@rainbowbrite24 Krystle the Lupus Family Registry and Repository is world wide (I believe). You do not have to live in Oklahoma to participate. They send you the lab kit, you go to your local lab to have the blood drawn and you mail back in the kit. Then they send you a check for participating and also your results. This is genetic testing trying to locate the genes that cause lupus. You can call them toll free at 1.888.655.8787 or 1.405.271.7479
WOW ! You Tremia are my Lupus caped crusader ! God bless you ! This was very interesting . I look forward to your follow up vlogs on this. Thank you for taking me along on you & Dwayne`s field trip. Good luck tomorrow with your infusion. I hope it goes well & isn`t too hard on you. I`ll be praying for you. God bless your day ! pattyache
@pattyache The infusion went about as well as an infusion can go. The nausea really hit me hard but I'm ok now. I'm glad you liked the video. Please consider doing the genetic testing for the lupus gene. Call them at 1-888-655-8787 and they will send you the kit to take to your local lab plus you get compensated!!!
Excellent video! I wish they had something like that for research over here
rainbowbrite24 1 year ago
@rainbowbrite24 Krystle the Lupus Family Registry and Repository is world wide (I believe). You do not have to live in Oklahoma to participate. They send you the lab kit, you go to your local lab to have the blood drawn and you mail back in the kit. Then they send you a check for participating and also your results. This is genetic testing trying to locate the genes that cause lupus. You can call them toll free at 1.888.655.8787 or 1.405.271.7479
treappling1 1 year ago
@treappling1 That's great! Thanks for the info! I will call them for sure!
rainbowbrite24 1 year ago
really interesting vid!
reallifereslers 1 year ago
@reallifereslers Thank you. You can find out more at lupus.omrf.org
treappling1 1 year ago
Ditto to pattyache's comment. Keep us posted:)
codecherry57 1 year ago
@codecherry57 I will you can also go to lupus.omrf.org
seriously consider doing the genetic testing to help them find the genes that cause lupus.
treappling1 1 year ago
WOW ! You Tremia are my Lupus caped crusader ! God bless you ! This was very interesting . I look forward to your follow up vlogs on this. Thank you for taking me along on you & Dwayne`s field trip. Good luck tomorrow with your infusion. I hope it goes well & isn`t too hard on you. I`ll be praying for you. God bless your day ! pattyache
pattyache 1 year ago 2
@pattyache The infusion went about as well as an infusion can go. The nausea really hit me hard but I'm ok now. I'm glad you liked the video. Please consider doing the genetic testing for the lupus gene. Call them at 1-888-655-8787 and they will send you the kit to take to your local lab plus you get compensated!!!
treappling1 1 year ago