!!!! Not all of us or should I say most of us aren't cured and It will be with us forever wish it wasn't but it doesn't stop me Great job!!!!!1

  • It was okay but one thing I don't like.. the repeated line "I'll' always have you.." This is not true.

    My MS was stopped for almost 9 years now, after an adult stem cell transplant.

  • Thank you for such a wonderful video!! I just completed the MS walk this morning, so I am already feeling inspired. As someone with MS this video says it ALL. Thanks for the tears, and laughs. I am MS'd and Tattooed ...

  • I have my tattoo!

  • I love this video - i was diagnised in feb 2007 and to mark the anniversary i did a video which helped me to let it all out - i heard this song the first time in your video and havent stopped listening to it ever since as it is so true...tears and well done i know exactly how you feel xxxxxxxxx

  • thank you so much for the positive feedback everyone :) i actually listened to this song for the first time in a while yesterday in my car, and thinkin of everyones feedback on here and on my facebook and the actual lyrics of the song brought tears to my eyes... this sounds so cheesy but, it was a very special moment :) xx

  • nicely done!!!

    Ive had ms for 3 years,dx for 2,soo I can relate to the video!!

    hugs,

    aly

  • loved it!

  • nice..

  • I really like what you did here. I've never been a huge fan of this song, but really identify with so many of the images you put int the video...it made the song come to life for me. This Friday is my 1 year anniversary of being diagnosed with MS. God bless.

  • I am an artist and I loved the images that went w/the song. GREAT JOB!

  • Enjoyed video Must have taken a lot of effort putting it together.

    Charlie

  • well this was a very brilliant way to configure this song. i really like this song & I think it needs to be our song or motto all over the world _ live like its your last> good job>

  • My hairs are standing up on end, I didnt know whether to laugh or cry, its brilliant, thanks for sharin.. leigh

  • thank you

  • Awe, wow.

    I'm always listening to songs and hear lyrics and go, "whoah, that's so how i feel right now".

    Great video, thanks for the msg on FB for us to come check it out xxx

  • WOW what great timing it was to see this video!!! I loved it your right made me laugh and cry at once!!!! I just got my first tattoo at 49 years old!!!I LOVE IT

  • Thanx 4 the video. I got it from facebook & since I have MS,it meant so much 2 me.

  • Thank you! This made me both smile and cry.  A little. Thank you. . . . we need both, tears and laughter, huh?

  • omg i havent logged in for a little while, over 1,000 people have viewed this now!! :D im so glad people are appreciatin it and feel the same as me xxx

  • What a great job, Hayley! I love that song, but never related it to MS. Thanks so much!

  • Fabulous song/video.......

    Funny how we MSers see things in a new way. I love the "live every second like the last one" This really is the only thing that is important in life. I race motorbikes, fly gliders, skuba dive and live life to the full even with MS. Many thanks for the vid...Martin

  • great video thanks

  • fantastic!

  • i can so relate to this,

    thanks for making it

    it really explains things for others who dont know nething about MS ...... esp the no broken bones ..... people look at us and say u look healthy how can u have MS.......... that really does my head in.

  • Great video, thank you so much for doind this!

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