Collagen Cross-Linking for Keratoconus- patient testimonial & video procedure

[creeperburg]

I suffer from keratoconus. I am seeing a specialist next month. CCL is one of the options. My eye doctor says eventually laser treatment may also be used after CCL. Have you heard of this?

[McFixStuff]

I am 14, and I just found out 2 days ago that my vision in my left eye has progressed so far that I am way beyond the procedure's requirements. My right eye has been fine for the past 2 years, and because of that i have been able to see with little effects from the kerataconus because my right is my dominant eye. It has started to worsen, and I'm a bit scared. I can get it on my right eye, but they are waiting for some reason. It sucks i cant edit video. I can barely see what im typing.

[MrJusttestinghere]

I had cross linking done in in one eye in December of 2010. The actual scraping wasn't bad because of the anaesthetic. You're awake through the whole thing. The pain really sets in the next morning you wake, my eye was really red, vision had worsened and it was really red, 2-3 days later it got better. And comparing my vision with how it was back then, there's definitely a huge improvement. Plus I can tolerate the RGP lens much better. :) And it's sits stable on the eye.

[corneagenetic]

Many keratoconus patients who have suffered with painful hard contact lens find the pain manageable considering that it's temporary.

It's important to consult a cornea specialist about your individual circumstance before having CXL.

We very much appreciate your comment, as it will help others suffering from keratoconus weigh the potential days of pain to the potential gain.

Thank you for sharing.

[predatorxv]

OK, lets not exaggerate. No pain, only uncomfortable?! With the epithellum tissue removed, it is going to be very painful in the next few days - that is certain. You can only try to ease the pain, but it is definitely there :). After a few days, it is getting much better and easier. In the edn, a worthwhile procedure, and very very helpful. But please, lets not exaggerate :)

[kim120786]

My boyfriend had this surgery a week ago. He's had quite a bit of pain in the first 2-3 days, but that became less very quickly. We had the first check-up today and our churgin was very happy how his recovery went.

[dvilla45]

Im 16, and im having cross linking done on wednesday in London cant wait tbh

[biancaashley1]

@dvilla45 Hi Have you had your proceduere done yet? Who was your doctor? we are at the begining stages of research and would love a recommendation if you liked your doctor. Thanks!

[ashie1978]

im seeing my specialist tomorrow about xlinking and intacs, very nervous, 33 years old so am in the final stages of KC but vision is very bad and gettin me depressed,, thanks for the video helped to reassure my nerves alot.

[corneagenetic]

@ashie1978

Good luck & we're happy the videos helped.

[myanglefish]

Hello please share Sarahs progress now, we need to know the side affect for this procedure.

[unuinplu5]

entuziasmata pulii lu dumnezo

[corneagenetic]

The cost is $3,900 per eye.

Should you have further questions, please call our office at 310-248-7474.

Thank you for your inquiry!

[RollTideMustang]

@corneagenetic wow! it's to bad that people like me can not afford it due poverty of 20K it is one of those either a doctor can help or say we are sorry we can not. I am in Advanced minus 14.50 right eye the lens I have now are gas perms the pair is $500 only for temp or to say borrowed time until it get's worse.

[docbova]

What does it cost?

[MrJusttestinghere]

I had this done to my left eye about 5 months ago.. There's definitely an improvement in my vision in that eye.

[corneagenetic]

Great to hear it! We'll be posting Sarah's progress from her 1 year appointment in the coming week.

[SQUAREHEAD69]

Can this procedure be done after already having a cornea transplant??

[djjefferymichael]

I am 3 months (left eye), and 5 months (right eye) post-op from a procedure called Topography Guided PRK w/ collagen cross-linking used to treat my Keratoconus (KC). Before the procedure i was 20/100 (OS), and 20/200 (OD): legally blind without wearing hybrid contact lenses. I have worn contacts for over 15 years with many upgrades. Today I am tested at 20/20 minus (OS), and 20/25 (OD) for a combined vision of 20/20. I do not require any prescription correction to see or drive! Thx Dr Holland!

[christo6969]

I had this operation on my left eye, 6 months after having it my eye sight was much much worse and the doctors could not give me a answer, After having an orb scan they infromed me my eye sight had gone down by 15%, Now im lookng at Corneal Transplant. If you are getting this please do not worry, but there are risks with it

[SuteUp]

your cute, ;-)

[MegaBhejafry]

How are you feeling now..

Has it improved your vision? I know it will stop the progression of the disease.

Please reply.

[corneagenetic]

We'll be posting Sarah's 1 year update later this month so you can can from her what the past year was like & how her vision is today.

Thanks for visiting!

[corneagenetic]

We just uploaded Sarah's 1 year & she had PRK to tweek the vision. Check her 2 latest videos to hear her story.

[corneagenetic]

@MegaBhejafry

We just posted Sarah 1 year progress report.

[ssb16]

I'd like to hear how the patient is doing today almost 6 months later.