I have recently started a Retinitis Pigmentosa Awareness Page on Facebook. If anyone is interested in spreading awareness and helping support finding a cure for RP, please visit my site and hit the "Like" button. It should be one of the first sites that pop-up if you type it in the search bar on Facebook. The picture is of a purple ribbon. Feel free to post personal stories on the wall also. Thank you for your time reading this short paragraph.
AWSOME VIDEO AND ALSO THE SONG COMPOSITION IN GENERAL. I'M THE COORDINATOR OF A RETINITIS PIGMENTOSA SYMPOSIUM AT THE UNIVERSITY OF PUERTO RICO IN ARECIBO, AND ALSO A SOUND ENGINEERING STUDENT. IF YOU COULD HELP WITH ANY MORE INFO. ABOUT IT PLEASE MESSAGE. THANKS
For a different viewpoint looking more at the emotive side to RP, please check out MrDanDroid's channel, click on Blind Mans Bluff. Charity single endorsed by the BRPS last year, or visit dandroid.co.uk
Danke für dein Lied! Habe selbst Retinitis Pigmentosa. Das Leben muß gelebt werden und ich finde das gut so! :) Jetzt erst recht! Nicht aufgeben! Wir sind nicht alleine!
like the song. you've managed to make me me cry somehow. I felt like I was looking at my daughter's retina. I am humbled by your creativity . Keep up the good work. this is a genius way to raise awareness and educate individuals.
Really interesting video with POV. There's really not that much on Youtube describing the actual disease and what it's like for sufferers. We just posted a short video at InsidersHealthTV on a new implant that apparently works. Please see and let us know what you have heard about it. The report on this new one is pretty impressive.
me again ,, lol ,,, thank you for your honest account of r,p ,,, we"ve been looking through youtube and to our horror there are a lot of so called profesionals on it saying they can treat or cure retinitus pigmentosa ,it is frightening to think that some people will give false hope to people , i guess desperate people will pay a lot of money to be cured , thank you guys for your comfirmation that r,p is uncureable , honesty is all people want , thanks again ,, xx
@MrWoodage Some RP conditions can be treated with acupuncture. Not cured, but treated. Meaning that there vision can get better or the negative progress stopped. Best regards Mikkel.
HOW ODD IS IT THAT RETINERS WITH PIGMENT CLUMPING RESEMBLE STRANGE AND BEUTIFUL PLANETS , THEY LOOK LIKE SOMETHING A SPACE TELESCOPE WOULD PICK UP ,,,, OR HAVE I SMOKED TOO MANY SPICEY CIGERETTES ?? ...
GREAT EXPLANATION AND CATCHY TUNE , I HAVE R,P AND CATERACS "A PRESENT FROM MY GRANDAD ,, LOL " AND IF ANY R,P"ERS WANT A FRIEND THEN FACEBOOK ME BRADLEY WOODAGE , AND REMEMBER THAT WE THE R,P SUFFERERS ARE THE LIGHT AT THE END OF THE TUNNEL , "GOD HOW CHEESEY WAS THAT !"
my mum has this love u mum
madforme123 6 days ago
i have this................
weekendgirl67 1 month ago
Fuck RP. I want to die
earny80 1 month ago
my brother has this
makeupisfun101 2 months ago
Stomme Robin.
TomJansen 2 months ago
I have recently started a Retinitis Pigmentosa Awareness Page on Facebook. If anyone is interested in spreading awareness and helping support finding a cure for RP, please visit my site and hit the "Like" button. It should be one of the first sites that pop-up if you type it in the search bar on Facebook. The picture is of a purple ribbon. Feel free to post personal stories on the wall also. Thank you for your time reading this short paragraph.
IronMaidenMan1 3 months ago
AWSOME VIDEO AND ALSO THE SONG COMPOSITION IN GENERAL. I'M THE COORDINATOR OF A RETINITIS PIGMENTOSA SYMPOSIUM AT THE UNIVERSITY OF PUERTO RICO IN ARECIBO, AND ALSO A SOUND ENGINEERING STUDENT. IF YOU COULD HELP WITH ANY MORE INFO. ABOUT IT PLEASE MESSAGE. THANKS
ChrisGalloza 4 months ago
For a different viewpoint looking more at the emotive side to RP, please check out MrDanDroid's channel, click on Blind Mans Bluff. Charity single endorsed by the BRPS last year, or visit dandroid.co.uk
Thank you.
MrDanDroid 5 months ago
I have RP and this song and video helped me to show my family and friends how I see the world..thanks
Cassiaricehouse 7 months ago
Danke für dein Lied! Habe selbst Retinitis Pigmentosa. Das Leben muß gelebt werden und ich finde das gut so! :) Jetzt erst recht! Nicht aufgeben! Wir sind nicht alleine!
Kathinka519 7 months ago
my mother have Retinitis Pigmentosa, she is blind now.
from Pakistan
miss101sports 9 months ago
@miss101sports i feel sorry for your mother. how old was she when she got blind?
DonAlfee 6 months ago
like the song. you've managed to make me me cry somehow. I felt like I was looking at my daughter's retina. I am humbled by your creativity . Keep up the good work. this is a genius way to raise awareness and educate individuals.
ITZURBOYBEBO 11 months ago
AWESOME SONG AND RAISES AWARENESS OF A VERY TOUGH EYE DISEASE I SUFFER FROM.
LowVisionBureau 11 months ago
Really interesting video with POV. There's really not that much on Youtube describing the actual disease and what it's like for sufferers. We just posted a short video at InsidersHealthTV on a new implant that apparently works. Please see and let us know what you have heard about it. The report on this new one is pretty impressive.
InsidersHealthTV 1 year ago
me again ,, lol ,,, thank you for your honest account of r,p ,,, we"ve been looking through youtube and to our horror there are a lot of so called profesionals on it saying they can treat or cure retinitus pigmentosa ,it is frightening to think that some people will give false hope to people , i guess desperate people will pay a lot of money to be cured , thank you guys for your comfirmation that r,p is uncureable , honesty is all people want , thanks again ,, xx
MrWoodage 1 year ago
@MrWoodage Some RP conditions can be treated with acupuncture. Not cured, but treated. Meaning that there vision can get better or the negative progress stopped. Best regards Mikkel.
mikkelstroem 6 months ago
HOW ODD IS IT THAT RETINERS WITH PIGMENT CLUMPING RESEMBLE STRANGE AND BEUTIFUL PLANETS , THEY LOOK LIKE SOMETHING A SPACE TELESCOPE WOULD PICK UP ,,,, OR HAVE I SMOKED TOO MANY SPICEY CIGERETTES ?? ...
MrWoodage 1 year ago
GREAT EXPLANATION AND CATCHY TUNE , I HAVE R,P AND CATERACS "A PRESENT FROM MY GRANDAD ,, LOL " AND IF ANY R,P"ERS WANT A FRIEND THEN FACEBOOK ME BRADLEY WOODAGE , AND REMEMBER THAT WE THE R,P SUFFERERS ARE THE LIGHT AT THE END OF THE TUNNEL , "GOD HOW CHEESEY WAS THAT !"
MrWoodage 1 year ago
Sorry, can you give me the lyrics, my english ear is not as goof as as I thougth.
thx
Rhemer89 1 year ago
I have Retinitis Pigmentosa...thank you for this! We all stand strong together. :D
PhazzerPhire 1 year ago
My brother has RP and loves this! Thanks much.
DiaperWolf 1 year ago
dude i love this! my mom have RP and this made her smile:]
lizziedoll92 2 years ago