God is going to truly bless both of you for being so strong and posting this video. Your daughter is a doll as well. I will keep her in my prayers as well
This has to be so exhausting :( I am studying now how drugs based on THC (Marinol, Sativex) could save victim's of Huntington's from the awful symptoms and chronic movements. God Bless you and your daughter!
The fact that it's genetic and we know the genes involved actually implies that there will be a cure someday, as opposed to a treatment. The problem we face as scientists is that animal models only tell us so much, and it's obviously unethical to practice research of unapproved treatments, especially the large scale research that the FDA requires for the consumers' safety. To say there will never be a cure is not correct. It might take a long time, we might not be able to reverse the progressio
If daniel is still around then He must break that curse off of him by quoteing these verses Galatians 3:13 and 1 peter 2:24 and believe them, knowing God can not lie...Just keeping saying and believeing them.I am not ashamed of the gospel (good news) for it is salvation to the one that believes it and that's not many people...He dose'nt have to run to a faith healer and give all his money away either and that's real good news !
I wish you and your brother the best. Huntington's is a horrible disease, probably the worse on my list however its good to see that your brother is taking it so well.
this video really touched me my name is jovanny im 14 years old my father has the disease therefore im in a 50% chance of getting this disease got bless you and keep taking care of him ;')
You're the best brother anyone could wish for to take care of him. It gives a broader perspective to what an amazing gift that we have received and not to throw it away and to preserve every minute as the last.
my girlfriends dad recently died of HD, her little brother shaun passed away of the same disease when he was 8. luckily she does not carry the gene which means she didnt pass it onto our now 8 month old son.
Huntingtons runs in my family so I know how hard it is. My Mum has it really bad and needs constant looking after. But it's incredible to see someone with this horrid condition be so positive. I wish you both all the best for the future.
Thank you for sharing. I have never met a person with HD, but my heart goes out to you. You have inspired me to be an even better nurse when I graduate!
I'm very optimistic that we will find a cure one day. It's terrible to watch what those affected must go through and the fact that the disease passes down to each generation is quite alarming. Thank you for bringing more awareness to this crippling disease.
My best friend has HD , I am starting a local charity in his name , the Dan Young Foundation , and have been in in touch with the HDSA in my area . This disease effects the family , and the friends , needless to say the victim. It's just not as "well known" as other disease's. Therefore it gets less research . On behalf of your Daniel , and my Dan , i will do my best to change that .
Im a med student currently in Medical School. I study very hard neuroscience as I aim to become a neurologist. Next year I will be working with HD, ALS, PD and AD patients. It is my dream to find a cure. We don't know much how and why yet. It will take many many years, please do not give up funding GOOD organisations - every $ counts towards a solution
My dad, had died of this disease and he had 6 children, one of which is myself, my mother is struggling because of the money issues, but we are okay. He passed away over two years ago, and was 51.I hope you can find a cure, to benifit daniel, and everyone els in this world still fighting.
@sallydee101 im struggling with the same thing right now. it seems there is no hope and i feel completely alone. your father is in my prayers and god bless your family. i know how hard it can be.
thank you so much to Daniel for your courage to add this video. i am studying HD at the moment and your video has helped me. thank you and keep up the good work.
HD is not yet curable. but as dan said "it can take control of your body, but, not your spirit" it is this spirit that keep you guys going. and it is the spirit of all good natured humans who viewed this video and commented, donated and prayed. good work all you people. good luck brothers.
I am in nursing school and we are studying Huntington's Disease. The text book does it no justice. You are a courageous, inspirational young man and will be in my prayers along with your family.
I CANT SAY I KNO WHAT UR GOING THROUGH BUT MY GRANDMOTHER CAN HUNTINGTONS HAS COMPLETELY TAKEN OVER HER BODY SHE NOW IS BEING FEED THROUGH A PEEK TUBE ND IS BED BOUND DUE TO A STROKE SHE HAS HAD MY FATHER IS STILL AT RISK OF GETTING THIS DISEASE BUT SIR U HAVING A DAUGHTER ND BEING AS STRONG WILLED AS YOU ARE YOU ARE FIGHTING SOMETHING REALLY TOUGH ND I HOPE EVERYTHING WORKS OUT FOR THE BEST
this made me cry. you two guys are very brave to share this with us. keep fighting, dont let HD get in the way of what you want to achieve. many people are praying for you, and you yourself should not lose faith! more power to you guys..
Jason, this video of Daniel struck me in such a way; I had to share it with my friends. It completely broke my heart. So, I made a donation to the HDSA of Northern Florida through FirstGiving. Also, I really hope Daniel's recent brain surgery will help him in some way. Dan really is The Man!
its one thing to learn about this disease in class but an entirely different thing to see it in real life. I think your an awesome brother man and Daniel is a trooper. God bless
Hi! I'm studying medical terminology and, after reading about HD, I wanted to see what the symptoms looked like and found this video. Daniel, thanks for teaching me about HD! Life can't be easy for you, but never give up hope! You seem like a wonderful gentlemen with a heart of gold... I'm sure your many wonderful qualities shine forth brighter than the sun, and HD can never take that away from you! Keep on fighting!
@jmundy1971 Hey, just want to say how strong your brother is. But not only him; you too. Some people tend to overlook the people who's responsibility it falls down to look after the loved one with the disease, so I Just wanted to take a moment to tell you that you are incredibly strong to do what you do. I know you don't really have a choice, because its likely there's no one but you to look after him. So well done. My hats off to you for being so strong.
@jmundy1971 Secondly, I need some advice, man. My girlfriends mum has HD very badly. And my GF is her primary carer. and I've recently started going with my girlfriend to her mum's care home as support for my girlfriend. To know she's not alone. And I guess it never really hit me how much care is needed for someone with HD, and how it may effect the loved ones mentally. And seeing all the things my girlfriend does for her mum. It absolutely terrifies me.
@jmundy1971 - I mean, it really, really hit me that I may be in her shoes one day, looking after her. But I didn't know her mother before onset of the HD, so I didn't experience the transition of perfectly healthy - rapidly detereorated. And it kills me to think that my girlfriend (my soon to be fiance) will detereorate this way. It kills her to see her mum this way, and I know it'll kill me to see her that way.
@jmundy1971 I don't think I'm strong enough mentally to give her the support she may need one day, and I don't mean this in a bad way. I love her to pieces, and not even HD will change that. It's just, I don't want to see her suffer, and I don't know if I can give her the level of care that she may one day need. Thinking about how our future may be one day with our roles all shifted. Me being the carer, and her being the cared for. How do you do it? How do you manage that kind of emotional stres
@jmundy1971 Of course, I can't really sit down with her and tell her all this, because who the fuck am I to break down over the possition I'm in when she is in a far worse possition? Living the first half of her life HD free, but still dealing with it in her Mum, only for the disease to take her, and for her to live through it all over again? I can't even begin to imagine what she is going through, or what she will go though. (She hasn't had the test, so we don't know if she has it or not)
Dude let me just tell you something I'm a 17 year old who i even admit can be a dickhead and I never cry but watching this and the fact he has a daughter and still fighting this disease.
BRAVO! you are, I don't even know what to say man I promise to you I will pray for you i promise keep fighting you will defeat it I beg of you, brought me to tears not allot of things can do that.
@Jeremiah20126 thanks for the kind words. Please help us raise awareness for Huntington's Disease by sharing the link to this video with all your friends
this guy is my hero, my mother passed away from hd just a couple months ago, she was an amazing women, huntingtons is a very hard thing to live with and to see a loved one go thru that pain, my prayers are out to daniel and his daughter
this guy is my hero, my mother passed away from hd just a couple months ago, she was an amazing women, huntingtons is a very hard thing to live with and to see a loved one go thru that pain, my prayers are out to daniel and his daughter
he has got it bad :/ like my aunty lyn and my nanna has got it too, hang in there! guys dont say" oh i have got badder!" because this is worse! you cant even walk good, talk good, or hear good... :( its really sad and hard to live with people around you that have it :'(
I have lost one cousin to this terrible disease and will eventually lose another. I pray they find a cure for this soon. Hang in there Daniel I will keep u and all others who have HD in my prayers!!
@Venugopala108 - Thank you for joining the medical field and I hope you remain passionate and continue to provide care for people fighting Huntington's Disease
Do people with HD lose weight quickly because of all the extra movement? When I was watching, it struck me that it must be really tiring doing all those movements.
@abicarey - YES people with Huntington's Disease have trouble keeping weight on. Since this video Daniel has had Deep Brain Stimulation surgery that has almost stopped the chorea (uncontrollable movements). Look for another video soon
I am suffering clinical depression and I must say that your brother gives me loads of will and hope.his case is really inspiring for everyone.Daniel's probably the person I admire the most.I wish him and his family the best.Keep on keeping strong
God Bless you Daniel, you know HE is with you... the big challenges were made for great souls like yours and many others else... I admire your fortress... Greetings
Thank you so much for sharing your story. I'm a medical student and found this video when I was looking for patients suffering huntington's disease and I was touched by it. It's a sad but encouraging movie. Your brother seems like a strong, brave and wonderful person. I wish Daniel, you and your family all the best. I'll keep you in my prayers.
I am sorry.. I cared for a parient this last week with this Horrible disease, and it is so difficult to see what it does to patient's. Just crying watching Daniel. He has a wondeful smile and spirit!! If this man can smile and radiate joy and be positive, why can't we all?? Our "Problems" are NOTHING compared to what these patient's fsace daily. I will most likely have this lady as a patient again
@jmundy1971 Daniel is an Angel and you are his Angel on Earth.. He is here for reasons that we can't begin to imagine.. I find strength in Heroes like you an dDaniel.. Have a Wonderful Father's day ( if you are a Dad)..
I'm REALLY SORRY to hear that Daniel has HD! :( Keep on fighting Daniel!!!!! You're the same age as me. I am going to believe that Kayla WILL NOT get HD! LOVE YOU BRO!!!! WE DO need to find a cure for Huntington's Disease!!! ~My name is Daniel too! :)
your a legend man, i have 2 daughters aswell, i have no diagnosis but my body is rapidly losing control, i cant see my daughters now because the doctors ruined my life and sent me to psychiatrists,im drinking a lot because i cant handle the symptoms. i miss my baby girls, i miss them so much, your a great man, so dignified, keep that spirit in you, love and peace
@guinnesshands - You wont find your answers in the bottle man. I had some uncles that tried that, believe me when I tell you that situation can get ugly
We studied this we were laughing at how our teacher described it but when she said that the only management was LIVING WILL, we were like silenced and then she said that people with Huntington's disease would die some 10-20 years after diagnosis, and that most were diagnosed at 35 y/o. I decided to watch a vid and stumbled upon this and I kinda teared up.
What age was he diagnosed? How is he doing? My prayers go out to you Daniel. Keep strong and god bless you :)
@erinpilla - He tested positive in 2001 (25 years old) and started showing symptoms around 2005. He is in mid-stages now. He has been 100% disabled and on SSDI for a few years now. He needs help with most things, personal higene and such. But he is a trooper and is fighting HD with everything he has. Please keep him in your thoughts and prayers
Daniel, thank you so much for sharing your story. It is very brave of you to help shed light on HD. You and your daughter are in my prayers. @jmundy1971, I want to be an encouragement to you by sharing my belief that your rewards won't be here on Earth (although I'm sure you have many rewards here with Daniel) I believe your greater rewards will be in heaven someday <3
@compactiontech - Thank you for sharing your belief. I also agree, there has to be something better than this world we live in (I'm just sayin, thats all)
This gentleman's exemplary courage should serve as an inspiration to us all. To say I'd be proud to have him for a brother would be a massive understatement.
my father died from HD. I got tested and I dont have the gen but my younger sister does :( She doesnt have any sympthoms yet, and I am so afraid of the future. All I know is Im gonna be there for her no matter what. I hope they find a cure soon, I believe in sience!
could huntingtons disease be cured by lowering the amount of the brains electical current to the nervous system? it might lower the amount of muscle spasms that occur and make it easier to control? sorry if the idea is dumb i was just thinking about it
@EXTR3MERAND0MN3SS - yes there is a way to accomplish that. It is by using a surgically implanted probes which provide Deep Brain Stimulation (DBS) to the Globus Pallidus (structures responsible for inhibiting muscle activation). Normally the Caudate nucleus provides this stimulatory input to the GP, but it is destroyed in Huntington's.
@EXTR3MERAND0MN3SS hey dude, huntingtons is a degenerative disease. youre losing neurons responsible for slowing movements in a specific area of the brain (neostriatum), its not about increased brain activity. you wouldnt wanna just downregulate brain function because well, its important for everything (not just movement) lol. anyways im just a lowly med student so dont hold me to this, but hope that clears stuff up for you.
Thank you for posting this, it can't have been easy, but it is really good for helping to increase understanding of the disease. Before watching the video, I always wondered what the basic effects of it were (like not being able to shave, etc) and this has really helped. Keep well! xx
Thank you for posting this. I'm sure it takes great courage to go through such a terrible disease. I am working on a project on Woody Guthrie who suffered from this disease and your video here gives me some visual understanding of how awful HD is but also how courageous some of those who suffer from it are.
This reminds me so much of my father. He passed away oct. of last year from HD. This disease is cruel an nobody should have to go through it. I also made a video of Dad in 2008 and put it on here. it's just a bunch of pictures. I wish I would have recorded him like this though. He really wasnt much of a talker about the disease though.
@jmundy1971 No I found out 2 years ago that I do have HD. I am not showing any signs of it, but I do know at some point in my life I will. I just went and got tested because I wanted to know. I was worrying more about the WHAT IF'S before I knew I had it... but now that I know, I dont worry as much. That might sound silly. I have a great Doctor I could not ask for any better. I have faith that there will be a cure soon. They are making so many discoveries with this.
@ValiumAlleyoop - Do NOT like they way the network portrayed the disease on that show. Why does everybody focus on the bad decisions people make with Huntington's disease. Not everyone kills their brother because he has HD!
@jmundy1971 ummm ma'am or sir...its just a TV show. I'm sure no one would kill their brother if they had Huntington's disease...but passing it on to your kids is just as bad IMO.
God is going to truly bless both of you for being so strong and posting this video. Your daughter is a doll as well. I will keep her in my prayers as well
wonderbeauty10 18 hours ago
This has to be so exhausting :( I am studying now how drugs based on THC (Marinol, Sativex) could save victim's of Huntington's from the awful symptoms and chronic movements. God Bless you and your daughter!
marcsr8 1 day ago
Love your beautiful blue eyes handsome. May God bless both you and your daughter!
debrada47 4 days ago
Comment removed
IWILLSTINGI 5 days ago
I found out today my best friend has the disease, he is 38 but showing no symptoms,will support him the best I can.
hammy1442003 1 week ago
You are an amazing brother.
NoeLee83 2 weeks ago
بعد عمري علا امي تعاني من نفس المرض
ادعوولها بالشفاء والله اموت من القهر لما اشوفها جذيه والمشكله مافي علاج لهذا المرض
الله يشافي امي ويشافي كل مريض يارب
omnaser79 2 weeks ago
@omnaser79 bichiffa inchallah
tinhi1 1 week ago
isnt it getting worse?
960power 2 weeks ago
33... As a young doctor i will do my best...
ThePiliniak 2 weeks ago
The fact that it's genetic and we know the genes involved actually implies that there will be a cure someday, as opposed to a treatment. The problem we face as scientists is that animal models only tell us so much, and it's obviously unethical to practice research of unapproved treatments, especially the large scale research that the FDA requires for the consumers' safety. To say there will never be a cure is not correct. It might take a long time, we might not be able to reverse the progressio
kphalpin 3 weeks ago 2
Unfortunately never will be a cure for this disease bcause it's a genetic isssue.
flaviothebrazilian 4 weeks ago
My boyfriend has a 50% chance of having this.
mallorykay13 1 month ago
It makes one wonder why these terrible diseases don't attack bad people, instead of the good.
vomitnoise2000 1 month ago
I just cried
TechnologyNewb 1 month ago
im crying
kawasakizturbo 1 month ago
So inspiring to see him still have spirit.
MikaMad14 1 month ago
your bravery is incredible and an inspiration. thankyou for helping share your story to all who watch this.
vullum666 1 month ago
I cried so much watching this.. my uncle is dealing with this disease alongside with bone cancer... the docs told us that he has like 3 weeks left..
Darkplayer01 1 month ago
Lots of research is going on into Huntington's disease. Find out more at hdbuzz.net. Good luck to Daniel and his family.
hdbuzzfeed 1 month ago
Oh wow. Having a disease such like that and It WONT break his spirit. I love is hope and his spirit. I bless you and hope that you break this curse.
Casperangryandmad000 1 month ago
Thank you Daniel for posting. My eyes and heart have been opened. God Bless!
Katherine2011ism 1 month ago
Love transcends all. Bless you both.
SweetPotato191 1 month ago
God Bless
Ygoodingceet 1 month ago
If daniel is still around then He must break that curse off of him by quoteing these verses Galatians 3:13 and 1 peter 2:24 and believe them, knowing God can not lie...Just keeping saying and believeing them.I am not ashamed of the gospel (good news) for it is salvation to the one that believes it and that's not many people...He dose'nt have to run to a faith healer and give all his money away either and that's real good news !
christophorM 2 months ago 3
I wish you and your brother the best. Huntington's is a horrible disease, probably the worse on my list however its good to see that your brother is taking it so well.
brunt3200 2 months ago
this video really touched me my name is jovanny im 14 years old my father has the disease therefore im in a 50% chance of getting this disease got bless you and keep taking care of him ;')
XomnamiX 2 months ago
How Is He Doing Now?
nikebabe55 2 months ago
This made me cry harder then I've ever cried, god bless you and you family :')
OCards12 2 months ago
You're the best brother anyone could wish for to take care of him. It gives a broader perspective to what an amazing gift that we have received and not to throw it away and to preserve every minute as the last.
PirateOfLoserville 3 months ago
god u r a nice person 4 taking care of ur brother
Bubblestarific 3 months ago
Im so sorry. My brother (best friend) lost his brother and sister to HD and he's at risk of it showing up in him...idk what i would do if he died :'(
bond1011 3 months ago
my girlfriends dad recently died of HD, her little brother shaun passed away of the same disease when he was 8. luckily she does not carry the gene which means she didnt pass it onto our now 8 month old son.
Sunscab14 3 months ago
Huntingtons runs in my family so I know how hard it is. My Mum has it really bad and needs constant looking after. But it's incredible to see someone with this horrid condition be so positive. I wish you both all the best for the future.
NextMuffin 3 months ago
God bless you. Keep fighting.
BalmungSama0 3 months ago
This is heartbreaking, this scares me, my mum has Huntingtons diasese i will be getting tested very soon, i'm so worried but god bless you both <3
ThekAbinger 4 months ago
@ThekAbinger I wish you the best of luck. I'll pray for both of you.
BalmungSama0 3 months ago
Thank you for sharing. I have never met a person with HD, but my heart goes out to you. You have inspired me to be an even better nurse when I graduate!
imjessij 4 months ago
This is heartbreaking. What's a good place to make a donation?
iHAVE1j 4 months ago
I'm very optimistic that we will find a cure one day. It's terrible to watch what those affected must go through and the fact that the disease passes down to each generation is quite alarming. Thank you for bringing more awareness to this crippling disease.
xchristyannx 4 months ago
My best friend has HD , I am starting a local charity in his name , the Dan Young Foundation , and have been in in touch with the HDSA in my area . This disease effects the family , and the friends , needless to say the victim. It's just not as "well known" as other disease's. Therefore it gets less research . On behalf of your Daniel , and my Dan , i will do my best to change that .
dammitttman8 4 months ago
may God have mercy on you
freddiego60 4 months ago
Im a med student currently in Medical School. I study very hard neuroscience as I aim to become a neurologist. Next year I will be working with HD, ALS, PD and AD patients. It is my dream to find a cure. We don't know much how and why yet. It will take many many years, please do not give up funding GOOD organisations - every $ counts towards a solution
piccololiang 4 months ago
poor guy
victim0001 4 months ago
How Is You Brother Doing Now?
nikebabe55 5 months ago
awwww he is handsome i must say :) god bless you both :)
candycane0710 5 months ago 36
Lmao! judgment!!!
IndianaTruth12 5 months ago
My dad, had died of this disease and he had 6 children, one of which is myself, my mother is struggling because of the money issues, but we are okay. He passed away over two years ago, and was 51.I hope you can find a cure, to benifit daniel, and everyone els in this world still fighting.
sallydee101 5 months ago
@sallydee101 im struggling with the same thing right now. it seems there is no hope and i feel completely alone. your father is in my prayers and god bless your family. i know how hard it can be.
WhatIsThinAnyway 5 months ago
Keep up the spirit! You are an amazing person!
twigmwb1212 6 months ago
This guy has an amazing spirit. He is so young too, I wish there was a cure for this. I pray he finds a therapy that helps.
ILUVHORSES1981 6 months ago
You are a great guy Daniel. Bless u.
jdeschamps80 6 months ago
ich wünsche dir viel Kraft Daniel , Gott beschütze dich .
OrganisationSakura 6 months ago
omg im sooo sorry daniel
jamacanfarts 6 months ago
Stay strong brother. Thank you so much for posting this. Hopefully one day i'll be able to help you and others with this disease
VReyland91 6 months ago
thank you so much to Daniel for your courage to add this video. i am studying HD at the moment and your video has helped me. thank you and keep up the good work.
TheDoonz92 6 months ago
hi guys,
HD is not yet curable. but as dan said "it can take control of your body, but, not your spirit" it is this spirit that keep you guys going. and it is the spirit of all good natured humans who viewed this video and commented, donated and prayed. good work all you people. good luck brothers.
kanishkapd 6 months ago
i have a 50/50 chance of having this..... My mom is going through this... its awful i hope they find a cure
AlxStat 7 months ago
@AlxStat why don't you make the test?how old are ya?
Bahamut347 5 months ago
@Bahamut347 16
AlxStat 5 months ago
I am in nursing school and we are studying Huntington's Disease. The text book does it no justice. You are a courageous, inspirational young man and will be in my prayers along with your family.
Maverick7538 7 months ago
This is so sad :( I hope a cure is developed as soon as possible
drekkenn 7 months ago
For what its worth I hope things get better for you guys
kickemassicus 7 months ago
God bless you for taking care of your brother like that
Tomacomo 7 months ago 30
@Tomacomo: What a powerful video. Thank you for posting it, and best of luck to both of you.
MultiRazorb 1 day ago
if you want to help cure?
this desease is not yet cureable. :/
armenianKAJF 7 months ago
I CANT SAY I KNO WHAT UR GOING THROUGH BUT MY GRANDMOTHER CAN HUNTINGTONS HAS COMPLETELY TAKEN OVER HER BODY SHE NOW IS BEING FEED THROUGH A PEEK TUBE ND IS BED BOUND DUE TO A STROKE SHE HAS HAD MY FATHER IS STILL AT RISK OF GETTING THIS DISEASE BUT SIR U HAVING A DAUGHTER ND BEING AS STRONG WILLED AS YOU ARE YOU ARE FIGHTING SOMETHING REALLY TOUGH ND I HOPE EVERYTHING WORKS OUT FOR THE BEST
-SINCERELY JOSE 'BONES' CABRERA
BONES675 7 months ago
this made me cry. you two guys are very brave to share this with us. keep fighting, dont let HD get in the way of what you want to achieve. many people are praying for you, and you yourself should not lose faith! more power to you guys..
sassygirl33e 7 months ago
Jason, this video of Daniel struck me in such a way; I had to share it with my friends. It completely broke my heart. So, I made a donation to the HDSA of Northern Florida through FirstGiving. Also, I really hope Daniel's recent brain surgery will help him in some way. Dan really is The Man!
lepfreak74 7 months ago
damn, my family is very lucky, no major diseases until today - f**k money, you know. but in case I hope I'll have the same balls you have.
elzorro1975 7 months ago
Hi Daniel, you're my fb friend along with Jason and your Mum. Hope you are doing ok, thanks for sharing this with us. Big koala hugs from down under.
time4sleeping 7 months ago
i wish i had the same strength you have for fighting your disease friend.
i don't have it, i'd get it i rly don't know what could happen.
best wishes
thehitman736 7 months ago
If I ever get this disease I don't know what I'll do...
travisking1990 7 months ago
@travisking1990 That counts for everybody who gets ir or are at risk;-(
Choefoe 5 months ago
@travisking1990 That counts for everybody who gets this OR is at risk.
Choefoe 5 months ago
Thank you for posting this video.
jcsjohnson 7 months ago
You're a GREAT brother!!!
aramosmd 8 months ago
this is so sad. D;
WoahhitsKarennn 8 months ago
its one thing to learn about this disease in class but an entirely different thing to see it in real life. I think your an awesome brother man and Daniel is a trooper. God bless
yucky1336 8 months ago
Honestly, I can never make it through this video without crying, before and after my mother pasted away.
She had Huntingtons as well, and I do have a 50% of having the same thing.
SonnePanda 8 months ago
you're a great brother
ecodyx 8 months ago
Comment removed
ecodyx 8 months ago
Asshole*
nmoehn93 8 months ago
Sit still ashore
nmoehn93 8 months ago
3 generations of my family have HD.... take a look at what I done for them youtube.com/watch?v=EzT3F-E0Tlo
bristolmarky10 8 months ago
Hi! I'm studying medical terminology and, after reading about HD, I wanted to see what the symptoms looked like and found this video. Daniel, thanks for teaching me about HD! Life can't be easy for you, but never give up hope! You seem like a wonderful gentlemen with a heart of gold... I'm sure your many wonderful qualities shine forth brighter than the sun, and HD can never take that away from you! Keep on fighting!
Kimbereli09 8 months ago
I put the donation in the name of Daniel Mundy..
savgal1211 8 months ago 3
@savgal1211 - Sweet. Just curious, where did you make the donation?
jmundy1971 8 months ago
@jmundy1971 Hey, just want to say how strong your brother is. But not only him; you too. Some people tend to overlook the people who's responsibility it falls down to look after the loved one with the disease, so I Just wanted to take a moment to tell you that you are incredibly strong to do what you do. I know you don't really have a choice, because its likely there's no one but you to look after him. So well done. My hats off to you for being so strong.
ShoeMage 3 months ago
@jmundy1971 Secondly, I need some advice, man. My girlfriends mum has HD very badly. And my GF is her primary carer. and I've recently started going with my girlfriend to her mum's care home as support for my girlfriend. To know she's not alone. And I guess it never really hit me how much care is needed for someone with HD, and how it may effect the loved ones mentally. And seeing all the things my girlfriend does for her mum. It absolutely terrifies me.
ShoeMage 3 months ago
@jmundy1971 - I mean, it really, really hit me that I may be in her shoes one day, looking after her. But I didn't know her mother before onset of the HD, so I didn't experience the transition of perfectly healthy - rapidly detereorated. And it kills me to think that my girlfriend (my soon to be fiance) will detereorate this way. It kills her to see her mum this way, and I know it'll kill me to see her that way.
ShoeMage 3 months ago
@jmundy1971 I don't think I'm strong enough mentally to give her the support she may need one day, and I don't mean this in a bad way. I love her to pieces, and not even HD will change that. It's just, I don't want to see her suffer, and I don't know if I can give her the level of care that she may one day need. Thinking about how our future may be one day with our roles all shifted. Me being the carer, and her being the cared for. How do you do it? How do you manage that kind of emotional stres
ShoeMage 3 months ago
@jmundy1971 Of course, I can't really sit down with her and tell her all this, because who the fuck am I to break down over the possition I'm in when she is in a far worse possition? Living the first half of her life HD free, but still dealing with it in her Mum, only for the disease to take her, and for her to live through it all over again? I can't even begin to imagine what she is going through, or what she will go though. (She hasn't had the test, so we don't know if she has it or not)
ShoeMage 3 months ago
@savgal1211 To the website for Huntington's that you show at the end of this video.. Thanks, I hope Everything is great with you and the Family.
savgal1211 8 months ago
HAPPY FAther's Day Daniel!!! We are donating some money today in Your Honor for a Father's day gift.. Everyone Donate today for Daniel!!
savgal1211 8 months ago
Dude let me just tell you something I'm a 17 year old who i even admit can be a dickhead and I never cry but watching this and the fact he has a daughter and still fighting this disease.
BRAVO! you are, I don't even know what to say man I promise to you I will pray for you i promise keep fighting you will defeat it I beg of you, brought me to tears not allot of things can do that.
Jeremiah20126 8 months ago 22
@Jeremiah20126 thanks for the kind words. Please help us raise awareness for Huntington's Disease by sharing the link to this video with all your friends
jmundy1971 8 months ago 2
@jmundy1971 Already have and still will man god bless
Jeremiah20126 8 months ago
this guy is my hero, my mother passed away from hd just a couple months ago, she was an amazing women, huntingtons is a very hard thing to live with and to see a loved one go thru that pain, my prayers are out to daniel and his daughter
riderwrestler8 8 months ago
this guy is my hero, my mother passed away from hd just a couple months ago, she was an amazing women, huntingtons is a very hard thing to live with and to see a loved one go thru that pain, my prayers are out to daniel and his daughter
riderwrestler8 8 months ago 4
@riderwrestler8 sorry to hear about your mom, We need to cur this disease before there are any nore Huntington's Disease Angels
jmundy1971 8 months ago
@jmundy1971 i agree 100% theres too many people out there at risk for HD, and all we can do is hope we will find a cure and be positive
riderwrestler8 8 months ago
@jmundy1971
I'm sorry but this disease cannot be cured. It's a genetic disease, so you can't do anything... :(
ruesselschnurpsel 8 months ago
so touching...
ahmedalwbari 9 months ago
@ahmedalwbari thank you
jmundy1971 8 months ago
he has got it bad :/ like my aunty lyn and my nanna has got it too, hang in there! guys dont say" oh i have got badder!" because this is worse! you cant even walk good, talk good, or hear good... :( its really sad and hard to live with people around you that have it :'(
mbmvcvdpzp 9 months ago
@mbmvcvdpzp we will hang in there, thanks for the words of encouragement
jmundy1971 8 months ago
I have lost one cousin to this terrible disease and will eventually lose another. I pray they find a cure for this soon. Hang in there Daniel I will keep u and all others who have HD in my prayers!!
kitkat6261 9 months ago
@kitkat6261 - Thanks for the prayers. I will also pray for you and your cousin
jmundy1971 8 months ago
I'm training as a cna and had to feed a girl with huntington's today. You're really brave. Thanks for this video...what an inspiration you are.
Venugopala108 9 months ago
@Venugopala108 - Thank you for joining the medical field and I hope you remain passionate and continue to provide care for people fighting Huntington's Disease
jmundy1971 8 months ago
Do people with HD lose weight quickly because of all the extra movement? When I was watching, it struck me that it must be really tiring doing all those movements.
abicarey 9 months ago
@abicarey - YES people with Huntington's Disease have trouble keeping weight on. Since this video Daniel has had Deep Brain Stimulation surgery that has almost stopped the chorea (uncontrollable movements). Look for another video soon
jmundy1971 8 months ago
I am suffering clinical depression and I must say that your brother gives me loads of will and hope.his case is really inspiring for everyone.Daniel's probably the person I admire the most.I wish him and his family the best.Keep on keeping strong
placebo150 9 months ago
@placebo150 - Thank you. My family's thoughts and prayers are with you as you battle your depression
jmundy1971 8 months ago
God Bless you Daniel, you know HE is with you... the big challenges were made for great souls like yours and many others else... I admire your fortress... Greetings
ailahtain 9 months ago
@ailahtain - Thank you for the kind words
jmundy1971 8 months ago
Thank you so much for sharing your story. I'm a medical student and found this video when I was looking for patients suffering huntington's disease and I was touched by it. It's a sad but encouraging movie. Your brother seems like a strong, brave and wonderful person. I wish Daniel, you and your family all the best. I'll keep you in my prayers.
JovH88 9 months ago
@JovH88 - Thank you. Help us raise awareness for Huntington's disease by sharing the link to this video with all your friends
jmundy1971 8 months ago
I am sorry.. I cared for a parient this last week with this Horrible disease, and it is so difficult to see what it does to patient's. Just crying watching Daniel. He has a wondeful smile and spirit!! If this man can smile and radiate joy and be positive, why can't we all?? Our "Problems" are NOTHING compared to what these patient's fsace daily. I will most likely have this lady as a patient again
savgal1211 9 months ago
@savgal1211 - God bless you. I wish all people in the medical field were as passionate as you are
jmundy1971 8 months ago
@jmundy1971 Daniel is an Angel and you are his Angel on Earth.. He is here for reasons that we can't begin to imagine.. I find strength in Heroes like you an dDaniel.. Have a Wonderful Father's day ( if you are a Dad)..
savgal1211 8 months ago
I'm REALLY SORRY to hear that Daniel has HD! :( Keep on fighting Daniel!!!!! You're the same age as me. I am going to believe that Kayla WILL NOT get HD! LOVE YOU BRO!!!! WE DO need to find a cure for Huntington's Disease!!! ~My name is Daniel too! :)
bamabudweiser 9 months ago
@bamabudweiser - Thank you for the well wishes. And YES we need to find a cure ASAP
jmundy1971 8 months ago
really a beatiful daughter ^^
nojoom66 9 months ago
@nojoom66 - Thank you
jmundy1971 8 months ago
your a legend man, i have 2 daughters aswell, i have no diagnosis but my body is rapidly losing control, i cant see my daughters now because the doctors ruined my life and sent me to psychiatrists,im drinking a lot because i cant handle the symptoms. i miss my baby girls, i miss them so much, your a great man, so dignified, keep that spirit in you, love and peace
guinnesshands 9 months ago
@guinnesshands - You wont find your answers in the bottle man. I had some uncles that tried that, believe me when I tell you that situation can get ugly
jmundy1971 8 months ago
Hi vey good video
bristolmarky10 9 months ago
@bristolmarky10 - THANK YOU
jmundy1971 8 months ago
i cried watching this and I don't know why
TheHairobsessed 9 months ago
We studied this we were laughing at how our teacher described it but when she said that the only management was LIVING WILL, we were like silenced and then she said that people with Huntington's disease would die some 10-20 years after diagnosis, and that most were diagnosed at 35 y/o. I decided to watch a vid and stumbled upon this and I kinda teared up.
What age was he diagnosed? How is he doing? My prayers go out to you Daniel. Keep strong and god bless you :)
erinpilla 9 months ago 3
@erinpilla - He tested positive in 2001 (25 years old) and started showing symptoms around 2005. He is in mid-stages now. He has been 100% disabled and on SSDI for a few years now. He needs help with most things, personal higene and such. But he is a trooper and is fighting HD with everything he has. Please keep him in your thoughts and prayers
jmundy1971 9 months ago 12
@jmundy1971 thank yo so much for sharing. I couldnt stop crying. I will definately keep Daniel and your family im my prayers.
diallka1 9 months ago
Daniel, thank you so much for sharing your story. It is very brave of you to help shed light on HD. You and your daughter are in my prayers. @jmundy1971, I want to be an encouragement to you by sharing my belief that your rewards won't be here on Earth (although I'm sure you have many rewards here with Daniel) I believe your greater rewards will be in heaven someday <3
compactiontech 9 months ago
@compactiontech - Thank you for sharing your belief. I also agree, there has to be something better than this world we live in (I'm just sayin, thats all)
jmundy1971 9 months ago
This gentleman's exemplary courage should serve as an inspiration to us all. To say I'd be proud to have him for a brother would be a massive understatement.
anx1300c 9 months ago
@anx1300c A truer statement could nort be made. Thank you for your kind words....
jmundy1971 9 months ago 2
perfectly normal looking guy. stay strong!
belovelyitsallgood 9 months ago
@belovelyitsallgood = He is AMAZING, I am lucky to have such a great brother
jmundy1971 9 months ago
my father died from HD. I got tested and I dont have the gen but my younger sister does :( She doesnt have any sympthoms yet, and I am so afraid of the future. All I know is Im gonna be there for her no matter what. I hope they find a cure soon, I believe in sience!
anniecash1 9 months ago
@anniecash1 - Keep that attitude I know exactly how you feel, Daniel is my younger brother
jmundy1971 9 months ago
@jmundy1971 Ive been reading about stem cells research on HD, that sounds like a real hope
anniecash1 9 months ago
could huntingtons disease be cured by lowering the amount of the brains electical current to the nervous system? it might lower the amount of muscle spasms that occur and make it easier to control? sorry if the idea is dumb i was just thinking about it
EXTR3MERAND0MN3SS 10 months ago
@EXTR3MERAND0MN3SS - don't know. I am far from a Dr
jmundy1971 9 months ago
@EXTR3MERAND0MN3SS - yes there is a way to accomplish that. It is by using a surgically implanted probes which provide Deep Brain Stimulation (DBS) to the Globus Pallidus (structures responsible for inhibiting muscle activation). Normally the Caudate nucleus provides this stimulatory input to the GP, but it is destroyed in Huntington's.
tsalkauskis 9 months ago
@EXTR3MERAND0MN3SS hey dude, huntingtons is a degenerative disease. youre losing neurons responsible for slowing movements in a specific area of the brain (neostriatum), its not about increased brain activity. you wouldnt wanna just downregulate brain function because well, its important for everything (not just movement) lol. anyways im just a lowly med student so dont hold me to this, but hope that clears stuff up for you.
spaghettidem0n 9 months ago
@spaghettidem0n Ya i went and read up on it after i watched the video thanks for clearing some wonders up for me
EXTR3MERAND0MN3SS 9 months ago
Thank you for posting this, it can't have been easy, but it is really good for helping to increase understanding of the disease. Before watching the video, I always wondered what the basic effects of it were (like not being able to shave, etc) and this has really helped. Keep well! xx
RionnagAlba 10 months ago
@RionnagAlba - TI glad my video helped shed some light on the physical effects of Huntington's disease
jmundy1971 9 months ago
Holy crap that's awful, Im doing a project on it for school but it didn't seem this violent of a disease :( you have my support.
goldfish551 10 months ago
@goldfish551 - Show your support by helping me raise awareness by sharing this link
jmundy1971 9 months ago
Thank you for posting this. I'm sure it takes great courage to go through such a terrible disease. I am working on a project on Woody Guthrie who suffered from this disease and your video here gives me some visual understanding of how awful HD is but also how courageous some of those who suffer from it are.
roycouped 10 months ago
@roycouped I am glad I could help. Please help me raise awareness by sharing this link
jmundy1971 9 months ago
I am thinking of you Daniel.
CrosbyisNo1 10 months ago
@CrosbyisNo1 - Thank you
jmundy1971 9 months ago
what a nice brother
SuperTeenaB 10 months ago
This reminds me so much of my father. He passed away oct. of last year from HD. This disease is cruel an nobody should have to go through it. I also made a video of Dad in 2008 and put it on here. it's just a bunch of pictures. I wish I would have recorded him like this though. He really wasnt much of a talker about the disease though.
ericajewell07 10 months ago
@ericajewell07 sorry for your loss. Has Huntington's disease skipped your generation? I pray it has....
jmundy1971 9 months ago
@jmundy1971 No I found out 2 years ago that I do have HD. I am not showing any signs of it, but I do know at some point in my life I will. I just went and got tested because I wanted to know. I was worrying more about the WHAT IF'S before I knew I had it... but now that I know, I dont worry as much. That might sound silly. I have a great Doctor I could not ask for any better. I have faith that there will be a cure soon. They are making so many discoveries with this.
ericajewell07 9 months ago
Daniel, you are an inspiration & a blessing. Thank you for allowing us to share in your fight against HD.
TJ054 10 months ago
@TJ054 - Thank you help us raise awareness by sharing this link
jmundy1971 9 months ago
Disaese
frogblunt 10 months ago
i admire him
nsrxrated 10 months ago
well, having this disease sucks, please know if you have it before you have kids and pass it on. We all have seen House MD, with Number 13.....
ValiumAlleyoop 10 months ago
@ValiumAlleyoop - Do NOT like they way the network portrayed the disease on that show. Why does everybody focus on the bad decisions people make with Huntington's disease. Not everyone kills their brother because he has HD!
jmundy1971 9 months ago
@jmundy1971 ummm ma'am or sir...its just a TV show. I'm sure no one would kill their brother if they had Huntington's disease...but passing it on to your kids is just as bad IMO.
ValiumAlleyoop 9 months ago
Wow, what an inspiring story. Amazing spirit! Dont let that fade. Keep on keeping on :)
crapfig 10 months ago
@crapfig - Daniel keeps fighting the fight! Thanks for the words of encouregement
jmundy1971 9 months ago
heyy i can tell hes a phillies fan!
pvbaseball12345 10 months ago
@pvbaseball12345 - How can you tell he is a Phillies fan, when he is a CUBS FAN?
jmundy1971 10 months ago