V-01/05 POMPE PERSPECTIVES - Five Families Share Their Stories

[msshelley74]

i know mia and her mom mia has come a long way. they come into stop and shop alot.

[nan6983]

my 17 month old granddaughter was diagnosed with pompe's disease about a month ago. she is scheduled for her first myozyme treatment next week. we've been told she has very mild case of it and it's been predicted she'll do well with the treatment. i've watched this video of mia over and over again and i picture shae, my granddaughter, walking just like mia is. to mia's parents, you both have the best attitude and i'm going to try to do the same. mia is beautiful. i'll pray for her and shae.

[mytube606]

@nan6983  Thank You for commenting - I am actually the adult male in V-02/05 - I am just the person who split this DVD up and put it on youtube - Mark

[nan6983]

i hope mia is still doing good.

[aidanne07]

I hope they find a cure soon for pompe diease. Good luck.

[mytube606]

@aidanne07 Thank You for commenting - I am actually the adult male in V-02/05 - I am just the person who split this DVD up and put it on youtube - Mark

[mytube606]

@aidanne07 Thank You for commenting - I am actually the adult male in V-02/05 - I am just the person who split this DVD up and put it on youtube - Mark