Multiple Sclerosis: Dr. Zamboni & CCSVI - MORE THOUGHTS VOL. 1

[maciejwrotek]

nice video. but what if vein is blocked in the brain ? not in the neck ? Doctors wont see this blockage right ?

[worktosser]

what intrigues me is that for many years, I described one of my symptoms to my neuro, that I felt like my brain was swollen - like a pressure in my head/brain. I even had an MRA done to check for signs of an aneurysm. The CCSVI explanation makes sense to me. It looks like a DX for CCSVI would clear up so much.

Your my favorite PWMS IB. I think you rock bro.

[irishbear76]

@worktosser

Man, I appreciate that nice remark. There are a lot of amazing people with MS and if I am your favorite, that humbles me and gives me a lot of responsibility to live up to. :)

My good friend, Omar, (omexmc80) has that feeling like the head is going to explode.

He had one angioplasty, got a little better, restenosed, and just had his second a-plasty.

I have a strong feeling that he is going to feel a lot of improvement this time.

The 'head pressure" is the scariest of sx 2 me.

[AWDESIGNS8]

do you have ms

[irishbear76]

@AWDESIGNS8

Yes, I was diagnosed with relapsing-remitting MS in 2003.

I was liberated on 8/27/10.

I felt my last MS symptom on 8/26/10

The procedure varies in cost. It was covered with insurance in my case.

I have heard that the price ranges around 10-20 thousand USD.

This fell into my lap. I was not expecting to be able to get it done for at least a year from now.

God smiled on me.

[AWDESIGNS8]

@irishbear76 i think that is alot but if it worked and you did it thank god for you well i'm hoping things will go away with my ms too thats what we all want the symptoms to go away. love april i do hate when they but a big price on something that might help some one thats like stemcell its to much and you give hope when people cant aford it.

[AWDESIGNS8]

how much it is .is it in usa, i have no insurance do they do this for free . ok since he does this and wife has it ms ok i have no insurance . its not a cure so what is the point of paying alot for this . stem cell is helpful for ms to but i dont have 30.000 hope thats all we have hope

[irishbear76]

@AWDESIGNS8

If insurance did not cover it.

I would still be waiting to have it.

I just left it up to God.

My call came within days of declaring this in a video.

Keep faith, sleep with your head of bed elevated, love all that you encounter and BELIEVE.

Mark

[AWDESIGNS8]

@irishbear76 thank god for insurance i don't have it. but i'm happy for you and its working ms can stop for 10 years or more when you have it you just have to watch what you eat exercise and believe in god any one who has a illness like that . thats what i do and if i have a relaspe i'll deal with it. merry christmas to you and your family god mind and spirit love april

[chrychek]

Agreed. Doctors don't buck the system usually, so this is great for him to speak out rather than stay silent like so many. CCSVI needs to be approved in Canada!

[irishbear76]

@chrychek

I pray for this.

[ThePennygirl]

You were not ass hole! in my opinion! so happy to here you may be able to get the Lib treatment how exciting Mark :) we love you.

susan

[Chairoraccoon]

Also, there is a theory that the blood to brain barrier is compromised at the blockage. This allows white blood cells to enter the brain area. The brain is walled off from the rest of the body. White blood cells will attack the brain as a foreign object leading to scaring. Metal can play a part! I was subjected to a reasonable amount of metallic dust just prior to an attack, less than 24 hours later I had my first attack that sent me to the Dr.  I could hardly walk or stand up.

[Chairoraccoon]

I believe that there may be more underlying reasons that make doctors skeptical to a procedure versus long term physical therapy and drugs. I have worked with a former Cardiology Lead at UCSF. It seems there may be a link between funding institutions and drug industry. I think its much simpler than someone just missing it ... I think certain institutions will balk at any procedure that fixes the problem, rather than long term income. I have MS, want the new procedure, will never take drugs.

[teecee62]

I will never lose hope or faith. I do, however, strongly believe that the major drug companies will do anything and everything possible to stop this treatment from being available to us. Think about it. How much money per month do we all spend on our "disease modifying therapies"? Thousands of dollars. The drug companies have everything to lose if this actually works. They don't care about us as people. They care about our money. They will spend zillions to block this. We cannot allow that

[joserafaf]

Hi Mark hiw are you? thanx so much for sharing so good what you were talking about!! thanx budy so much and overall God bless you!!

[irishbear76]

@joserafaf

God bless you!!!

[jennybird22]

Bravo! Well said and so relevent. Thank you Irishbear. You motivate me.

Speaking of viruses, I presented with Shingle at the same time as my 1sy m.s. attack. I have always thought that a virus in involved as well. I can feel what it would feel like to have my veins opened. Fuzzy head gone. Balance restored.

Keep up the awesome work Irishbear.

Jenny

[irishbear76]

@jennybird22

Thank you, Jenny!!!!

[medad1]

Hi Mark

Can we say now that MS is not an autoimmune diseases?

I talked to a vascular surgeon 3 days ago, who did this surgery to more than 10 MS patients, and he told me that this narrowing is not similar of other disease which could means happened caused of MS !!!

So can we say now it's a vascular problem?!!!

Regards

Mody :)

[irishbear76]

@medad1

Multiple Sclerosis is an autoimmune disease. The data supports this.

The problem with this is. What causes MS. What causes the auto-immune characterstics of the disease.

The Blood brain barrier breaks down from reflux of blood from stenosis.

The immune system gets in the brain, iron deposits accumulate et blood components.

The immune system then destroys the white matter et myelin.

Both theories are correct. Stop the stenosis. Stop the MS.

[npiltan]

its a very good news how can i find dr zamboni or where doing this surgery?

[azeribest]

Only the one who have been closely affected by this dissease (especially family member) can so heartily constribute and Zambonis one of them. His ideas is more logical than any other ideas. May God help us all to get one day the comlete good news.

[haz740]

all the msers should stick together and fight for the liberation treatment to be tested and examined as soon as possible

[irishbear76]

The primary thing we can do right now is get the word out and be diligent about this not getting swept under the rug.

[haz740]

I believe in this makes complete sense, this could be it cured without any side effects. what scientist s need to look at is that this it its proved can help millions with changing lifes. there has to be tests done in uk now its works

[Alexknobsob]

This is totally consistent with the "stagnant blood in the head" observation of mine and the flushed pink-look of so many of us.

[irishbear76]

Absolutely.

It all makes a lot more sense with this CCSVI discovery.

[lynne4cobis]

What is Gatorade? Do we have an equivolent in Edinburgh? I get very thirsty especially if I wake up at night and diluted blackcurrant juice is my favourite tipple. A cool drink on rising helps my heat intolerance and so improves my balance and my early morning bed heat induced fatigue. Putting my feet from bed to a bucket of cool water does too( not if you suffer from. Bladder weaaknes!)

[irishbear76]

Gatorade is an AMerican drink developed at the University of Florida to hydrate the Florida Gators football team.. It is basically a solution of electrolytes and sugar based in water with yummy flavors.

I cannot think of another drink like it other than Powerade. Just have another glass of water after the blackcurrant juice and eat a banana and you will get the same effect.

[notapplicable66]

Electrolytes are very important for us to have because we tend to get dehydrated a lot. That's the problem with drinking coffee that has caffeine it in, (even though caffeine helps us) because it dehydrates us. So it's good to drink some gatorade once in awhile. A lot of days I fine myself craving gatorade.

[notapplicable66]

Drinking too much water can kill you. Even when doctors have told us for years to drink 8 glasses of water a day is false. Doctor Oz said it was a myth. You don't need to drink 8 glasses of water a day. Because there is a lot of water in other things we drink and eat.

[lynne4cobis]

Not much chance of me overdrinking! Too busy at work to spend more pennies than I do already although a quarter teaspoon of Epsom Salts in juice at bedtime works for me. I also take 2000mg of vitamin D and Omega 3 and feel much brighter and stronger! Thanks for encouraging so many folk when the UK MS Soc lets us down all the time!

[lynne4cobis]

Thanks,Ib.did you hear about Watercure? Drinking your body weight in water seems to have done wonders for some MSers. Do you think it detoxified or makes the blood less viscous. Could it make room in the veins or wash out iron ?

[irishbear76]

I do not recommend that AT ALL.

YOu could flush your electrolytes and have a SERIOUS DEADLY REACTION.

There is a condition called psychogenic polydipsia where psych patients drink excessive amounts of H20. SOme have been know do have cardiac arrest due to flushing out their sodium and potassium which aid conductivity in the heart.

DO NOT DO THIS PLEASE

[vashiras]

There is so much greed in the world that I'm sure that there are organizations that do not want a cure for MS as well as other illness...cancer etc.

Everyone who cares has to fight for this. Do everything you can to prevent this from being swept under the rug (might be too late now since the cats already out of the bag).

[irishbear76]

too late, indeed!!!!!!

[lynne4cobis]

What causes the iron to occlude the veins? Why does moving to Australias year round sun make such a difference? Why does a low fat do the same as does uric acid- rich food? Why do dark- skinned folk in cooler climes like Mrs Obamas late dad get MS? Is it all connected? Where does the excess iron come from or are the veins thinner than they should be?

[irishbear76]

THe veins are occluded without the help of iron. IRON just collects from the blood that stagnates after being pushed past the blood brain barrier because of the CCSVI. Low fat = low cholesterol which helps occluded veins. Dark skinned people still have some WHITE ancestry in most cases. Even if we have no excess iron in the blood ANY amount in the brain is toxic and could spur an autoimmune event and inflammation leading to....

EXACERBATION.

This discovery will help.

TRUST.

[183vicyou]

I appritiate everything you doing and I have been following your videos as soon as they come out however now that you having all these followers i was wondering wouldn't be a good idea if let people know what step they need to do next.  i myself try to send letters and make phone calls to all news media , Montel, Dr. Nancy on MSNBC, as well all the other people that comes to my mind:)

I hope you can mention that on your videos that we need to spread the news around as much as possible. thanks

[irishbear76]

SURE.

I just need to get a few minutes to make more vids.

THEY ARE WORKING ME TO DEATH AT WORK and I AM CHOMPING AT THE BIT TO HELP!!!!!!!!!!!!!!!!!!!!!!!!!!­!!!!!!!

Blessings,

Mark

[mudman38104]

something else...this is why I had the blackouts during a rapid growth at age 11-12.

[irishbear76]

I am about 90% sure that those blackouts were related to the condition that later gave you MS.

p.s. I really enjoyed your song.

[mudman38104]

I can't even begin to say how much sense this makes to me. my heart is racing right now. thanks for your videos.

[Feverant]

mate i enjoyed this vid! you're rather informative.

[irishbear76]

Thank YOU!!!!

[lynne4cobis]

Wow just got an email to log on to this at 4pm today after a long teaching day in Edinburgh!( Scotland has worse M.S. in the world. I have had it for 27 years am on LDN and have researched it all that time. Can't take it in. Makes such sense!

No M.S. in my family but circulation and vein problems aplenty! Biggest shake up for years! God Bless You!

[irishbear76]

SAME THING HERE!!! I am the only one with MS but circulatory problems galore.

I am of Scottish heritage and I have seen that being Scottish or of Scottish descent IS A FLIPPING RISK FACTOR for developing MS.

God bless you back.

Mark

[dmplaura]

Hey hun. I think this is a another case of Lorenso's Oil. Love finds the cure, or the closest to the cure that we have seen.

I'm 110% believing this one. I've thought through the symptoms and my family history. MS didn't make sense, vascular problems, woah... another story, completely my family.

[irishbear76]

I couldn't have said it better myself.

DITTO.

[watoo75]

Hi Tk you very much 4 your videos. Are you doctor? It is a huge breakthrough in research on ms! But we must be cautious and participate in int. studies.The faster, the better . I had Buffalo : 500 patients will be involved in this discovering 4 Doplers, before the end of 09. Almost 2000 patients for 2010. At the end of 2010, we will no if it is OK for us... Everyone hopes so. Anyway, i will continue my tysabri cure...(the 5th). See you Jé ps: I am from Paris, sorry 4 my english.

[irishbear76]

It will take time but if this will do what I think it will do then it will be made available.

Your English is fine and NO I am not a physician.

Take care,

Mark

[mkallion]

Hi Mark

Thanks for your videos. I agree with everything you said. One thing I still can't reconcile is how CCSVI explains the higher incidence of MS in certain geographical locations ie. Colder climates or where theres less sun. Any thoughts? Thanks buddy. Keep up the good work!

Mike

[irishbear76]

Mike,

Look up the effect that Vitamin D (THE SUNSHINE VITAMIN WHICH IS ACTUALLY A HORMONE) has on cardiovascular health and your correlation should be apparent.

Mark

[angelusa73]

Well, dear Mark, you know that you got me with this video because I agree with everything you have said here! (again!).

We should always be careful but we should also be very optimistic!

Great work, dear Mark! Its good to hear you and its nice to see you doing so well and feeling so excited about this!

I am working on my flowers4MS facebook page where I am sharing the latest news from Zamboni's and the different MS Societies that are having different views on this.

Thank you for being you

[irishbear76]

Thanks Angela.

I have to get excited because this news needs to travel and people need to get excited about this procedure.

This offers real hope.

God bless.

CiaO

Mark

[jewella101]

good work :)

[irishbear76]

Thank you.

[AndrewRoche]

Thanks for the vids

[irishbear76]

You are welcome. Please research this it is very interesting.

[sklambert]

Thanks...keep them coming!

[irishbear76]

I can't doo it cap'n I haven't got the POOOWER.

LOL.

Thanks Stace!

[Armando7654]

Man, I gotta return the favor as I was not aware of CCSVI until 2 days ago.

Good news! You can do that surgery in Poland. They take new patients!

The city: Katowice

Street: Rolna 18

Tel. 354-057

Located close to Franz Josef Hotel

The clinic name: EuroMedic

One of the main doctors who conducts the procedure there is: Marian Smirka call for appointments 32-2120498.

They charge around $3,400 USD. for fixing you up!

[irishbear76]

Thanks but I saw the movie HOSTEL.

NO THANK YOU.

Just kidding. I will definitely look into this as well. I appreciate the info.

God bless.

Mark

[Armando7654]

LOL.

that's the same clinic that's advertised on YT in one those vids on ccsvi-MS

[astronautsandwitch]

man i hope he's right. i am tied and scared of tysabri

[irishbear76]

Amen.