Not one of you who says eugenics is the answer has a familiy membe,r or yourself with the genetic disorder. You dont know all the details that come with those affected and especially those who are in the lineage to develop down the road. What about the young man or women who wants to have children and has to make the decision to either deny themselves the right to reproduce or risk their children lives down the road. Eugenics is dated and disconected from morality
im 12 years old and my family has hd.my gpa died in 2001 when i was 2. my aunt becky died in 2008 adn my aunt jess died YESTURDAY from hd.. i am very active in what is going on becase my other aunt tine has bad symptoms and my mom has it. my and my 7 other cousins are at risk... im very active in gymnastics and also in the hdsa community...i sell hearts 4 huntingtons at school and have been going to the national convention for the past 3 years now.. i am also apart of the nya... i like this vid!
Best luck to everyone at risk. I myself went trough that (12 years until I got the courgage to do it) and I tested negative, but my sister positive. I am waiting for the cure, I know its there, theyre working on it and money is needed to get it faster!
Shana - kudos on the extreme physical fitness; you obviously take high ownership in your health. I'm trying to tell everyone I know what I found: chain of events in Huntington's that causes the neuron death is called "glutamate excito-toxicity", and our natural endo-cannabinoid system is in place to protect against this process. Omega-3's are one of our body's feedstock to make endo-cannabinoids, and we should avoid neuro toxins (MSG, alcohol, excess sugar). Not a cure, but may help slow it.
In addition to funding research for a cure, the government and insurance companies should provide free In-Vitro Fertilization (IVF) with Pre-Genetic Diagnosis (PGD) testing to exclude embryos with the HD gene to anyone at-risk for HD who wants it. Even those who don't want to know if they have HD can have kids that will never get the disease or be able to pass on the gene. HD could be eradicated in one generation, saving the government billions in future long term healthcare for HD patients.
@swhitt21 This to me , sorry if i am wrong, smacks so much of Eugenics that its upsetting. Why not instead of spending the Billions that you suggest spending WORLDWIDE in testing embryos, and to eradicate this it will have to be worldwide. Invest the money into serious research on the causes? Research is ongoing and will continue, and I pray for the day a cure is found. For myself I hope it is found very soon.
I'm so sad to hear you mother died in 2006. We are close to understanding this disease and I had hope that maybe she could still be helped from the picture that I saw on your website. I help make an impact in the knowledge gap in helping scientists to understand the regenerative process of neurons, which labeled as one of the most important contribution to neuroscience in the past century. Now I will try to help in Huntington Disease. I feel so sad for the children that are affected.
my auntie diagnosed today with HD, hoping that my mom and her siblings would not affect by HD. After how many years we already know the suffrage of our lost love ones who have been manifesting HD
This is great what your doing! my mother had it and so did her father, though he died before i was born,also my aunt has it but her case was worse. but my mom just got sick, with some motvements in her leg. she died with it in 2006. my sister was 16 and i was 13. it was really hard. we both have a chance of getting it. And what you are doing really gives me hope!
well looks like im fucked... i have a family history of type 2 diabetes, atherosclerosis, hypertension, and certain tumors..... huntingtons all of a sudden doesnt seem too bad....
@sophminx i was being serious... i was not making this comment as a joke at all.... my brother just got diagnosed with hypertension 2 months ago and i lost an aunt to heart disease last november... damn heredity
@puppylovaar my family has it too.. im 21.. my dad is so far into it he can barely speak or move properly.. : /
FatBabiesWithAids 1 month ago
Huntington's is easy to cure, eugenics.
Chessykatzenz 2 months ago
@Chessykatzenz At the moment, Huntington is not curable.
PS3LoVzWoW 2 months ago
@PS3LoVzWoW
Prevention is the best cure, and the only way to prevent genetic disease is eugenics.
Chessykatzenz 2 months ago
@Chessykatzenz fuck it.
DeathofmeIknow 1 month ago
@Chessykatzenz
Not one of you who says eugenics is the answer has a familiy membe,r or yourself with the genetic disorder. You dont know all the details that come with those affected and especially those who are in the lineage to develop down the road. What about the young man or women who wants to have children and has to make the decision to either deny themselves the right to reproduce or risk their children lives down the road. Eugenics is dated and disconected from morality
undeadred84 3 weeks ago
im 12 years old and my family has hd.my gpa died in 2001 when i was 2. my aunt becky died in 2008 adn my aunt jess died YESTURDAY from hd.. i am very active in what is going on becase my other aunt tine has bad symptoms and my mom has it. my and my 7 other cousins are at risk... im very active in gymnastics and also in the hdsa community...i sell hearts 4 huntingtons at school and have been going to the national convention for the past 3 years now.. i am also apart of the nya... i like this vid!
puppylovaar 3 months ago
I have this disease and it scares the hell out of me...
DeathofmeIknow 6 months ago
@DeathofmeIknow well...you're going to die young then.
tedwilli9 2 months ago
watch the first documentary about huntington disease in portuguese made in brazil, we're looking for channels to show it.
see on my profille, the " convivendo com a doença de huntington" video
wilsonhighlander 8 months ago
Comment removed
wilsonhighlander 8 months ago
Best luck to everyone at risk. I myself went trough that (12 years until I got the courgage to do it) and I tested negative, but my sister positive. I am waiting for the cure, I know its there, theyre working on it and money is needed to get it faster!
anniecash1 8 months ago
Dare not have the test but best of luck Shana
TheJackson1974 11 months ago
Shana - kudos on the extreme physical fitness; you obviously take high ownership in your health. I'm trying to tell everyone I know what I found: chain of events in Huntington's that causes the neuron death is called "glutamate excito-toxicity", and our natural endo-cannabinoid system is in place to protect against this process. Omega-3's are one of our body's feedstock to make endo-cannabinoids, and we should avoid neuro toxins (MSG, alcohol, excess sugar). Not a cure, but may help slow it.
dmgoedde 11 months ago
In addition to funding research for a cure, the government and insurance companies should provide free In-Vitro Fertilization (IVF) with Pre-Genetic Diagnosis (PGD) testing to exclude embryos with the HD gene to anyone at-risk for HD who wants it. Even those who don't want to know if they have HD can have kids that will never get the disease or be able to pass on the gene. HD could be eradicated in one generation, saving the government billions in future long term healthcare for HD patients.
swhitt21 1 year ago
@swhitt21 This to me , sorry if i am wrong, smacks so much of Eugenics that its upsetting. Why not instead of spending the Billions that you suggest spending WORLDWIDE in testing embryos, and to eradicate this it will have to be worldwide. Invest the money into serious research on the causes? Research is ongoing and will continue, and I pray for the day a cure is found. For myself I hope it is found very soon.
MrLesbg1982 8 months ago
I'm so sad to hear you mother died in 2006. We are close to understanding this disease and I had hope that maybe she could still be helped from the picture that I saw on your website. I help make an impact in the knowledge gap in helping scientists to understand the regenerative process of neurons, which labeled as one of the most important contribution to neuroscience in the past century. Now I will try to help in Huntington Disease. I feel so sad for the children that are affected.
alz123alz 1 year ago
she has a twitter page. it says she still does competitions.
Hey2Dashiki 1 year ago
Hi Shana
Stop by to say Hello.
Hope all is well with you guys :O}
Mike & Raima
madrywallmike 1 year ago
Like, you're absolutely gorgeous. Whether or not you are (perish the thought) HD-doomed, always live life to the fullest. You go, girl!
pantyflash 1 year ago
my auntie diagnosed today with HD, hoping that my mom and her siblings would not affect by HD. After how many years we already know the suffrage of our lost love ones who have been manifesting HD
asiong88 1 year ago
My neice has Juvenile Huntingtons she's 17 now.......her video is on my page...its such a terrible condition
TwittyWhit07 1 year ago
She's a hottie. I have an undx'd movement disorder with dysphagia, rigidity, toe drag, tremor and clonus and severe mood swings. 30 years old.
DrugstoreCFH 1 year ago
This is great what your doing! my mother had it and so did her father, though he died before i was born,also my aunt has it but her case was worse. but my mom just got sick, with some motvements in her leg. she died with it in 2006. my sister was 16 and i was 13. it was really hard. we both have a chance of getting it. And what you are doing really gives me hope!
Sarahvw123 2 years ago
and my mom and 2 aunts just got diagnosed with diabetes... now im scared....
kaneda956 2 years ago
well looks like im fucked... i have a family history of type 2 diabetes, atherosclerosis, hypertension, and certain tumors..... huntingtons all of a sudden doesnt seem too bad....
kaneda956 2 years ago
Damn dude that sucks 0.o
lollerskates1992 2 years ago
@kaneda956 thats not funny
sophminx 1 year ago
@sophminx i was being serious... i was not making this comment as a joke at all.... my brother just got diagnosed with hypertension 2 months ago and i lost an aunt to heart disease last november... damn heredity
kaneda956 1 year ago
This comment has received too many negative votes show
its not 50/50 its a 90% chance
Hoops355 2 years ago
It IS a 50/50 chance if you have a parent with the defective gene. You'll either get the mutated copy or you won't.
Zedda82 2 years ago
Awesome! Uplifting & informative. Nice abs, too! :)
forlisa911 2 years ago
Nice video More info on the website please
misswishstorm 2 years ago
Please be Nice with Coments.
madrywallmike10 2 years ago
This comment has received too many negative votes show
seems like its more about the ditsy daughter than her suffering mother....
jarofhappiness 2 years ago
Hey!! Shana is an amazing person raising awareness for huntington's disease and she's doing a great job doing it
sabraelluver 2 years ago 2
You need the entire 50/50 on here ! At least it could be seen then.
wrf121 3 years ago