Added: 4 years ago
From: shanaUW
Views: 76,300
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  • @puppylovaar my family has it too.. im 21.. my dad is so far into it he can barely speak or move properly.. : /

  • Huntington's is easy to cure, eugenics.

  • @Chessykatzenz At the moment, Huntington is not curable.

  • @PS3LoVzWoW

    Prevention is the best cure, and the only way to prevent genetic disease is eugenics.

  • @Chessykatzenz fuck it.

  • @Chessykatzenz

    Not one of you who says eugenics is the answer has a familiy membe,r or yourself with the genetic disorder. You dont know all the details that come with those affected and especially those who are in the lineage to develop down the road. What about the young man or women who wants to have children and has to make the decision to either deny themselves the right to reproduce or risk their children lives down the road. Eugenics is dated and disconected from morality

  • im 12 years old and my family has hd.my gpa died in 2001 when i was 2. my aunt becky died in 2008 adn my aunt jess died YESTURDAY from hd.. i am very active in what is going on becase my other aunt tine has bad symptoms and my mom has it. my and my 7 other cousins are at risk... im very active in gymnastics and also in the hdsa community...i sell hearts 4 huntingtons at school and have been going to the national convention for the past 3 years now.. i am also apart of the nya... i like this vid!

  • I have this disease and it scares the hell out of me...

  • @DeathofmeIknow well...you're going to die young then.

  • watch the first documentary about huntington disease in portuguese made in brazil, we're looking for channels to show it.

    see on my profille, the " convivendo com a doença de huntington" video

  • Comment removed

  • Best luck to everyone at risk. I myself went trough that (12 years until I got the courgage to do it) and I tested negative, but my sister positive. I am waiting for the cure, I know its there, theyre working on it and money is needed to get it faster!

  • Dare not have the test but best of luck Shana

  • Shana - kudos on the extreme physical fitness; you obviously take high ownership in your health. I'm trying to tell everyone I know what I found: chain of events in Huntington's that causes the neuron death is called "glutamate excito-toxicity", and our natural endo-cannabinoid system is in place to protect against this process. Omega-3's are one of our body's feedstock to make endo-cannabinoids, and we should avoid neuro toxins (MSG, alcohol, excess sugar). Not a cure, but may help slow it.

  • In addition to funding research for a cure, the government and insurance companies should provide free In-Vitro Fertilization (IVF) with Pre-Genetic Diagnosis (PGD) testing to exclude embryos with the HD gene to anyone at-risk for HD who wants it. Even those who don't want to know if they have HD can have kids that will never get the disease or be able to pass on the gene. HD could be eradicated in one generation, saving the government billions in future long term healthcare for HD patients.

  • @swhitt21 This to me , sorry if i am wrong, smacks so much of Eugenics that its upsetting. Why not instead of spending the Billions that you suggest spending WORLDWIDE in testing embryos, and to eradicate this it will have to be worldwide. Invest the money into serious research on the causes? Research is ongoing and will continue, and I pray for the day a cure is found. For myself I hope it is found very soon.

  • I'm so sad to hear you mother died in 2006. We are close to understanding this disease and I had hope that maybe she could still be helped from the picture that I saw on your website. I help make an impact in the knowledge gap in helping scientists to understand the regenerative process of neurons, which labeled as one of the most important contribution to neuroscience in the past century. Now I will try to help in Huntington Disease. I feel so sad for the children that are affected.

  • she has a twitter page. it says she still does competitions.

  • Hi Shana

    Stop by to say Hello.

    Hope all is well with you guys :O}

    Mike & Raima

  • Like, you're absolutely gorgeous. Whether or not you are (perish the thought) HD-doomed, always live life to the fullest. You go, girl!

  • my auntie diagnosed today with HD, hoping that my mom and her siblings would not affect by HD. After how many years we already know the suffrage of our lost love ones who have been manifesting HD

  • My neice has Juvenile Huntingtons she's 17 now.......her video is on my page...its such a terrible condition

  • She's a hottie. I have an undx'd movement disorder with dysphagia, rigidity, toe drag, tremor and clonus and severe mood swings. 30 years old.

  • This is great what your doing! my mother had it and so did her father, though he died before i was born,also my aunt has it but her case was worse. but my mom just got sick, with some motvements in her leg. she died with it in 2006. my sister was 16 and i was 13. it was really hard. we both have a chance of getting it. And what you are doing really gives me hope!

  • and my mom and 2 aunts just got diagnosed with diabetes... now im scared....

  • well looks like im fucked... i have a family history of type 2 diabetes, atherosclerosis, hypertension, and certain tumors..... huntingtons all of a sudden doesnt seem too bad....

  • Damn dude that sucks 0.o

  • @kaneda956 thats not funny

  • @sophminx i was being serious... i was not making this comment as a joke at all.... my brother just got diagnosed with hypertension 2 months ago and i lost an aunt to heart disease last november... damn heredity

  • It IS a 50/50 chance if you have a parent with the defective gene. You'll either get the mutated copy or you won't.

  • Awesome! Uplifting & informative. Nice abs, too! :)

  • Nice video More info on the website please

  • Please be Nice with Coments.

  • Hey!! Shana is an amazing person raising awareness for huntington's disease and she's doing a great job doing it

  • You need the entire 50/50 on here ! At least it could be seen then.

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