Added: 2 years ago
From: mcertonio
Views: 1,249
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  • hello i saw the one about your teeth mine are doing that but also i have to find out if anyone else has this going on also. its my hair the damn roots of my hair my scalp is so tender i can't stand it i think i can actually feel evry effin hair on my head.i did not realize the teeth pain was connected to the fibro, so i was just wondering if maybe this is too.btw u are the best one that has explained my pain and everything else i am going through.thanks for being you and putting it out there.

  • that is great that you said you want to be the old you even just for alittle while I feel that and that is one of the things that we have to do GRIEVE for the person we used to be. my FIANCE says this all the time I just want the person i fell in love with... should i blame him when i feel the same way???

  • HATE sitting down, God these videos are a blessing.

  • I know all so well about what you are talking about with the pain and going outside , putting your feet up and having to lay down, my ex had no idea what i went through, thank you for making videos on this...

  • I have very similar symptoms...most absurd, the sitting down stuff...can't sit normally. I can stand up easier than sitting, except that makes my feet and legs cramp and swell, later while I'm trying to sleep (haha...sleep). I'm laying down right now, almost always have to! But, you know there are those days when it's worth the pain I will suffer later, so I can do things with my girls, like going to the renfests, or other special events. Anything for them to have fun, now and then!

  • oh i am likely to write a whole bunch of comments about idiotic doctors, sorry, just kidding, i have known a few and generally look for a better one. That is all you can really do, and once you find a descent doctor stick with him or her.

    Do you take anything over the counter? as I dont have fibomyalga my experiences are different so not sure if there is anything herbal that might help, most of my bone health injuries are related to osteoarthritis and degenerative disc disease so different ache

  • @mishakailana then what you experiene i believe, do hot soaks help, or back massage?

  • Yep, totally relate.lol I get the sweating thing really bad too. It is soooo embarassing. Ive wondered if there was anything I could do, but I dont even really know why I get it. I guess from pain, maybe a temp problem in my body. Who the hell knows. All I know is its embarassing, and uncomfotable.lol

  • This sounds so familiar - I suspect I have Fibro the more and more I read and hear about it. I suffer cp from a spinal surgery - 4 levels fused - and I am at the point that I rarely leave the house. It is not worth the extra pain. And many drs and people do NOT get it. Thank you for sharing.

  • In the same position, with the same puppy challenge I hear you loud and clear, which for us is not an easy task. I let him give me steroid injections in my breastplate and up the dosage of neurontin yesterday. Also refusing pain meds as he stares at my old tattoos. Now I'm worse. No more. No more. Fibro Hell Michelle, no more. Something has to be done. Too often I find myself on the brink of giving up. No more. Thank You, you've touched my soul and givin me a reason.

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