Added: 11 months ago
From: esnidow
Views: 359
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  • My friends baby is having seuzures and the doctors can't find anything i'm triying to help her by searching for whaterver i can...find.. i'm really sorry my prayers for you and all the people outher....God Bless you!!!

  • My son was diagnosed on monday with Alpers Disease. He is 9 had his first seizure on september 1, 2010. He seized for 128 straight while the doctors kept him in a coma to protect his brain. He was previously healthy. He is now blind, deaf, mute and wheelchair bound. They discovered today that his liver is enlarged. I don't want to lose him!!

  • @goobersx3 My heart goes out to you and although I'm not familiar with this disease, if you need someone to talk to, I'm always available.

  • My son was diagnosed yesterday 07/02/2011 He is in liver failure and encephalopathy now. This is just horrible. He is 9 and had his first seizure at 31/2. It's just not fair, I need my son.

  • I am so so very sorry about your babys my grandson was diagnosed 1/20/11 with Alpers It is a very sick and mean disease and we do need to find help Baby Adian is doing as well as Alper will let him , We are in a nursing home for kids waiting to go home soon, My God Bless You and Your Family and keep his hands around your family in this time of need Shery

  • Lovely video. Thanks for sharing it with us.

    Anne Stanford xx

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