hello lyzette I enjoy your viedo I'm glad to see someone else feels like me. I a nurse u would think that would help it only makes thing more confusing. My wrist is causeing me so much pain. I rec'd steriods injection twice it only help for 2 to 4 days. Please contact me jefferyakendrick@yahoo.com I have a hard time getting my ? answer i'm on embrel with some help. thanks
.... sorry to write so much Lyzette - hope I'm not boring you. If you want to chat or whatever anytime, just write me. Leoniecent@bigpond.com and I'm on Skype too. I'm not a Barbara Allen fanatic by the way :-) so you dont have to worry - I havent followed her program for a while now, cos i get depression and find it hard to do anything. When I saw your video, I thought I'd mention her to you...L
hi again Lyzette, I live in Australia, so I guess I'm a long way away from you. Re: Barbara Allen, even tho she is in the US, she is very supportive and provides advice via email regularly. I thought I'd mention this to you, in case it is something you might find useful in the future. Barbara has a lot of knowledge about all the RA drugs and what helps and what doesnt. I feel that she would provide you with much hope and inspiration. She's on Youtube ;-)....Love, L
Dear Lyzette, Us girls deserve to have nice hands, right !! :-) Can I ask you if you've looked into doing alternative type therapies for your RA ? I really do know how the drugs make you feel sick - I hate them with a vengeance, yet the doctors keep pushing them on us and not believing us when we talk about the side effects. I have bought Barbara Allen's book about curing RA, and it is very good...
Dear Lyzette, Thank you for opening up to the world about your RA. It is very inspiring. I have RA too, so I understand - I also have the same quandary as you with drugs - to take them or not to take them - either way, you are dammed. My fingers are awful - they used to be lovely. I have lost my vanity now since i'm in my 40's, and dont give a stuff, but it's hard. Your hands must be very painful - I hope you can get help before you suffer too much damage..... love...Leonie
LISTEN TO ME IF YOU HAVE RA, i have had it for about a year and there is hope, you should DEFINITELY not take methotrexate, this is an a type of kemo therapy drug and it is tearing apart your liver and making you more unhealthy, bottom line is to change your diet and begin taking nutritional supplements from an alternative doctor and make sure you exercise, this is the cure, trust me, you dont have to suffer
Hey, I definitely share your concerns. I was diagnosed with JRA when I was 14, and I am now 21. I don't believe in putting drugs in my body. I was on meds until I was 16, and then stopped taking them and haven't really been to a specialist since then. Now I am having an even harder time with doing the things I enjoy, and use my hands cooking every day at work. I am afraid I may have to go to the specialist, and see what there is to do. I hope you are doing better. Hang in there.
.Estudios recientes han demostrado que el clima frio es lo que mas afecta al paciente que tiene artritis reumatoide, de hecho la enfermedad se activa o trabaja por debajo de +15 grados centigrados mas o menos dependiendo del sistema inmunologico de cada paciente, por eso se recomienda que en tiempo de frio el paciente viva en un lugar que tenga clima caliente.
god bless you i have ra for 22 years no one will never knowe,, who hasnt the disease..i am on a wonder drug methatrexate,,i play golf now pain always with you but not as bad..love
Hey there I have JRA I was diagnosed when I was 10 years old. I am now 25 years old I do have a fair amount of damage to my hands. I have been on medication after medication after medication. I understand what you are going through most days the pain really sucks. I just wanted to tell you to hang in there. Also if you have any questions I would be more then happy to help you answer them the best I can. I hope this helps.
Hi nice to hear ur story. Im sorry. But anyway I have RA too on my both hands and for 10 years now and its getting worse. It's auto immune and it has no cure. Maybe diet will help, more fruits and vegies. By the way, Vitamin B complex (B1, B6.B12) will help too to regain and rebuild damage nerves and tisues due to RA.
I was diagnosed with JRA (juvenial) when i was 16. I woke up every morning in pain and It took me about 20 minutes to just stand from my bed. I am taking methotrexate shots every friday and I do not like it. I used to be exited for fridays to come around, but now I do not look forward to friday due to the fact i have to give myself shots. I really hope and pray they find a cure for us.
I'm fairly new to RA, I have had it for about 2 1/2 years and was diagnosed just over a year ago. I drastically changed my diet at the suggestion of a naturist Accupuncture doctor..and did the accupuncture for almost a year. I feel the two things helped me tremendously, but I dont know if they would work for everyone. If you could go vegan for a while it may help you. there are great vegan books out there. I've actually enjoyed learning how to cook all kinds of differnet things!
My ra seems to have moved to my ribs. Have any of you experienced this? I had no symptoms until I contracted rheumatic fever in february of this year. Then they did and mri and told me I have this crappy disease R.A. I think Im still in denial, shock, because as lyzette I am experiencing loss and grieving for the body I had 3 months ago
@lms662002 started in my upper rib cage below neck 22 years ago worse diseases you can get . lots of breakthroughs in drugs,,ps you need to take them even when you have good days slows illness down,,take care.
HI! I am 38. I was diagnosed with RA last year. I dont know if it has been helping me but I started to go to an accunpuncturist and became a vegan. I was having monthly flair ups until I started that diet. I was a vegan for 6 months..until last Chritmas. As soon as I started dairy, coffee and meat again I had another flair up. I also drink about 1/2 gallon of green tea daily, instead of water. I hear that helps . I do think diet plays a big part in this though..
That is so great that you have found something that helps you. I have heard there are some foods that you should or should not eat for many health issues. Although, I haven't heard any yet for the RA. I would love to find out more on this. Do you have any reading material you can lead me to?
@lafatbiche 22 years i have had RA you need to face the fact you are suffering from a disease medication is the only way now,it slows the RA down im on a second line treatment now they took their time puting me on it it is a wonder drug i have a new lease of life now,, methatrexate.homapathec medication is a con for RA tried everything , doctors told me a lot of research goes into finding drugs and if homopathic worked they would be using it,, made sense
Hi, I hope things are getting better for you. I'm 21 and I have severe rheumatoid arthritis. I'm having alot of the same issues with my hands as you. I hate dealing with having less and less independence because of my hands. It's hard to explain to people why you can't even open a jar. :-P It seems my RA has decided to move to my knee now, so who knows whats ahead. If you'd like to write sometime send me and message and possibly, we could know each other better. P.S. You're not alone...
You are so sweet. Sorry I've taken so long to respond. Wow..you are young too. I'm sorry you are having to deal with that. Yes, I do understand about the independence thing. It sucks. Thanks so much for your sweet message.
@lyzettesalazar I Have Arthritis in my right foot and in my legs, too! I'm taking pills trying to make myself feel better and they're working! I hope you do better and try to get back in the swing of things. Just enjoy life and take it one day at a time.
It is scary when you don't know what condition you will be in for the future. I surely can relate to that. I suppose the only thing we can do is worry about the present and get most out of it. I will keep you in my prayers, as well.
Hey my name is bree I am 15 and have systemic jra since I was 2 years old, I have been on every medicine out there. It is all thoughout my body and I was really wanting to meet some other teenagers out there who have been through the same struggles I have went though. Please contact me, I know we can relate... I'm on myspace allthatbree
Bree, I'm sorry to hear that and sorry for taking so long to get back with you. I so understand and will keep you in my prayers, as well. How are you doing?
I have had RA for 24 years , and have been off all pharmaceuticals for almost two years now and believe I have my RA in remission. Those meds that the doctors give you only mask the symptoms, and do more harm than good. You want to beat this disease before it takes all your finger joints with it, you have to get off all meds and change your diet! (smile)
Bless you, Lyzette. I live in the UK and have had RA for about 9 years. I developed it, seemingly overnight, and for a while I was very, very bad with it. I couldn't walk, couldn't dress, blah, blah! I felt dreadful. Now, 9 years later, I still have the damned disease of course, but with the drugs I am not in so much pain 24/7 and I can walk very well (though I hate flat surfaces with flat shoes!) and I can still type. I can dress myself no problem. I do hope your RA has improved. Lou xx
I'm glad the medicine has helped you. we are still going through the trial and error with medicines to see what will work best. I appreciate you sharing.
I know how you feel exactly. I also got it on thanksgiving 2004 (worst day in my life) my Dr. gave me Remicade and it working really well for me. She is constantly telling me to get off the prednisone and methotraxate because they are bad for me but I am still taking them. and yes I am also afraid of the unknown. Rosie
Sorry for the delay in writing back. So how is the remicade working for you? My doctor wants me to stay on prednisone and now has me on methrotextrate AND humira. The humira shot actually really hurts. Not like the methrotextrate. The needles are different. I hate injection day.
How long have you been on Methotrexate? It may take a few months to start showing results, the prednisone sure does help. When I took that medicine, it did help me. The reason I switched is because I was to be on it for 5 years when another drug would come along. My fingers started to swan b4 methotrexate..once i was on it..one straighted out, the other just a little bend.
hello lyzette I enjoy your viedo I'm glad to see someone else feels like me. I a nurse u would think that would help it only makes thing more confusing. My wrist is causeing me so much pain. I rec'd steriods injection twice it only help for 2 to 4 days. Please contact me jefferyakendrick@yahoo.com I have a hard time getting my ? answer i'm on embrel with some help. thanks
jeffery6560 4 months ago
.... sorry to write so much Lyzette - hope I'm not boring you. If you want to chat or whatever anytime, just write me. Leoniecent@bigpond.com and I'm on Skype too. I'm not a Barbara Allen fanatic by the way :-) so you dont have to worry - I havent followed her program for a while now, cos i get depression and find it hard to do anything. When I saw your video, I thought I'd mention her to you...L
ucanleaveyourhaton 11 months ago
hi again Lyzette, I live in Australia, so I guess I'm a long way away from you. Re: Barbara Allen, even tho she is in the US, she is very supportive and provides advice via email regularly. I thought I'd mention this to you, in case it is something you might find useful in the future. Barbara has a lot of knowledge about all the RA drugs and what helps and what doesnt. I feel that she would provide you with much hope and inspiration. She's on Youtube ;-)....Love, L
ucanleaveyourhaton 11 months ago
Dear Lyzette, Us girls deserve to have nice hands, right !! :-) Can I ask you if you've looked into doing alternative type therapies for your RA ? I really do know how the drugs make you feel sick - I hate them with a vengeance, yet the doctors keep pushing them on us and not believing us when we talk about the side effects. I have bought Barbara Allen's book about curing RA, and it is very good...
ucanleaveyourhaton 11 months ago
Dear Lyzette, Thank you for opening up to the world about your RA. It is very inspiring. I have RA too, so I understand - I also have the same quandary as you with drugs - to take them or not to take them - either way, you are dammed. My fingers are awful - they used to be lovely. I have lost my vanity now since i'm in my 40's, and dont give a stuff, but it's hard. Your hands must be very painful - I hope you can get help before you suffer too much damage..... love...Leonie
ucanleaveyourhaton 11 months ago
LISTEN TO ME IF YOU HAVE RA, i have had it for about a year and there is hope, you should DEFINITELY not take methotrexate, this is an a type of kemo therapy drug and it is tearing apart your liver and making you more unhealthy, bottom line is to change your diet and begin taking nutritional supplements from an alternative doctor and make sure you exercise, this is the cure, trust me, you dont have to suffer
wag4702 1 year ago
Hey, I definitely share your concerns. I was diagnosed with JRA when I was 14, and I am now 21. I don't believe in putting drugs in my body. I was on meds until I was 16, and then stopped taking them and haven't really been to a specialist since then. Now I am having an even harder time with doing the things I enjoy, and use my hands cooking every day at work. I am afraid I may have to go to the specialist, and see what there is to do. I hope you are doing better. Hang in there.
dispiritedprincess89 1 year ago
This has been flagged as spam show
.Estudios recientes han demostrado que el clima frio es lo que mas afecta al paciente que tiene artritis reumatoide, de hecho la enfermedad se activa o trabaja por debajo de +15 grados centigrados mas o menos dependiendo del sistema inmunologico de cada paciente, por eso se recomienda que en tiempo de frio el paciente viva en un lugar que tenga clima caliente.
ba151087 1 year ago
god bless you i have ra for 22 years no one will never knowe,, who hasnt the disease..i am on a wonder drug methatrexate,,i play golf now pain always with you but not as bad..love
neilyneilson 1 year ago
Hey there I have JRA I was diagnosed when I was 10 years old. I am now 25 years old I do have a fair amount of damage to my hands. I have been on medication after medication after medication. I understand what you are going through most days the pain really sucks. I just wanted to tell you to hang in there. Also if you have any questions I would be more then happy to help you answer them the best I can. I hope this helps.
babybluepunk1 1 year ago
by the way, NSAID is useless cause it will damage ur liver and kidneys. And its for temporary relief only... Thats SHIT!!!
johnwest360 1 year ago
Hi nice to hear ur story. Im sorry. But anyway I have RA too on my both hands and for 10 years now and its getting worse. It's auto immune and it has no cure. Maybe diet will help, more fruits and vegies. By the way, Vitamin B complex (B1, B6.B12) will help too to regain and rebuild damage nerves and tisues due to RA.
johnwest360 1 year ago
test
ggalvan1000 1 year ago
I was diagnosed with JRA (juvenial) when i was 16. I woke up every morning in pain and It took me about 20 minutes to just stand from my bed. I am taking methotrexate shots every friday and I do not like it. I used to be exited for fridays to come around, but now I do not look forward to friday due to the fact i have to give myself shots. I really hope and pray they find a cure for us.
Biancaaalove 2 years ago
if i tit my research correct that RA is incurable. medicine seems to delay the symptoms but not cure them.
does anyone know for how long they will delay them? or how much they will slow them down? i am asking bc idont really want to take medicine
lafatbiche 2 years ago
I'm fairly new to RA, I have had it for about 2 1/2 years and was diagnosed just over a year ago. I drastically changed my diet at the suggestion of a naturist Accupuncture doctor..and did the accupuncture for almost a year. I feel the two things helped me tremendously, but I dont know if they would work for everyone. If you could go vegan for a while it may help you. there are great vegan books out there. I've actually enjoyed learning how to cook all kinds of differnet things!
sonive18 2 years ago
My ra seems to have moved to my ribs. Have any of you experienced this? I had no symptoms until I contracted rheumatic fever in february of this year. Then they did and mri and told me I have this crappy disease R.A. I think Im still in denial, shock, because as lyzette I am experiencing loss and grieving for the body I had 3 months ago
lms662002 2 years ago
@lms662002 started in my upper rib cage below neck 22 years ago worse diseases you can get . lots of breakthroughs in drugs,,ps you need to take them even when you have good days slows illness down,,take care.
neilyneilson 1 year ago
HI! I am 38. I was diagnosed with RA last year. I dont know if it has been helping me but I started to go to an accunpuncturist and became a vegan. I was having monthly flair ups until I started that diet. I was a vegan for 6 months..until last Chritmas. As soon as I started dairy, coffee and meat again I had another flair up. I also drink about 1/2 gallon of green tea daily, instead of water. I hear that helps . I do think diet plays a big part in this though..
sonive18 2 years ago
That is so great that you have found something that helps you. I have heard there are some foods that you should or should not eat for many health issues. Although, I haven't heard any yet for the RA. I would love to find out more on this. Do you have any reading material you can lead me to?
lyzettesalazar 2 years ago
Hi sonive
thumbs up! vegan - wow take takes a lot of endurance!!
apparently what is not good is coffee, tea, sugar, meat, fish, white four and fruits because of the acidity of the body.
I am new to RA, am not quite sure what to do yet though..
good luck!
lafatbiche 2 years ago
@lafatbiche 22 years i have had RA you need to face the fact you are suffering from a disease medication is the only way now,it slows the RA down im on a second line treatment now they took their time puting me on it it is a wonder drug i have a new lease of life now,, methatrexate.homapathec medication is a con for RA tried everything , doctors told me a lot of research goes into finding drugs and if homopathic worked they would be using it,, made sense
neilyneilson 1 year ago
Hi, I hope things are getting better for you. I'm 21 and I have severe rheumatoid arthritis. I'm having alot of the same issues with my hands as you. I hate dealing with having less and less independence because of my hands. It's hard to explain to people why you can't even open a jar. :-P It seems my RA has decided to move to my knee now, so who knows whats ahead. If you'd like to write sometime send me and message and possibly, we could know each other better. P.S. You're not alone...
jeanne22902 3 years ago
You are so sweet. Sorry I've taken so long to respond. Wow..you are young too. I'm sorry you are having to deal with that. Yes, I do understand about the independence thing. It sucks. Thanks so much for your sweet message.
lyzettesalazar 3 years ago
@lyzettesalazar I Have Arthritis in my right foot and in my legs, too! I'm taking pills trying to make myself feel better and they're working! I hope you do better and try to get back in the swing of things. Just enjoy life and take it one day at a time.
Chicago10281 1 year ago
I hope things get better for you. I have JRA I was diagnosed with it when I was 16. I too dont know what the future holds and it scares me a bit.
justanothertxgirl 3 years ago
It is scary when you don't know what condition you will be in for the future. I surely can relate to that. I suppose the only thing we can do is worry about the present and get most out of it. I will keep you in my prayers, as well.
lyzettesalazar 3 years ago
Hey my name is bree I am 15 and have systemic jra since I was 2 years old, I have been on every medicine out there. It is all thoughout my body and I was really wanting to meet some other teenagers out there who have been through the same struggles I have went though. Please contact me, I know we can relate... I'm on myspace allthatbree
kristiemae37 3 years ago
Bree, I'm sorry to hear that and sorry for taking so long to get back with you. I so understand and will keep you in my prayers, as well. How are you doing?
lyzettesalazar 3 years ago
i'm sorry you are in pain, I hope you will feel better =0)
narcissisticfatchick 3 years ago
Thanks so much. I appreciate that. I'm sorry for the delay in getting back to you, by the way. I'm trying to get back on track.
lyzettesalazar 3 years ago
I hope that the meds help and you start to feel better! You are so sweet--I wish you all the best!
ItalianPrincess715 3 years ago
Thanks so much. I truly appreciate that.
Hugs,
Lyzette
lyzettesalazar 3 years ago
I have had RA for 24 years , and have been off all pharmaceuticals for almost two years now and believe I have my RA in remission. Those meds that the doctors give you only mask the symptoms, and do more harm than good. You want to beat this disease before it takes all your finger joints with it, you have to get off all meds and change your diet! (smile)
wiskawind 3 years ago
Bless you, Lyzette. I live in the UK and have had RA for about 9 years. I developed it, seemingly overnight, and for a while I was very, very bad with it. I couldn't walk, couldn't dress, blah, blah! I felt dreadful. Now, 9 years later, I still have the damned disease of course, but with the drugs I am not in so much pain 24/7 and I can walk very well (though I hate flat surfaces with flat shoes!) and I can still type. I can dress myself no problem. I do hope your RA has improved. Lou xx
Louizalass 4 years ago
I'm glad the medicine has helped you. we are still going through the trial and error with medicines to see what will work best. I appreciate you sharing.
lyzettesalazar 4 years ago
I know how you feel exactly. I also got it on thanksgiving 2004 (worst day in my life) my Dr. gave me Remicade and it working really well for me. She is constantly telling me to get off the prednisone and methotraxate because they are bad for me but I am still taking them. and yes I am also afraid of the unknown. Rosie
rifischer 4 years ago
Sorry for the delay in writing back. So how is the remicade working for you? My doctor wants me to stay on prednisone and now has me on methrotextrate AND humira. The humira shot actually really hurts. Not like the methrotextrate. The needles are different. I hate injection day.
lyzettesalazar 4 years ago
How long have you been on Methotrexate? It may take a few months to start showing results, the prednisone sure does help. When I took that medicine, it did help me. The reason I switched is because I was to be on it for 5 years when another drug would come along. My fingers started to swan b4 methotrexate..once i was on it..one straighted out, the other just a little bend.
tomdeb99 4 years ago
again , i do understand. i think i should do a video for you. i will work on it. ((hugs))
*tori*
torigirl35 4 years ago