Added: 8 months ago
From: duckyfuzz777
Views: 5,206
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  • Thanks! thanks! thanks! This video is of infinite value to me!. You gave me an alternative to what he was using to walk properly. I'm from Argentina! I have 26 years and I still can not assume the disease. Thank you!

  • @sebamullerrosas These anklets are available in ebay? Sorry for my english :)

  • @sebamullerrosas  The cheapest place now is alldaymedical They usually run about 60.00 each. If you Google"foot-ups by OSSUR" you can find. Thank you for your comment, stay strong! My facebook page is "How do you live with Charcot Marie Tooth disease" if you would like to share your thoughts.

  • Thank you for the informative video. I also have CMT and I have been having more difficulty with balance and walking. I will try these braces and will start seeking medical treatment. I have been to neurologists, and I have been told to get physical therapy and occupational therapy, but I work full time and don't have the time to do all that is necessary. Work is becoming difficult I am always tired. Do you work fulltime? I hide my disability but its getting harder to hide. Thank you

  • Thank you for your presentation. Our fuut up orthotics arrived today.

    excellent.

    Thanks for the recommendation, your video was critical in the decision. Orthosis for my son 9 years old diagnosed with Charcot-Marie-Toth type 1

    Thank you.

    Greetings from Croatia

  • @boonoboono Thank you so much for this letter, it made my day that I could help. Since he is so little please be careful of the medicines he takes, certain foods that are toxic to him. CMT website has a list of everything toxic. All natural for us is always better. God Bless you, and stay strong. All my love.

  • where can i buy?

  • @luancp You can google foot ups by OSSUR and shop for them and find the cheapest site. They should run approx 60.00 each. I order a size large, as they run small. You can also buy replacement pieces that wear out seperately.

  • I cant seem to find that page bev. Have you had any experience with any of the other ossur braces?

  • Sorry the facebook page is, How do you live with Charcot Marie Tooth disaease!

  • Thank you Bev this was very helpful to me. I have CMT as well and every since the MDA stopped helping me buy my afo's I have been wearing the same ones for 8 years. I wondered about the foot ups and have to admit I wasn't to sure about how good they would be with severe foot drop like we have, I can see they help you a lot. I may buy some soon. I am actually waiting on fedex to bring my ossur leaf spring braces and I'm excited. Thanks for the cool video!

  • @Brandon420w Thank you for the great comment! And happy to help, it makes my life worth living thru the CMT! Hang in there and keep in contact. I have a page on facebook, "How to live with CMT" that you can make a comment on there too. We never know what could help each other, when no doctors can! Rock on!

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